ADVOCACY PROGRAMS & RESOURCES
dvocacy is more than just understanding
i "Template Letters" which are provided to
the issues. To make a difference, you have
Atomakeyourvoiceheard.Theinvolve- sendviae-mailorfaxtoyourMembersof
ment of myeloma patients and their caregivers is
Congress on crucial policy issues.
vital to the success of IMF's grassroots efforts. To
assist you in your advocacy activities, IMF provides
i ASponsor Track@ which attaches information
the following services and information:
on relevant bill sponsorship on the bio pages of
Members of Congress.
` Advocacy Toolkits
i A AVote Scorecard@ listing every Member of
AAdvocacy Toolkits@ contain material to assist
Congress and how they voted on bills of inter-
myeloma advocates in developing collaborative
est to the myeloma community.
strategies to educate legislators on topical issues
affecting patients. The toolkit includes informa-
i
tion such as (1) How a Bill Becomes a Law; (2)
ACongress Today@ providing daily schedules
of House and Senate activity including commit-
Building Relationships with Legislators; (3) Do's
tee hearing schedules.
and Don'ts in Government Relations; (4) Glos-
sary of Legislative Terms; and, (5) Guide to Leg-
islative Staff Titles. The Packets are available for
i ATell a Friend@ which enables users to send
Alerts, Votes, and other legislative-related in-
downloading from the Advocacy section of
formation to one or more myeloma advocates.
IMF's web site at www.myeloma.org.
i A searchable "Guide on National and Lo-
cal Media" including newspapers, magazines,
` Myeloma Action Network
and TV networks and stations; users can send
Becoming a member of the Myeloma Action
e-mails, faxes or printed letters to newspaper
Network allows us to focus our "E-Mail Alerts"
journalists, radio talk show hosts, and television
directly to those myeloma advocates who re-
commentators.
side in the state or district of the legislators we
need to target. These Alerts provide strategic
information to affect key policy issues of interest
` Cancer Statement of Principles
to IMF and the myeloma community. To re-
IMF developed the Cancer Statement of
ceive the E-Mail Alerts, you must sign up on the
Principles to:
homepage of the IMF Advocacy Action Center
at www.advocacy.myeloma.org.
i Focus and establish the priority issues to be ad-
dressed by IMF.
` Advocacy Action Center
i Inform myeloma patients, colleague organiza-
IMF=s Advocacy Action Center offers "one stop"
tions, government officials, the media, and the
shopping for federal legislative and regulatory in-
public about IMF's public policy concerns.
formation. Found on the IMF Web site at
www.advocacy.myeloma.org, it contains infor-
i Provide a continuing framework for IMF to re-
mation on the important issues that IMF is track-
view and report on actions that address cur-
ing for you. You can send messages to your leg-
rent and past policy concerns.
islators directly from the site. The Action Center
also includes such features as:
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The Cancer Statement of Principles
` Advocacy Updates
can be downloaded from the Advocacy
Advocacy updates on issues and legislation im-
section
of
IMF=s
web
site
at
portant to myeloma patients are included in
www.myeloma.org.
the e-mail newsletter Myeloma Minute and
the quarterly publication Myeloma Today.
Don=t forget that the Principles are ex-
These advocacy updates can also be viewed
cellent Aleave behinds@ when you meet
online on the Advocacy homepage at
with your Members of Congress!
www.myeloma.org.
` Public Policy Statements
IMF produces statements and letters aimed at
decision-makers on a variety of public policy is-
sues. These documents can be found on the
Advocacy homepage at www.myeloma.org.
CONTACT
Christine Murphy
Arin Assero
Director, Government Affairs
Communications and Public Policy
International Myeloma Foundation
International Myeloma Foundation
6534 Marlo Drive
12650 Riverside Drive, Suite 206
Falls Church, Virginia 22042
North Hollywood, CA 91607
Phone: 703-738-1498
Phone: 800-452-CURE (2873) EXT. 232
Fax: 703-349-5879
Fax: 818-487-7454
E-mail: cmurphy@myeloma.org
E-mail: aassero@myeloma.org
8/3/09
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