ADVOCACY PROGRAMS & RESOURCES
dvocacy is more than just understand-
Web site at www.advocacy.myeloma.org, it
ing the issues. To make a difference,
contains information on the important is-
Ayou have to make your voice heard. suesthatIMFistrackingforyou.Youcan
The involvement of myeloma patients and
send messages to your legislators directly
their caregivers is vital to the success of IMF's
from the site. The Action Center also in-
grassroots efforts. To assist you in your advo-
cludes such features as:
cacy activities, IMF provides the following
services and information:
i ATemplate Letters@ which are provided
to send via e-mail or fax to your Members
` Advocacy Toolkits
of Congress on crucial policy issues.
AAdvocacy Toolkits@ contain material to
assist myeloma advocates in developing
i ASponsor Track@ which attaches informa-
collaborative strategies to educate legisla-
tion on relevant bill sponsorship on the
tors on topical issues affecting patients.
bio pages of Members of Congress.
The toolkit includes information such as:
(1) How a Bill Becomes a Law; (2) Building
i A AVote Scorecard@ listing every Member
Relationships with Legislators; (3) Do's and
of Congress and how they voted on bills
Don'ts in Government Relations; (4) Glos-
of interest to the myeloma community.
sary of Legislative Terms; and, (5) Guide to
Legislative Staff Titles. The Packets are
i ACongress Today@ providing daily sche-
available for downloading from the Advo-
dules of House and Senate activity includ-
cacy section of IMF's web site at
ing committee hearing schedules.
www.myeloma.org.
i ATell a Friend@ which enables users to
send Alerts, Votes, and other legislative-
` Myeloma Action Network
related information to one or more mye-
Becoming a member of the Myeloma Ac-
loma advocates.
tion Network allows us to focus our
"E-Mail Alerts" directly to those myeloma
i A searchable "Guide on National and
advocates who reside in the state or district
Local Media" including newspapers,
of the legislators we need to target. These
magazines, and TV networks and stations;
Alerts provide strategic information to af-
users can send e-mails, faxes or printed
fect key policy issues of interest to IMF
letters to newspaper journalists, radio talk
and the myeloma community. To receive
show hosts, and television commentators.
the E-Mail Alerts, you must sign up on the
homepage of the IMF Advocacy Action
Center at www.advocacy.myeloma.org.
` Cancer Statement of Principles
IMF developed the Cancer Statement of
Principles to:
` Advocacy Action Center
IMF=s Advocacy Action Center offers "one
i Focus and establish the priority issues to
stop" shopping for federal legislative and
be addressed by IMF.
regulatory information. Found on the IMF
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i Inform myeloma patients, colleague or-
` Public Policy Statements
ganizations, government officials, the me-
IMF produces statements and letters
dia, and the public about IMF's public
aimed at decision-makers on a variety of
policy concerns.
public policy issues. These documents can
be found on the Advocacy homepage at
i Provide a continuing framework for IMF
www.myeloma.org.
to review and report on actions that ad-
dress current and past policy concerns.
` Advocacy Updates
Advocacy updates on issues and legislation
The Cancer Statement of Principles can
important to myeloma patients are e-
be downloaded from the Advocacy sec-
mailed to the Myeloma Action Network
tion
of
IMF=s
web
site
at
biweekly as well as included in the e-mail
www.myeloma.org.
newsletter Myeloma Minute and the
quarterly publication Myeloma Today.
Don=t forget that the Principles are ex-
These advocacy updates can also be view-
cellent Aleave behinds@ when you meet
ed online on the Advocacy homepage at
with your Members of Congress!
www.myeloma.org.
CONTACT
Christine Murphy
Arin Assero
Director, Government Affairs
Director of Advocacy
International Myeloma Foundation
International Myeloma Foundation
6534 Marlo Drive
12650 Riverside Drive, Suite 206
Falls Church, Virginia 22042
North Hollywood, CA 91607
Phone: 703-738-1498
Phone: 800-452-CURE (2873) EXT. 232
Fax: 703-349-5879
Fax: 818-487-7454
E-mail: cmurphy@myeloma.org
E-mail: aassero@myeloma.org
Meghan Buzby
Advocacy Grassroots Liaison
International Myeloma Foundation
12650 Riverside Drive, Suite 206
North Hollywood, CA 91607
Phone: 410-252-3457
Fax: 818-487-7454
E-mail: mbuzby@myeloma.org
2/6/2011
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