Caregivers need care too.
As a caregiver, it is easy to be overwhelmed by caring for a cancer survivor. An important point to remember is that you, as a caregiver, are also a survivor because you, too, are surviving the challenges, responsibilities, and life-changing effects of this disease and its treatment.
We have compiled a comprehensive list of caregiver support resources, including agencies, organizations, and websites providing emotional and psycho-social support, access to supportive care communities, and other helpful resources especially for families and caregivers.
This booklet from the National Cancer Institute was written to share common feelings and reactions that many caregivers have had after treatment has ended. It also offers some practical tips to help through this time. It is available as a PDF, for Amazon Kindle, or as an eBook.
Because caregivers are focused on the daily activities, such as going to doctor’s visits, preparing food, coordinating care and services, or offering emotional support to a loved one, they may neglect their own needs. This booklet from the National Cancer Institute "provides ways for a friend or family member to take care of themselves while caring for someone with cancer. It gives you communication and self-care tips to focus on your needs while helping your loved one too." It is available as a PDF, for Amazon Kindle, or as an eBook.
Frankly Speaking About Cancer: Coping With the Cost of Care is for people who want to know more about managing the cost of cancer care. It can be difficult to find one place where people affected by cancer could learn about practical matters such as insurance coverage, Medicare and Medicaid, co-pay assistance, Patient Assistance Programs, Social Security, health care reform, and other resources to help manage cancer-related finances.
Links to Caregiver Organizations and Information
Help for Cancer Caregivers is a unique collaboration of organizations with a shared goal of improving the health and well-being of the people who care for people with cancer. Please be sure to tell any caregivers you know about this site.
Learn about what to expect if you become a caregiver for a person with cancer, as well as find suggestions and tips for making sure that you take care of yourself. This page includes links to American Cancer Society (ACS) publications, support networks, and online communities.
Atlas of Caregiving explores the everyday practice of family caregiving. Their research "applies new methods to collecting, analyzing, and presenting detailed contextual data to address these questions, and more."
The American Society of Clinical Oncology (ASCO) site defines the role of caregiver and the potential challenges caregivers face.
The Caregiver Action Network (CAN) is a nonprofit providing education, peer support, and resources to family caregivers across the country free of charge.
A nonprofit providing free websites that connect family and friends — and ease the burden of keeping family and friends informed — during a serious health event. Authors add health updates and photos to share their story while visitors leave messages of love and support in the guestbook.
Founded in the late 1970s, the Family Caregiver Alliance (FCA) was the first community-based nonprofit to address the needs of families and friends providing long-term care at home. FCA now offers programs at national, state, and local levels to support and sustain caregivers.