ADVOCACY PROGRAMS & RESOURCES
dvocacy is more than just under-
Advocacy Action Center
standing the issues. To make a
IMF's Advocacy Action Center offers
Adifference, you have to make "onestop"shoppingforfederallegis-
your voice heard. The involvement of
lative and regulatory information.
myeloma patients and their caregivers is
Found on the IMF Web site at
vital to the success of IMF's grassroots
www.capwiz.com/myeloma/home, it
efforts. To assist you in your advocacy
contains information on the important
activities, IMF provides the following ser-
issues that IMF is tracking for you. You
vices and information:
can send messages to your legislators
directly from the site. The Action Cen-
Advocacy Toolkits
ter also includes such features as:
Advocacy Toolkits@ contain material
to assist myeloma advocates in de-
o
"Template Letters" which are pro-
veloping collaborative strategies to
vided to send via e-mail or fax to
educate legislators on topical issues
your Members of Congress on
affecting patients. The toolkit includes
crucial policy issues.
information such as (1) How a Bill Be-
comes a Law; (2) Building Relation-
o
"Sponsor Track" which attaches
ships with Legislators; (3) Do's and
information on relevant bill spon-
Don'ts in Government Relations; (4)
sorship on the bio pages of Mem-
Glossary of Legislative Terms; and, (5)
bers of Congress.
Guide to Legislative Staff Titles. The
Packets are available for download-
ing from the Advocacy section of
o
"Vote Scorecard" listing every
Member of Congress and how
IMF's web site at www.myeloma.org.
they voted on bills of interest to
the myeloma community.
Myeloma Action Network
o
"Congress Today" providing daily
Becoming a member of the Myeloma
schedules of House and Senate
Action Network allows us to focus our
activity
including
committee
"E-Mail Alerts" directly to those mye-
hearing schedules.
loma advocates who reside in the
state or district of the legislators we
need to target. These Alerts provide
o
"Tell a Friend" which enables users
strategic information to affect key
to send Alerts, Votes, and other
policy issues of interest to IMF and the
legislative-related information to
myeloma community. To receive the
one or more myeloma advocates.
E-Mail Alerts, you must sign up on the
homepage of the IMF Advocacy Ac-
o
A searchable "Guide on National
tion Center at
and Local Media" including news-
www.capwiz.com/myeloma/home.
papers, magazines, and TV net-
works and stations; users can send
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e-mails, faxes or printed letters to
newspaper journalists, radio talk
Public Policy Statements
show hosts, and television com-
IMF produces statements and letters
mentators.
aimed at decision-makers on a varie-
ty of public policy issues. These doc-
Cancer Statement of Principles
uments can be found on the Advo-
IMF developed the Cancer Statement
cacy homepage at myeloma.org.
of Principles to:
Advocacy Updates
Advocacy updates on issues and
o Focus and establish the priority is-
sues to be addressed by IMF.
legislation important to myeloma pa-
tients are included in the e-mail new-
o Inform
myeloma patients, col-
sletter Myeloma Minute and the
league
organizations,
govern-
quarterly publication Myeloma To-
ment officials, the media, and the
day. These advocacy updates can
public about IMF's public policy
also be viewed online on the Advo-
concerns.
cacy homepage at myeloma.org.
o Provide a continuing framework
for IMF to review and report on
actions that address current and
past policy concerns.
The Cancer Statement of Prin-
ciples can be downloaded from
the Advocacy section of IMF=s
web site at www.myeloma.org.
Don't forget that the Principles are
excellent "leave behinds" when you
meet with your Members of Con-
gress!
CONTACT
Christine Murphy
Arin Assero
Director, Government Affairs
Communications and Public Policy
International Myeloma Foundation
International Myeloma Foundation
6534 Marlo Drive
12650 Riverside Drive, Suite 206
Fal s Church, Virginia 22042
North Hollywood, CA 91607
Phone: 703-738-1498
Phone: 800-452-CURE (2873) EXT. 232
Fax: 703-349-5879
Fax: 818-487-7454
E-mail: cmurphy@myeloma.org
E-mail: aassero@myeloma.org
8/3/09
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