Until there is a cure...
2007 INTERNATIONAL
M Y EL O M A
F O U N D A T I O N
2 0 07 AN N U AL R E P O R T
...There is the IMF
I N T E R NAT I O NA L
M Y EL O MA
F O U N D AT I O N
Dedicated to improving
the quality of life of myeloma patients
while working toward prevention and a cure.
Education
REsEaRch
suppoRt
advocacy
2 0 07 AN N U AL R E P O R T
taBLE oF contEnts
Letter from the Chairman
2
Update from the President
3
Education
4
Research
8
Support
16
Advocacy
18
Development
20
Financial Statement
24
Honor Rol
27
2007
1
Brian G.M. Durie, MD, Chairman
National Director, Hematologic Malignancies Aptium Oncology
Specialist, Multiple Myeloma and Related Disorders,
Cedars Sinai Comprehensive Cancer Center,
Los Angeles, CA, USA
Dear Supporters of the International Myeloma Foundation,
Our annual report provides an excellent opportunity to address our mission to improve
iMF Board of directors
Brian G.M. Durie, MD
the quality of life of myeloma patients while working towards prevention and a cure
Chairman of the Board
reflect on our successes, and encourage ourselves to do even more.
Thomas M. Bay, PhD
Founder,Tom Bay Speaks Up, Inc.
In more than 17 years of leadership, the IMF has made tremendous strides for the
Los Alamitos, CA, USA
Loraine Alterman Boyle
myeloma community. Now, as we move quickly towards a time when myeloma can be
Journalist
addressed as a chronic disease, it is imperative that we continue to provide patients with
NewYork, NY, USA
Mark S. Di Cicilia
the highest quality education, cutting-edge research, thoughtful support, and ardent
Account Manager, Epicor Software Corporation
advocacy for our cause.
Orange, CA, USA
Michael S. Katz, MBA
The IMF must continue to support cutting-edge research that allows myeloma patients to
SeniorVice President, Booz-Allen & Hamilton, Inc.
NewYork, NY, USA
have access to optimal treatments tailored specifically for their disease. We must do this
Benson Klein, JD
with innovative programs such as Bank On A Cure®, our groundbreaking genetic research
Principal Member,Ward & Klein
Rockville, MD, USA
initiative. We must continue to educate patients and their families about these treatment
Robert A. Kyle, MD
options and their side effects by developing and disseminating our comprehensive
Professor of Medicine and Laboratory Medicine,
Mayo Clinic Medical School
publications and hosting our flagship Patient & Family Seminars. We must continue to
Rochester, MN, USA
encourage patients and provide them with the tools to accept only the highest possible
Isabelle Lousada
Architect
quality of life through our life-saving toll-free hotline, our award-winning web site and our
Lincoln, MA, USA
support groups located throughout the world. We must continue to develop relationships
Edith P. Mitchell, MD
Clinical Professor of Medicine,
with policy makers to ensure that the myeloma community's needs are met on a systemic
Thomas Jefferson University
Brigadier General, National Guard
level. We must always strive to be ahead of the curve.
Philadelphia, PA, USA
Gregory R. Mundy, MD
It is also vital that we continue to embrace the myeloma community as a global one.
Director,Vanderbilt Center for Bone Biology
Nashville,TN, USA
The IMF proudly encompasses 185,000 members in 113 countries. We collaborate with
Charles Newman, M.S.
researchers around the world. We also partner with incredibly strong, motivated IMF
Founder, CEO & President, ReCellular, Inc.
Principal, Newman Computer Group
affiliates: IMF Europe, IMF Israel, IMF Japan, and IMF Latin America. Their successes are all
Ann Arbor, MI, USA
of our successes.
Susie Novis
President, International Myeloma Foundation
More than 17 years after our founding, it is inspiring to read through this annual report
North Hollywood, CA, USA
Matthew Robinson, MBA
and see that we are achieving our mission.
Vice President, Sales and Business Development
Warner Bros. InternationalTelevision
With profound gratitude for your continued support,
Burbank, CA, USA
E. Michael D. Scott, CPA, JD
Proprietor & ExecutiveVice Presdient,Vox Medica
Philadelphia, PA, USA
R. Michael Shaw, CPA
Chairman & CEO, FintechTax, Inc.
Canoga Park, CA, USA
Igor Sill
Brian G.M. Durie, MD
Co-Founder & Managing Director,
GenevaVenture Partners
Chairman, IMF Board of Directors
Foundar & Chairman, GenevaGroup International
San Francisco, CA, USA
Allan Weinstein, PhD
Director, St. Francis MedicalTechnologies, Inc.
Phoenix, AZ, USA
2
To every IMF supporter, world-wide:
There's absolutely nothing like being able to keep one's promises.
Last year I wrote that, "From now on we intend to provide a report on the
activities of the IMF every single year. You deserve to know what we have been
doing, how we use the funds you work so hard to help us raise, and how what
we do affects myeloma researchers, clinicians, and patients from Nome, Alaska
to Hobart, Tasmania."
You have in front of you the proof of that commitment the second annual report of
the International Myeloma Foundation. And 2007 was some year, so let me give you a
iMF staff
quick summary:
Susie Novis
President
You helped us to raise (and we spent) more money than in any previous year of our
David Smith
Executive Director
17-year history: over $7.0 million.
Diane Moran
SeniorVice President, Strategic Planning
Our Celebrating Peter Boyle evening of comedy, hosted by Ray Romano at the
Heather Cooper Ortner
Wilshire Ebell Theatre in Los Angeles last November, was one of our most successful
Vice President, Development
fundraising events ever.
Betty Arevalo
Administrative Assistant
The Tuohy family drove across America (twice), from New Haven, Connecticut to
Arin Assero
Los Angeles, California and back in their "Myeloma Mobile," promoting myeloma
Liaison Patient Education/
Support Groups
awareness at dozens of sites across America, from shopping centers in small towns
Sylvia Baca
to major cancer centers.
Accountant
Suzanne Battaglia
The Fifth Robert A. Kyle Lifetime Achievement Award was given for the very first time
Director, Member Events
Nancy Baxter
to a non-US-based recipient, Prof. Dr. Heinz Ludwig, in Vienna, Austria.
Hotline Coordinator
Debbie Birns
And we continued to provide the wide range of education, research, support, and
Hotline Coordinator
advocacy activities that you have come to expect, while working on activities that
Gregor Brozeit
Director, IMF Europe
have already started to make themselves known in 2008 (such as the new Myeloma
Rachael Coffey
ManagerTM Personal Care AssistantTM).
Administrative Assistant
Kelly Cox
In this second annual report, you will find a comprehensive review of our activities in 2007,
Director, Support Groups Outreach
Paul Hewitt
together with a clear summary of where our funding came from and how it was used to
Hotline Coordinator
support our mission.
Spencer Howard
Meeting & Event Services
Also for a second year, the Board of the Foundation, the staff who work so hard with me
Marya Kazakova
Publications Editor
every day, and I personally offer this to you with our thanks and our very real appreciation.
Missy Klepetar
Without your support and commitment, few of the activities described in this report
Hotline Associate
Andrew Lebkuecher
would be possible at all.
Regional Director, Support Groups Southeast
Kemo Lee
As of May 2008, we are aware of about 135 drugs that are in clinical trials for the treatment
Specialty Member Services Coordinator
of myeloma. When the IMF was started back in 1990, there were none. In the face of
Randi Liberman
Development Associate
such amazing developments, I am always taken back to the words of my late husband,
Kerri Lowe
Development Intern
Brian Novis, the original force behind the development of the IMF:
Colleen McGonigle
Data Specialist
"One person can make a difference. Two can make a miracle."
Jim Needham
Publication Design
Thank you all for helping to make this miracle!
Lisa Paik
Director, Medical Meetings & CME Programs
Abbie Rich
Webmaster
Jennifer Scarne
Comptroller
Susie Novis
Robin Tuohy
IMF President
Regional Director, Support Groups Northeast
3
Education
I was diagnosed last year at 38, and I am finding that many
doctors are unsure how to treat myeloma in someone my age. The
IMF has been a great resource in my quest for information.
KRIs GRANDINETTI, Peoria, AZ
The IMF holds firmly to the belief that in the fight against multiple myeloma,
education is the strongest weapon. In fact, an independent survey conducted by
Target Research Group in February, 2007, rated the IMF as the number one resource
The IMF InfoPack contains
for patients, who found the IMF to be the best source for up-to-date information,
the most informative materials
publications, educational seminars, and information on clinical trials.
we've received. The service
Multiple myeloma is one of the most prevalent forms of blood cancer affecting
that the IMF provides
750,000 patients worldwide. Most patients, however, have never heard of myeloma
is absolutely wonderful.
prior to diagnosis. This is why the IMF is dedicated to educating patients and their
DARLENE JEssEE, Bluff City, TN
families with the most current information about the disease and treatments.
Through education, the IMF empowers myeloma patients and their families to join
their healthcare providers as active partners in the decision-making process.
iMF 2007 List of publications
ASCO 2007 Highlights for Patients*
ASCO 2007 Highlights for Physicians*
ASH 2006 Multiple Myeloma Highlights for Patients
ASH 2006 Multiple Myeloma Highlights for Physicians
CITINGS**
Comprehensive Guide to KOS 2007*
Comprehensive Guide to Salamanca 2003
Comprehensive Guide to Sydney 2005
publications
Comprehensive Guide to Torino 2004
The IMF publishes an extensive library of pamphlets, booklets, and tip cards in 16
Concise Review 2007**
Houston Patient & Family Seminar (DVD) *
languages. These publications cover an array of topics from treatment options, clinical
I Have Myeloma...What's next? (DVD)
trials, and quality of life information for myeloma patients and their physicians and are
IMF Patient Handbook**
provided free of charge. Three new publications and translations were published in
IMF Research Initiatives (DVD)
2007 and eight were updated with the latest information.
International Staging System
Multiple Myeloma Tip Card
Myeloma Management Guidelines:
A tremendous amount of information is also provided free of charge to myeloma
A Consensus Report from the Scientific Advisors of the IMF
patients in the IMF InfoPack, which is a compilation of information from the IMF's
Myeloma Matrix**
publication library. The InfoPack is designed to give a newly diagnosed patient a
Myeloma Minute
Myeloma Today
comprehensive understanding of multiple myeloma. The IMF mailed out 24,000 info
Tip Card: Understanding VELCADE®
packs in 2007 to patients, healthcare providers, and support groups around the world,
Understanding Anemia and Fatigue
a 9% increase over the previous year.
Understanding Balloon Kyphoplasty and Myeloma-Induced
Vertebral Compression Fractures**
Myeloma Today is a quarterly newsletter published by the IMF that highlights the
Understanding Bisphosphonate Therapy**
Understanding Dexamethasone and Other Steroids**
latest news in myeloma research and treatments. Myeloma Today had a circulation
Understanding Quadramet®
of 10,186 print subscribers in 2007, and web-view and pass-along rate estimated at
Understanding Revlimid®**
76,000 readers. It is also provided free of charge.
Understanding Serum Free Light Chain Assays**
Understanding Stem Cell Transplant
The Myeloma Minute is an up-to-the-minute email newsletter with 16,331 subscribers
Understanding Thalidomide Therapy**
Understanding Trisenox® (arsenic trioxide) injection
in 2007, a 5% subscription increase over 2006. The Myeloma Minute is sent out
Understanding VELCADE® (bortezomib) for Injection Therapy**
regularly, or whenever new information is made public that would benefit myeloma
Understanding ZIO-101 (Darinaparsin) *
patients. Myelom Merkur, the email newsletter's German edition that was launched in
*New in 2007 **Updated in 2007
2006, increased its subscription rate to over 200 subscribers in 2007.
4
nurse Leadership Board
The IMF Nurse Leadership Board was founded in 2006
with the mission of improving the care of myeloma
patients at the nursing level. In 2007 the Nurse
Leadership Board (NLB) took great strides, building
upon its work and expanding its focus in service of
this mission.
Elizabeth Bilotti, RN, MSN, APRN, BC, OCN
In August 2007, the NLB held its 2nd Annual Retreat in Santa Monica, California.
Multiple Myeloma/Transplant Program
The group reviewed and discussed each section of its consensus guidelines for
st. Vincent's Comprehensive Cancer Center
the nursing management of side effects myeloma patients may experience when
New York, NY
taking novel therapies a project they initiated at their 2006 inaugural retreat. By
Upon completing her master's degree in nursing,
fall 2007 the guidelines were being prepared for journal publication.
Elizabeth Bilotti reflected on the academic
At its 2007 annual retreat, the NLB also addressed the changing landscape of
subjectsthatmostengagedher.Sheimmediately
patient care as myeloma moves towards becoming a chronic disease. The NLB
thought of the myeloma section of her adult
established four new task forces: Patient Education, Nursing Education, Long-term
oncology course, and joined the myeloma
program at St. Vincent's Comprehensive Cancer
Care, and Publications to help myeloma patients maintain their quality of life while
Center in January 2006. Soon after, she was
managing their disease over the years.
nominated to become a founding member of
The NLB met three additional times in 2007. In April, 2007, the group sponsored
the IMF's Nurse Leadership Board (NLB).
a 2-hour satellite breakfast symposium at the Oncology Nursing Society's annual
Elizabeth seeks to ensure that medical
conference in Las Vegas, Nevada. The symposium focused on the management
professionals always remember how much
of the most common side effects associated with novel therapies for myeloma. At
and how quickly patients and families must
June's XIth International Myeloma Workshop in Kos, Greece, the NLB presented Nurse
learn about myeloma. Because she is relatively
Guidelines for Enhanced Patient Care, an abstract on the process of how to create a
new herself, she is especially understanding.
nurse-centric consensus model. The group met a final time at the American Society
In addition to its commitment to educating
of Hematology conference in December, 2007, in Atlanta, Georgia.
patients, Elizabeth is grateful to the IMF for
creating such a unique support system for
nurses. "Whenever I want to talk through a
treatment choice, I can call a fellow NLB member
and ask for their input. And they reciprocate."
Elizabeth worked on the steroids section of the
NLB's Consensus Guidelines and is currently
iMF nurse Leadership Board Members
leading the development of a nurses' long-
Page Bertolotti, RN, BSN, OCN
Bonnie Jenkins, RN, OCN
Tiffany Richards, MS, ANP, AOCNP
term care plan. As myeloma moves towards
Cedars-Sinai Medical Center
University of Arkansas Medical Sciences
MD Anderson Cancer Center
treatment as a chronic disease, Elizabeth feels
Samuel Oschin Comprehensive Cancer Institute
Little Rock, AR
Houston,TX
Los Angeles, CA
it is imperative for nurses and their patients to
Kathy Lilleby, RN
Sandra Rome, RN, MN, AOCN
Elizabeth Bilotti, RN, MSN, APRN, BC, OCN
Fred Hutchinson Cancer Research Center
Cedars-Sinai Medical Center
have the proper tools and the proper frame
St.Vincent's Comprehensive Cancer Center
Seattle,WA
Los Angeles, CA
NewYork, NY
of mind. "I look at the whole patient and their
Ginger Love, RN, OCN
Stacey Sandifer, RN, BSN
Jacy Boesiger, RN, BSN, OCN
University of Cincinnati
Cancer Centers of the Carolinas
overall health and wellness," Elizabeth says. "And
Mayo Clinic Scottsdale
Hematology/Oncology Care
Greenville, SC
I urge my patients to do the same."
Scottsdale, AZ
Cincinnati, OH
Lisa Smith, MSN, FNP, AOCN
Kathleen Colson, RN, BSN, BS
Patricia A. Mangan, MSN, AOCN, CRNP
Cancer Centers of the Carolinas
Dana-Farber Cancer Institute
University of Pennsylvania
Greenville, SC
Boston, MA
Philadelphia, PA
Joseph Tariman, RN, MN, ARNP-BC, OCN
Kathy Daily, RN, TSN
Emily McCullagh, RN, NP-C, OCN
University ofWashington
H. Lee Moffitt Cancer Center and Research
Memorial Sloan-Kettering Cancer Center
Seattle,WA
Institute
NewYork, NY
Tampa, FL
Jeanne Westphal, RN
Teresa Miceli, RN, BSN
Meeker County Memorial Hospital
Deborah Doss, RN, OCN
Mayo Medical Center
Litchfield, MN
Dana-Farber Cancer Institute
Rochester, MN
Boston, MA
Kena Miller, RN, MSN, FNP
Beth Faiman, RN, MSN, CNP, AOCN
Roswell Park Cancer Institute
Cleveland Clinic
Buffalo, NY
Toussig Cancer Center
Cleveland, OH
5
Education
Myeloma Mobile
During the summer of 2007, the Myeloma Mobile a 37-foot Winnebago was
driven across the country by Michael and Robin Tuohy with their two children and
their pets. Michael, who was diagnosed with multiple myeloma at age 35, and
Robin, the IMF Regional Director of Support Groups for the Northeast, conceived
the idea of driving across country and reaching out to people who might not have
access to information about multiple myeloma.
Their adventure in the Myeloma Mobile kicked off in June in Boston. Over the
course of the next 63 days, they drove over 11,000 miles and visited 30 states.
Thousands of people attended events held at cancer centers in 20 cities nationwide.
The Myeloma Mobile was a great success, not only by providing thousands of
people with educational materials about multiple myeloma, but also by increasing
awareness through local news coverage in the cities visited.
cdc initiative
In 2004, the IMF was awarded a three-year grant for $1.5 million by the Center for
Disease Control and Prevention (CDC) to raise myeloma awareness and advocate for
resources and treatments within urban, under-served areas of the United States. In
2007, the IMF completed the work plan for the third and final year of the CDC grant.
The IMF-CDC work plan focused on specific areas and was based upon myeloma
incidence rates and the location of medical facilities available to address patients'
needs. The final roster of cities included as part of the initiative was:
Atlanta, GA
Houston, TX
Oakland, CA
Baltimore, MD
Jackson, MS
Philadelphia, PA
Birmingham, AL
Kansas City, MO
Pittsburgh, PA
Boston, MA
Los Angeles, CA
Raleigh/Durham, NC
Charleston, SC
Miami, FL
San Diego, CA
Chicago, IL
Montgomery, AL
San Jose, CA
Cleveland, OH
New York City, NY
St. Louis, MO
Detroit, MI
Newark, NJ
6
Education
patient & Family seminars
I have been to at least eight IMF Patient & Family Seminars,
and they have been absolutely worth it. My oncologist joined me
at one, and he commented that he learned more than
at most medical conferences he attends.
ChARLEs hILL, Tarboro, NC
Joyce & Bill posladek
Leawood, Kansas
Bill Posladek was diagnosed with myeloma in
November 2002, six months after he and Joyce
were married. They quickly found the IMF's
Patient & Family Seminars. They attended the
first one they could. Then they attended sixteen
more.
Joyce, a professional seminar consultant, and Bill,
a self-described "seminar junkie," immediately
knew these IMF's events were special:"Hope and
information therapy," Joyce says. "At first, there
was so much to learn," adds Bill. "The second
seminar had more concentrated meaning. By
the third, we were most able to appreciate the
details."
The IMF works diligently to provide myeloma patients and caregivers with as much
In 2007, they attended IMF seminars in Los
information as possible. Since 1993, the IMF has organized over 100 Patient &
Angeles, California and Teaneck, New Jersey.
Family Seminars in 14 countries worldwide. It is the longest running program that
They've seen wonderful changes in their
puts patients in the same room with myeloma specialists who review everything
years on the road. "Early on, there were many
attendees in wheelchairs or with walkers or
from the basics to the latest information on novel treatments. In 2007, over 800
canes. Now everyone is much healthier," Joyce
people attended domestic seminars in Los Angeles, California; Tampa, Florida;
observes. "The progress made is a blessing, and
Houston, Texas; and Teaneck, New Jersey. Internationally, the IMF held Patient &
we're just as blessed to see it first-hand."
Family Seminars in
São Paulo, Brazil; Paris,
Bill continues to appreciate the new information
France; Barcelona,
shared at each and every seminar. It allows him
Spain; Heidelberg,
to be a true partner in his medical decision-
Germany, and Naples,
making. His physician is equally grateful.
Italy.
"We decided early on not to let this disease drive
us," Joyce says. "But you can only do that if you
have help. The IMF Patient & Family Seminars
are a miracle. I don't know of any other disease
organization that does this for patients and
families."
7
Education
REsEaRch
I am forever grateful to everyone at the IMF
for all the research you have done
to help us deal with myeloma.
The IMF has provided physicians
JOYCE WELLs, sanford, NC
with an important opportunity
to exchange opinions.
The IMF continues its commitment to discovering the causes of myeloma as
a means of improving treatments and quality of life, while working towards
MELETIOs DIMOPOULOs, MD
prevention and a cure. The IMF's collaborative research initiatives continue to lead
University of Athens school of Medicine
Athens, Greece
the way as the myeloma community enters the era of "tailored treatment," with new
therapies and approaches aiming to customize each myeloma patient's treatment
to his or her specific needs. As our research successes continue, we will quickly
approach a time when myeloma will be managed as a chronic disease
Bank on a cure®
Bank On A Cure (BOAC) is the first global, myeloma-
specific DNA bank and research initiative. BOAC
scientists are poring over the vast bank of genetic
information the IMF has gathered from myeloma
patients worldwide to determine their common
genetic factors. By discovering these patterns, we
will be able to develop and tailor better treatment options, minimize adverse
side effects of medications, unlock the mysteries of what causes myeloma, and
We are looking for genetic
ultimately find myeloma's cure.
associations, and the same
genetic variants we see in myeloma In December 2007, BOAC research presented in a large, oral session was named
can be examined in other diseases.
one of the Best of ASH, one of the scientific community's highest honors. After the
oral presentation at its annual conference, the American Society of Hematology
We have established a bank,
(ASH) Scientific Committee identified this IMF research as the very top tier of work
a genetic panel, and a platform to
done not only in the myeloma field, but in all hematologic cancers:
develop these technologies,
and everyone stands to benefit
Genetic Polymorphisms Identify the Likelihood of Bone Disease in Myeloma:
from these efforts.
Correlations with Myeloma Cell DKK1 Expression and High Risk Gene
Signatures.
BRIAN VAN NEss, MD, PhD
Co-Director, Bank On A Cure
University of Minnesota,
Brian G.M. Durie, Brian Van Ness, Christine Ramos, Owen Stephens, Majda Haznadar, Antje Hoering, Jeff
Institute of human Genetics
Haessler, Michael S. Katz, Gregory R. Mundy, Robert A. Kyle, Gareth J. Morgan, John Crowley,
Minneapolis, MN
Bart Barlogie, John Shaughnessy, Jr.
In this honored study, Bank On A Cure collaborators address myeloma bone disease,
studying patient DNA to see how it specifically affects the microenvironment of the
bone marrow. Previous studies in this area have looked at the myeloma cells, but
not at an individual patient's DNA. This study shows very strong statistical linkage
to key single nucleotide polymorphisms (SNPs) associated with bone biology and
toxin metabolism.
8
At the ASH annual conference in Atlanta, Georgia, BOAC researchers
also presented:
Bank on a cure® Research team
Hervé Avet-Loiseau, MD
An Integrated Pharmacogenomic Strategy for the Definition of Thalidomide
Institute de Biologie
Nantes, France
Response Signatures in Presenting Cases of Multiple Myeloma.
Dalsu Baris, MD, PhD
National Cancer Institute
Gareth J. Morgan, Matthew W. Jenner, Brian A. Walker, David C. Johnson, Paola A. Leone, Fiona M. Ross,
Rockville, Maryland, USA
Mark T. Drayson, Brian G. Van Ness, Brian G.M. Durie, Nicholas J. Dickens, J. Anthony Child, R.G. Owen,
John Crowley, PhD
Cancer Research and Biostatistics
Faith E. Davies
Seattle,WA, USA
Brian G.M. Durie, MD
Cedars-Sinai Comprehensive Cancer Center
Bank On A Cure researchers developed an integrated pharmacogenomic strategy
Los Angeles, CA, USA
to determine the importance of acquired and inherited genetic changes in
Hartmut Goldschmidt, MD
Medizinischen Universitätsklinik und PoliklinikV
determining response to thalidomide therapy in myeloma patients. Their approach
University of Heidelberg
led to the identification of genes important to determining response and their
Heidelberg, Germany
Roman Hajek, MD
relation to tumor-associated changes and variations.
University Hopsital Brno
Brno, Czech Republic
In April 2007, BOAC also presented its work at the XIth Myeloma Forum:
Gareth Morgan, MD, Co-Chair
Royal Marsden Hospital
Sutton, UK
Single Nucleotide Polymorphism Models in Myeloma
S. Vincent Rajkumar, MD
From the Bank On A Cure SNP Chip
Mayo Clinic
Rochester, MN, USA
Brian Van Ness, Christine Ramos, Antje Hoering, John Crowley, Jeff Haessler, Gareth J. Morgan,
Jesús San Miguel, MD
Hospital Clinico Univeritario
David C. Johnson, Michael Katz, Dalsu Baris, Brian G.M. Durie
Universidad de Salamanca
Salamanca, Spain
John Shaughnessy, PhD
Using their custom SNP chip, Bank On A Cure collaborators examined gene
Myeloma Institute for Research andTherapy
functions associated with drug metabolism, bone marrow microenvironment,
University of Arkansas for Medical Sciences
Little Rock, AR, USA
immune response, and DNA repair. Early analysis indicates that there may be
Pieter Sonneveld, MD, PhD
detectable genetic differences between short- and long-term survivors, and that
University Hospital Rotterdam Dijkzigt
Rotterdam,The Netherlands
it may be possible to predict which patients will need more aggressive therapies
Brian Van Ness, MD, PhD, Co-Chair
when they start their treatment.
University of Minnesota
Institute of Human Genetics
Minneapolis, MN, USA
BOAC also continues to build new partnerships and collaborations in order to most
effectively analyze data using its unique myeloma-specific gene-testing chip (called
a SNP chip). In 2007, BOAC added two new central laboratories for its research in
the Netherlands and France thereby doubling its number of centers (previously
established in the United States and the United Kingdom).
In October 2007 BOAC sought and received affiliate membership in the
Pharmacogenomics Research Network (PGRN), a nationwide collaboration of
scientists working to identify genetic variations that lead to differences in thera-
peutic response. PGRN is sponsored by the National Institute of General Medical
Sciences, which is one of the National Institutes of Health. In 2007 BOAC also con-
tinued working with the National Cancer Institute's InterLymph Consortium, looking
at genetic risk factors that are associated with environmental exposures in order to
develop a risk assessment tool that might provide a prediction of risk for myeloma.
BOAC continues to gather myeloma patient DNA samples for analysis, with an
ultimate objective of collecting 10,000 samples. At the end of 2007, BOAC was
halfway toward achieving this ambitious goal.
9
REsEaRch
international Myeloma Working Group
The IMF's International Myeloma Working Group (IMWG) consists of 98 leading
myeloma researchers from around the world who collaborate on a broad range of
myeloma research projects. With the goal of improving myeloma treatment options
and diagnostic systems, their work focuses on protocols to provide a more durable
remission for myeloma patients while improving quality of life, and addresses the
needs of both myeloma patients and the physicians who treat them.
In April 2007, the scientific journal Mayo Clinic Proceedings published Use of
bisphosphonates in multiple myeloma: IMWG response to Mayo Clinic consensus
antonio palumbo, Md
statement, in which the IMWG reviews and considers the Mayo Clinic's consensus
University of Torino
statement for the use of bisphosphonates and makes its own recommendations.
Torino, Italy
In 2007 the IMWG also continued researching and crafting consensus guidelines
AntonioPalumboisanactivememberoftheIMF's
that are immediately relevant to myeloma patients and physicians everywhere.
research community, serving on the Scientific
This continuing work includes research on age correlations within the myeloma
Advisory Board, the International Myeloma
patient community, the role of vertebral augmentation, issues surrounding
Working Group (IMWG), and as the European
frontline therapy, allogeneic stem cell transplantation, deep vein thrombosis,
Delegate for the International Myeloma Forum.
imaging and PET scans, Freelite testing, and anemia. These projects were discussed
In 2007, Dr. Palumbo was at the epicenter of the
and developed in part when the IMWG met at both the June 2007 XIth Myeloma
IMWG's work. He was the lead author for the
Workshop in Kos, Greece, and December 2007's ASH annual conference in
group's recommendations for the prevention of
Atlanta, Georgia.
deep vein thrombosis (a journal article that went
online in late 2007 but wasn't formally published
until 2008) and worked as a primary investigator
for the group's on-going recommendations for
iMWG publications
frontline treatment of myeloma.
2003
Myeloma Management Guidelines
Dr. Palumbo resides in Italy and takes pleasure
in organizing IMF seminars and conferences
2003
there. He is also the co-founder of GIMEMA,
Classification Criteria for Myeloma, MGUS,
the Italian myeloma network. His personal
and related disorders
research focus includes the efficacy of high-dose
2005
versus conventional chemotherapy, as well as
International Staging System
pathogenesis and new therapeutic approaches
to treating myeloma.
2006
International Uniform Response Criteria
"After years of using a very limited range of
2007
standard treatment approaches for myeloma,
Bisphosphonate Guidelines & Letter to the Editor
we are now able to tackle this disease with new
weapons in our arsenal," he says. Dr. Palumbo is
2007
committed to improving the safety profile of
DVT Guidelines
myeloma treatment regimens as new drugs and
2008
combinations are introduced to patient care.
International Staging System Confirmation
"Out there, 30 to 40 new compounds are under
2008
investigation in the laboratory setting or in early
Favorable outcomes in patients younger than 50
phase clinical trials, and it is likely that some of
these compounds will become new weapons
against this disease," he says. "These are very
exciting days for the myeloma community."
10
REsEaRch
iMF Working Group
Raymond Alexanian, MD
Carmino de Souza
Mohamad Hussein, MD
Amara Nouel, MD
Pieter Sonneveld, MD, PhD
MD Anderson Cancer Center
State University of Campinas
H. Lee Moffitt
Hospital Rutz y Paez
University Hospital Rotterdam Dijkzigt
Houston,TX, USA
Campinas, Brazil
Cancer Center & Research Institute
Bolivar,Venezuela
Rotterdam,The Netherlands
Kenneth C. Anderson, MD
Michel Delforge
Tampa, FL, USA
Yana Novis, MD
Andrew Spencer, MD
Dana-Farber Cancer Institute
University Hospital Gasthuisberg
Shinsuke Iida, MD
Hospital Sírio-Libanês
Cabrini Hospital
Boston, MA, USA
Leuven, Belgium
Nagoya City University Graduate School
São Paulo, Brazil
Malvern, Australia
Michel Attal, MD
Meletios-Athanassios Dimopoulos, MD
of Medical Sciences
Antonio Palumbo, MD
A. Keith Stewart, MD
Hôpital Purpan
Alexandra Hospital
Nagoya, Japan
Ospedale Molinette
Mayo Clinic
Toulouse, France
Athens, Greece
Peter Jacobs, MD
Torino, Italy
Scottsdale, AZ, USA
Hervé Avet-Loiseau, MD, PhD
Angela Dispenzieri, MD
Constantiaberg Medi-Clinic
Santiago Pavlovsky, MD
Patrizia Tosi, MD
Institute de Biologie
Mayo Clinic
CapeTown, South Africa
FUNDALEU
Istituto di Ematologia
Nantes, France
Rochester, MN, USA
Sundar Jagannath, MD
Buenos Aires, Argentina
e Oncologia Medica
Ashraf Z. Badros, MD
Brian G.M. Durie, MD, Chairman
St.Vincent's Comprehensive Cancer Center
Linda Pilarski, MD
Bologna, Italy
University of Maryland
Cedars-Sinai
NewYork, NY, USA
Cross Cancer Institute
Guido Tricot, MD
Baltimore, MD, USA
Comprehensive Cancer Center
Hou Jian, MD
Edmonton, Canada
Huntsman Cancer Institute
Bart Barlogie, MD, PhD
Los Angeles, CA, USA
Shanghai Changzheng Hospital
Raymond Powles, MD
University of Utah
Myeloma Institute
Hermann Einsele, MD
Shanghai, China
Parkside Oncology Clinic
Salt Lake City, UT, USA
for Research andTherapy
University Clinic ofWürzburg
Douglas Joshua, MD
London, UK
Ingemar Turesson, MD
Little Rock, AR, USA
Würzburg, Germany
University of Sydney
S. Vincent Rajkumar, MD
Malmö University Hospital
Régis Battaile, MD
Thierry Facon, MD
Sydney, Australia
Mayo Clinic
Malmö, Sweden
Institute de Biologie
Centre Hospitalier Regional
Michio M. Kawano, MD
Rochester, MN, USA
Brian Van Ness, MD, PhD
Nantes, France
Universitaire de Lille
Yamaguchi University
Donna E. Reece, MD
University of Minnesota
Meral Beksac, MD
Lille, France
Yamaguchi, Japan
Princess Margaret Hospital
Institute of Human Genetics
Ankara University
Dorotea Fantl, MD
Shaji Kumar, MD
Toronto, Canada
Minneapolis, MN, USA
Ibni Sina Hospital
Sociedad Argentina de Hematolgia
Mayo Clinic
Ivan Van Riet, MD
Ankara,Turkey
Buenos Aires, Argentina
Rochester, MN, USA
Tony Reiman, MD
Cross Cancer Institute
Academic Hospital
Andrew Belch, MD
Jean-Paul Fermand, MD
Robert A. Kyle, MD
Edmonton, Canada
Free University Brussels
University of Alberta
Intergroup Français du Myèlome
Mayo Clinic
Brussels, Belgium
Edmonton, Canada
Hôpital Saint-Louis
Rochester, MN, USA
Paul G. Richardson, MD
Dana-Farber Cancer Institute
Robert Vescio, MD
Dina Ben Yehuda
Paris, France
Juan Lahuerta, MD
Boston, MA, USA
Cedars-Sinai
Hadassah University Hospital,
Rafael Fonseca, MD
Hospital 12 de Octubre
Outpatient Cancer Center
Ein Kerem
Mayo Clinic
Madrid, Spain
Angelina Rodriguez-Morales, MD
Los Angeles, CA, USA
Jerusalem, ISRAEL
Scottsdale, AZ, USA
Banco Municipal de Sangre
Jae Hoon Lee, MD
de la Region Capital
David Vesole, MD
William Bensinger, MD
Gösta Gahrton, MD
Gachon Medical School
Caracas,Venezuela
St.Vincent's
Fred Hutchinson
Karolinska Institute
Ghil Hospital
Comprehensive Cancer Center
Cancer Research Center
Stockholm, Sweden
Incheon, Republic of Korea
Jesus San Miguel, MD
NewYork, NY, USA
Seattle,WA, USA
Hospital Clinico Universitário
Morie A. Gertz, MD
Xavier LeLeu, MD
Universidad de Salamanca
Michael Wang, MD
P. Leif Bergsagel, MD
Mayo Clinic
Hôpital Claude Huriez
Salamanca, Spain
MD Anderson Cancer Center
Mayo Clinic
Rochester, MN, USA
Lille, France
Houston,TX, USA
Scottsdale, AZ, USA
Orhan Sezer, MD
John Gibson, MD
Henk M. Lokhorst, MD
Charité-Universitaetsmedizin Berlin
Donna Weber, MD
Joan Bladé, MD
Royal Prince Alfred Hospital
University Hospital Utrecht
Berlin, Germany
MD Anderson Cancer Center
Hospital Clinic, Hematology
Camperdown, Australia
Utrecht,The Netherlands
Houston,TX, USA
Barcelona, Spain
John Shaughnessy, PhD
Hartmut Goldschmidt, M.D .
Heinz Ludwig, MD
University of Arkansas
Jan Westin, MD
Mario Boccadoro, MD
Medical Klinik und PoliklinikV
Wilhelminenspital
for Medical Sciences
Sahlgrenska University Hospital
Ospedale Molinette
University of Heidelberg
der StadtWien
Myeloma Institute/
Gothenburg University
Torino, Italy
Heidelberg, Germany
Vienna, Austria
Lambert Lab of Myeloma
Gothenburg, Sweden
Michele Cavo, MD
Philip Greipp, MD
Angelo Maiolino, MD
Little Rock, AK, USA
Keith Wheatley, PhD
Università di Bologna
Mayo Clinic
Universidade Federal
Kazayuki Shimizu, MD
University of Birmingham,
Bologna, Italy
Rochester, MN, USA
do Rio de Janeiro
Nagoya City Higashi General Hospital
Edgbaston
Birmingham, UK
Wen Ming Chen, MD
Roman Hajek, MD
Rio de Janeiro, Brazil
Nagoya, Japan
Beijing Chaoyang Hospital
University Hospital Brno
Jayesh Mehta, MD
Chaim Shustik, MD
Jeffrey Zonder
Beijing, China
Brno, Czech Republic
Robert H. Lurie
RoyalVictoria Hospital
Barbara Ann Karmanos
Cancer Institute
J. Anthony Child, MD
Izhar Hardan, MD
Comprehensive Cancer Center
McGill University
Wayne State University
Barn House
Chaim Sheba Medical Center
Northwestern Univeristy
Clinical Research Program
School of Medicine
Chilgrove, UK
Tel Hashomer, Israel
Chicago, IL, USA
Montreal, Canada
Detroit, Michigan, USA
James Chim
Jean-Luc Harousseau, MD
Giampaolo Merlini, MD
David Siegel, MD
Queen Mary Hospital
Hematologie Clinique
Amyloidosis Center
Hackensack University Medical Center
Hong Kong
Nantes, France
Università di Pavia
Hackensack, NJ, USA
Pavia, Italy
Raymond L. Comenzo, MD
Hiroyuki Hata, MD, PhD
Seema Singhal, MD
Memorial Sloan Kettering
Kumamoto University Hospital
Philippe Moreau, MD
Robert H. Lurie
Cancer Research Center
Kumamoto, Japan
University Hospital of Nantes
Comprehensive Cancer Center
NewYork, NY, USA
Nantes, France
Northwestern University
Yutaka Hattori, MD
Chicago, IL, USA
John Crowley, PhD
Keio University School of Medicine
Gareth Morgan, MD, PhD
Cancer Research and Biostatistics
Tokyo, Japan
Royal Marsden Hospital
Seattle,WA, USA
Sutton, UK
Joy Ho, MD
William Dalton, MD, PhD
Royal Prince Alfred Hospitals
Nikhil Munshi, MD
H. Lee Moffitt Cancer Center
and Concord Hospitals
Dana-Farber Cancer Institute
Tampa, FL, USA
Camperdown, Australia
Boston, MA, USA
Faith Davies, MD
Vania Hungria, MD
Ruben Niesvizky
Royal Marsden
Clinica São Germano
Weill Medical College
NHS FoundationTrust
São Paulo, Brazil
of Cornell University
Sutton, UK
NewYork, NY, USA
11
REsEaRch
scientific
advisory
iMF scientific advisory Board
Raymond Alexanian, MD
Morie A. Gertz, MD
Linda Pilarski, MD
MD Anderson Cancer Center
Mayo Clinic
Cross Cancer Institute
Board
Houston,TX, USA
Rochester, MN, USA
Edmonton, Alberta Canada
Kenneth C. Anderson, MD
John Gibson, MD
Raymond Powles, MD
The IMF's Scientific Advisory Board,
Dana-Farber Cancer Institute
Royal Prince Alfred Hospital
Parkside Oncology Clinic
Boston, MA, USA
Camperdown, Australia
London, UK
comprised of 71 of the world's leading
Michel Attal, MD
Hartmut Goldschmidt, M.D .
S. Vincent Rajkumar, MD
myeloma experts, guides the IMF's
Hôpital Purpan
Medical Klinik und PoliklinikV
Mayo Clinic
Toulouse, France
University of Heidelberg
Rochester, MN, USA
research efforts and lends its expertise
Herve Avet-Loiseau, MD, PhD
Heidelberg, Germany
Donna E. Reece, MD
to our education and support services.
Institute de Biologie
Roman Hajek, MD
Princess Margaret Hospital
Nantes, France
University Hospital Brno
Toronto, Canada
In 2007, this distinguished board
Dalsu Baris, MD, PhD
Brno, Czech Republic
Paul G. Richardson, MD
added three new members to
National Cancer Institute
Jean-Luc Harousseau, MD
Dana-Farber Cancer Institute
Rockville, Maryland, USA
Institute de Biologie
Boston, MA, USA
its ranks.
Bart Barlogie, MD, PhD
Nantes, France
Angelina Rodriguez-Morales, MD
Myeloma Institute for Research andTherapy
Joy Ho, MD
Banco Municipal de Sangre
Little Rock, AR, USA
Royal Prince Alfred Hospitals
de la Region Capital
In June 2007, Dr. Robert A. Kyle,
Régis Battaile, MD
and Concord Hospitals
Caracas,Venezuela
Scientific Advisory Board Chairman,
Central Laboratory of Hematology
Camperdown, Australia
David Roodman, MD
Institute of Biology
Vania Hungria, MD
University of Pittsburgh
received the David A. Karnofsky
Nantes, France
Clinica São Germano
Cancer Institute
Memorial Award at the American
Meral Beksac, MD
São Paulo, Brazil
Pittsburgh, PA, USA
Ankara University
Mohamad Hussein, MD
Jesús San Miguel, MD, PhD
Society of Clinical Oncology (ASCO)
Ibni Sina Hospital
H. Lee Moffitt Cancer Center
Hospital Clinico Universitario
Ankara,Turkey
& Research Institute
Universidad de Salamanca
annual conference. The award is
William Bensinger, MD
Tampa, FL, USA
Salamanca, Spain
ASCO's highest scientific honor
Fred Hutchinson Cancer Research Center
Sundar Jagannath, MD
Orhan Sezer, MD
Seattle,WA, USA
St.Vincent's Comprehensive Cancer Center
Charité-Universitaetsmedizin Berlin
presented to a researcher who has
James R. Berenson, MD
NewYork, NY, USA
Berlin, Germany
Institute for Myeloma & Bone Cancer Research
Douglas Joshua, MD
Kazayuki Shimizu, MD
changed the general practice
Los Angeles, CA, USA
University of Sydney
Nagoya City Higashi General Hospital
of oncology.
P. Leif Bergsagel, MD
Sydney, Australia
Nagoya, Japan
Mayo Clinic
Michio M. Kawano, MD
Chaim Shustik, MD
Scottsdale, AZ, USA
Yamaguchi University
RoyalVictoria Hospital
Joan Bladé, MD
Yamaguchi, Japan
McGill University
Hospital Clinic, Hematology
Robert A. Kyle, MD, Chairman
Clinical Research Program
Barcelona, Spain
Mayo Clinic
Montreal, Canada
Mario Boccadoro, MD
Rochester, MN, USA
David Siegel, MD
Ospedale Molinette
Henk M. Lokhorst, MD
Hackensack University Medical Center
Torino, Italy
University Hospital Utrecht
Hackensack, NJ, USA
J. Anthony Child, MD
Utrecht, Netherlands
Seema Singhal, MD
Barn House
Sagar Lonial, MD
Robert H. Lurie
Chilgrove, UK
EmoryWinship Cancer Institute
Comprehensive Cancer Center
Northwestern University
Raymond L. Comenzo, MD
Atlanta, GA, USA
Chicago, IL, USA
Memorial Sloan Kettering Cancer Research Center
Heinz Ludwig, MD
NewYork, NY, USA
Wilhelminenspital der StadtWien
Alan Solomon, MD
University ofTennessee Medical Center
John Crowley, PhD
Vienna, Austria
Knoxville,TN, USA
Cancer Research and Biostatistics
Jayesh Mehta, MD
Seattle,WA, USA
Robert H. Lurie
Pieter Sonneveld, MD, PhD
University Hospital Rotterdam Dijkzigt
Franco Dammacco, MD
Comprehensive Cancer Center
Rotterdam,The Netherlands
University of Bari Medical School
Northwestern University
Bari, Italy
Chicago, IL, USA
Andrew Spencer, MD
Cabrini Hospital
Faith Davies, MD
Håkan Mellstedt, MD, PhD
Malvern, Australia
Royal Marsden NHS FoundationTrust
Karolinska Hospital
Sutton, UK
Stockholm, Sweden
A. Keith Stewart, MD
Mayo Clinic
Meletios-Athanassios Dimopoulos, MD
Giampaolo Merlini, MD
Scottsdale, AZ, USA
Alexandra Hospital
Amyloidosis Centre
Athens, Greece
Università di Pavia
Guido Tricot, MD
Pavia, Italy
Huntsman Cancer Institute
Johannes Drach, MD
Salt Lake City, UT, USA
Medical University ofVienna
Gareth Morgan, MD, PhD
Vienna, Austria
Royal Marsden Hospital
Benjamin Van Camp, MD, PhD
Sutton, UK
Academic Hospital
Brian G.M. Durie, M.D .
Free University of Brussels
Cedars-Sinai Comprehensive Cancer Center
Gregory R. Mundy, MD
Brussels, Belgium
Los Angeles, CA, USA
Vanderbilt Center for Bone Biology
Nashville,TN, USA
Brian Van Ness, MD, PhD
Hermann Einsele, MD
University of Minnesota
University Clinic ofWürzburg
Nikhil Munshi, MD
Institute of Human Genetics
Würzburg, Germany
Dana-Farber Cancer Institute
Boston, MA, USA
Minneapolis, MN, USA
Dorotea Fantl, MD
David Vesole, MD
Sociedad Argentina de Hematolgia
Amara Nouel, MD
St.Vincent's
Buenos Aries, Argentina
Hospital Rutz y Paez
Bolivar,Venezuela
Comprehensive Cancer Center
Rafael Fonseca, MD
NewYork, NY, USA
Mayo Clinic
Martin Oken, MD
Jan Westin, MD
Scottsdale, AZ, USA
Hubert H. Humphrey Cancer Center
Robbinsdale, MN, USA
Sahlgrenska University Hospital
Gösta Gahrton, MD
Gothenburg University
Gothenburg, Sweden
Karolinska Institute
Antonio Palumbo, MD
Stockholm, Sweden
Ospedale Molinette
Torino, Italy
12
REsEaRch
First-Ever international Myeloma Forum
The founding of the International Myeloma Forum by the IMF,
and the outcome of its inaugural gathering, are very positive
developments for all members of the myeloma community.
We patients are more likely to benefit from the accelerated path
to more effective treatments for our disease.
MIChAEL s. KATZ, Bayside, NY
In April, 2007, the IMF held the first-ever International Myeloma Forum in Santa
s. vincent Rajkumar, Md
Mayo Clinic
Monica, California. This unprecedented event assembled pre-eminent myeloma
Rochester, MN
researchers from around the United States, along with leading scientists from
European research institutions. Key members of governmental and private
Like the IMF itself,Vincent Rajkumar is committed
institutions were also present, as their support and advocacy is critical to the
to collaborative and cooperative research on
myeloma community's continued accomplishments.
behalf of myeloma patients everywhere. He is
the Co-Chair of the IMF's U.S. Myeloma Forum,
The International Myeloma Forum's goals were to form a coalition that will work
and serves as a member of the Bank On A
collaboratively on myeloma-related projects and avoid duplication of efforts and
Cure research team, the International Myeloma
dilution of valuable resources by various U.S. myeloma cooperative groups. This
Working Group, and the IMF's Scientific Advisory
first Forum succeeded by opening new lines of communication and producing
Board.
new partnerships between major myeloma groups, establishing commitments
Dr. Rajkumar's myeloma research interests
to develop research projects that enhance each other's work, and facilitating an
include angiogenesis and the development of
agreement to collect and measure data in ways that can be universally shared
new treatment agents. He was the principal
and applied.
investigator for the two pivotal trials that led
to the regulatory approval of thalidomide for
The International Myeloma Forum is one of the latest examples of how the IMF
the treatment of myeloma in the United States
constantly strives to create new partnerships and collaborations in order to best
and Europe, a landmark event for the myeloma
serve myeloma patients and families everywhere.
community.
Despite many remarkable scientific accomplish-
ments, Dr. Rajkumar believes the best is yet to
come. "I am very optimistic about the future for
myeloma patients," he says. "We have an unprec-
edented amount of research ongoing in the
area, with numerous novel agents being tested
all over the world."
international Myeloma Forum
In addition to his many research collaborations,
Kenneth Anderson, MD
Brian G.M. Durie, MD
Sagar Lonial, MD
Dana Farber Cancer Institute
Cedars-Sinai Comprehensive Cancer Center
Emory University
Dr. Rajkumar frequently serves as a guest lecturer
Boston, MA, USA
Los Angeles, CA, USA
Winship Cancer Institute
Atlanta, GA, USA
at the IMF's Patient & Family seminars and speaks
Bart Barlogie, MD
Sergio Giralt, MD
University of Arkansas for Medical Sciences
University ofTexas
Antonio Palumbo, MD
at support group meetings. "I am very proud of
Myeloma Institute for ResearchTherapy
MD Anderson Cancer Center
Università diTorino
all the close interactions I have with the IMF,
Little Rock, AR, USA
Houston,TX, USA
Torino, Italy
and the opportunity to help with many of its
William Bensinger, MD
Jean-Luc Harousseau, MD
S. Vincent Rajkumar, MD
University ofWashington
Institute de Biologie
Mayo Clinic Rochester
initiatives," he says. "And I am very grateful to the
Fred Hutchinson Cancer Research Center
Nantes, France
Rochester, MN, USA
Seattle,WA, USA
IMF for all of the support they have provided me
Mohamad Hussein, MD
Seema Singhal, MD
Joan Bladé, MD
H. Lee Moffitt Cancer Center
Northwestern University Medical School
over the years."
Hospital Clinic
and Research Institute
Chicago, IL, USA
Barcelona, Spain
Tampa, FL, USA
Howard Streicher, MD
The IMF is equally grateful to him and appreciates
Ivan Borrello, MD
Shaji Kumar, MD
National Cancer Institute
Johns Hopkins University
Mayo Clinic Rochester
CancerTherapy Evaluation Program
his dedication to the myeloma community.
Sidney Kimmel Comprehensive Cancer Center
Rochester, MN, USA
Rockville, MD, USA
Baltimore, MD, USA
Robert A. Kyle, MD
Robert Vescio, MD
John Crowley, PhD
Mayo Clinic Rochester
Cedars-Sinai Comprehensive Cancer Center
Cancer Research and Biostatistics
Rochester, MN, US
Los Angeles, CA, USA
Seattle,WA, USA
13
REsEaRch
Research Grants program
The IMF's Research Grants Program identifies, supports, and develops the world's
most promising myeloma research. The IMF continues to support junior and senior
researchers, funding 85 grants since the program's inception in 1994. This IMF-
supported work continues to lead to further funding from other highly regarded
institutions, as well over 150 publications in the world's top research journals.
William Matsui, Md
The sidney Kimmel
Comprehensive Cancer Center
Johns hopkins University
Baltimore, MD
William Matsui is the IMF's 2007 Brian D. Novis
Senior Research Grant recipient. He studies the
cellular organization of myeloma, particularly at
the stem cell level. His IMF-supported research,
Hedgehog Signaling in Myeloma Cancer Stem
In 2007, the IMF awarded six research grants, for a total of $265,000:
Cells, investigates the Hedgehog cellular signal-
ing pathway, one that Dr. Matsui has shown
Brian d. novis senior Research Grant 2007
to be crucial to the activation of myeloma
William Matsui, MD
stem cells.
The Sidney Kimmel Comprehensive Cancer Center
Johns Hopkins University
Based largely on Dr. Matsui's results, scientists
Baltimore, MD
now believe that if we block the Hedgehog
Hedgehog Signaling in Myeloma Cancer Stem Cells
pathway, we can block the disease. From the
data generated from this IMF-funded work,
Brian d. novis Junior Research Grants 2007
Dr. Matsui now also receives support from the
Roberto Bellucci, PhD
National Institutes of Heath.
Dana-Farber Cancer Institute
Boston, MA
His results have also compelled a number of
Genetic Screening for Myeloma Cell Susceptibility to NK Cell Mediated Lysis
pharmaceutical companies that have been
Using shRNA Libraries
developing Hedgehog pathway inhibitors to
Nicola J. Camp, PhD
consider clinical y testing these compounds
University of Utah School of Medicine
in myeloma patients. The IMF is currently
Salt Lake City, UT
partnering with Dr. Matsui to ensure that
The Familiality of Multiple Myeloma and Related Phenotypes
this happens.
Claire M. Edwards, PhD
Vanderbilt University Medical Center
"My project was considered high risk," Dr. Matsui
Nashville, TN
says. "The IMF has the vision to provide critical
Effects of VELCADE on the Protein Expression Profile at the Myeloma-Bone
funds not only for me, but for many high-
Interface in Vivo
risk projects that have subsequently gone on
to success."
Silvia Ling, MD
Centenary Institute of Cancer Medicine and Cell Biology
"William Matsui is the only person who has been
Newton, Australia
studying this scientific question," says Dr. Brian
Predicting Response of Multiple Myeloma to Proteasome Inhibitors
Durie, IMF Chairman of the Board. "We were
iMF Japan aki award 2007
eager to support his unique research, and we're
thrilled to continue participating with him as it
Akira Sakai, MD, PhD
comes to amazing fruition."
Research Institute for Radiation Biology and Medicine
Hiroshima University
Hiroshima, Japan
Analysis of the Aspects Induced by Cyclin D1 Overexpression in Myeloma Cells
Leads to a New Strategy of Treatment of Multiple Myeloma
14
REsEaRch
The IMF grant I received has been invaluable in supporting my
ongoing research into myeloma bone disease. It allows me to
pursue novel ideas and approaches that will ultimately increase
our understanding of the pathogenesis of multiple myeloma and
result in the development of new therapeutic approaches
for the treatment of this destructive disease.
CLAIRE EDWARDs, PhD
Vanderbilt Center for Bone Biology
Nashville, TN
Robert a. Kyle
Lifetime achievement award dinner
On June 7, 2007, the Robert A. Kyle Lifetime Achievement Award was presented to
Heinz Ludwig, Director, Department of Medicine I, Center for Oncology and Hematology
Wilheminenspital, Vienna, Austria. In a true reflection of the international diversity
of the IMF's Scientific Advisors and research collaborators, this prestigious award was
presented outside the U.S. for the first time, at an event that raised over $100,000. Each
year the award and its honoring event recognizes a physician who most exemplifies a
singular dedication to and compassion for myeloma patients and the first-rate treatment
of their disease.
IMF Working Group
Scientific Advisory Board
International Myeloma Forum
Bank On A Cure®
Our collaborative research extends worldwide. In this bird's-eye view,
the colored dots represent the locations where IMF research programs
take place all around the globe.
15
REsEaRch
suppoRt
The IMF has stood with us and supported us as we fight multiple
myeloma. We are humbled to recall the time and resources that you
have shared with us over the years, and are still offering.
RhODA & GILL LOTT, Glen Burnie, MD
Although multiple myeloma is one of the most common forms of blood cancer,
Maddie hunter
many patients and their families are not familiar with the disease until they have
Metuchen, NJ
been diagnosed. The IMF was founded on the principle that beyond educating
Maddie Hunter found the IMF's website
and publications in 2001, when she was
themselves about the disease, patients and their family members need a strong
first diagnosed with myeloma. But the IMF
network of support to offer compassion, community, and the most up-to-date
transformed from "resource" to "relationship"
information. The IMF's programs and services are designed to ensure that no patient
when she joined the Philadelphia Multiple
or loved one feels isolated by a myeloma diagnosis.
Myeloma Networking Group in 2003. In 2005,
Maddie became its co-leader, along with
www.myeloma.org
Marilyn Alexander.
The IMF web site continues to serve as a touchstone for
everything the IMF has to offer. With 24-hour access to the
The Philadelphia support group is 300
IMF's comprehensive publications, videos and blogs, it is an
members strong, and Maddie is quick to point
out that she does not manage things alone.
invaluable source of the latest information on news and
In 2007, a steering committee of 15 members
events affecting the fight against myeloma. In 2007, the
helped upgrade the group's newsletter and
web site had over 900,000 visits and over 5.4 million page
web site, offered a diverse array of speakers
views, with visitors downloading 300,000 documents and
and programs, and spearheaded several IMF
viewing 112,000 online videos.
member fundraisers.
toll-Free hotline
As an executive coach and corporate trainer in
In 2007, the IMF's toll-free hotline made a tremendous change in the way they
her professional life, Maddie sees many group
support and assist callers. The IMF developed a system for our National Cancer
dynamics. She is sure that her Philadelphia
myeloma group is "the most generous,
Institute-trained specialists to keep a record of hotline calls, conversations, and
supportive group of people I've ever met." It's
recommendations made to each individual caller so that future calls can be
why she drives one-and-a-half hours each way
handled with the utmost in efficiency and
for their monthly meetings.
support. This state-of-the-art system allows
us to maintain highly personal relationships
In 2007, Maddie attended the IMF's annual
with our donors and track trends with
Support Group Leaders Retreat for her third
utmost confidentiality. In 2007 the hotline
time. She also became the IMF's first Patient
received over 2,200 calls and responded to
Representative at the bi-annual International
1,600 emails.
Myeloma Workshop and blogged to patients
and caregivers from its 2007 meeting in
Kos, Greece.
"My experience in Kos was profound," she says.
"It allowed me to learn an enormous amount of
The IMF Hotline is the best!
new information, which I could then share with
You have given me hope
others. It was also exceptionally important on
a personal level," she adds. "I was finally able to
and confidence. Indeed, now
allow myself to take in how close we are to the
that I'm an `old timer'
major breakthroughs that will make myeloma a
in the world of myeloma, I value
chronic condition, and then find a cure."
your activities even more.
ROBERT sCOTT, Naples, FL
16
support Groups
As the IMF grows its network of support groups in the United States and around the
world, it has also increased the amount of staff dedicated to meeting the needs of
the groups and their leaders. In 2007, the IMF Outreach team, including Kelly Cox,
Director, Support Groups Outreach; Robin Tuohy, Regional Director, Support Groups
Northeast; and Andrew Lebkuecher, Regional Director, Support Groups Southeast,
welcomed Arin Assero as the new IMF Liaison, Patient Education/Support.
Together, this team
of passionate and
dedicated professionals
Frank Gravinsky
travels to meetings,
Denver, CO
conferences, IMF
When Frank Gravinsky first called the IMF Hotline,
Patient and Family
he feared he was dying. Severe back pain had
become seven broken ribs and seven crumbling
Seminars, and regional
discs. He lost five inches of height. He was so
symposiums to talk to
hunched over he was severely compressing his
patients about living
lungs; he needed to use an oxygen tank 24 hours
with multiple myeloma. a day.
They provide each of
the over 100 myeloma support groups with as much support and material as they
An oncologist had suggested myeloma as a
need to make a difference in the lives of those affected by this disease.
potential diagnosis but ruled it out when no
indication appeared in Frank's blood work. And
In 2007, the support group team made a total of 69 visits to domestic support groups yet there was no alternative explanation for
across the country. Eleven new support groups were formed in:
Frank's deterioration. Desperate, Frank called the
IMF's toll-free number.
Orange County, CA
Cincinnati, OH
The IMF's Hotline Specialists informed Frank that
Denver, CO
Eugene, OR
myeloma's absence in blood work occurs in 10%
Maitland, FL
East Texas
of all cases. They suggested alternative ways to
Portland, ME
Norfolk, VA
test for the disease. Frank brought the information
Mideast Mississippi
Green Bay/Fox Valley, WI
back to his oncologist, but he wouldn't budge.
Nassau County Long Island, NY
Frank called the Hotline again. They urged him to
The team also dedicated time in 2007 to organizing seven regional community
get a second opinion. When he did, his myeloma
workshops, three of which took place in underserved areas that the IMF had never
was officially diagnosed. He was immediately put
before visited. The first ever workshops in Hawaii, Kansas City, and St. Louis, as well
on treatment.
as workshops in Minneapolis, Little Rock, East Texas, and the third annual Southwest
Frank continues to rely on the IMF. After reading
Symposium in Phoenix, welcomed over 600 patients and family members to the
the IMF's Understanding Kyphoplasty publication,
IMF community.
Frank recognized it as a procedure that could
help him. In 2007, the IMF used its resources
In addition, 50 U.S. support group leaders, and 22 international leaders and their
to find Frank a local kyphoplasty specialist with
guests attended the 2007 Support Group Leader Retreat in Tempe, Arizona, where
myeloma experience. He now stands up straight
they were updated with the latest information regarding myeloma treatment, and
and only has to use an oxygen tank at night.
given the tools they need to take that valuable information back to their support
groups. The IMF also hosted 18 Support Group Leaders from the U.S. and Canada
An avid golfer before his troubles, Frank is back
at the American Society of Hematology (ASH) conference held December, 2007, in
on the links and his myeloma is in remission. "If
Atlanta, GA. Support group leaders were able to attend key sessions and gain first-
two years ago you would have told me I'd be
hand knowledge to take back to their groups.
where I am today, I don't know how I could have
believed you," Frank says. "Anyone I meet now
The people who come to our meetings are so wonderful
with myeloma, I tell them if they have questions,
and, no matter how much I try to give to the group,
go to the IMF. Don't listen to anyone else.
I always find that I get more in return.
"Without a doubt without a shadow of a doubt
This group has been my best therapy!
the IMF saved my life."
ROsEMARY hERRING, Titusville, FL
17
suppoRt
advocacy
The IMF has had a significant impact on the entire
world community of myeloma patients, caregivers, and
healthcare professionals. I don't know of another organization
that does a better job for a sickness to which it's dedicated.
WALTER REINhOLD, haleiwa, hI
E. Michael d. scott
Upper Makefield, PA
The IMF is dedicated to creating a world environment that fully supports all the
Raised in England, West Africa, and Switzerland
needs of myeloma patients, their families, their caregivers, and researchers working
and now a U.S. resident Mike Scott is keenly
to combat the disease. By advocating for these needs at the governmental level
aware of the "big picture," in the global sense of
and on the largest playing fields possible, the IMF continues to build relationships
the term. It makes him the perfect fit as the IMF's
and foster change in strategic and systemic ways.
big-picture advocacy strategist. Mike has served
as an IMF Board Member since 1995 and as
Governmental policy
its Cancer Leadership Council representative
since 2003.
In addition to campaigning for higher cancer research
More than 20 years ago, Mike lost a close friend
allocations, the IMF continues to advocate for legislative issues
to cancer. Mike was already well-established
that ensure myeloma patients continue to have access
with a successful career in scientific and medical
to high quality cancer care.
communications. His friend's journey led him to
think in a new way about the systems in place
ChRIsTINE K. MURPhY, Murphy Consulting LLC, Arlington, VA
to support cancer patients. It has inspired his
professional and personal life ever since.
When advocating on the myeloma community's behalf on the governmental
level, the IMF is committed to creating the best possible circumstances for both
When it comes to myeloma advocacy, Mike
the present and the future. In 2007, the IMF served as a strong voice in favor of
focuses on establishing and fostering relationships
protecting and increasing myeloma research budgets at the National Institutes
with lawmakers and building coalitions among
of Health, the National Cancer Institute, the Department of Defense, and the
cancer advocacy groups. While there are always
Centers for Disease Control and Prevention. Through meetings with House and
important short-term gains to be made, Mike
Senate Appropriations Committees and co-authoring six formal letters to Congress,
believes in building systems and services that will
help the community in the long term.
the IMF sought to safeguard our interests in the fiscal year 2008 budget and, just as
importantly, establish a positive framework as we continue to move forward.
Mike has a tactical but passionate approach to
making the world better for myeloma patients
The IMF also worked at the federal level to improve the quality of life for myeloma
everywhere. He reflects on his work with his
patients. The IMF actively engaged in advocacy related to a proposed change in
typical aplomb. "Cancer advocacy is like feeding
clinical trials policy, coverage of erythropoiesis stimulating agents, and the addition
the slot machines. You win some. You lose some,"
of other drug compendia for cancer drugs at the Centers for Medicare and Medicaid
he says. "And every so often you think you'll
Services (CMS). The IMF also supported HR 1078, the Comprehensive Cancer Care
maybe hit the jackpot. If you don't play, you
Improvement Act, sponsored by Representatives Lois Capps (D-CA) and Tom Davis
don't have a hope of winning, but don't spend
(R-VA), designed to boost the quality of cancer care for Medicare beneficiaries
resources you can't afford to risk."
and influence the delivery of care to all cancer patients and survivors. The IMF
authored or co-authored 12 letters to the CMS, the Food and Drug Administration,
the Department of Health and Human Services, and Congress advocating for
governmental support of issues important to myeloma patients and the entire
cancer community.
18
advocacy partnerships
The IMF proudly collaborates with other cancer organizations in order to most
iMF advocacy partnerships
effectively advocate for our many common goals. The IMF firmly believes that it
C-Change
is through partnerships with others that we will most effectively reach our goals.
Cancer Leadership Council
Building these mutually beneficial relationships also ensures that the myeloma
community is always represented when key governmental agencies build and
Global Access Project
assess their agendas.
National Coalition
for Cancer Research
In May 2007, the IMF once again participated in One Voice Against Cancer (OVAC)
One Voice Against Cancer
Lobby Days in Washington, D.C., organized to urge the federal government to allot
more funding for cancer research and quality of life issues for patients. In addition
to its collaboration with OVAC, in 2007 the IMF continued rewarding partnerships
with C-Change, the Cancer Leadership Council, the Global Access Project, and the
National Coalition for Cancer Research.
advocacy through Media
nBc nightly news
Some 100,000 Americans are living with it.
with Brian Williams
About 11,000 lose that fight each year. But new treatments
Newscast on December 12, 2007
and research results do hold new hope.
with Dr. Brian Durie and Elijah Alexander
BRIAN WILLIAMs, NBC Nightly News, December 12, 2007
Through its advocacy initiatives, the IMF seeks to reach out and raise awareness
about myeloma to people outside of our immediate community. It is through
this exposure that myeloma has and must continue to emerge as an issue
of importance on a greater global level. Media coverage serves as an enormous
platform from which to reach this goal, and was earmarked as a targeted imperative
for the IMF in 2007.
On December 12, 2007, Dr. Brian Durie received national attention when he was
profiled along with former NFL linebacker and myeloma patient Elijah Alexander on
NBC's Nightly News with Brian Williams. During his interview, Dr. Durie discussed the
importance of emerging research patterns and correlations, and how these results
benefit myeloma patients. Mr. Alexander is a highly respected public figure, and
his personal story added a very tangible element of hope and perseverance. This
NBC Nightly News feature also generated passionate responses on the network's
web site. The comments posted make it clear that this national exposure increased
awareness and expanded our community.
19
advocacy
dEvELopMEnt
My husband and I decided that it was time to give back.
We felt it was of utmost importance since we have used the IMF's
expertise all through our beginning days of not knowing much
of anything about myeloma. We wanted to give back to the
organization that sent us in the proper direction.
NANCY MOsEs, Potomac, MD
In an effort to fulfill its mission of improving the quality of life of myeloma patients
while working toward prevention and a cure, the IMF funds pioneering research,
the highest-quality educational programs, personalized support for patients and
families, and serves as an ardent advocate for the entire myeloma community. The
IMF is only able to achieve these goals year after year because of the outpouring
of support by our members.
2007 was a record-setting year for the IMF. We owe this success to the passionate
Kathryn Golly
and caring people within the myeloma community who share their time, money,
springfield, Oregon
and resources. In 2007, we raised $7 million, a dramatic 30% increase over the
The IMF means many things to many people.
record-setting $4.9 million raised in 2006.
Sometimes we don't even know it. This was
the case when Kathryn Golly called, looking to
2007 saw the continuation of the IMF's participation in the Combined Federal
donate her estate to the IMF.
Campaign, the world's largest and most successful workplace charity campaign.
We also saw IMF members taking advantage of their employers' Matching Gifts
Kathryn spent her professional career as a nurse,
first in Saudi Arabia, and ultimately at Sacred
programs. Simply by submitting the forms, members as much as doubled the
Heart Medical Center in Eugene, Oregon. Despite
value of their personal gifts, helping to raise an additional $16,500 for IMF programs
her myeloma diagnosis, Kathryn lived her life
and services.
as fully as possible. By early 2007, she logged
The IMF was once again granted the coveted Four Star rating by Charity Navigator,
enough hiking expeditions to become an official
member of Obsidians, a popular local outdoor
the country's premier independent charity evaluator.
activities club.
Major Gifts & planned Giving
When Kathryn spoke with Heather Cooper Ortner,
the IMF's vice president of development, in the
My interest is in funding research that aims to mitigate this disease
summer of 2007, she was no longer responding
and find a cure for it. Being a visionary in my business life,
to treatment and was eager to put her affairs in
I decided to invest in Bank On A Cure.
order. She wanted to support the IMF however
DAVID BROWN, Pagosa springs, CO
she could.
After the IMF helped her address the legal details,
Donors in our Major Gift and Planned Giving programs are very special to the IMF.
Kathryn drafted her will to name the IMF as the
This small group of people makes a significant impact on our fundraising efforts.
beneficiary of her estate. Heather believes this
While every gift, regardless of size, is truly appreciated by everyone at the IMF, Major
gave Kathryn the peace of mind she needed; she
Gifts represent those people who are willing and able to give at the highest levels.
passed away on August 22, 2007, soon after the
Major donors are visionary in their giving and enable the IMF to address both the
documentation was complete.
immediately pressing and long-term critical needs of the myeloma community
"We are tremendously proud to be the recipients
In 2007, the IMF received 81 Major and Planned Gifts totaling $1.1 million. Over 76%
of such a meaningful gift," Heather says. "We will
of this giving came from donations of $10,000 or more.
honor Kathryn's memory by ensuring it is put
to the best possible use supporting myeloma
patients and their families."
20
annual Gala
It takes a lot for us to fly across the country to see a show.
Our trip was well worth it. The performers were fantastic.
It was wonderful to learn about what a really fine man Peter Boyle
was and to witness the love his friends had for him and
share in the warmth of their feelings.
shARON & ChUCK NEWMAN, Ann Arbor, MI
Loraine alterman Boyle
2007 marked a significant shift in the IMF's annual gala event. After the death of
New York, NY
her husband, renowned actor Peter Boyle, Loraine Boyle resolved to work with the
Loraine and Peter Boyle's journey with myeloma
IMF to create a signature event that would honor his memory, increase awareness
began as a private one. As a high-profile actor,
about the disease, and raise much needed funds. Our 2007 annual gala was called
Peter knew that if he wanted to continue to fully
Celebrating Peter Boyle An Evening of Comedy with Family & Friends. This event
commit to his career, he and Loraine would have
raised over $500,000 in gross proceeds directed to the IMF's groundbreaking
to confront his myeloma diagnosis quietly. And
research programs, including Bank On A Cure, far exceeding the amount raised in
so during the time he battled myeloma, Loraine
any prior Gala.
and Peter quietly relied upon and quietly
supported the IMF.
The evening began with a Hollywood red carpet
After Peter's passing in December, 2006, Loraine
press line and pre-show reception for 450 people. It
felt it was time to give back publicly. She partnered
was followed by a memorable, touching, and truly
with the IMF to create the 2007 annual gala,
hilarious tribute to Peter played to a packed house of
Celebrating Peter Boyle An Evening of Comedy
over 1,000 people. As the Chair of the event, Loraine
with Family & Friends.
an accomplished journalist reached out to Peter's
colleagues, including former cast mates from the
"Having so many people who mattered to
award-winning television show Everybody Loves
Peter gathered in one room, it was a great
experience," Loraine says. She is also proud to
Raymond. Ray Romano hosted the evening. The all-star
have raised record-setting funds for the IMF,
line-up included Patricia Heaton, Doris Roberts, and
and just as importantly to have provided a
Fred Willard, with comedy performances by Jeff Garlin,
platform to significantly increase awareness for
Richard Lewis, Ray Romano, and an unforgettable finale
the foundation and the disease.
by Martin Short. More than 350 guests then joined the
celebrities for a special VIP post-show champagne and
"In order to truly succeed against myeloma, we
dessert reception.
need to create as many substantial opportunities
for fundraising and awareness as we can," she
says. "One of the critical issues is that not enough
people know about us."
Loraine will continue to help generate prominent
fundraising events and pursue major gifts for
the IMF. She states it plainly: "I owe the IMF
something."
21
dEvELopMEnt
concert for a cause
On August 27, 2007, Christopher Guest, Michael McKean, and Harry Shearer, also
known as Spinal Tap and The Folksmen (from the award-winning "mockumentaries"
This Is Spinal Tap and A Mighty Wind), invited a group of friends to perform
with them at Concert for a Cause. The event was held at the Avalon Theater in
Hollywood to a roaring crowd of over 1,000 fans.
The event was a tremendous success,
raising over $45,000 for the IMF. It
also made a huge impact on building
awareness of multiple myeloma. In the
weeks leading up to the event, the IMF
and Concert for a Cause generated a
tremendous amount of publicity on
the radio, in print, and on television.
afternoon tea in Washington dc
On May 6, 2007, Carol Klein and Nancy Moses hosted an Afternoon Tea in support
of IMF research. The fundraising event, which took place at the Four Seasons Hotel
in Washington, D.C., focused on the many roles women play within the myeloma
community as patients, partners, family members, decision makers, and leaders.
A crowd of more than 120 guests
listened to the afternoon's guest
speaker, IMF President Susie
Novis, who shared the story of the
IMF from its humble beginnings
as a three-person operation to
the international organization it
has now become. Guests also
enthusiastically bid on several
big-ticket raffle items, including
a luxurious Napa Valley getaway
as well as luxury items and services from vendors in the D.C. area. A planning
committee of 30 women helped Carol and Nancy spearhead the event, which
raised more than $37,000 for the IMF's Brian D. Novis Research Grants Program.
22
dEvELopMEnt
Member Fundraisers
I quit doing marathons after my
The desire to "do something" is strong among IMF members and many of them
eighth run a couple of years ago,
put that desire into action by putting on Member Fundraisers. These events, held
but I decided to come out of
all over the country throughout the year, provide a productive outlet for members,
`retirement' in honor of my aunt
increase awareness of the disease, and raise valuable resources for the fight against
and in hopes of raising funds
myeloma. In 2007, members raised a record-setting $380,000. The depth and
for the IMF's myeloma research
breadth of these events reflect the passion and creativity of the IMF community.
program. Without cutting-edge
research and experimental trials,
my aunt and others would not
be here today.
ERIC MERKEL, Washington DC
Benefactor's circle
partners' circle
F.O.R. Benefit
Friends' circle
Dozier Anniversary
$25,000 and up
$5,0009,999
Michelle Klein-Hass
$500$999
Fundraiser
Los Angeles, CA
Harold & Jan Dozier
6th Annual Multiple Musicians
Eric's Run for Aunt Linda
Bill Bertsch Memorial 5K
Oklahoma City, OK
Against Multiple Myeloma
Eric Merkel
Gabriel Birger Bar-Mitzvah
Fieldston Middle School
Naomi Margolin
Arlington, VA
Gabriel Birger
New York, NY
Fabian Fundraiser
Sea Cliff, NY
Weston, FL
Ken Fabian
Evening 4 A Cure
Brad Bartel Fundraiser
Apopka, FL
Coach Rob's Benefit Bash
Ashley Barit
Gang Letter Campaign
Fort Lewis College
Rob and Kim Bradford
New York
Martin and Judith Gang
Durango, CO
Gerry's Journey
Altamonte Springs, FL
Arizona
Gerry and Kristi Difford
Gary Heuer, Jr. Memorial
Fiacco/Nichols Fundraiser
Golden, CO
Jammin for a Cause
Golf Tournament
Help from Heaven
Suzanne Fiacco and Melanie Nichols
Pat Harwood and Donna Costello
Nancy Heuer
Erin Yess, Kirsten Wilson & Harper Giese Potsdam, NY
Gina Terry's Run
Elko, MN
Caledonia, NY
Winona, MN
Gina Terry
Losing Weight
Statesville, NC
Klein Tea
Walk for Myeloma
Jackson Wedding
to Gain Awareness
Carol Klein and Nancy Moses
Denise Vidot
Bill and Devon Jackson
Debi Pleitner
Julie's Run for Joann
Washington DC
Miami, FL
North Miami Beach, FL
Pensacola, FL
Julie Keefe
Palm Beach, FL
Team Continuum
Jim's Run for Friends
Multiple Colors
Paul Nichols
associates' circle
Jim Wilson
for Multiple Myeloma
Keckhut Fundraiser
New York, NY
$1,000$4,999
Charlotte, NC
Pam Larsen
Robert Keckhut
Mesa, AZ
An Evening of Believing
Klein Jewelry
Honolulu, HI
Founders' circle
Jennifer Baker
Sarah Klein
Neinstein Birthday
Laxer Fundraiser
$10,000$24,000
Highland Village, TX
Los Angeles, CA
Fundraiser
Jan Laxer
Little Neck, NY
J.C. Golf Tournament
Bertino Wine Fundraiser
Lauren Hill Fundraiser
Larry Neinstein
David Johnson
Kathy Bertino
Lauren Hill
Studio City, CA
Linda Kern Fundraiser
St. Cloud, MN
Huntingdon Valley, PA
Brighten, MA
Linda Kern
under $500
San Francisco, CA
Money for Miracles
Crowell Fundraiser
Pike's Peak Climb
Carol Rossi
Tami Crowell
Richard Davies
Bianchi Garage Sale
Mehalick Fundraiser
Cranston, RI
Jacksonville, FL
Pikes Peak, CO
Jodi Bianchi
Lisa Mehalick
Carlsbad, CA
Gibsonia, PA
Music Against Myeloma
Dan Molnar's Run
Prosper Run
Slava Rubin
for Jerry Greenlee
Isabel Prosper
Catlett Cards
Musicians Against Myeloma
New York, NY
Dan Molnar
Vancouver, BC
Irma Catlett
Rachael Tanenhaus
Santa Barbara, CA
Cambridge, MA
Dr. Scott Lewis' Outrageous
Louisville, KY
Relay for Life
Comedy Hypnosis Show
Dennis Werra Fundraiser
Malcolm Bauer
Cents for Cells
Philadelphia Phantoms
Norm, Revina* and Scott Lewis
Jason Werra
Arnold, CA
Beth Morgan
Fundraiser
Palm Springs, CA
Franklin, WI
Salon 926 Fundraiser
Southern Pines, NC
Matt Lertzman
Philadelphia, PA
WAMP Swim-A-Thon
DGA Fundraiser
Theresa Marioni
Clyde's Ride for the Cure
Liz Stafford
Debi Kristiansen
Wilmington, DE
Clyde Corales
Rhoden Fundraiser
West Hartford, CT
Anaheim, CA
Spirit of `76
Austin, TX
Michelle Rhoden
Juniper Hills, CA
Elijah Alexander
James Conrad
Debbie Exner's Walk
Research Fund
Highland Village, TX
For Myeloma
Richard Abbey's Birthday
Kimberly and Elijah Alexander
Tinsler Campaign
Debbie Exner
Richard Abbey
Dallas, TX
Hollis Tinsler
Phoenix, AZ
Clifton Park, NY
Federis Fundraiser
Biloxie, MS
The Douglas Alan McCombs
Shedenhelm Wedding
Nenita Federis
Trooper Benson Klein
Memorial Fund
Kendra and Shawn Shedenhelm
Glendale, CA
Research Fund
Helene Stevens
Tampa, FL
Carol and Benson Klein
Paradise, CA
Bethesda, MD
23
dEvELopMEnt
FinanciaLs
INTERNATIONAL MYELOMA FOUNDATION
statement of Financial position
for the year Ended december 31, 2007
assets
CURRENT AssETs
Cash and cash equivalents
$1,461,641
Contributions receivable
486,993
Prepaid expenses
143,686
Total Current Assets
$2,092,320
PROPERTY AND EQUIPMENT, at cost
Furniture, fixtures and equipment
47,280
Computer equipment
107,812
Computer software
149,936
Laboratory research equipment
449,200
754,228
Less accumulated appreciation
(495,951)
Net Property And Equipment
258,227
totaL assEts
$2,350,597
Liabilities & net assets
CURRENT LIABILITIEs
Accounts payable and accrued expenses
$898,962
Deferred and unrestricted educational grants
579,303
Total Current Liabilities
1,478,265
commitments & contingencies
NET AssETs
Unrestricted
819,951
Temporarily restricted
52,381
Total Net Assets
872,332
totaL LiaBiLitiEs and nEt assEts
$2,350,597
24
FinanciaLs
INTERNATIONAL MYELOMA FOUNDATION
statement of activities
for the year Ended december 31, 2007
change in unrestricted net assets
REVENUEs
Educational Grants
$4,645,078
General Contributions
1,188,304
Fundraising programs
739,660
CDC program support
176,784
Fundraising event income
97,628
Seminar fees and support group income
76,539
Donated services
57,094
Interest income
34,736
Total Revenues
7,015,823
net assets Released From Restrictions
Satisfaction of program restrictions
976,350
Total Unrestricted Revenue & Other support
7,992,173
Expenses
Program expenses
6,336,117
General supporting expenses
452,347
Fundraising expenses
698,831
Total Expenses
7,487,295
incREasE in unREstRictEd nEt assEts
504,878
changes in temporarily Restricted net assets
Contributions, net of direct benefit to donors of $272,000
510,890
Net assets released from restrictions
(976,350)
Decrease in Temporarily Restricted Net Assets
(465,460)
Increase in Net Assets
39,418
NET AssETs, Beginning of Year
832,914
nEt assEts, End of year
$872,332
25
FinanciaLs
INTERNATIONAL MYELOMA FOUNDATION
statement of Functional Expenses
for the year Ended december 31, 2007
Total Program Expenses
$6,336,117
General Supporting Expenses
452,347
Fundraising Expenses
698,831
Total Expenses
$7,487,295
Breakdown of Expenses by program
PROGRAM
TOTAL ExPENsEs
Advocacy
$22,318
Bank On A Cure®
882,331
CDC Sponsored Programs
176,784
Clinical Meetings
731,106
Education & Awareness
1,192,200
Hotline
231,224
Informational Mailings
131,958
International
293,335
Myeloma Manager
92,694
Myeloma Mobile
295,475
Myeloma Today
157,479
Nurse
527,761
Patient & Family Seminars
655,786
Public Relations
178,324
Research
99,514
Support Groups
546,900
Website
120,328
Total Program Expenses
$6,336,117
For a copy of our complete audited financial statement, please contact the IMF office
FinanciaLs
26
honoR RoLL
The International Myeloma Foundation
gratefully acknowledges the many people
chairman's council
partner's circle
associate's circle
and organizations which have made
$100,000 and up
$5,000$9,999
$1,000$4,999
contributions to our various programs
Celgene Corporation
Anonymous
Anonymous
and research projects during the past
Cephalon Inc.
Aptium Oncology, Inc.
Advanced Focus LLC
Johnson & Johnson/Ortho Biotech
Barco Family Foundation
Kristofer Anderson
year. Without them, the IMF would not be
Kyphon Inc.
Kathleen and Ronald Bertino
Anonymous
able to continue providing the excellent,
Millennium Pharmaceuticals, Inc.
Booz-Allen & Hamilton, Inc.
Archer Daniels Midland Foundation
high-quality programs and services upon
Estate of Peter J. Moonan
Robin Green and Mitchell Burgess
Carolyn Armington
Novartis Pharmaceuticals
Leslie Byrnes
Mr. and Mrs. Franklin B.K. Axel
which our members have come to rely.
Pharmion Corp.
The Capital Group Companies, Inc.
Dustin Balderrama
Their generosity allows us to:
Madeline and Roger Cole
Jerra and Bruce Barit
president's circle
The Lillian Butler Davey Foundation
Bea Bass
maintain the Hotline and ensure that
$50,000$99,999
Donna and Tim Egan
Malcolm Bauer*
staffers are up-to-date on the latest
The Binding Site, Ltd.
Eli Lilly & Co.
Gary Benanav
research and treatment options so that
Robert Ebersole
Evening 4 a Cure
Berger, Montague P.C.
The Estate of Kathryn Anne Golly
Harold and Isabel Feld Foundation
Vicki Birdoff
patients, family, and friends always
Diana and George Holway
Susan Fink
Catherine Blaney and Melvin Despain*
have a place to turn;
Ortho-McNeil Pharmaceutical/
The Mabel B. Fischer Grant Foundation
Regina Blanz
Johnson & Johnson
James French
Jessica Blinkoff
hold our Patient and Family Seminars in
David Geffen Foundation
Rayanne Blinn
the US and internationally;
Benefactors circle
Genzyme Corporation
Bloom Hergott Diemer Rosenthal
$25,000$49,999
James Gilbert
& LaViolette, LLP
HBO Inc.
Arnold Bodmer
ensure that our award-winning website
CBS Corporation
Heuer Family Memorial Golf Tournament
Dr. Philip Bosco
has the most relevant information
Jennifer and Bud Gruenberg
Human Genome Sciences, Inc.
The Braucher Family Foundation
Richard J. Head Irrevocable Trust
available to all those interested in
Indianapolis Colts, Inc.
Joan Breitenbucher
Team Continuum, Inc.
Virginia Johnston
The Breslow Foundation
myeloma;
Twin Cities Myeloma Foundation
Kosan Biosciences, Inc.
Wendy Breslow
Joan Lacagnina
L.J. Brewer
initiate new programs such as the
Founder's circle
Ted Lange
Briscoe Family Foundation
Nurse Leadership Board, the US
$10,000$24,999
C. S. Ledley
Carol and David Brown
Myeloma Forum, and the Myeloma
Abernathy MacGregor Group
Joann K. Malta
Purdy and David Brown
Mobile, while continuing the support
AMGEN Oncology
Alex Meneses and John Simpson
Mari and Ward Bukofsky
Susan and Frank Armo
Doris Meyer
Charles and Diane Burshears
of important initiatives such as the
The Estate of William H. Bell
Kathleen Moore
Corinne and James Cammarata
International Myeloma Working Group
Bloom Hergott Diemer, et. al.
Sharon and Chuck Newman
Paula and Gary Campbell
and Bank On A Cure®
Frances* and Richard Boisture
Linda and Jeff Peotter
Denise Carmody
Marcia and Thomas Borger
Pfizer Inc.
Carter Foundation, Inc.
invest in research programs that lead to
Jay Butler
Lawrence Reynolds
Jack Carter
Brian Feltzin
Judith and Milton Riseman
Janice and John Cartwright
better treatments for patients and fund
Genentech, Inc.
Leon H. Rittenberg, Jr.
Beatrice Chaney
research grants that lead to clinical
Goldstar Events, Inc.
Eleanor Rothberg
Arnie Chase
breakthroughs;
Howard Gilman Foundation
Richard H. Schulze
The Chicago Community Foundation
Janssen Pharmaceutica
The Family of Jackie Schwartz
Karen Chopra
continue to produce and regularly
Benson and Carol Klein
Michael J. Sherrill
Louise and Frank Chut
update the nearly 100 publications
Beverly Lundorff
Cynthia and Igor Sill
Eugene Cincotta
Estate of Harriet McConville
Technicolor
Citibank North America
that support patients and doctors in
Merck & Company
Dorothy and Hollis Tinsler
Joseph Cohen
making educated treatment choices;
Palace Holdings, Inc.
Delores Van Wyck and Family
Jane Cole Godin
PDL BioPharma
Lorraine and Karl Vollstedt
Combined Federal Campaign
advocate on behalf of the entire
Darlene and Walter Reinhold
Elizabeth and Irwin Warren
National Capital Area
myeloma community to ensure that
Monica and Philip Rosenthal
Barbara and Art Weldon
Lee Cox
The Estate of Hortense Saperstein
Michael Winkler
Barbara and James Coy
the research and patient care issues are
Louise and Gary Takata
Michele and Arnold Zousmer
Beverly and Jon Cross
brought to our lawmakers.
Amy Wagner
Tamara Crowell
Walsh Street Foundation
Carolyn and Kenneth Cruickshank
The IMF is dedicated to improving the
Robert W. Waring
Janet and Robert Daily
quality of life of myeloma patients while
Phyllis and Dr. Allan Weinstein
Fran and Jack Daley
Worldwide Pants, Inc.
Barbara Das
working toward prevention and a cure.
Ziopharm Oncology, Inc.
Sig Davidson
The IMF is here for you.
27
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Brigitte Demes
Philip Kingsley
Pfizer Foundation Matching Gifts Program
Sean Welsh
Shirley* and Gordon Doble
Esther and Bernard Klein
Phoenix Pictures, Inc.
Bob Wheat
Dreyfus Foundation
Roberta and Raymond Klein
Edna Pierce
Chick Willette
Janet* and John Dunn
Chuck Koval
Joyce Sullivan-Posladk and
Jan and Bill* Williams
The Eder Family
Lauren Hill Kowalski and John Kowalski
William H. Posladek
Eloise G. Williams
The Family of Virginia Elias
Donna and William Krepick
Laurie and Rudolph Reich
Carol Holmes Wolf
Barbara Ellis
Debbie and Calvin L. Krosch
Michele and Robert Reiner
Mitchell and Sharyne Wolfe
Barbara and David Elson
Charlene and Dr. Robert A. Kyle
Pam and Doug Rice
Nancy Wright
Susan Elzemeyer
Elaine and Dale LaLonde
Anne and Jeffrey Rienks
Judy A. Zoghby
Empire Distributors
Lambda Theta Alpha Latin Sorority, Inc.
Robapharm AG
Jason Zullin
Deborah and Steven Epstein
Kay and Ernest Lambert
Laurie Robinson
Frances Fahsel
The Law Offices of Bradley S. Erdosi
Sylvana and Matthew Robinson
Friend's circle
Donna Garvett Feig
Janet and Arthur Laxer
Robert Rohrbaugh
$500$999
Harold Feld
Andy Lebkuecher
Anna and Ray Romano
Mona Abrams
First Weber Group Foundation, Inc.
Linda and Joseph Lerner
Phillis and Robert Rosenthal
Nancy and Jack and Nancy Adams
Eileen Fisler
Dr. Stuart Lerner
Sandy and Mark Rothman
Adelman & Seide, LLP
Barbara and Buddy Freitag
Carol and Harold* Levine
Eleanor Rubin
James L. Adkins
Jan and Don Froeschle
Samantha Gerber and Eric Levine
Emma and Slava Rubin
Pamela Ahlen
Carolyn and Joel Fromer
Adrienne and Martin Levine
Susan Sabes
Nelleke and Jack Aiello
Charlotte and John Fryling
Roderick Lewis
Salon 926 LLC
Marv Albert
Grace and John* Gallaway
Kathy Locher
The San Francisco Foundation
Donna and Arthur Altounian
Marietta Gandy
Locke Lord Bissell & Liddell, LLP
Debra Fine and Martin Schneider
Rosemarie Aramanda
Howard Gazaway
Loeb Realty Co, Inc.
Ilona and E. Michael D. Scott
Archer Daniels Midland Company
Francoise Gerard
Louis Borick Foundation
Carrie and David Sears
Richard Arnold
David Girard
Carol Low
Jarvis Seccombe
AT&T Employee Giving Campaign
Virginia and Fred* Gloor
Helen Luts
Siemens Caring Hands Foundation
Jennet Walker and John Auerbacher
Goldman, Sachs & Co. Matching Gift Program
Nancy Maas
Claudia Siesennop and Tracy Wetherton
Lauren Jennings and George Baker
Charles Goldwater
Mary and Ken Makowka
Kenneth Simatic
Marla and Robert Baker
Nancy and Gary Goodenough
Michael Marks
Mary Anne Siska
Onel Bakirci
Clifford and LaVonne Graese Foundation
Julie Marshall
Carolyn Sissom
Madelyn and Dr. Kamel Baladi
Susan and Richard Grausman
Sylvia R. and Richard D. Mase
Lori R. and Keith A. Small
Diana and Matthew Barnes
Lillian Grayson Living Trust
Maurice and Carol Feinberg Family
Sarah and Melvin Small
Rosalind and James Barr
Arnold Greenberg
Foundation, Inc.
Maryanne and Charles Smith
Francis and Butch Bartush
Wendy Barish and Michael Greenstein
Patty and Fred McClintock
Daphne Smith
Janet W. Battaile
Deborah and Allen Grubman
Toni and James W. McCook III
Patricia* and Frank G. Snyder
Peggy and Dr. Allan* Bayer
Gursey Schneider & Company, LLP
Bernadette and William McElhenny
Yuk Ying and Ting Wai So
Judith Tenzer Benn
Guthart Family Foundation
Michael T. McLemore
Elizabeth Sondak
Mark R. Bennett
Sue and Alan Haber
Caroline McWilliams
Claire and George Speen
Jerome Bess
Maria and Lee* Hansen
Anne Meara and Jerry Stiller
Mary C. Spengler
Joan Biddison
Heather Harrick
Toby and Scott Melnick
RuthAnn and Charles Spirakis
Debbie and Dr. Jeff Birns
Kenneth Harris
Merck Partnership For Giving
Spokane Repiratory Consultants, PLLC
Lynn Blitzer
Lisa Harris
Deborah Henry Metzger and Charles Metzger
Lee Anne Stafford
William Blum
Judith Hartig-Osanka
Michael D. and Marilyn T. Winer Foundation
Janet Stanard
William R. Bohannan
Russell W. Hawkins
Liz Miller
Kathi Stanley
Jason Bonadio
Helping Hand Associates
Lesa R. and Gregory L. Mills
Valerie and Mike Stevenson
BP America, Inc.
Charlotte and Dale Herbrandson
Abraham Mitchell
Michael Stone
Sheila and Lou Brilliant
Rodger Hess
Arlene and Mayer* Mitchell
Virginia and Thomas Swann
Curtis and Lou Ann Brooks
Suzanne Hill
Montclair Beach Club, Inc.
Tackle Myeloma Foundation
Alan Bundy
Richard Hinson
Ellen Moore
Fern and Lenard Tessler
Colleen and John Busch
Kathleen Hofstadter
Leigh A. Morris
William Testa
Marilyn and Irving R. Bush
Jennifer and Richard Hogan
Jenny and Robert Morton
Virginia Thacker
Regina R. and William J. Butler
Peter J. Holloway
Annette Mount
James Thorington II
Genevieve D. Calvillo
Alan Holt
Janice and Briant Moyles
Mary and Terrance Tomann
Olga and Carlos E. Camargo
Howard Honigfeld
Charlie Mulhern
Albert Tone Jr.
Mary Ann Cardello
Karen Hopkins
Marianne and Daryl Mull
Carroll Tonkin
Lynnette* and Jack Cassari
Allan Horwich
Myrl & Roy's Paving, Inc.
Arthur"Skipper"Tonsmeire
Eleanor and John D. Cassidy
David M. and Tamara A. Hubler
Diane Waltke and Julius Nagy
Judith R. Torrez
Marion Celi
Harold Itkin
Aline and Craig Napoli
Tim Toupin
CHE Consulting
Mike Jackson
Nancy Nashbah
Shigeko and Joseph Trudeau
Robert H. Chilton
Gladys Styles Johnston
National Philanthropic Trust
Rita Ullman
Joseph R. Clark
Karen Jones Squires and James A. Squires
Brooke and Daniel Neidich
Dr. David H. Vesole
Cathy Clements
Peggy Jones
Paul Nicholls
Arlene Viglia
Bill Clifford
Neil Jongeward
Faith and Peter Nielsen
James Vigliarolo
Doris E. Clift
Fred Joseph
George Nikko
James Wagner
Laverne K. Clow
Donald H. Kandel
HSH Nordbank AG
Lynda L. Wahlberg
Roberta and James Cochran
Irene and Edward H. Kaplan
Susie Novis and Dr. Brian Durie
Roslyn E. Walker
Elizabeth and Rick Cohen
Retha V. Keenan
Kerry and Rick O'Daniels
James Walsh
The Manny & Ruthy Cohen Foundation, Inc.
Nancy Kelsey
Dana and George Paskalis
Lynda and Jim Walters
Shelly Cohen
Virginia H. Kennedy Trust
Mark Peltz
Clark Ward
Judith and Neil Collier
Keryx Biopharmaceuticals
Pepsico Foundation
Kelly and Steve Weiss
Ronald G. Collman
28
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Joanne and James Conrad
Rev. and Mrs. Joe E. Hunter
Stephen C. Neal
Nancy and Jay Style
Glenda and Walter Cook
Meilissa and Keith Hutton
Ann Nelson
Mary and Jon F. Sullivan
Mary Cooksey
Judith and Dr. Herbert Hyman
Diane Nelson
Linda and Richard Tarrant
Michael Cornfeld
Institute for Continuing Healthcare Education
Marge and Dan Nencka
John T. Thornsley
Judy Cutchins
Dr. Tim Ioannides
Nancy and Dr. David Neville
Tamara Thornsley
Davis Wright Tremaine LLP
Devon and William Jackson
Miranda and Jeff Ng
Suzanne and Joseph Torres
Penelope Dawkins
Joan and John Jakobson
Thomas Ian Nicholas
Edith Tousey
Ellin and Ron Delsener
The John R. Jakobson Foundation, Inc.
Al Nickerson
Pauline and Col. Thomas J. Treloar
Mark DiCicilia
Judith R. Torrez and William Jewell
Elizabeth Nielson and Ronald Crouch
Claudia and Robert J. Tyrrell
Randy Dickinson
JJ Swim System, Inc.
Joan O'Callaghan
Marilyn and Stan Ulick
Kristi and Gerry Difford
The John R. Jakobson Foundation, Inc.
Nancy A. Ostlund
Ronald L. Unger
Barbara and Alvin L. Dischler
Judith Johnson
Lawrence Pande
United Way of Central
Pamela and Michael A. Dobrenen
Helen B. Jordahl
Park & Durham Attorneys at Law
and Northeastern Connecticut
David Dolinger
Ethel and Richard* Jordan
Joy and Ronald Paul
United Way of the National Capital Area
Walter Doll
James Jordan
Jo Anne Peterson and Henry Shields
University of Arkansas Medical Sciences
Jane Drexler
Diane Kadlac
Petro Extrusion Technologies
Ritch Van Duzer
East Bay Community Foundation
Iris and Saul Katz
John R. Pladziewicz
Robert D. Vang
Mary Jo and Vince Elhilow
Joan and Kevin Knee
Maxine and Mark Polyocan
Lindsay and Jerry Walton
Stephanie Elkin
Evyan and Robert Koenig
Sujata Potter
George Ward
Ensign United States Drilling (California)
Stanley Kornblum
Prestige Employee Administrators
Daniel Waterhouse
Far East Center
Kathe and Edgar Koschmann
The Pritts, Paul, Olive and Hunt Families
Steve Watson
Kate and Douglas Farrell
Lucia and Andrew Kramer
Project Leadership Services
Phyllis Weaver*
David Fine
Spencer Krane
Gail Quartner
Gerald Webb
M.L. Fisher
Richard Kunin
Magal and Nirmala Rao
Holly and Jayson Werra
Elaine* and William P. Fisher
Alan Kunski
Dana Rasmussen
Sharon and Terry Whisnant
The Five G's Family Foundation
Amy Bard and Stuart Kuritsky
Laura Ratner
Jan and Bill* Williams
Patrick J. Flynn
Adam Kurtzman and John Glover
Baltimore Ravens
Sheila and Fred Wilson
Diane E. Folkwein
Michael Kuykendall
Recellular, Inc.
June Witter
Reiko and John Folsom
Lambda Theta Alpha
Amelia Redman
Sarah Woessner
Tom Fontana
Ilene Landress
Cynthia Reich
Caroline and Herbert H. Wolf
Kara Frey
Mary Ellen Lansing
Abbie and Jim Rich
Lah Choo Wong
Laura K. Friend
Jamie Larsen
Steve Roderick
Marian Woodall
Stephanie Gallagher
Lynne Laughlin
Marilyn Rogers
Laura Lizer-Word and Rob Word
Tessa Gallo
Carol Le Roy
Nancy and Robert H. Roggeveen
Winthrop Wyman
Judith and Martin Gang
Deborah H. and Roger M. Lebbin
Mary and Dale Rohr
Patrick Yates
Susan and Daniel P. Gannon, II
Family Fund
Jane Rose
YTB Travel Network
E.H. Gardner
Ann Lebed
Mildred W. Rowan
Karen Yunt
Marilyn and Gerald Gelfand
Keith B. Leffler
Marilyn and Gerald Roye
Sorin Zdrahal
Stephen Gendel
Linda S. Leffler
Jane Rubey
Rita and David R. George
Minna Levine
Kim and Dr. Marty Rubin
Jennifer George
Matthew Likins
Slava Rubin
Marcia and Dr. Morie Gertz
Kristine Lindeman
Margie and Bob Russell
Glen Painting & Contracting, Inc.
Lynda and Gilbert E. Locke
Alan Rust
Judith and George Goldman
Mar Val Association
Sam Woo Restaurant
Ronda Gomez-Quinones and Howard Zieff
Latife Mardin
Samson Capital Advisors, LLC
James N. Goodman
Judy and Rick Markoff
Julia Rahn and Nancy Schmidt
Charles Goodwin
Ellen and Kenneth Marks
Bridget and Barry L. Schnepel
Google Matching Gifts Program
Barbara E. Carr and David Marsh
Frank Schreiner
Ruth G. Green
Helen and Col. Mike Martin
Richard Schutt
Margaret and Patrick Grippe
Anne and Duane Mason
Schwab Fund for Charitable Giving
Group Dynamics in Focus, Inc.
Susan and Richard Mayo
Arline and Buddy Schwartz
Bradley Hamburger
Dennis McClure
Judy Schwartz
Randolph M. Hamner
Sarah and Martin McEvoy
Marth and Gary Shafferman
The IMF's fiscal year ran January 1
Barbara Hannahs
John McGinty
Rosemary and David* Shea
December 31. This list includes gifts
Erica Hanson
McGraw-Hill Companies
Jody and Scott Siglier
received between those dates in 2007.
Dorothy Hatfield
Employee Giving Campaign
Mickie Simon
We apologize for any omissions or
Phyllis and Murray Hayutin
Josette and Wilson McNary
Susan Skaggs
errors. Please call our office to inform
Tom Healy
Medco Employee Giving Campaign
Stephen Smith
Rose A. Herrmann
Deirdre Menoyo
Susan Smith
us of any corrections needed.
Hillandale Farms of PA
Lorraine and Joseph Merluzzi
Janet Soltau
Maxine and Norbert Hilsberg
Evalyn and Dr. Richard Merrick
Phyllis T. Spaeth
Every gift is appreciated by the IMF.
Armin and Esther Hirsch Foundation
Barbara Meyer
Babette and Allan Spatz
Every dollar counts. Over 6,200 people
Shay and George Hirsch
Nancy Kuhn and Fred Mills
Virginia and Harold Spurlin
contributed gifts between $1 and $499,
Sam Hollander
Lisa and Michael Miraglio
Regina and James St. Lifer
totaling over $658,450 of support for
Stan Holuba
Maureen and Paul Monahan
Laurie Steelink
programs and research. We wish we
The Home Depot Political Action Commmittee
Karen and Tom Morton
Paul Stein
Laurie Zaks Horn and Jeff Horn
Rodney Moss
Doug Stewart Jr.
had space enough to list all of your
Craig Howard
Margaret Munna
Riza Stillwell
names. We do want you to know that
Cameron Hrehor
Lynn and Frederick Muto
Elinor and Jerome Stotsky
you are all very important to us.
Steve Hunt
National Lampoon, Inc.
Karen and Therman Striplin
* deceased
29
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...There is the IMF
2007
INTERNATIONAL MYELOMA FOUNDATION
12650 Riverside Drive, Suite 206
North Hol ywood, CA 91607 USA
800-452-CURE
www.myeloma.org
TheIMF@myeloma.org