Volume 4, Issue 1
Spring/Summer 2011
A publication of the IMF recognizing our supporters
elebratingifebyGIVINGBACK
M200
Win a fabulous vacation getaway for two
7 days and 6 nights at the beautiful
Four Seasons Costa Rica at Peninsula Papagayo.
See page 8
In this issue:
My Story: Racing Toward Awareness 3
Celebrating Life
4
A Walk in the Woods
7
Myeloma 200 Closer to A Cure
8
The Games We Play
9
"I Do" for the IMF
9
4th Annual Comedy Celebration
10
The Hope Society
12
Dear IMF Supporters,
Planned Giving
13
Brian D. Novis Research Grants
14
Throughout the year, people from all over the country call and email the IMF
Calander of Events
14
to ask one simple question: What can I do? I like to think of these people as
the unsung heroes of the myeloma community people who, having already
been put through the ringer with a myeloma diagnosis, bring together their
friends and families not just to raise money for the IMF, but also to increase
IMF Staff
myeloma awareness in their communities.
Susie Novis
David Girard
President
Executive Director
This is why we began publishing Making Miracles more than two years ago,
Jennifer Scarne
Daniel Navid
Diane Moran
and why putting it together has become one of the projects I most look for-
Chief Financial Officer
Senior Global Analyst
SeniorVice President,
Strategic Planning
ward to during the year. It is our opportunity to brag about how wonderful
Heather Cooper Ortner
Lisa Paik
the people who support the IMF truly are.
Vice President, Development
Vice President, Clinical Education
& Research Initiatives
___________
In the past year, we noticed a very positive trend. In total, IMF members raised
Betty Arevalo
Missy Klepetar
nearly $400,000 through events ranging from bake sales to fashion shows and
Database & Inventory Control
Hotline Associate
everywhere in between and that is definitely something to celebrate!
Arin Assero
Phil Lange
Director of Advocacy
Accountant
Suzanne Battaglia
Andy Lebkuecher
As we move forward through 2011, there are already a dozen events in the
Director of Member Events
Regional Co-Director,
Support Groups SE
works, and plenty more to be planned. We're looking to further expand the
Nancy Baxter
Hotline Coordinator
Kemo Lee
abilities of our members to set up their own event web pages and use social
Zsolt Bayor
Specialty Member
IT Consultant
Services Coordinator
media (find us on facebook.com/myeloma and on twitter @IMFmyeloma) to
Debbie Birns
Randi Lovett
Director of Annual Giving
help promote these events as their dates draw near.
Hotline Coordinator
& Social Media
Joanie Borbely
Kerri Lowe
Regional Co-Director
It takes a lot of work to help organize dozens of events all over the country
of Support Groups, SE
Development Intern
Jim Needham
at the same time, and for that I have to thank Suzanne Battaglia, Director of
Greg Brozeit
European Programs
Publication Design
Member Events, for her passionate dedication to ensuring that all those who
Meghan Buzby
Selma Plascencia
Advocacy Grassroots Liaison
Data Specialist, Office Manager
ask "What can I do?" get the answers they need.
Kelly Cox
Abbie Rich
Director,
Webmaster
Looking forward to another year of celebrations in 2011!
Support Groups Outreach
James Ross
Paul Hewitt
Major Gifts Officer
Hotline Coordinator
Robin Tuohy
Warmly,
Spencer Howard
Regional Director,
Meeting & Event Services
Support Groups NE
Marya Kazakova
Judy Webb
Publications Editor
Project Manager
Heather Cooper Ortner
IMF Board of Directors
Vice President of Development
Brian G.M. Durie, MD
Susie Novis
Loraine Alterman Boyle
John O'Dwyer
Mark S. Di Cicilia
S. Vincent Rajkumar, MD
Donna Feig
Matthew Robinson, MBA
Michael S. Katz, MBA
E. Michael D. Scott, CPA, JD
Benson Klein, JD
Igor Sill
Robert A. Kyle, MD
Allan Weinstein, PhD
Edith P. Mitchell, MD
Amy Weiss
Charles Newman, MS
MY STORY:
acingowardwareness
by Keith May
When I was diagnosed with myeloma, I had burning desire to learn
voting stage of the contest. Since
as much as possible about living life with the disease, about the
my goal was awareness, it was an
prognosis for survival with current treatments and updates on prog-
emotional milestone.
ress toward improvement of those treatments and even a pos-
sible cure. For me, the International Myeloma Foundation's website
Round One of voting opened in mid August. The IMF and I encour-
(myeloma.org) became my safe haven for feeding this starvation for
aged voting by communicating with people through web pages,
knowledge. And I was so thankful for what the IMF and its website
email, Facebook, Twitter all sorts of social media outreach. I even
provided that it moved me to begin thinking of ways to give back.
did a few local television and radio interviews, including a feature
that appeared on WMDB-TV, the CBS affiliate
In June 2010, I was watching a NASCAR race on
in Central Illinois. Some folks were so
television. During a commercial break, I
inspired by our outreach that they
saw a commercial about a national
initiated their own blog and Inter-
contest called Sponsafier, pro-
net efforts. The ripple effect was ter-
moted by Toyota Racing. The
rific. That alone meant our vision for
contest
involved
contestants
awareness had been realized.
designing graphics to place on a
racecar model in order to promote a
Our "get out the vote" strategy really paid off. In
cause. The contest rules explained that the win-
mid-September we were selected as one of 100 entries to
ner would be determined by public voting, and that the winning
advance to Round Two the semi-finals! One out of 100 from more
design would be applied to a full-sized racecar and showcased at a
than 52,000 entries! At this point I was truly already content with
future NASCAR event. This was it. This was exactly what I was look-
our success. Even if we didn't eventually win, we had already truly
ing for to help raise awareness of myeloma and the IMF.
raised awareness for myeloma and the IMF.
The potential of a myeloma and IMF awareness design being show-
But we had another round of voting to promote. We employed the
cased on a national stage was exciting. I have always enjoyed tinker-
same outreach strategy for Round Two. It too was a smashing suc-
ing with graphic design, and I am a fan of NASCAR racing, so I knew
cess, and in early October we learned that we'd advanced to the
how a typical "paint scheme" should look on a racecar. The contest
Finals. The top 10! More awareness. More visibility. Another amaz-
involved a website that included graphic design software, so I also
ing victory.
had a program to work from.
In the Final Round of voting, we competed against nine other very
I enthusiastically called Suzanne Battaglia, the IMF's Director
worthy causes, including amyotrophic lateral sclerosis (ALS), Hun-
of Member Events. Her excitement and endorsement of my idea
tington's Disease, sarcoma, and promotion of teenage seatbelt use.
made me feel even more inspired. We talked for almost an hour,
The people behind these designs were as passionate about their
and brainstormed an outreach strategy contingent upon getting our
cause as we are for ours, and I have enormous respect for that.
design approved by Toyota.
We all live everyday knowing that life's end will eventually come.
I jumped into the design work right away. I named my design the
But receiving the diagnosis that you have an incurable disease that
"Myeloma Survivor." Creative juices were flowing, but the approval
could define that end changes your outlook on life. We didn't win
process was a difficult one. Toyota was very strict about approving
the Sponsafier contest. By that I mean, our design wasn't the one
designs because of trademark and copyright laws. We had to submit
selected for the racetrack. But over the course of three months,
several iterations of our design. I won't lie, there was a point when
more than 20,000 voters supported the Myeloma Survivor, and our
I was within an eyelash of giving up. But like all of us battling this
cause was promoted all over the world. How can we possibly call
disease, I just kept fighting. Eventually the effort paid off, and our
that not winning? And I had a blast.
design was approved we were allowed to move on to the public
800-452-CURE (2873)
3
International Myeloma Foundation
elebratingifebyGIVINGBACK
"It was way over the top of what people expected!"
This enthusiastic report comes from Marty Levine, part of a group
and awareness."
of impassioned friends who prove that when people are inspired,
As they got started, the group reached out to the IMF. "Suzanne
great things can happen. On October 20, 2010, that great thing was
Battaglia and the organization were a great help," Jamye says. "They
A Celebration of Life at Kasbah, an evening of food, drink, entertain-
gave us tools and the wisdom of their
ment and support of the IMF.
fundraising experiences to create our
For several years, four couples Nancy
own event."
Nashban and Marc Rubin, Phyllis and Allan
They decided that the first step was to
Weinstein, Adrienne and Marty Levine,
secure a venue. Allan visited the manage-
and Jamye and Evan Katz--have together
ment office for the Intercontinental Mon-
attended the IMF's Annual Comedy Cele-
telucia Resort and Spa in Paradise Valley.
bration. The friends' ties run deep, as does
"I live on their property, and I know they
their relationship with myeloma. Allan
host several charity events every year,"
Weinstein was diagnosed with myeloma in
Allan explains. "I was hopeful they might
2002. When Marty, his best friend, learned
"I went to the IMF website and choose us for 2010." And after a terrific
about Allan's diagnosis, he thought, "Oh
initial meeting, they did. "We received
my gosh--another kind of cancer."
found a wealth of information." tremendous venue support," Allan says.
Jamye Katz had not heard of myeloma before Allan's diagnosis
"They gave us the space free of charge, as well as all of our food for
either. "I investigated it more on my end," she recalls. "I went to the
free or at a great discount. The Intercontinental's enormous gener-
IMF website and found a wealth of information." Soon, myeloma
osity was critical to the success of our event."
entered the friends' lives in other ways as well. Nancy Nashban's
The group identified their silent auction as another important com-
brother and Marc Rubin's son were also diagnosed.
ponent. Marty oversaw the team recruiting the auction's items. "It
When the couples, who live in Arizona, travel to Los Angeles for the
was much easier than I anticipated, and I had fun doing it," he says.
Comedy Celebration, "We always make a great weekend out of it,"
He was helped by an IMF-prepared flyer that explains myeloma and
Marty says. "But we also gladly make the trip to show solidarity with
the IMF, "Which also created a degree of myeloma education and
the myeloma community."
awareness," Marty adds. He also bolstered the group's fundraising
pitch to potential businesses by sharing the IMF's annual report. "It
Last year, they saw an additional opportunity to celebrate that sup-
was a great way for people who weren't already familiar to see how
port closer to home, and to include a larger circle of their local
credible the organization is," he says.
friends. "We were inspired by the IMF's Comedy Celebration,
and also by Carol Klein and Nancy Moses' annual Afternoon Tea
The group was thrilled with the range of terrific auction items they
in Washington, D.C.," Allan explains. "Both of these events and
were able to gather, including resort and hotel stays, golf four-
many others create attractive atmospheres for raising money
somes, art collectibles and high-end dining experiences. "They were
Making Miracles
4
myeloma.org
very nice, very generous donations, and we're especially apprecia-
purchased tickets for, because he wanted them to see and be part
tive given the economy right now," says Jamye, who then oversaw
of this community of support both locally in Arizona and globally
the logistical end of the silent auction by compiling the lists, values,
with the IMF.
and opening bids, as well as cre-
"That was a particularly heartwarming
ating the displays and props for
part for me," Spencer adds. "I really
showcasing the items the night of
appreciated the opportunity to connect
the event.
with other folks that have been touched
By the time they opened the
by this disease."
doors that night, "We knew
Whether myeloma survivors them-
we were going to be able to
selves, family members or friends, all
give the IMF a sizable dona-
of the guests at the Celebration of Life
tion," Allan says. More than 200
at Kasbah did exactly that. "The IMF is
people attended "Crowded,
a great organization, and I'm so grateful
but not overly crowded," as he
that Allan and the other myeloma sur-
describes it.
vivors in our lives are doing as well as
Neil Hamburger, honoree
Spencer Rubin, honoree
Guests were treated to an exten-
they are," Marty says. "It was a privilege
sive Mediterranean food buffet, a paella
to share this celebration with others, and
station, and free-flowing sangria, as well
whether you have a disease or not, it's great
as entertainment courtesy of belly danc-
inspiration."
ers, flamenco dancers, and live Spanish
"The feedback was, `This was the best event
guitar music. Some people hovered by
we were ever at!'" Allan shares. "Which is
the silent auction tables in order to hang
especially wonderful for us, because the
onto their bidding prospects. Everyone
crowd of people who gathered that night go
appreciated the thoughts expressed by
to a lot of these types of events.
Nancy's brother, who flew in from New
York, and Marc's son, Spencer Rubin,
"The evening was spectacular," Allan adds.
who flew in from Northern California,
"But only as spectacular as the money we
when both of them took the micro-
were able to raise, and the community we
phone to share their myeloma stories
Phyllis and Allan Weinstein, honoree
are able to support."
with the crowd. "These moments were
To create your own event, please contact
particularly special for the newly diagnosed patients who were
SuzanneBattagliaatSBattaglia@myeloma.orgor800-452-CURE.
among us," Marty says. They included guests who Marty personally
800-452-CURE (2873)
5
International Myeloma Foundation
Dear Friends,
I am thrilled to share with you that since the inception of
the IMF's Member Events Program in 2002, individuals just
like you have raised more than $2.5 Million for myeloma
onorable
research and educational programs that have an impact on
the lives of patients and family members worldwide!
entions
In addition to the events and campaigns highlighted
in this issue, 33 more member events have also
contributed to community awareness and funding
for myeloma programs and research. Many of these
wonderful events have been highlighted in prior
issues of Making Miracles or Myeloma Today.
This outstanding accomplishment is made possible by
They are: Carol Klein and Nancy Moses'Afternoon
people from across the country and around the globe,
Tea*; Matt Jacobs' Annual Mail campaign; Christine Phillips'
who are choosing to get involved. By organizing an event
The Bloom Fashion Event; Courtney Charatsaris' Cabaret For A
in your community, you are raising funds while also rais-
Cure; Ken Fabian and the Central Florida Multiple Myeloma
ing public awareness and helping those whose lives have
Support Group's Car Wash and Bake Sale; The Czerkies
been touched by this disease.
Family's The Carolyn Czerkies Charity Golf Outing**; Ashley
Being involved is very fulfilling and empowering. Join us
Tarter's Cirque de la Mode; Rob Bradford's Coach Rob's Benefit
in our search for a cure for myeloma. Maybe you want to
Bash & Golf Tournament *; Carol Yee's Casual Day; Su Snook's
do something in your community, but deciding on what
to do and how to do it can be confusing. That's where
Casual Week.
we come in! The IMF is here to help you every step of the
Also: Kathy Miller's FamilyPortraitMarathon; JoAnne
way. We make it as easy as possible for you to be involved,
Gunther's Fishing For A Cure; Meghan Lowell's Help From
whether or not you have any previous experience. An
Heaven; Nancy Heuer's Heuer Family Memorial Golf
activity you already enjoy yard or bake sale, walk or
Tournament; Steve Hirschorn's Hirschorn For Myeloma;
marathon, swim-a-thon or golf tournament can become
a fundraising event that is tailor-made for you.
David Johnson and Bob Zins' JC Golf Tournament; Lisa
Mehalick's Jeans & Jewels Gala; Denise Bencel's Kindness
Our FUNdraising program is fun and easy, and brings with
For A Cure; Melanie Nichols and Suzanne Fiacco's Meredeth
it the satisfaction of knowing that YOU have made a differ-
ence in many lives. Choose an established event model or
Fiacco Memorial Golf Tournament and Bon Ton Fundraising
create your own no idea is too large or too small and
Campaign; Alexandra Zousmer and Joanna Share's Misbehave
we provide you with the tools, assistance, and expertise
for Myeloma in Honor of Arnold Zousmer **; Philadelphia
to make your event a success. We are grateful to all who
Multiple Myeloma Networking Group, the Central New
contribute their time, imagination, and hard work to ben-
Jersey Myeloma Support Group and the Central New Jersey
efit the myeloma community. Join us in working together
Myeloma Support Group's Miles for Myeloma 5K **; Doug
toward our common goal... a CURE. Be part of making
miracles happen!
Ehrhardt's MMA for Myeloma Awareness event; Slava Rubin's
Music Against Myeloma.
I hope that reading about some recent member events will
inspire you to get involved. Please contact me when you
And finally: Fritz Coleman's OntheFritz; Dan
are ready at SBattaglia@myeloma.org or 800-452-CURE.
Odegard's Our Friend Dan fundraiser; Barb Pytlik's Pytlik
I would love to chat with you in more detail about this
Memorial Walk; Kerri Marioni 's September Myeloma
program and any ideas you may have.
Awareness Month; Jack Aiello's Texas Hold `Em Benefit Bash;
With warm regards,
Julianne Basque's Timberwolves 5K Run/Walk for Research;
Donna Marotta's TriBeCans Against Myeloma; Jerry Walton,
Bob Brunner and Paul Keddell's Veteran's Against Myeloma
campaign; Lisa Cash's Who's Your Daddy? Rally.
Suzanne Battaglia
Director of Member Events
* Funded a Brian D. Novis Senior Research Grant
** Funded a Brian D. Novis Junior Research Grant
Making Miracles
6
myeloma.org
A WALK
in the oods
"It was a beautiful day," Debbie Hadeka says. She is reflecting
that beautiful day. They spot-
upon "Ida's Day," a nature walk Debbie organized in memory of
ted the Five-lined Skink, a spe-
her friend, Ida Wright, and she's not only talking about the sunny
cies of lizard whose sightings
weather, but also the group experience of honoring someone who
are extremely rare. "There are
they truly miss.
also rattlesnakes in the area, but
thankfully we didn't encounter
It was a game show that first sparked Debbie's inspiration spe-
any!" Debbie also reports.
cifically, her fondness for Jeopardy! She happened to catch the
Celebrity Jeopardy! tournament the night that televised Michael
Debbie wanted to raise money
McKean's one million dollar win for the IMF. Debbie had not heard
for the IMF, but she decided to
of the IMF before that night, but Ida had recently passed away, and
leave it to each hiker to decide
myeloma was on her mind.
if they wanted to give. First
and foremost, Debbie's desire
Ida Hordijk Wright
Watching Michael McKean's win, Debbie realized, "I wanted to do
was for everyone to have a small opportunity to step outside their
something for Ida." She discussed her desire with Ida's husband,
busy lives, remember someone they
Jim, and together they decided upon a
loved, and create a greater awareness of
hike an activity that celebrated Ida's
myeloma and the IMF. But she did pro-
personality and interests. They chose
vide everyone with the IMF's website and
Tim's Trail, a 2.8-mile hike that is part of
the fundraiser page the IMF created for
the Helen W. Buckner Nature Preserve at
"Ida's Day."
Bald Mountain. It was one of Ida's favor-
ites, and it was also personally meaning-
Ultimately, Ida's friends and family gave
ful for her because it was constructed in
generously to the IMF, and "Ida's Day"
memory of Tim Kuehn, a friend of the
is one everyone will remember fondly.
Wright family.
"People gathered together and experi-
enced beautiful views in her memory,"
On September 11, 2010 more than 20 of
Front Row: Marion Hordijk, Jim Wright, Wendy Wright, Julie W.
Debbie says.
Ida's friends and family members enjoyed
Finnegan; Back Row: Nicole Hordijk,
Irene Hordijk, Jon Wright, and Willem Hordijk.
800-452-CURE (2873)
7
International Myeloma Foundation
MYELOMA 200 CLOSER TO A CURE
Teamwork makes everything possible. Start your
vacation getaway for two, for 7 days and 6 nights,
myeloma 200 Fundraising team and help the
at the beautiful Four Seasons Costa Rica at
IMF reach a goal of $200,000 for our Research,
Peninsula Papagayo, including airfare on American
Education, Support, and Advocacy Programs.
Airlines and a $400 gift certificate toward spa
treatments. To participate all you have to do is
Progress in myeloma research and new
register online at m200.myeloma.org or contact
approaches to treatment are improving patient
Suzanne Battaglia.
outcomes, but there is much more to be done.
The International Myeloma Foundation is
The MYELOMA 200 CLOSER TO A CURE
celebrating our 20th year providing myeloma
challenge will continue until April 30, 2012.
patients, caregivers, physicians, nurses and
Anyone can participate, and by helping us
researchers with the tools they need to fight
reach our goal of $200,000 you help
against this disease.
ensure that everyone wins!
In honor of this tremendous achievement, we
have re-launched one of our most successful
fundraisers MYELOMA 200 CLOSER TO A
CURE.
Participating in the MYELOMA 200 Challenge
is easy: for every $200 you give or raise, you
will be entered in a drawing to win a fabulous
m200.myeloma.org
M200
Making Miracles
8
myeloma.org
heamesePLAY
When Haig Dikranian was diagnosed with myeloma in 2007, he
this overview: "You need at
quickly found that the IMF was the most useful resource available
least four players, and you
to him. He read the IMF's treatment publications, and spoke with
play it on a green at a golf
the Hotline (800-452-CURE) several times. "The IMF was very help-
course. Each player buys in
ful to me in understanding the medical terms and my own case,"
to play. Half of the pot goes
Haig says.
to the winner, and half goes
In gratitude, Haig wanted to give something back by raising money
to the IMF."
Jim Diknoble, Haig Dikranian
and awareness for the organization. His instinct was to keep it sim-
So far, Haig has overseen four Pitch & Putt tournaments, most
ple, both for himself and for the fundraiser's participants, but he
recently at the University of San Francisco, where his son is an assis-
also wanted to make his
tant coach for the men's soccer team. "My son helped
idea different and fun.
me gather some of the university's coaches together,
He decided to create his
and I flew out there to join them and explain the
own game, called Pitch
rules!" Haig says.
& Putt. It is based on his
Haig is looking forward to overseeing more Pitch & Putt
love of golf, but carefully
fundraising soon, especially now that winter is finally
constructed so that you
thawing in his home state of Connecticut. He has his
need not be a golfer to
eye on a group of potential players at Yale for his next
successfully play. Haig
event.
explains the detailed
rules of the game to each
"I feel it's the least I can do for the IMF," Haig says. "It's
group of players before
left to right: Denise Schilte-Brown, Chris Brown, Jim Diknoble,
certainly fun, and I hope that it's helpful."
they begin, but he gives Fred Dikranian, Dena Reif, Bryheen Hanckck (rear), George Keefer.
"I DO" for theIMF
Kristina (Briggs) Bolthouse and Beth Hoeflinger have never met,
awareness wristbands and placed IMF publications on each table so
but they have things in common. Both of their lives were affected
that more people could learn about the disease and how to help.
when their fathers were diagnosed with myeloma. And when they
"The IMF helped us put meaning and understanding to what was
were each planning their wedding, they both had the generous idea
happening," Beth says. "I also work in clinical research, so I know
to give back to the IMF as part of their celebration. Both women
what the power of research can do. The only way my father can beat
knew that they could do something simple yet powerful by honor-
this for good is to continue to support this amazing foundation."
ing their fathers on their wedding days.
Kristina Briggs
Beth Hoeflinger
When Kristina's father was diagnosed on New Year's Eve 2006, his
Beth felt frightened and power-
disease had already significantly progressed. "My family has always
less when father was diagnosed
done everything together," Kristina says. "When my father passed
in August 2009. "My father has
away, it was one of the toughest things I have ever dealt with. But it
been there for me throughout
also made me a much stronger person."
my entire life," Beth says. "When
For her wedding on December 31, 2010, Kristina and her now-
someone you love is ill, you want
husband, Brent, created a "IMF dance fundraiser" in lieu of the tra-
to help, but it sometimes feels
ditional "dollar dance." They selected three songs to dance to as
like there is so little you can do."
newlyweds, and announced that the money "earned" during those
When Beth and her now-hus-
songs would be donated to the IMF. "It felt wonderful to remember
Beth with her dad, Tony Hoeflinger
band, Michael, married on
my father in that way," Kristina says. "It was also wonderful, in this
December 10, 2010, the couple donated to the IMF as part of their
small way, to help people who are dealing with myeloma today get
wedding favors to guests. They also distributed the IMF's myeloma
the best help possible."
800-452-CURE (2873)
9
International Myeloma Foundation
4thAnnualIMFomedyelebration
On November 13, 2010, almost 1,200
comedy show in his honor to raise myeloma awareness and funds
guests packed the Wilshire Ebell Theatre
for the IMF.
in Los Angeles for the IMF's 4th Annual
This year, Loraine and returning co-chairs Amy and Steve Weiss
Comedy Celebration benefiting the Peter
once again rounded up an exceptional cast of comedians to come
Boyle Memorial Fund, which supports the IMF's award-winning
out in support of the IMF. As in previous years, the event was
research program and patient services. The fundraiser raised
hosted by Ray Romano and featured
nearly $570,000 this year, bringing the total funds raised for the
appearances from fellow Everybody
Peter Boyle Memorial Fund to over $2.5 million.
Loves Raymond castmates Doris
The Annual Comedy Celebration began when Loraine Boyle, IMF
Roberts and Fred Willard, as well as Jeff
Board member and wife of the late actor Peter Boyle, reached out
Garlin from Curb Your Enthusiasm. In
to Susie Novis and Dr. Brian Durie with a profound desire to help
addition, this year's show benefited
make a difference. Having established the Peter Boyle Memorial
from the talents of Dana Carvey, Carlos
Fund, she invited Peter's colleagues and friends to put on a
Mencia, Alex Trebek, Annette O'Toole,
on this page, L to R:
Dr. Sol Barer receives the IMF
Lifetime Achievement Award,
Jeff Garlin, Annette O'Toole receiving
the IMF Hero Award on behalf of
her husband Michael McKean from
Jeopardy! host Alex Trebek, gala host
Ray Romano on the red carpet,
Carlos Mencia
Making Miracles
10
myeloma.org
enefitingtheeteroylejewelry,VIPemorial
necklace, and a fantastic assortment of
and more that were graciously
guests were also
treated to a post-show
und
and Susie Essman,
trips, memorabilia,
and a special musical
donated for the cause.
performance by Dr.
Ken Jeong and Mike
O'Connell.
champagne and dessert
Besides the stellar
reception that lasted
entertainment, the
well into the night. The
IMF welcomed attendees to enjoy a pre-show cocktail party
IMF would like to thank
and silent auction that made a significant impact on the overall
Celegene, our presenting
success of the event. Items up for bid in the auction included
sponsor, and the nearly 30
a guitar signed by Bruce Springsteen, a behind-the-scenes
additional event sponsors
visit to 60 Minutes, a spectacular 18K white gold and sapphire
for their generous support.
,andCraigRucker,
eedham
esN
erritt,Jam
eler,JasonM
on this page, L to R:
arris,JohnH
Fred Willard, Dana Carvey,
Host Ray Romano,
Doris Roberts, Dr. Ken Jeong
PhotosinthispublicationbyJerodH
800-452-CURE (2873)
11
International Myeloma Foundation
heopeocietyBRINGSPROGRESS
During the summer of 2009,
hometown of Houston, Texas. She became an active
the IMF introduced The Hope
supporter of the IMF soon after, often making more
Society, a recurring giving
than one contribution in the same year. "I believe
program that allows mem-
the more we can contribute to the area of myeloma
bers to contribute monthly or
research, the better my chances are," she says.
quarterly gifts to the IMF. In
Susan believes that by participating in the program
less than two years, The Hope
as a monthly donor, she is investing in the research
Society has grown to include
that has already made a difference in her life as a
over 150 members who have
myeloma patient. "The progress made thus far in
contributed almost $30,000
treatment success is due largely to research that has
toward the IMF's research,
been funded by the IMF," she explains. "It's a little
education, support and advo-
selfish," she continues, "I support the IMF because
cacy programs.
I'm trying to save my own life."
Susan Gannon joined The
To join The Hope Society and set up your own recurring gifts for
Hope Society in December 2009. Diagnosed with myeloma three
the IMF, please contact Randi Lovett at rlovett@myeloma.org or
years earlier, she first learned about the IMF's research and educa-
800-452-CURE (2873).
tion programs while attending a Patient & Family Seminar near her
Cultivating the future In addition, by joining The Hope Society, you will receive:
by planting the seeds Ribbon of Hope pin
Annual statements
to sustain the IMF
IMF Friends' Program benefits for your annual giving level
Recognition in future issues of Making Miracles
The Hope Society Sustained Giving Program
Membership Level
Giving Range
With small, easy steps, you can make a huge impact on the continua-
tion of the IMF's mission. Hope Society members make simple, secure,
Member
$5 $12 Monthly
$35 to $149 annual y
$10 $37 Quarterly
recurring contributions to help maintain the level of quality that you
expect from our programs and services.
Supporter
$13 $41 Monthly
$150 to $499 annual y
$38 $125 Quarterly
You tell us how much and how often
Friends' Circle
$42 $83 Monthly
Your monthly or quarterly gift will automatically be charged and
$500 to $999 annual y
$126 $250 Quarterly
you will be at the interval and amount that you choose. Each Janu-
Associate's Circle
$84 to $208 Monthly
ary, we will send you a statement of all your contributions for the
$1,000 to $4,999 annual y
$251 $1,250 Quarterly
previous year.
Partner's Circle
$417 $833 Monthly
Benefits of Membership
$5,000 to $10,000 annual y
$1,251 $2,499 Quarterly
Becoming a recurring donor means knowing that the IMF is get-
For more information program benefits, or to find out how you
ting the most out of your contribution by cutting the cost of paper
can join The Hope Society and set up your recurring gift, con-
and postage.
tact Randi Lovett at 818.487.7455 or at rlovett@myeloma.org.
Making Miracles
12
myeloma.org
How to Make aoodiftEvenBETTER
More and more IMF members are taking advantage of the many gift-
you need temporary or lifetime income from your gift arrangement?
planning options available today by joining the Brian D. Novis Leg-
What are the tax implications?
acy Society, the IMF's planned giving program. This type of planned
This careful and thoughtful planning can actually make your already
giving includes bequests by will, revocable trusts, gift annuities,
good and generous gift to the IMF even better. Please consider these
pooled income funds, charitable trusts, gifts of securities and real
potential benefits of planning your gift:
estate, in-kind gifts, endowment giving and other possibilities.
· Maximize the size of your gift.
Some of these gifts are made to benefit the IMF now (current gifts).
· Obtain life income from your gift.
Others are made to benefit the IMF later (deferred gifts). Some gift
arrangements are revocable (you can change your mind); others are
· Optimize the tax-related benefits.
irrevocable.
· Tailor your gift to a specific need.
Becoming a member of the Brian D. Novis Legacy Society and creat-
· Protect yourself from hasty decisions.
ing a planned gift typically requires more preparation than a quick
· Increase your personal satisfaction.
check from a daily bank account or a credit card donation through
our website (though we greatly appreciate those too!). The extra
Heather Cooper Ortner, IMF Vice President of Development, is here
preparation for planned gifts is because they often come out of
to help. Heather can assist you in finding the best gift plan for your
estate assets.
needs. She will explain the various options and provide helpful tai-
lor-made illustrations. She will be sensitive to your financial needs
We are honored that members plan to support the IMF in this way,
and objectives, and will protect your confidentiality.
and we always want to make sure you are comfortable with all of the
choices you make for you, your family, and your future. We encour-
For further information about the Brian D. Novis Legacy Society
age you to consider the impact of your gift on your overall financial
and charitable gift planning, we welcome you to call Heather at 800-
condition: Can you afford a sizable gift at this time, or should you
452-CURE (2873) or email her at hortner@myeloma.org.
make it later by will? What is the best way to make this gift? Do
Steve Hirschorn
John Nesci
Overland Park, KS
Freehold, NJ
When Steve learned about the IMF's
John first read about the
Brian D. Novis Legacy Society, he knew
Brian D. Novis Legacy
that it was a simple and powerful way
Society in Myeloma Today.
that he could make a difference. By
He immediately liked the
specifying now that he will be leaving a
idea, especially that his
part of his estate to the IMF, Steve has the
bequest would continue to
immediate satisfaction of knowing he's contributing to future myeloma
fund the IMF programs and services he has participated in
research.
and recommended to others for more than 20 years.
"Myeloma is such a rare disease and does not get the funding for
For John, participating in the IMF's planned giving pro-
research that other cancers do. I want to make sure that I do what I feel
gram is a natural extension of what he already does by
is necessary to help others and be part of the cure," Steve says. "The IMF
reaching out to newly diagnosed patients. "I believe in giv-
has been so good to my family and me. That's why I wanted to specify
ing something back for all the good that I have received,
that my partnership in the cure be linked with the IMF and everything
and will continue to receive, from myeloma research and
that they do."
information supported by the IMF," he says.
800-452-CURE (2873)
13
International Myeloma Foundation
ourfforts
ADVANCE yelomaesearch
For the last 18 years, the IMF's Brian D. Novis Research Grants Program has led the way
in identifying, supporting and developing the world's most promising myeloma research.
All five 2011 Brian D. Novis Research Grants are fully
funded by IMFers just like you people making a
difference through organizing and participating
in member fundraisers.
Rob Bradford's Coach Rob's Benefit
The Czerkies Family's
Bash & Golf Tournament
The Carolyn Czerkies
funded 2011 Brian D. Novis Senior
Charity Golf Outing
Grant Recipient:
funded 2011 Brian D.
Laurence Catley, VIBBS, FRACP, FRCPA
Novis Junior Grant
Metabolic-Targeting Therapy for Multiple Myeloma
Recipient:
Mater Medical Research Institute Cancer and
Naoya Mimura, MD, PhD
Immunology Program
Targeting IRE1-XBP1 pathway is
South Brisbane, Queensland, Australia
a novel therapeutic strategy
in multiple myeloma
Carol Klein and Nancy
Dana-Farber Cancer Institute Boston, MA, USA
Moses' Afternoon Tea
Alexandra Zousmer and
funded 2011 Brian D.
Joanna Share's
Novis Senior Grant
Misbehave for Myeloma in
Recipient:
Honor of Arnold Zousmer.
Hearn J. Cho, MD, PhD
funded 2011 Brian D. Novis
Rationally Designed Pralatrexate
Junior Grant Recipient:
Combination Therapies for MM
New York University Medical Center New York, NY, USA
Vyacheslav Yurchenko, PhD
MMSET and epigenetic control
in t(4;14) myelomas
The Philadelphia Multiple
Rockefeller University
Myeloma Networking
New York, NY, USA
Group, the Central New
Jersey Myeloma Support
Group and the Central
More information about each grant winner's research can be
New Jersey Myeloma
found on our website at https://grants.myeloma.org, as well as in
Support Group's Miles
the Spring 2011 issue of Myeloma Today.
for Myeloma 5K
There are many ways for your member fundraiser to support the
funded 2011 Brian D. Novis
IMF's Brian D. Novis Research Grants Program, and plenty of inspi-
Junior Grant Recipient:
ration to draw from these pages. Support can come from one big
Shirong Li, PhD
event, but it can also draw upon donations accrued over several
Targeting the Translational Machinery in Multiple Myeloma
years of an annual event. Please contact Suzanne Battaglia at
University of Pittsburgh Pittsburgh, PA, USA
SBattaglia@myeloma.org or 800-452-(CURE) 2873 to get your
event rolling today!
Making Miracles
14
myeloma.org
The IMF's Development Team is pleased to welcome
James Ross of Chambersburg, Pennsylvania
as the new Major Gifts Officer
The IMF is pleased to welcome
that facilitated the construction some of the hospital's newer
James Ross of Chambersburg,
facilities. He has also served as the Director of Development and
Pennsylvania as the new Major
Director of Major Gifts at the Massanutten Military Academy and the
Gifts Officer. With his wealth
Appalachian Trail Conservancy, respectively.
of experience in non-profit
One of James's favorite aspects of working for non-profit
fundraising,
we
know
our
organizations is the ability to meet people from all over the country.
members will find him to be
As such, he is enthusiastic to get on the road and visit the IMF's
an invaluable resource when making important philanthropic
numerous and devoted supporters.
decisions.
Feel free to contact James directly at 717-360-8687 or via e-mail
James is a graduate of Bloomsburg University in Pennsylvania and a
at jross@myeloma.org if you have any questions regarding major
four-year veteran of the United States Coast Guard. Before joining
gifts, bequests, planned giving opportunities, or if you would just
the IMF, James served as the Executive Director of Gettysburg
like to chat about your experiences with the IMF.
Hospital Foundation where he managed special gift campaigns
The Great
UpcomingMemberEventsin2011
July 13
ellhone MusicAgainstMyelomaNY
Contact Slava Rubin at slavarubin@gmail.com
August 13
DRIVE
Aloha Kakou Walk-A-Thon MI
Contact Cyndi Schaap at 989-352-6526
September 25
Pytlik Memorial Walk NY
Contact Barb Pytlik at barb3@hotmail.com
October 23 & 24
Coach Rob Benefit Charity Golf & Benefit Bash, FL
Contact Rob Bradford at rbradford@crothall.com
Put your old cell phone to good use!
IMF Events in 2011
Donate your old cell phone and become part of finding the cure. The
IMF has partnered with a cell phone recycling organization that makes
June 11
Hartford Regional Community Workshop
a donation for every cell phone we turn in. Current cell phone models
Hartford, Connecticut
are worth up to $20 each. Many older models are worth $1 to $10.
July 23
Minneapolis Regional Community Workshop
Minnetonka, Minnesota
You can help the IMF continue its research and programs. You can help
Sept 10
Norfolk Regional Community Workshop
our environment. You can provide cell phones to underserved commu-
Norfolk, Virginia
nities. And it's as easy as sending us your old cell phones. For more infor-
Sept 17
Honolulu Regional Community Workshop
mation about how to turn your old cell phone into a contribution (or
Honolulu, Hawaii
how to set up an IMF collection program at your business
Oct 30
Raleigh-Durham Regional Community Workshop
or school), contact Kemo Lee at 800-452-CURE (2873) or
Chapel Hill, North Carolina
KLee@myeloma.org.
Aug 13
San Diego Regional Community Workshop
La Jolla, California
An estimated 200 million old CELL PHONES lie
July 15-16 Dallas Patient & Family Seminar
neglected in America's closets and drawers. Through
Dallas, Texas
Cell Phones For A Cure, IMF members can turn these
Aug 26-27 Philadelphia Patient & Family Seminar
phones into thousands of dollars in support of
Philadelphia, Pennsylvania
myeloma research.
Nov 5
5th Annual Comedy Celebration
Wilshire Ebell Theatre & Club Hollywood, California
800-452-CURE (2873)
15
International Myeloma Foundation
International Myeloma Foundation
NON-PROFIT
12650 Riverside Drive, Suite 206
ORGANIZATION
North Hollywood, CA 91607-3421
U.S. POSTAGE
U.S.A.
PAID
www.myeloma.org
N. Hollywood, CA
(800) 452-CURE (2873)
PERMIT NO. 665
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oundationF
Myeloma
International
©2011,
U.S.A.in
Dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.
Printed
IMF roducts
Your contribution for these items will help us provide critical education,
research and support, raise awareness and show support for myeloma
patients worldwide, and help us in our mission to improve the quality of life
of myeloma patients while working towards prevention and a cure.
Imagine Moving Forward
is the theme of the IMF's myeloma
RibbonofHope Lapel Pins ($5)
bracelet. Wear one in honor,
IMF Caps ($15)
celebration, or in memory of a
loved one. When people ask you
IMF T-Shirts ($15)
about it, you'll have a perfect
Awareness Bracelets (10-pack for $10)
opportunity to spread the word
IMF Holiday Ornaments ($10)
about multiple myeloma.
Allmerchandisecanbeviewedand/ororderedonourwebsitemyeloma.org