Until there is a cure...
2009
2009 INTERNATIONAL
M Y E L O M A
F O U N D A T I O N
2 0 0 9 A N N U A L R E P O R T

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...There is the IMF
I N T E R N AT I O N A L
M Y E L O M A
F O U N D AT I O N
Dedicated to improving
the quality of life of myeloma patients
while working toward prevention and a cure.
EDUCATION
RESEARCH
SUPPORT
ADVOCACY

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2 0 0 9 A N N U A L R E P O R T
2009
TABLE OF CONTENTS
Letter from the Chairman
2
Update from the President
3
Education
4
Research
7
Support
14
Advocacy
17
Development
20
Financial Statement
25
Honor Rol
28
1

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Brian G.M. Durie, MD, Chairman
National Director, Hematologic Malignancies, Aptium Oncology
Specialist, Multiple Myeloma and Related Disorders,
Cedars-Sinai Samuel Oschin Cancer Center
Los Angeles, CA, USA
Dear Supporters of the International Myeloma Foundation,
For more than 19 years, the heart and soul of the International Myeloma Foundation has been our
unwavering commitment to helping myeloma patients and their families throughout the world.
Each year, regardless of the state of the economy, the IMF challenges itself to keep growing. We grow
strategically and wisely, always developing and expanding our programs and services with you in mind.
IMF Board of Directors
Brian G.M. Durie, MD
The IMF is now 195,000 members strong, residing in 113 countries all around the globe. It's a bittersweet
Chairman of the Board
blessing, this community. For if I had one wish, one thing I could change overnight, it would be to find a
Thomas M. Bay, PhD
way to prevent myeloma ­ right now.
Founder,Tom Bay Speaks Up, Inc.
Los Alamitos, CA
Until our "right now," we band together. We empower each other. The IMF does this by providing the
Loraine Alterman Boyle
highest quality education, cutting-edge research, thoughtful support, and passionate advocacy for our
Journalist
NewYork, NY
cause. In the time reported in these pages ­ October 2008 through September 2009 ­ we have made
Mark S. Di Cicilia
significant strides in each arena.
Account Manager, Epicor Software Corporation
Orange, CA
These achievements include ten new publications in our IMF-authored library, topics specifically chosen
Michael S. Katz, MBA
to address evolving treatments and needs for myeloma patients (pg. 5). Our achievements also include a
SeniorVice President, Booz & Company
re-modeling of the IMF's website, assuring immediate availability of an enormous amount of information
NewYork, NY
Benson Klein, JD
and easy navigation for all website visitors (pg. 14). They include the re-invention of our approach to
Principal Member,Ward & Klein
advocacy ­ capitalizing on all of our impressive achievements to date, and now arming our membership
Rockville, MD
with direct access to engage in the process (pg. 17).
Robert A. Kyle, MD
Professor of Medicine and Laboratory Medicine,
No doubt because of my work in the research field, the progress I am most excited about during this peri-
Mayo Clinic Medical School
Rochester, MN
od is the IMF's continued success in driving forward collaborative, global research. We unquestionably lead
Edith P. Mitchell, MD
the way in this regard, and examples abound in the pages that follow. But I'd like to highlight two incred-
Clinical Professor of Medicine,
ible projects that didn't make these pages because, while the work began during this reporting period, it
Thomas Jefferson University
had not yet been formalized in ways we typically report here (publications or conference presentations).
Brigadier General, National Guard
Philadelphia, PA
In 2009, the International Myeloma Working Group began an unprecedented study, retrospectively
Charles Newman, MS
Founder, CEO & President, ReCellular, Inc.
analyzing myeloma patient data from all around the world. This study is tracking treatment successes and
Principal, Newman Computer Group
failures, and creating a one-of-a-kind overview of the history of myeloma treatment. In the research world,
Ann Arbor, MI
we always work with controls ­ comparisons of what we are studying in relation to other outcomes. This
Susie Novis
President, International Myeloma Foundation
Working Group project will provide a control reference of historic proportions.
North Hollywood, CA
In 2009 we also saw the beginning of a new direction for the International Myeloma Working Group's
Matthew Robinson, MBA
Vice President, Sales and Business Development
International Staging System (ISS). Until now, there has been no large-scale analysis of molecular features
Warner Bros. InternationalTelevision
when it comes to classifying the stages of myeloma. The IMF's Working Group is changing that by
Burbank, CA
integrating cytogenetics into its ISS model.
E. Michael D. Scott, CPA, JD
Proprietor & ExecutiveVice Presdient,Vox Medica
Both of these projects require participation from research centers all around the world. The IMF is
Philadelphia, PA
R. Michael Shaw, CPA
uniquely positioned to foster these partnerships and collaborations ­ and nothing makes me prouder.
Chairman & CEO, FintechTax, Inc.
Our approach and the relationships we have built will continue to be the critical architecture for providing
Canoga Park, CA
myeloma patients with long-term survival and excellent quality of life for many years to come ­ all the
Igor Sill
while working toward a cure.
Co-Founder & Managing Director,
GenevaVenture Partners
Foundar & Chairman,
Our accomplishments from October 2008 through September 2009 are truly remarkable in any time, let
GenevaGroup International
alone these times. But we could not strive, nor succeed, without you ­ our supporters, our partners, our
San Francisco, CA
collaborators. What a privilege it is to work with you and for you.
Allan Weinstein, PhD
Director, St. Francis MedicalTechnologies, Inc.
With profound gratitude for your continued support,
Phoenix, AZ
Amy Weiss
ExecutiveVice President, Business Affairs
Brillstein Entertainment Partners
Beverly Hills, CA
Brian G.M. Durie, MD
Chairman, IMF Board of Directors
2

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To Every Myeloma Patient and Every IMF Supporter,
I am told that there never really was a Chinese curse that said, "May you live in interesting times,"
but for anyone running any form of health care organization in the past year or so, it certainly
feels like there ought to have been!
Since our last annual report was published, the International Myeloma Foundation has had good
news and we have had very sad news. I would like to start with the sad news ­ even though it
occurred after the end of the financial year covered in this report.
On February 25, 2010, Dr. Greg Mundy, an acknowledged world authority on the biology of bone
disease, passed away after a long illness. Dr. Mundy had been a founding member of the Board of
Directors of the IMF and of its Scientific Advisory Board. He was a close personal friend, and the IMF
IMF Staff
will miss his wisdom, his humor, and his passion for helping patients to get the best possible care.
Susie Novis
President
So now let's turn to look at the good news, because there has been a great deal of it in a year that can
David Girard
Executive Director
only be described as chaotic for many involved in health care.
Jennifer Scarne
Chief Financial Officer
First, despite the world's continuing economic problems, the IMF has received ongoing, unbelievable
Dan Navid
support from its many, many donors. To my surprise and joy we have maintained the same level of
Senior Global Analyst
income as in our last financial year. This is a testament to the commitment of every single individual
Diane Moran
SeniorVice President, Strategic Planning
who found the time to make a donation to this cause ­ however large and however small.
Heather Cooper Ortner
Vice President, Development
Second, I am at a loss to express sufficient thanks to all of those who made the extra effort to organize
Lisa Paik
local and regional fundraisers for the IMF. Whether it was a golf day in high summer, a fashion show
Vice President, Clinical Education & Research Initiatives
in the winter, or a social event at a member's home, each such fundraiser contributed to our ability to
Betty Arevalo
help and support myeloma patients and researchers throughout the year.
Database & Inventory Control
Arin Assero
Third, we were finally able to upgrade the IMF's award-winning web site. Although the launch
Director, Communications & Public Policy
occurred after the end of the fiscal year reported here, I would be remiss if I did not specifically
Alci Avelar
Inventory Control Associate
thank Michael Katz, another long-time Board member for all his hard work in making this possible,
Suzanne Battaglia
in concert with the IMF staff, on top of all his other contributions.
Director, Member Events
Nancy Baxter
Fourth, and by no means last, the IMF was able to take our advocacy activities to a new level. The IMF
Hotline Coordinator
now has an official office of government relations near Washington, DC. We have staff focused on
Zsolt Bayor
IT Consultant
helping our members to bring their points of view to federal legislators in Washington as well as to
Debbie Birns
state governments around the country, and we launched the "Cancer Patient Statement of Principles"
Hotline Coordinator
as a core document containing five critical priorities that we believe need to be addressed if all
Joanie Borbely
Regional Co-Director, Support Groups SE
myeloma patients are to receive the highest levels of care.
Gregor Brozeit
European Programs
Finally, I want to thank the staff of the IMF for their continuing willingness to "go the extra mile."
Meghan Buzby
Without their dedication and hard work, we would never be able to make as much as we do from the
Advocacy Assistant
money you help us to raise. They cheerfully work extra weekends while traveling across the country
Kelly Cox
and around the world to help with our Patient & Family Seminars and other events.
Director, Support Groups Outreach
Paul Hewitt
Every year, over and over, I remind people of one of my core beliefs: "One person can make a
Hotline Coordinator
Spencer Howard
difference. Two can make a miracle." But perhaps it is time to also remind ourselves that we have
Meeting & Event Services
already made miracles.
Marya Kazakova
Publications Editor
Since the IMF was founded, three critically important new drugs and improvements in the ability to
Missy Klepetar
perform stem cell transplants have radically changed the prognosis for newly diagnosed myeloma
Hotline Associate
Andrew Lebkuecher
patients. Every newly diagnosed patient can now be given knowledge and hope within days of their
Regional Co-Director, Support Groups SE
diagnosis. And at scientific meetings in 2009 there were hundreds of presentations on new treatments
Kemo Lee
that may have even more significant impact on myeloma therapy in the years to come.
Specialty Member Services Coordinator
Randi Lovett
These miracles are a clear outcome of your continued support.
Development Associate
Kerri Lowe
Thank you,
Development Intern
Jim Needham
Publication Design
Selma Plascencia
Data Specialist
Susie Novis
Abbie Rich
Webmaster
IMF President
Robin Tuohy
Regional Director, Support Groups NE
3

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EDUCATION
The IMF has been at the forefront of education
for both the patient and the medical communities,
and has made a significant difference in our lives.
­ CHARLES NEWMAN, Ann Arbor, MI
Knowledge is power. Therefore, the IMF is committed to gathering a comprehensive
Colleen O'Connor
array of information and sharing it with myeloma patients, families, caregivers, and
Eau Claire, Wisconsin
health care professionals throughout the world.
Col een O'Connor's husband, James, was
diagnosed with myeloma six years ago, on
Myeloma is one of the most prevalent forms of blood cancer, affecting more than
St. Patrick's Day. Two days later, Colleen found
750,000 patients worldwide. Yet prior to diagnosis, most patients and their families
the IMF's website (www.myeloma.org).
have never heard of myeloma. The IMF strives to continue operating as the number
Throughout the years, Colleen and James have
one resource for up-to-date disease and treatment information for these new
made ample use of the IMF's publications,
patients and families, as well as for long-term patients and families. The IMF also
including a subscription to Myeloma Today. They
remains dedicated to serving as a valued educational resource for the health care
have always appreciated the breadth and depth
professionals who treat them.
of the IMF's material. Coupled with their profes-
sional experience (Colleen is a teacher; James is
Through its publications, seminars, and leadership councils, the IMF empowers
a physician), they felt as though they had a good
patients and their caregivers to join healthcare providers as active decision-making
understanding of the disease.
partners, leading to the best possible quality of life for each individual myeloma
Colleen was aware of the IMF's Patient & Family
patient.
Seminars and thought it could be a valuable
experience, but life took precedence. "We had
IMF Patient & Family Seminars
two stem cell transplants, three weddings, five
Having direct face-to-face contact with myeloma experts
grandchildren born, and we built a new home,"
Colleen summarizes. "Last year was the first time
who present at Patient & Family Seminars is truly invaluable.
we caught our breath."
­ JOAN MARX, Palo Alto, CA
In September 2009, time was finally on their side.
The IMF's flagship Patient & Family Seminars present vital information about
Colleen and James attended the IMF Patient
new treatments, provide one-on-one time with myeloma specialists, and allow
& Family Seminar in Minneapolis, Minnesota.
participants to share their experiences and gain strength from hearing other people's
Colleen was immediately struck by the power-
stories. The top myeloma experts donate their time to our Patient & Family Seminars
ful sense of community. "It was great to hear
from other people and compare notes, a great
­ and to the IMF patient community ­ because the knowledge gained is vital to
way to connect and allow yourself to gather
patients and their families, empowering them to make intelligent treatment choices.
information."
Since 1993, the IMF has hosted more
Before Minneapolis, "I had only really spoken to
than 130 Patient & Family Seminars in 14
one other person in our area who had myeloma,"
countries around the world. From October
Colleen says. "We are fairly private people." But
2008 to September 2009, more than 1,400
the culture of information and communication
she experienced at the Patient & Family Seminar
participants attended our US-based seminars
stuck with her, and inspired her ­ she and James
in Dallas, Texas; Minneapolis, Minnesota; San
decided to fill a geographic void and start a sup-
Francisco, California; and Washington, DC, as well as our international seminars in
port group in their area.
Calgary, Canada; Paris, France; and Rome, Italy.
Colleen is grateful to the IMF for both the infor-
IMF Regional Community Workshops
mation and the inspiration."The Patient & Family
Seminar gave me a greater understanding and
The IMF is dedicated to creating as many face-to-face educational opportunities
greater hope."
as possible. Therefore, in addition to its flagship Patient & Family Seminars, from
October 2008 to September 2009, the IMF continued developing and expanding
its Community Workshop program by facilitating events in Denver, Colorado;
Longview/Gladewater, Texas; Milwaukee, Wisconsin; Minneapolis/St. Paul, Minnesota;
4
EDUCATION

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Kansas City, St. Charles, and St. Louis, Missouri. The IMF also facilitated International
Community Workshops in Berlin, Hamburg, Kiel, and Munster, Germany; and Prato,
Italy. In total, more than 460 patients and families attended these workshops.
From October 2008 to September 2009, the IMF also offered three Physician
Community Workshops, a program created to present practicing physicians with
the most up-to-date information about the latest myeloma treatments, clinical
trials, and therapies. In Europe, local doctors treat the majority of patients, and yet
many of them do not have the resources or opportunity to attend major medical
meetings. The IMF therefore held workshops in Berlin and Hamburg, Germany; and
Nantes, France, with a total attendance of 145 practicing physicians.
Publications
The IMF helped my family and me understand what
I was up against ­ all the booklets helped me tremendously.
IMF 2009 List of Publications
ASCO 2009 Highlights for Patients*
­ ROB BRADFORD, Apopka, FL
ASCO 2009 Highlights for Physicians*
The IMF produces comprehensive, "user-friendly" information that is always readily
ASH 2008 Highlights for Patients*
and tangibly available for the entire myeloma community. The IMF's publications
ASH 2008 Highlights for Physicians*
library includes an extensive catalog of booklets, tip cards, and DVDs, all written,
CITINGS**
created, and produced by the IMF with oversight by its Scientific Advisory Board.
CITINGS: Novel Therapies*
Clinical Trial Data Sheets*
The IMF's broad scope of publications addresses myeloma treatment options,
Comprehensive Guide to Washington, DC 2009*
clinical trials, and quality of life information for patients and physicians. IMF
Comprehensive Guide to Kos 2007
publications are provided free of charge, in 16 languages.
Comprehensive Guide to Salamanca 2003
The IMF also remains at the forefront of assessing the latest and newest needs, and
Comprehensive Guide to Sydney 2005
is therefore dedicated to compiling, updating, and publishing the most current
Comprehensive Guide to Torino 2004
information. From October 2008 through September 2009, the IMF created ten new
Concise Review 2008/2009**
publications and two new translations. Six additional publications were updated
Guidelines from the International Myeloma
Working Group (a series)*
with the latest information.
I Have Myeloma. . . What's Next? (DVD)
Many of these publications are bundled into the IMF InfoPack, designed to provide
IMF Patient Handbook 2008/2009**
newly-diagnosed patients and their families with a well-rounded understanding
International Staging System Tip Card
of the disease and patient care. From October 2008 to September 2009, the IMF
Multiple Myeloma Tip Card
Myeloma Management Guidelines: A Consensus
mailed out 19,055 InfoPacks to patients, healthcare providers and support groups
Report from the Scientific Advisors of the IMF
around the world.
Myeloma ManagerTM Tip Card*
Myeloma Today, the IMF's quarterly newsletter, is the go-to resource for the
Myeloma Matrix**
Myeloma Minute
myeloma community to learn about the latest advances in myeloma treatment,
Myeloma Today
research, and quality of life issues. A print subscriber base of 13,300 (a nine percent
Understanding Anemia and Fatigue
increase over the previous year), in addition to pass-along rates and web-views,
Understanding Balloon Kyphoplasty and
meant an estimated Myeloma Today readership of more than 98,000 per issue
Myeloma-Induced Vertebral Compression Fractures
during October 2008 through September 2009.
Understanding Bisphosphonate Therapy
Understanding Dexamethasone and Other Steroids
The Myeloma Minute is the IMF's email newsletter, providing up-to-the-minute
Understanding Revlimid®
information about myeloma research, events, and IMF programs and services. In
Understanding Serum Free Light Chain Assays**
September 2009, its subscriber-base was 24,845 views, a 42% increase over the
Understanding Stem Cell Transplant **
previous year. In addition to the already-established German edition of the Myeloma
Understanding Thalidomide Therapy
Minute (Myelom Merkur), during the period of this annual report the IMF also created
Understanding VELCADE® (bortezomib)
an Italian edition (Il Messaggero di Mieloma), and re-introduced editions for our
for Injection Therapy**
French (Le Messager de Myélome) and Spanish (Mensajero del Mieloma) readership, for
Washington DC Patient and Family Seminar (DVD)*
a total of more than 450 subscribers as of September 2009.
* New for 10/1/2008 - 9/30/2009
**Updated for 10/1/2008 - 9/30/2009
5
EDUCATION

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Nurse Leadership Board
Founded in 2006, the IMF Nurse Leadership Board
(NLB) consists of 20 nurse experts caring for myeloma
patients, coming from major US centers that treat
myeloma. The NLB provides a forum for addressing
the needs of the myeloma nursing and patient
communities.
In October 2008, the NLB convened its fourth meeting in Chicago, Illinois. The group
advanced the development of its Long-Term Survivorship Care Plan. Identifying the
critical leadership role nurses play in the prevention, assessment, and management
Joseph Tariman,
PhC, MN, APRN,BC, OCN, PhD(c)
of novel treatment side effects, this plan supports patients through their chronic
University of Washington, Seattle, WA
disease state and assists in the management of their treatment-related side effects.
Joseph Tariman is a founding member of the
This new paradigm in patient care specifically addresses renal complications,
Nurse Leadership Board (NLB), but his relation-
functional mobility and safety, bone health and bone disease, sexuality and sexual
ship with the IMF goes back much further. Since
dysfunction, and health maintenance. At this same meeting, the NLB also targeted
he made myeloma his specialty in 2002, Joseph
strategies for the continued dissemination of their Consensus Guidelines (published
has relied upon IMF publications for his patients
in the prestigious Clinical Journal of Oncology Nursing in June 2008).
and he has encouraged them to attend the
IMF's Patient & Family Seminars.
The NLB's abstract for their Long-Term Survivorship Care Plan was accepted
He is grateful that the IMF is equally committed
and presented as a poster at the XII International Myeloma Workshop, held in
to educating myeloma medical professionals.
Washington, DC in February 2009. NLB leaders also created an in-depth blog of their
"I strongly believe that nurses must be educated
experience at the conference, which additionally appeared in Myeloma Today.
about myeloma and its management," Joseph
says. "Before the IMF's NLB, nurses working in
In May 2009, the NLB introduced the concepts of their Long-Term Survivorship
myeloma centers or cancer clinics did not have
Care Plan at the Oncology Nursing Society (ONS) annual meeting, presenting a
many sources for information and continuing
Satellite Symposium entitled "Leading the Way: Managing Multiple Myeloma for
education."
the Long-Term."The room was filled to capacity with 550 attendees.
Joseph has contributed to providing that
information and education. He served as chair
From October 2008 through September 2009, NLB members also spoke at
of the peripheral neuropathy task force, part of
IMF Patient & Family Seminars and Regional Community Workshops, facilitated
the NLB's prestigiously published and widely
informational conference calls with IMF support groups, participated in IMF
disseminated Consensus Guidelines. As the NLB
advocacy initiatives, and continued its NLB Speaker Programs ­ educating
continues to set the standard for patient care
with its ongoing Survivorship Care Plan, Joseph is
community nurses on side effect management of novel therapies.
partnering with other NLB members to develop
its renal dysfunction section.
IMF Nurse Leadership Board Members
Page Bertolotti, RN, BSN, OCN
Bonnie Jenkins, RN
Kena C. Miller, RN, MSN, FNP
Last year, Joseph represented the NLB and
Cedars-Sinai Outpatient Cancer Center
University of Arkansas Medical School
Roswell Park Cancer Institute
presented its work at IMF Patient & Family
Samuel Oschin Comprehensive Cancer Institute
Little Rock, AR
Buffalo, NY
Los Angeles, CA
Kathy Lilleby, RN
Tiffany Richards, MS, ANP, AOCNP
Seminars and continuing nursing education
Elizabeth Bilotti, RN, MSN, APRN, BC, OCN
Fred Hutchinson Cancer Research Center
MD Anderson Cancer Center
programs around the country. He also attended
The JohnTheurer Cancer Center at HUMC
Seattle,WA
Houston,TX
the XII International Myeloma Workshop. "It was
Multiple Myeloma Division
Ginger Love, RN, OCN
Sandra Rome, RN, MN, AOCN
Hackensack, NJ
a wonderful experience to network with other
University of Cincinnati Hematology/
Cedars-Sinai Medical Center
Kathleen Colson, RN, BSN, BS
Oncology Care
Los Angeles, CA
myeloma nurses from across the globe," he
Dana-Farber Cancer Institute
Cincinnati, OH
Jacy Spong, RN, BSN, OCN
reflects. "It was comforting to see how many
Boston, MA
Patricia A. Mangan, APRN, BC
Mayo Clinic Arizona
myeloma experts are working on behalf of
Kathy Daily, RN, OCN
Abramson Cancer Center
Scottsdale, AZ
H. Lee Moffitt Cancer Center
University of Pennsylvania
patients everywhere."
Joseph Tariman,
Tampa, FL
Philadelphia, PA
RN, MN, PhD(c), ARNP-BC, OCN
Deborah Doss, RN, OCN
Emily McCullagh, RN, NP-C, OCN
University ofWashington
Joseph passionately feels that the NLB is
Dana-Farber Cancer Institute
Memorial Sloan-Kettering Cancer Center
Seattle,WA
uniquely positioned to lead the way. "There is a
Boston, MA
NewYork, NY
Jeanne Westphal, RN
strong theoretical link between symptoms and
Beth Faiman, MSN, APRN-BC, AOCN
Ann McNeill, RN, MSN, APN-C
Meeker County Memorial Hospital
Cleveland ClinicTaussig Cancer Institute
The JohnTheurer Cancer Center at HUMC
Litchfield, MN
side effects management with quality of life,"
Multiple Myeloma Program
Multiple Myeloma Division
he says. "It is critical for the NLB to conduct the
Cleveland, OH
Hackensack, NJ
nursing research that will address the issues that
Charise Gleason, MSN, NP-BC, AOCNP
Teresa Miceli, RN, BSN
myeloma patients deal with every day."
Emory UniversityWinship Cancer Institute
Mayo Clinic Rochester
Atlanta, GA
Rochester, MN
6
EDUCATION

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RESEARCH
We are getting closer
to myeloma becoming
a chronic disease that can
be kept under control,
The IMF leads the way in innovative, globally collaborative myeloma research as a
means of improving quality of life while working towards prevention and a cure. The
and we are continuing
IMF is at the forefront as we enter the era of "tailored treatment" ­ with new therapies
to press ahead towards
and approaches aimed at customizing each myeloma patient's specific needs. As we
curative solutions that
build upon each research success, we will quickly approach an era where myeloma
will change the biology
will be managed more and more as a chronic disease.
and the natural history
Bank On A Cure®
of the disease.
Bank On A Cure (BOAC) is the world's first global, myeloma-specific DNA bank and
­ SHAJI KUMAR, MD,
research initiative. Using our own custom-designed gene-testing chip (the first
Mayo Clinic, Rochester, MN
of its kind), BOAC scientists are poring over vast amounts of genetic information
gathered from myeloma patients worldwide in order to determine their common
genetic factors. Through finding and studying these commonalities, we will be able
to develop and tailor more effective treatment options and minimize treatment side
effects. By discovering these genetic patterns we will also unlock the mysteries of
what causes myeloma ­ and ultimately find its cure.
The American Society of Hematology (ASH) selected three BOAC research projects
Bank On A Cure® Research Team
for presentation at its December 2008 conference in San Francisco, California.
Hervé Avet-Loiseau, MD
Institute de Biologie
Oral Presentation:
Nantes, France
Dalsu Baris, MD, PhD
High Resolution Genomic Profiling Using Single Nucleotide Polymorphism
National Cancer Institute
Microarrays Identifies Multiple Novel Genomic Minimally Deleted Regions in
Rockville, Maryland, USA
Multiple Myeloma
John Crowley, PhD
Cancer Research and Biostatistics
Seattle,WA, USA
Brian A Walker, Paola E Leone, Nicholas J Dickens, Matthew W Jenner, Laura Chiecchio, GianPaolo Dagrada,
Brian G.M. Durie, MD
Fiona M Ross, Faith E Davies and Gareth J Morgan
Cedars-Sinai Samuel Oschin Cancer Center
Aptium Oncology, Inc.
Poster Presentations:
Los Angeles, CA, USA
Hartmut Goldschmidt, MD
Analytical Approaches for the BOAC SNP Panel Association with Progression
Medizinischen Universitätsklinik und PoliklinikV
Free Survival in Myeloma
University of Heidelberg
Heidelberg, Germany
Brian G. Van Ness, Christine Ramos, Vipin Kumar, Michael Steinbach, Brian GM Durie, John Crowley, Bart
Roman Hajek, MD
Barlogie, Antje Hoering, Jeff Haessler, David C Johnson and Gareth J Morgan
University Hopsital Brno
Brno, Czech Republic
Genetic Variation in ADME Genes Is Associated with Thalidomide-Related
Gareth Morgan, MD, Co-Chair
Royal Marsden Hospital
Peripheral Neuropathy in Multiple Myeloma Patients
Sutton, UK
S. Vincent Rajkumar, MD
David C Johnson, Christine Ramos, Alex J. Szubert, Walter M Gregory, J. Anthony Child, Faith E Davies,
Mayo Clinic
Brian GM Durie, Brian G. Van Ness, and Gareth J Morgan
Rochester, MN, USA
Jesús San Miguel, MD
At the 2008 ASH conference, the BOAC research team held a summit meeting
Hospital Clinico Universitário
Salamanca, Spain
to discuss its use of technology moving forward. They addressed their goal
John Shaughnessy, PhD
of maximizing individual research while also allowing all BOAC scientists and
Myeloma Institute for Research andTherapy
laboratories to best share data and results.
University of Arkansas for Medical Sciences
Little Rock, AR, USA
Pieter Sonneveld, MD, PhD
From October 2008 through September 2009, BOAC researchers also continued
Erasmus Medical Center
successful work exploring genetic associations with therapy response, peripheral
Rotterdam,The Netherlands
neuropathy, and overall and progression-free survival. The research during this time
Brian Van Ness, PhD, Co-Chair
University of Minnesota
period ultimately resulted in four projects selected for presentation at the 2009 ASH
Institute of Human Genetics
conference (to be discussed further in next year's annual report).
Minneapolis, MN, USA
7
RESEARCH

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International Myeloma Working Group
The work of the IMF-sponsored International Myeloma Working
Group has been very important to the field of myeloma.
­ ROMAN HAJEK, MD, University Hospital Brno, Brno, Czech Republic
The IMF's International Myeloma Working Group (IMWG) consists of 131 leading
myeloma researchers from around the world. They collaborate on a broad range
of innovative projects in order to create new myeloma management guidelines
that provide patients with more durable remissions and improved quality of life.
The IMWG focuses on treatment protocols and diagnostic systems, addressing the
Angela Dispenzieri, MD
needs of both myeloma patients and the physicians who treat them. This group is
Mayo Clinic
Rochester, MN
also dedicated to assuring that their research results are made readily available to
"There has never been a more exciting time
all patients, caregivers, and medical professionals, regardless of where they live or
in myeloma research," says Angela Dispenzieri.
practice.
"Every month seems to bring something new
to our knowledge base." A member of the IMF's
Like all IMF research initiatives, the IMWG strives to include as many accomplished
International Myeloma Working Group and
scientists as possible, understanding that global collaboration ultimately benefits
International Myeloma Forum, Dr. Dispenzieri plays
each and every myeloma patient. For many years, IMF Chairman Brian Durie and
an important role in augmenting the myeloma
research community's knowledge.
Scientific Advisory Board Chairman Robert Kyle encouraged the talented myeloma
researchers in the Republic of Korea to band together; four years ago they formed
Dr. Dispenzieri focuses her work on clinical trials,
hematopoietic stem cel transplantation, and
the Korean Multiple Myeloma Working Party. In early 2009, the group joined the
prognostic factors. She seeks to determine the
IMWG, lending their perspective and patient data to ongoing and future projects.
best current therapies ­ and then to address how
to improve upon them. "But the concept of `best
In February 2009, Leukemia, a premier scientific journal, spotlighted the IMWG's
therapy' is a complex one," she points out. "It deals
guidelines for serum-free light chain analysis:
with not only myeloma response rate, but quality
of life and overall survival."
International Myeloma Working Group guidelines for serum-free light chain
She co-authored the Working Group's Guidelines
analysis in multiple myeloma and related disorders
for Serum-Free Light Chain Analysis, spotlighted in
the leading journal Leukemia in February 2009. She
A Dispenzieri, R Kyle, G Merlini, JS Miguel, H Ludwig, R Hajek, A Palumbo, S Jagannath, J Blade, S Lonial,
also co-authored two additional Working Group
M Dimopoulos, R Comenzo, H Einsele, B Barlogie, K Anderson, M Gertz, JL Harousseau, M Attal, P Tosi,
publications that debuted online in June 2009:
P Sonneveld, M Boccadoro, G Morgan, P Richarson, O Sezer, MV Mateos, M Cavo, D Joshua, I Turreson,
One study addresses the current status of stem
W Chen, K Shimizu, R Powles, SV Rajkumar, and BGM Durie on behalf of the International Myeloma
cell collection and high-dose therapy, as well as
Working Group
the role of plerixafor; the other presents guidelines
for the management of patients who are ineligible
Leukemia. 2009 Feb;23(2):215-24. Epub 2008 Nov 20.
for standard high-dose chemotherapy with
autologous stem cell transplantation.
In August 2009, Blood, another leading journal, published the IMWG's consensus
Dr. Dispenzieri firmly believes in the importance
perspectives on stem cell collection:
of educating myeloma patients and families in
the ways ever-evolving research results affect their
Mobilization in myeloma revisited: IMWG consensus perspectives on stem
care. It is one of the reasons she proudly affiliates
cell collection following initial therapy with thalidomide-, lenalidomide-
herself with the IMF. "The IMF is a marvelous
or bortezomib-containing regimens
resource for patients. Their patient educational
material is unparalleled," she says.
Shaji Kumar, Sergio Giralt, Edward A. Stadtmauer, Jean L. Harousseau, Antonio Palumbo,
Like the IMF, Dr. Dispenzieri always puts the
William Bensinger, Raymond L. Comenzo, Suzanne Lentzsch, Nikhil Munshi, Ruben Niesvitzky,
myeloma patient at the center of her work and her
Jesus San Miguel, Heinz Ludwig, Leif Bergsagel, Joan Blade, Sagar Lonial, Kenneth C. Anderson,
future goals for the research community."With new
Patrizia Tosi, Pieter Sonneveld, Orhan Sezer, David Vesole, Michele Cavo, Hermann Einsele,
agents, we are seeing growing numbers of long-
term survivors, and I expect to see that percentage
Paul G. Richardson, Brian GM Durie, and S. Vincent Rajkumar
of long-term survivors continue to increase," she
Blood, 27 August 2009, Vol. 114, No. 9, pp. 1729-1735. Epub 26 June 2009.
observes. "We all marvel at the increasing number
of complete responses. However, risk-benefit has
to be better addressed in future studies, because
quality of life is so important to patients and
their families."
8
RESEARCH

---

International Myeloma Working Group
Brian G.M. Durie, MD, Co-Leader J. Anthony Child, MD
Hartmut Goldschmidt, MD
Ola Landgren, MD
Antonio Palumbo, MD
A. Keith Stewart, MD
Cedars-Sinai Samuel Oschin
Barn House
University of Heidelberg
National Cancer Institute,
Ospedale Molinette
Mayo Clinic Scottsdale
Cancer Center
Chilgrove, UK
Heidelberg, Germany
National Institutes of Health
Torino, Italy
Scottsdale, AZ, USA
Aptium Oncology, Inc.
James Chim, MD
Philip Greipp, MD
Rockville, MD, USA
Santiago Pavlovsky, MD
Evangelos Terpos, MD
Los Angeles, CA, USA
Queen Mary Hospital
Mayo Clinic
Jacob Laubach, MD
FUNDALEU
University of Athens
S. Vincent Rajkumar, MD,
Hong Kong
Rochester, MN, USA
Dana Farber Cancer Institute
Buenos Aires, Argentina
School of Medicine
Co-Leader
Wee-Joo Chng, MD
Roman Hajek, MD
Boston, MA, USA
Linda Pilarski, MD
and Imperial College London
Mayo Clinic
National University Health System
University Hospital Brno
Jae Hoon Lee, MD
Cross Cancer Institute
London, UK.
Rochester, MN, USA
Republic of Singapore
Brno, Czech Republic
Gachon University Medical School
Edmonton, Canada
Patrizia Tosi, MD
Niels Abildgaard, MD
Raymond L. Comenzo, MD
Izhar Hardan, MD
Incheon, Republic of Korea
Raymond Powles, MD
Istituto di Ematologia
Syddansk Universitet
Tufts Medical School of Medicine
Chaim Sheba Medical Center
Xavier LeLeu, MD
Parkside Oncology Clinic
e Oncologia Medica
Odense, Denmark
Boston, MA, USA
Tel Hashomer, Israel
Hôpital Claude Huriez
London, UK
Bologna, Italy
Rafat Abonour, MD
John Crowley, PhD
Jean-Luc Harousseau, MD
Lille, France
Donna E. Reece, MD
Guido Tricot, MD
Indiana University School
Cancer Research and Biostatistics
Hematologie Clinique
Suzanne Lentzsch, MD
Princess Margaret Hospital
Huntsman Cancer Institute
of Medicine
Seattle,WA, USA
Nantes, France
University of Pittsburgh
Toronto, Canada
Salt Lake City, UT, USA
Indianapolis, IN, USA
Pittsburgh, PA, USA
Ingemar Turesson, MD
Raymond Alexanian, MD
William Dalton, MD, PhD
Hiroyuki Hata, MD, PhD
Tony Reiman, MD
H. Lee Moffitt Cancer Center
Kumamoto University Hospital
Henk M. Lokhorst, MD
Cross Cancer Institute
SKANE University Hospital
MD Anderson Cancer Center
Tampa, FL, USA
Kumamoto, Japan
University Hospital Utrecht
Edmonton, Canada
Malmö, Sweden
Houston,TX, USA
Utrecht,The Netherlands
Benjamin Van Camp, MD, PhD
Kenneth C. Anderson, MD
Faith Davies, MD
Yutaka Hattori, MD
Paul G. Richardson, MD
Royal Marsden
Keio University
Sagar Lonial, MD
Dana-Farber Cancer Institute
Academic Hospital
Dana-Farber Cancer Institute
NHS FoundationTrust
School of Medicine
Emory University
Boston, MA, USA
Free University Brussels
Boston, MA, USA
Sutton, UK
Tokyo, Japan
School of Medicine
Brussels, Belgium
Michel Attal, MD
David Roodman, MD
Cármino de Souza, MD, PhD
Tom Heffner, MD
Atlanta, GA, USA
University of Pittsburgh
Brian Van Ness, PhD
Hôpital Purpan
State University of Campinas
Emory University
Heinz Ludwig, MD
School of Medicine
University of Minnesota
Toulouse, France
Campinas, Brazil
Atlanta, GA, USA
Wilhelminenspital der StadtWien
Pittsburgh, PA, USA
Minneapolis, MN, USA
Hervé Avet-Loiseau, MD, PhD
Michel Delforge, MD, PhD
Joy Ho, MD
Vienna, Austria
Laura Rosiñol, MD
Ivan Van Riet, MD
Institute de Biologie
University Hospital Gasthuisberg
Royal Prince Alfred Hospitals &
Angelo Maiolino, MD
Hospital Clinic
Academic Hospital
Nantes, France
Leuven, Belgium
Concord Hospitals
Universidade Federal
Barcelona, Spain
Free University Brussels
Ashraf Z. Badros, MD
Brussels, Belgium
Meletios Dimopoulos, MD
Camperdown, Australia
do Rio de Janeiro
Jesús San Miguel, MD
University of Maryland
University of Athens
Vania Hungria, MD
Rio de Janeiro, Brazil
Hospital Clinico Universitário
Isabelle Vande Broek, MD
Baltimore, MD, USA
School of Medicine
Clinica São Germano
María Victoria Mateos, MD
Salamanca, Spain
Vrije Universiteit Brussel
Dalsu Baris, PhD
Athens, Greece
São Paulo, Brazil
University Hospital of Salamanca
Brussels, Belgium
Orhan Sezer, MD
National Cancer Institute
Angela Dispenzieri, MD
Shinsuke Iida, MD
Salamanca, Spain
University of Hamburg
Karin Vanderkerken, PhD
Rockville, MD, USA
Mayo Clinic
Nagoya City University Graduate
Jayesh Mehta, MD
Hamburg, Germany
Vrije Universiteit Brussel
Bart Barlogie, MD, PhD
Rochester, MN, USA
School of Medical Sciences
Northwestern Univeristy
Brussels, Belgium
Jatin Shah, MD
Myeloma Institute
Johannes Drach, MD
Nagoya, Japan
Chicago, IL, USA
MD Anderson Cancer Center
Robert Vescio, MD
for Research andTherapy, UAMS
University ofVienna
Peter Jacobs, MD
Ulf-Henrik Mellqvist, MD
Houston,Texas, USA
Cedars-Sinai
Little Rock, AK, USA
Vienna, Austria
Constantiaberg Medi-Clinic
Sahlgrenska University Hospital
Outpatient Cancer Center
Régis Bataille, MD
John Shaughnessy, PhD
Los Angeles, CA, USA
Matthew Drake, MD, PhD
CapeTown, South Africa
Gothenburg, Sweden
Myeloma Institute for Research
Institute of Biology
Mayo Clinic
Sundar Jagannath, MD
GiamPaolo Merlini, MD
andTherapy, UAMS
David Vesole, MD
Nantes, France
Rochester, MN, USA
St.Vincent's
Amyloidosis Center,
Little Rock, AK, USA
Hackensack University
Meral Beksaç, MD
Medical Center
Hermann Einsele, MD
Comprehensive Cancer Center
Università di Pavia
Kazuyuki Shimizu, MD
Ankara University
Hackensack, NJ, USA
University Clinic ofWürzburg
NewYork, NY, USA
Pavia, Italy
Nagoya City Higashi General
Ankara,Turkey
Würzburg, Germany
Hou Jian, MD
Joseph Mikhael, MD
Hospital
Anders Waage, MD
Andrew Belch, MD
St. Olavs Hospital
Thierry Facon, MD
Shanghai Changzheng Hospital
Mayo Clinic Scottsdale
Nagoya, Japan
University of Alberta
Trondheim, Norway
Centre Hospitalier Regional
Shanghai, China
Scottsdale, AZ , USA
Chaim Shustik, MD
Edmonton, Canada
Lille, France
Hans Johnsen, MD
Angelina Rodríguez Morales,
RoyalVictoria Hospital
Michael Wang, MD
William Bensinger, MD
MD Anderson Cancer Center
Dorotea Fantl, MD
Aalborg Sygehus
MD
Montreal, Canada
Fred Hutchinson
Houston,TX, USA
Sociedad Argentinade Hematolgia
Aalborg, Denmark
Hemato-Oncology Clinic
David Siegel, MD
Cancer Research Center
Buenos Aires, Argentina
Douglas Joshua, MD
Caracas,Venezuela
Hackensack University
Donna Weber, MD
Seattle,WA, USA
University of Sydney
Philippe Moreau, MD
Medical Center
MD Anderson Cancer Center
Dina Ben-Yehuda, MD
Jean-Paul Fermand, MD
Houston,TX, USA
Hôpital Saint-Louis
Sydney, Australia
University Hospital of Nantes
Hackensack, NJ, USA
Hadassah University Hospital
Paris, France
Artur Jurczyszyn, MD, PhD
Nantes, France
Seema Singhal, MD
Jan Westin, MD
Jerusalem, Israel
The MyelomaTreatment Foundation Gareth Morgan, MD, PhD
Northwestern University
Sahlgrenska University Hospital
P. Leif Bergsagel, MD
Rafael Fonseca, MD
Gothenburg, Sweden
Mayo Clinic Scottsdale
Krakow, Poland
Royal Marsden Hospital
Chicago, IL, USA
Mayo Clinic Scottsdale
Scottsdale, AZ, USA
Michio M. Kawano, MD
Sutton, UK
Pieter Sonneveld, MD, PhD
Keith Wheatley, PhD
Scottsdale, AZ, USA
Yamaguchi University
Nikhil Munshi, MD
Erasmus Medical Center
University of Birmingham,
Jenny Bird, MD
Gösta Gahrton, MD
Edgbaston
Karolinska Institute
Yamaguchi, Japan
Dana-Farber Cancer Institute
Rotterdam,The Netherlands
Bristol Haematology &
Birmingham, UK
Stockholm, Sweden
Nicolaus Kröger, MD
Boston, MA, USA
Andrew Spencer, MD
Oncology Centre
Unversity Hospital Hamburg
Hareth Nahi, MD
The Alfred Hospital
Jeffrey Zonder, MD
Bristol, UK
Ramón García-Sanz, MD
Hamburg, Germany
Karolinska University Hospital
Melbourne, Australia
Wayne State University
Joan Bladé, MD
University of Salamanca
School of Medicine
Salamanca, Spain
Shaji Kumar, MD
Stockholm, Sweden
Edward Stadtmauer, MD
Hospital Clinic, Hematology
Detroit, Michigan, USA
Mayo Clinic
Ruben Niesvizky, MD
University of Pennsylvania
Barcelona, Spain
Christina Gasparetto, MD
Rochester, MN, USA
Weill Medical College
Philadelphia, PA, USA
Mario Boccadoro, MD
Duke University Medical School
Raleigh-Durham, NC, USA
Robert A. Kyle, MD
of Cornell University
Ospedale Molinette
Mayo Clinic
NewYork, NY, USA
Torino, Italy
Morie A. Gertz, MD
Rochester, MN, USA
Amara Nouel, MD
Michele Cavo, MD
Mayo Clinic
Rochester, MN, USA
Martha Lacy, MD
Hospital Rutz y Paez
Università di Bologna
Mayo Clinic
Bolivar,Venezuela
Bologna, Italy
John Gibson, MD
Rochester, MN, USA
Yana Novis, MD
Asher Chanan-Khan, MD
Royal Prince Alfred Hospital
Camperdown, Australia
Juan Lahuerta, MD
Hospital Sírio-Libanês
Roswell Park Cancer Institute
Hospital Universitario
São Paulo, Brazil
Buffalo, NY, USA
Sergio Giralt, MD
12 de Octubre
Robert Orlowski, MD
Wen-Ming Chen, MD
MD Anderson Cancer Center
Houston,TX, USA
Madrid, Spain
MD Anderson Cancer Center
Beijing Chaoyang Hospital
Houston,TX, USA
Beijing, China
9
RESEARCH

---

In September 2009, Leukemia published an overview of the IMWG's guidelines
International Myeloma Forum
regarding imaging techniques:
Kenneth C. Anderson, MD
Shaji Kumar, MD
International myeloma working group consensus statement and guidelines
Dana Farber Cancer Institute
Mayo Clinic Rochester
Boston, MA, USA
Rochester, MN, USA
regarding the current role of imaging techniques in the diagnosis and
Hervé Avet-Loiseau, MD
Robert A. Kyle, MD
monitoring of multiple Myeloma
Institutes of Biologie
Mayo Clinic Rochester
Nantes, France
Rochester, MN, USA
M Dimopoulos, E Terpos, RL Comenzo, P Tosi, M Beksac, O Sezer, D Siegel, H Lokhorst, S Kumar,
Michel Attal, MD
Jae-Hoon Lee, MD
Hospital Purpan
Gachon University
SV Rajkumar, R Niesvizky, LA Moulopoulos, and BGM Durie on behalf of the IMWG
Toulouse, France
Gil Hospital
Leukemia. 2009 Sep;23(9):1545-56. Epub 2009 May 7.
Bart Barlogie, MD
Incheon, Republic of Korea
University of Arkansas for Medical
Richard F. Little, MD
Sciences
CTEP/DCTD/NCI
In December 2008, the IMWG gathered at the ASH conference to discuss ongoing
Myeloma Institute for Research
Bethesda, MD USA
and developing collaborations. In February 2009, they convened again at the
Therapy
Little Rock, AR, USA
Sagar Lonial, MD
XIIth International Myeloma Workshop in Washington, DC. They were joined by
Emory University
William Bensinger, MD
Winship Cancer Institute
more than 1,000 conference participants, who gathered to hear their discussion
University ofWashington
Atlanta, GA, USA
Fred Hutchinson
of updates from their wide range of consensus statements.
Cancer Research Center
Heinz Ludwig, MD
Seattle,WA, USA
Wilhelminenspital
der StadtWien
Joan Bladé, MD
Vienna, Austria
Hospital Clinica
International Myeloma Forum
Barcelona, Spain
Nikhil Munshi, MD
Dana-Farber
Ivan Borrello, MD
Cancer Institute
The International Myeloma Forum seeks to enhance the collaboration and
Johns Hopkins University
Boston, MA, USA
Sidney Kimmel
cooperation between national and international myeloma research cooperative
Comprehensive Cancer Center
Antonio Palumbo, MD
Baltimore, MD, USA
Università diTorino
groups in order to improve clinical trial design and data accrual.
Torino, Italy
John Crowley, PhD
Cancer Research
S. Vincent Rajkumar, MD
At the 2008 ASH Conference, the group convened to receive research updates
and Biostatistics
Mayo Clinic Rochester
Seattle,WA, USA
Rochester, MN, USA
from several US-based and international groups. They also laid out new trial
Angela Dispenzieri, MD
Donna Reece, MD
Mayo Clinic
Princess Margaret Hospital
initiatives regarding asymptomatic myeloma, relapsed myeloma, and amyloidosis.
Rochester, MN, USA
Toronto, Canada
Also in attendance at this meeting were representatives from the Cancer Therapy
Brian G.M. Durie, MD
Jesús San Miguel, MD
Cedars-Sinai
Hospital Clinico Universitário
Evaluation Program (CTEP) of the National Cancer Institute. With the goal of
Samuel Oschin
Salamanca, Spain
Cancer Center
Seema Singhal, MD
avoiding duplication of efforts and dilution of valuable resources, CTEP and
Aptium Oncology, Inc.
Northwestern University
Los Angeles, CA, USA
Medical School
International Myeloma Forum members discussed CTEP's potential participation
Morie A. Gertz, MD
Chicago, IL, USA
at the level of myeloma trial design.
Mayo Clinica
Pieter Sonneveld, MD, PhD
Rochester, MN, USA
Erasmus Medical Center
The International Myeloma Forum met again in February 2009 at the XIIth
Sergio Giralt, MD
Rotterdam,The Netherlands
University ofTexas
Edward Stadtmauer, MD
International Myeloma Workshop, presenting further research updates to
MD Anderson
University of Pennsylvania
Cancer Center
Philadelphia, PA, USA
fellow members.
Houston,TX, USA
Howard Streicher, MD
Roman Hajek, MD
National Cancer Institute
University Hospital Brno
CancerTherapy
Brno, Czech Republic
Evaluation Program
Jean-Luc Harousseau, MD
Rockville, MD, USA
Institute de Biologie
Robert Vescio, MD
Nantes, France
Cedars-Sinai
Sundar Jagannath, MD
Comprehensive
St.Vincents
Cancer Center
Comprehensive
Los Angeles, CA, USA
Cancer Institute
NewYork, NY, USA
10
RESEARCH

---

IMF Scientific Advisory Board
Raymond Alexanian, MD
Gösta Gahrton, MD
Linda Pilarski, MD
MD Anderson Cancer Center
Karolinska Institute
Cross Cancer Institute
Houston,TX, USA
Stockholm, Sweden
Edmonton, Canada
Kenneth C. Anderson, MD
Morie A. Gertz, MD
Raymond Powles, MD
Dana-Farber Cancer Institute
Mayo Clinic
Parkside Oncology Clinic
Boston, MA, USA
Rochester, MN, USA
London, UK
Michel Attal, MD
John Gibson, MD
S. Vincent Rajkumar, MD
Hôpital Purpan
Royal Prince Alfred Hospital
Mayo Clinic
Toulouse, France
Camperdown, Australia
Rochester, MN, USA
Hervé Avet-Loiseau, MD, PhD
Hartmut Goldschmidt, MD
Donna E. Reece, MD
Institute de Biologie
Medical Klinik und PoliklinikV
Princess Margaret Hospital
Nantes, France
University of Heidelberg
Toronto, Canada
Dalsu Baris, MD, PhD
Heidelberg, Germany
Paul G. Richardson, MD
National Cancer Institute
Roman Hajek, MD
Dana-Farber Cancer Institute
Rockville, Maryland, USA
University Hospital Brno
Boston, MA, USA
Bart Barlogie, MD, PhD
Brno, Czech Republic
Angelina Rodriguez-Morales, MD
Myeloma Institute for Research andTherapy
Jean-Luc Harousseau, MD
Banco Municipal de Sangre de la Region Capital
Little Rock, AR, USA
Hematologie Clinique
Caracas,Venezuela
Régis Bataille, MD
Nantes, France
David Roodman, MD
Institute of Biology
Joy Ho, MD
VA Medical Hospital
Nantes, France
Royal Prince Alfred Hospitals
Pittsburgh, PA, USA
Meral Beksaç, MD
and Concord Hospitals
Jesús San Miguel, MD
Ankara University
Camperdown, Australia
Hospital Clinico Universitário
Ankara,Turkey
Vania Hungria, MD
Salamanca, Spain
William Bensinger, MD
Clinica São Germano
Orhan Sezer, MD
Fred Hutchinson Cancer Research Center
São Paulo, Brazil
University of Hamburg
Seattle,WA, USA
Sundar Jagannath, MD
Hamburg, Germany
James R. Berenson, MD
St.Vincent's Comprehensive Cancer Center
Kazayuki Shimizu, MD
Institute for Myeloma & Bone Cancer Research
NewYork, NY, USA
Nagoya City Higashi General Hospital
Los Angeles, CA, USA
Douglas Joshua, MD
Nagoya, Japan
P. Leif Bergsagel, MD
University of Sydney
Chaim Shustik, MD
Mayo Clinic
Sydney, Australia
RoyalVictoria Hospital
Scottsdale, AZ, USA
Michio M. Kawano, MD
McGill University Clinical Research Program
Joan Bladé, MD
Yamaguchi University
Montreal, Canada
Hospital Clinic, Hematology
Yamaguchi, Japan
David Siegel, MD
Barcelona, Spain
Robert A. Kyle, MD, Chairman
Hackensack University Medical Center
Mario Boccadoro, MD
Mayo Clinic
Hackensack, NJ, USA
Cattedra Di Ematologia
Rochester, MN, USA
Seema Singhal, MD
Torino, Italy
Henk M. Lokhorst, MD
Robert H. Lurie Comprehensive Cancer Center
J. Anthony Child, MD
University Hospital Utrecht
Northwestern University
Barn House
Utrecht, Netherlands
Chicago, IL, USA
Chilgrove, UK
Sagar Lonial, MD
Alan Solomon, MD
Raymond L. Comenzo, MD
EmoryWinship Cancer Institute
University ofTennessee Medical Center
Memorial Sloan Kettering Cancer Research Center
Atlanta, GA, USA
Knoxville,TN, USA
NewYork, NY, USA
Heinz Ludwig, MD
Pieter Sonneveld, MD, PhD
John Crowley, PhD
Wilhelminenspital der StadtWien
Erasmus Medical Center
Cancer Research and Biostatistics
Vienna, Austria
Rotterdam,The Netherlands
Seattle,WA, USA
Jayesh Mehta, MD
Andrew Spencer, MD
Franco Dammacco, MD
Robert H. Lurie Comprehensive Cancer Center
The Alfred Hospital
University of Bari Medical School
Chicago, IL, USA
Melbourne, Australia
Bari, Italy
Håkan Mellstedt, MD, PhD
A. Keith Stewart, MD
Faith Davies, MD
Karolinska Hospital
Mayo Clinic
Royal Marsden NHS FoundationTrust
Stockholm, Sweden
Scottsdale, AZ, USA
Sutton, UK
Giampaolo Merlini, MD
Guido Tricot, MD
Meletios Dimopoulos, MD
Amyloidosis Centre
Huntsman Cancer Institute
University of Athens School of Medicine
Università di Pavia
Salt Lake City, UT, USA
Athens, Greece
Pavia, Italy
Benjamin Van Camp, MD, PhD
Johannes Drach, MD
Gareth Morgan, MD, PhD
Academic Hospital
Medical University ofVienna
Royal Marsden Hospital
Free University of Brussels
Vienna, Austria
Sutton, UK
Brussels, Belgium
Brian G.M. Durie, MD
Nikhil Munshi, MD
Brian Van Ness, MD, PhD
Cedars-Sinai Samuel Oschin Cancer Center
Dana-Farber Cancer Institute
University of Minnesota
Aptium Oncology, Inc.
Boston, MA, USA
Institute of Human Genetics
Los Angeles, CA, USA
Amara Nouel, MD
Minneapolis, MN, USA
Hermann Einsele, MD
Hospital Rutz y Paez
David Vesole, MD, PhD
University Clinic ofWürzburg
Bolivar,Venezuela
Hackensack University Medical Center
Würzburg, Germany
Martin Oken, MD
Hackensack, NJ, USA
Dorotea Fantl, MD
Hubert H. Humphrey Cancer Center
Jan Westin, MD
Sociedad Argentinade Hematolgia
Robbinsdale, MN, USA
Sahlgrenska University Hospital
Buenos Aries, Argentina
Antonio Palumbo, MD
Gothenburg University
Gothenburg, Sweden
Rafael Fonseca, MD
Ospedale Molinette
Mayo Clinic
Torino, Italy
Scottsdale, AZ, USA
11
RESEARCH

---

Research Grants Program
Every day I am a witness to the benefits of myeloma research efforts.
I enthusiastically support the IMF Research Grants as a first step
in getting new treatment modalities available to our patients.
­ ANN MCNEILL, Nurse Practitioner, Multiple Myeloma Division,
John Theurer Cancer Center, Hackensack, NJ
Through its Research Grants Program, the IMF is at the forefront of identifying,
supporting, and developing the world's most promising myeloma research. The
IMF backs both junior and senior researchers, funding 97 grants since the program's
Samantha Pozzi, MD
inception in 1994. This IMF-supported work continues to lead to further funding
Dana Farber Cancer Institute
from other highly regarded institutions, as well over 250 publications in the world's
Boston, Massachusetts
top research journals.
Samantha Pozzi is a 2009 Brian D. Novis Junior
Research Grant recipient for her work, Promoting
In 2009, the IMF awarded six research grants for a total of $335,000:
osteoblastogenesis with a novel clinical grade
Dkk-1 neutralizing antibody in the treatment
Brian D. Novis Senior Research Grants 2009
of multiple myeloma and related bone disease.
Ruth W. Craig, PhD
Dr. Pozzi's research sets out to define new
Dartmouth Medical School ­ Hanover, NH
therapeutic strategies for patients by
ConversionofantiapoptoticMCL1todeath-inducingforms
understanding the mechanism of myeloma.
inmultiplemyeloma
In the laboratory, Dr. Pozzi observes, the goal is to
move the work "from bench to bedside." But her
Nicola Giuliani, MD, PhD
previous experience with myeloma is just the
University of Parma ­ Parma, Italy
opposite; Dr. Pozzi worked at the "bedside" first,
Studyofalterationsofbonemicroenvironmentcellsinmultiple
beginning her career in Italy as a hematologist ­
myelomapatientsinrelationshipwithosteolyticbonelesions:
diagnosing patients, prescribing treatment, and
identificationofpotentialnewtherapeutictargets
following patients through clinical trials.
As she prepared to leave Italy in order to join a
Brian D. Novis Junior Research Grants 2009
US-based research team, Dr. Pozzi remembers
a personal moment with one of her patients.
Samantha Pozzi, MD
"His disease was progressing, and they had just
Dana Farber Cancer Institute ­ Boston, MA
diagnosed a plasmacytoma on his shoulder. He
PromotingosteoblastogenesiswithanovelclinicalgradeDkk-1
put my hand on his shoulder and asked me,
neutralizingantibodyinthetreatmentofmultiplemyelomaand
`Please, come back with some new therapies.'"
relatedbonedisease
Dr. Pozzi's relationship with the IMF has
Loredana Santo, MD
deepened the personal nature of her work. She
Dana Farber Cancer Institute ­ Boston, MA
was honored to meet IMF leaders upon being
Preclinicalevaluationofanovelsmallmolecule
awarded her grant in December 2008. "It's a
multi-cyclindependentinhibitorAT7519
very unique experience to actually meet such
inmultiplemyeloma
internationally important people who give you
these opportunities," Dr. Pozzi says. "I also had
Karin Vanderkerken, PhD
the privilege to have dinner with a patient who
Vrije Universiteit Brussel ­ Brussels, Belgium
volunteers for the IMF. He made the connection
Potentialtherapeuticroleofnanobodiesinmultiplemyeloma:
between research and patients even closer
studyinthe5TMMmodel
for me."
Dr. Pozzi is currently in the process of writing
a manuscript with the final results of her IMF-
IMF Japan Aki Award 2009
supported research. In the lab, she continues
Hiroyuki Shibata, MD
working to better define the mechanism of
Tohoku University ­ Sendai, Japan
the antibody she is testing. "We are a team of
Developmentofanoveltherapyformultiplemyeloma
passionate people," she says. "And we're finding
byusingnewlysynthesizedcurcuminanalogs
new ways to fight cancer."
12
RESEARCH

---

Robert A. Kyle Lifetime Achievement Award Dinner
On May 15, 2009, the Robert A. Kyle Lifetime Achievement Award
was presented to Jean-Luc Harousseau, Professor of Hematology
and Director of the Cancer Center René Gauducheau at Nantes,
France. In the spirit of international collaboration fostered by
the IMF, more than 150 colleagues and friends from all around
the world gathered for the dinner ceremony in Dr. Harousseau's
honor, raising over $86,500 for IMF research.
Dr. Robert A. Kyle
presents the award to
Each year, the Robert A. Kyle Lifetime Achievement Award is
Prof. Jean-Luc Harousseau
bestowed upon a physician who most exemplifies the singular
dedication to and compassion for myeloma
patients and the first-rate treatment of
Prof. Jean-Luc Harousseau is honored
their disease.
for his contributions to myeloma research
At the award's presentation were (L-R)
Dr. Evangelos Terpos, Prof. Mario Boccadoro,
IMF President Susie Novis,
guest of honor Prof. Jean-Luc Harousseau
and his wife Florence Harousseau,
and Dr. Brian GM Durie,
Chairman of the IMF Board of Directors
Our collaborative research extends worldwide.
Bank On A Cure®
Scientic Advisory Board
International Myeloma Forum
International Myeloma Working Group
In this bird's-eye view, the colored dots represent the locations where IMF
research programs take place all around the globe.
13
RESEARCH

---

SUPPORT
I've known the IMF for 15 years,
and they've always been there for the patient.
­ JACK AIELLO, San Jose, CA
The IMF remains dedicated to providing myeloma patients and their families with
Carole Levis
a strong network of support through easy access to up-to-date information and
DuBois, PA
the means to connect with local and global communities. The IMF's programs and
When Carole Levis was diagnosed with myeloma
services are designed to ensure that no patient or loved one feels isolated by a
in 1987, she felt completely alone. "I didn't know
myeloma diagnosis.
what myeloma was or anyone who had it," she
recalls.
www.myeloma.org
Carole bought her first computer three years
The IMF website was where I did research when I was diagnosed,
later, and soon found the IMF through an online
chat room."From then on, the IMF was my lifeline,"
and I have used the strength of the IMF's expertise ever since.
she says. She has loyally subscribed to Myeloma
­ KATHY BERTINO, Huntingdon Valley, PA
Today, dialed in for telephone conferences,
The IMF website is a touchstone for everything the
attended Patient & Family Seminars, and relied
upon the IMF Hotline.
IMF has to offer. With 24-hour access to the IMF's
comprehensive publications, videos, blogs and the
With the IMF by her side, Carole has always
latest community developments, it is an invaluable
determinedly set goals for her future. "My first
source of the latest information on news and
goal, in 1987, was to just live long enough to see
my four year-old grandson grow up," she says.
events affecting the fight against myeloma.
"To see what his future held."
From October 2008 through September 2009,
the IMF web site had almost one million visits
As the years progressed, Carole's goals became
more concrete. After her third transplant, in
and almost six million page views, with visitors
2008, Carole's goal was to form a myeloma
downloading 333,640 documents and viewing
support group. "God has given me 22 years with
124,500 online videos.
myeloma," she says. I knew that if I could tell
even one person that they too could reach that
Toll-Free Hotline
milestone, I was giving them hope.
"With the IMF's help, within three months I was
My first call to the Hotline turned out to be the best call
up and running!"
I ever made. Thank you for helping us understand and
In July 2009, Carole attended the IMF's Support
accept what we have and yet live each day with hope!
Group Leaders'Retreat. "It was more than I could
­ YVONNE ZUCHOWSKI, Blackwood, NJ
have ever expected,"she says."I was able to learn
The IMF's toll-free hotline provides life-saving and life-changing myeloma treatment
so much to take back with me." Members of her
and management support from compassionate National Cancer Institute trained
local support group are certainly grateful; some
of them drive more than two hours in order to
specialists. From October 2008 through September 2009, the hotline supported
participate in her DuBois-based support group.
4,300 cal ers and responded to 3,600 emails.
"It's a very humbling experience, and another
goal reached," Carole says. As for her first goal:
Her grandson is about to graduate from college
and is applying to law school.
"I sometimes think that myeloma is what keeps
me alive."
SUPPORT
14

---

Support Groups
Our myeloma support group has received wonderful support
and materials from the IMF, and
the Support Group Leaders' Retreat was awesome.
­ SUE & BOB ENRIGHT, Jackson, WI
Through its global network of IMF-assisted support groups, the IMF seeks to ensure
that patients and families have local access to support, information, and a strong
sense of community. The IMF currently supports 118 groups in the United States
and an additional 62 groups worldwide.
Sharon Wolfe
The IMF is dedicated to overseeing the needs of
Oyster Bay, NY
these groups and their leaders. From October
Sharon Wolfe was diagnosed with myeloma
2008 through September 2009, IMF staff made
in 2004 when a routine blood test showed
76 domestic support group visits and met
abnormal y high protein levels. She knew
with 21 groups internationally. During this
nothing about myeloma, so she immediately
time, the IMF facilitated the formation of three
searched the internet. It was a lot to take in, and
new international support groups in Stuttgart, Germany; Saint Johns, Canada; and
she felt that most of the information she found
online was negative and pessimistic.
Winnepeg, Canada. Eight new US-based groups were also formed in:
When
she
found
the
IMF's
website
Montgomery, AL
(www.myeloma.org), Sharon immediately
Albany, GA
sensed the difference ­ a positive approach that
appealed to her. She made note of the IMF's
Flint, MI
toll-free Hotline (800-452-CURE) as a potential
Columbus, OH
resource.
DuBois, PA
Soon after, she made the cal . Uneasy with
Columbia, SC
the information she was receiving from her
Greenville, SC
local oncologist, she decided to discuss her
West Bend, WI
test results with the Hotline. They strongly
encouraged her to find another specialist and
In addition, the IMF's 10th annual Support Group Leaders' Retreat took place in July
gave her a recommendation in her area. "It gave
2009, in Dallas, Texas. More than 50 group leaders and representatives attended
me my life back," Sharon says.
the retreat, including 17 new myeloma support group leaders. Participants were
Even with an oncologist she now trusts, Sharon
updated on the latest information about myeloma treatment and care, and
still calls or emails the IMF's Hotline every few
provided with new leadership tools and approaches ­ all to further enhance the
months. "Sometimes I have a question and my
experience for their support groups back home.
doctor is not available. I also check in just to
touch base," she says. She continues to value
their warm and supportive approach, and more
than ever appreciates their special role for the
myeloma community.
There is a simple reason she trusts the IMF first
and foremost."Most of the information out there
had me dead within five years," she recalls. "But
I found the IMF. I'm sure I'd be dead if it wasn't
for the Hotline."
15
SUPPORT

---

Myeloma ManagerTM
Launched in 2008, the IMF's Myeloma ManagerTM Personal Care AssistantTM is
a computer program that tracks an individual patient's laboratory results, and
displays and prints charts to show how these results change over time. This is an
unprecedented way for patients to fully understand their own personal trends and
assess progress over an extended period, helping patients and their caregivers deal
with the growing wealth of information and constantly increasing complexity of
myeloma treatment programs.
The Myeloma Manager is available for download, free of charge, through the IMF
web site (www. myeloma.org). From October 2008 through September 2009, this
ground-breaking program was downloaded 2,229 times.
Toward the end of the fiscal year, the IMF released another version of the Myeloma
Manager specifically tailored to track test results of amyloidosis patients. In the first
five weeks it was available, the Amyloidosis Manager was downloaded 98 times.
Additionally, a Canadian version of the Myeloma Manager was released.
SUPPORT
16

---

ADVOCACY Advocacy
Partnerships
The IMF proudly col aborates with
other cancer organizations in order to
Advocacy is very important for any cause, but now
most effectively advocate for our many
I think it's especially crucial because we're going through
common needs. The IMF firmly believes
Healthcare Reform...and without advocacy and education,
that it is through partnership that we will
it's going to be really hard to drive research money
reach our goals. Building these mutually
beneficial relationships also ensures
for these smaller, less well-known diseases.
that the myeloma community is always
­ AMY WOLVERTON, Washington, DC
represented when key governmental
The IMF is dedicated to creating a global community that supports the wide-
agencies create and assess their agendas.
ranging needs of all myeloma patients, their families, their caregivers, and
In June 2009, the IMF once again
researchers working to combat the disease. By advocating at the governmental
participated in One Voice Against Cancer
level and to every audience possible, the IMF continues to build relationships and
(OVAC) Lobby Days in Washington, DC,
foster change in strategic and systemic ways.
organized to urge the federal government
The IMF is also committed to including the entire myeloma community in these
to increase funding for cancer research
efforts, and significantly expanded its platform for doing so during the timeframe of
and address the quality of life needs for
this report.
patients and their families. In addition to
its collaboration with OVAC, from October
Governmental Policy
2008 through September 2009 the IMF
The fact that a lot of people have never even heard
continued rewarding partnerships with
of multiple myeloma, and if we are going to get any funding,
the Cancer Leadership Council and the
National Coalition for Cancer Research,
for example from NIH or the CDC, they need to know on the Hill
and formed partnerships with the
about myeloma research and the great strides that have been made.
Hematological Cancers Group and the
­ CAROL KLEIN, Bethesda, MD
Lethal Cancer Coalition.
When advocating on the myeloma community's behalf on the governmental
level, the IMF remains committed to creating effective immediate solutions, while
IMF Advocacy Partners
simultaneously building and strengthening plans for the future.
Cancer Leadership Council
The IMF continues its efforts to keep the myeloma community's needs front and
Hematological Cancers Group
center by fostering relationships with governmental policy's key players. This
Lethal Cancer Coalition
long-term diligence continues to pay dividends; in April 2009 the Centers for
National Coalition
Medicare & Medicaid Services determined it would cover the use of PET scans for
for Cancer Research
myeloma patient treatment, an advancement that the IMF has advocated and built
One Voice Against Cancer
relationships upon for several years.
From October 2008 through September 2009, the IMF worked to increase
co-sponsorship for legislation important to the myeloma community, including the
21st Century Cancer ALERT Act (S. 717), Access to Cancer Clinical Trials (S. 488/H.R.
716), and the Cancer Coverage Parity Act (H.R. 2366). The IMF reached out to key
US Senators and Congressmen in order to advance these priorities, including
meetings with the offices of Senator John Cornyn, Senator Charles Grassley, Senator
Tom Harkin, Senator Kay Bailey Hutchinson, Representative Sam Johnson, and
Representative Tom Latham.
The IMF also co-authored nine letters to the Department of Labor, the Department
of Health and Human Services, the Office of Personnel Management, and US Senate
and House of Representatives leadership advocating for research funding, access to
clinical trials, and health care reform.
17
ADVOCACY

---

IMF Myeloma
IMF Advocacy Action Center
Awareness Month
The volume of noise and the degree to which people make personal
In a special effort to proactively advocate
efforts to bring their stories to their congressman and their state
for the research and treatment issues
legislators profoundly impacts how we, as a society, work.
affecting the myeloma community, the
­ E. MICHAEL D. SCOTT, Philadelphia, PA
IMF observed Myeloma Awareness Month
in March 2009. Each Friday throughout
In August 2009, the IMF debuted its Advocacy Action
the month, the IMF hosted an open
Center, an online, centralized hub that allows myeloma
conference call, available to all members
patients, families, caregivers and medical professionals
of the myeloma community, free of
access to governmental activity affecting the myeloma
charge. As many as 200 or more people
community.
joined in for each of the conference calls.
Through the IMF's new Advocacy Action Center, users
The topics were:
can find the latest updates from Washington, DC, read
What's of Importance
policy letters and statements co-signed by the IMF,
to Patients Today
and learn more about the IMF's advocacy partners. The
Advocacy Action Center includes an Advocacy Toolkit,
The Nurse Perspective
which includes a guide to Building Relationships
The Patient Perspective
with Your Legislators, How a Bill Becomes a Law, a Glossary of
What's of Importance
Legislative Terms, and a Guide to Legislative Staff Titles.
to Patients for Their Future
The Advocacy Action Center also includes a platform that allows myeloma
community members easy access to directly contacting their own elected officials,
highlighting relevant legislation and causes. In August 2009, the IMF additionally
created the Myeloma Action Network, an email service that alerts members when a
new government issue or cause needs to be addressed by members of the myeloma
community. Nearly 300 people signed on to the Myeloma Action Network within six
months of its debut.
Cancer Patient Statement of Principles
In May 2009, a coalition of cancer patient advocacy organizations, led by the IMF and
the Myelodysplastic Syndromes Foundation, unveiled the Cancer Patient Statement
of Principles at the annual meeting of the American Society for Clinical Oncology in
Orlando, Florida.
The principles, issued on behalf of patients and caregivers, state:
Prevention is the key to reducing the burden of cancer
Continuing innovation is critical to early diagnosis and better treatment
Equality of access to care is imperative
Early approval of new treatments for deadly cancers is essential
Patients who have exhausted approved
therapies need simplified access to
experimental agents whenever possible
The IMF re-affirmed this Cancer Patient
Statement of Principles at its July 2009
Support Group Leaders Retreat in
Dallas, Texas.
ADVOCACY
18

---

Elijah Alexander
When the IMF-led Cancer Patient Statement of Principles was
Frisco, TX
released, Elijah became its most public ambassador. In April 2009
Many
dedicated
people he joined the IMF as a Patient Representative at the American
participated in the IMF Advocacy Society of Clinical Oncology conference, debuting the Principles,
Program's substantial growth in sharing his own personal
2008-2009. Yet when it came to experiences, and advocating
deciding who should be featured for the needs of patients and
in this report, the choice was clear. families everywhere.
Elijah Alexander's response to the IMF's request: "You know I like To watch him engage
being the first."
physicians and researchers
was a sight to behold. "These
That one short sentence encapsulates so much about Elijah ­ were people who, on paper,
his humor, his leadership, his joy, his self-awareness, his passion, had nothing in common with Elijah beyond myeloma," Arin
his sense of responsibility, and the fierceness with which he says. "But they couldn't get enough of him. He put a smile on
fought myeloma.
everyone's face and left everyone with a great feeling, despite
the subject at hand."
Elijah's passing in March 2010 meant that he could not participate
in this feature, but it in no way diminishes that he earned the
Elijah continued his efforts
right to be "first."
in Washington, DC In
September 2009, he met
Elijah is known and beloved by many people for his football
with Senate and House of
career, which was defined by his motivation, passion, and tireless
Representative officials. He
effort. He is known and beloved by the myeloma community for
passionately
advocated
bringing those same qualities to the fight against this disease.
for access to information
Elijah was diagnosed with myeloma in October 2005 after he and treatment for everyone, including both urban and rural
became unexpectedly and violently ill. Within days he began underserved communities. He lobbied for laws that would make
chemotherapy, followed by a stem cell transplant. It was an the best treatment choices available to all patients, regardless
arduous treatment process. Upon his release from the hospital, of economic factors. He also lobbied for more clinical trials,
Elijah's first stop was greater patient access to those clinical trials, and an increase in
to the baseball field research funding. During his time
where his son was on Capitol Hil , Elijah won over
practicing.
career politicians as effortlessly
and genuinely as he did everyone
From then on out, else in his orbit.
Elijah's life focused
on
these
two In June 2009, Elijah was presented
arenas: the joy of with the IMF's FrancescaThompson
spending time with Outstanding Service Award at the
his family and his dedication to the myeloma community. Dallas Patient & Family Seminar.
"Every minute not spent with his wife Kim and his boys was for The award took Elijah by surprise.
our cause,"says Arin Assero, the IMF's Director of Communications He was touched and humbled to receive the honor ­ and then
and Public Policy.
delivered a speech with a passion that blew everyone away.
"He gave it as though it were overtime on Super Bowl Sunday,"
He wanted to help the IMF any way he could.
Arin recalls.
In December 2007, Elijah appeared with IMF
Chairman Brian Durie on NBC Nightly News,
Elijah believed that you don't have to be an expert to make a
generously lending his celebrity to increase
difference. You simply have to be inspired to try. Elijah inspired
myeloma awareness.
everyone he came in contact with, and in so doing created a
lasting legacy.
19
ADVOCACY

---

DEVELOPMENT
Everybody's cutting back on their spending.
But the IMF can't be part of the cutbacks.
­ LISA MEHALICK, Gibsonia, PA
The IMF's mission to improve the quality of life for myeloma patients while working
toward prevention and a cure is always foremost as the IMF builds relationships
throughout the country and the world to enhance funding opportunities.
John O'Dwyer
Plano, TX
As a result of extensive fundraising activities, the IMF is able to offer innovative and
Three years ago, John O'Dwyer was living in
meaningful educational programs, engage in the most far-reaching and cutting-edge
Shanghai, China. He woke up one morning
research projects, provide compassionate support for patients and their families, and
with severe back pain. Physicians at the Chinese
serve as ardent advocates in our nation's capitol for issues affecting myeloma patients
hospital were only able to report that he had a
and for the medical professionals treating them.
cancer that had significantly metastasized.
The next morning, John and his wife flew back
It is only because of the generous support of all donors that the IMF is able to
to the United States. "My wife had been in
achieve all of this. The IMF is sincerely grateful to every person, company, and
China for only 16 days, making what would be
foundation that made a gift during the 2008-2009 Fiscal Year, no matter the size of
a five-year stay the shortest ex-pat assignment
the contribution.
ever," he says. Back home, John was diagnosed
with myeloma.
In finishing the first complete year on its new fiscal calendar, the IMF is pleased to
report that it ended the year in solid standing. During the twelve-month period
"Once I knew what I had, it was time to do
research," John says. "My main interest was
covering October 1, 2008 through September 30, 2009, the IMF raised a total of
finding out who was working to find a cure." He
$7.0 million in support of its programs and services. The IMF is thrilled to be able to
quickly keyed in on the IMF's Bank On A Cure
maintain a sure footing during a time of great economic uncertainty. Because of the
initiative. Impressed by the program's approach
enormous support of IMF donors, not one program was negatively affected by the
and results, as well as by IMF leadership, John felt
economic recession.
compelled to financially back the organization.
"It's clear to me that myeloma will never get the
Major Gifts & Planned Giving
attention or funding that higher-profile diseases
get," John explains. "So if I want to see work
The IMF is indebted to the small but fiercely dedicated group of individuals and
done in this arena, I must be willing to commit
companies who, year in and year out, continue to make substantial and personally
financial resources to help make it happen."
meaningful gifts. During the 2008-09 Fiscal Year, the IMF received 46 major gifts
John has attended two IMF Founders' Circle
totaling nearly $700,000.
Summits. "It's a great forum for the most current
happenings," he reports. "The Summit keeps
Founders' Circle Summit
a focus at a higher macro level, talking about
The IMF hosted its 2nd Annual Founders' Circle Summit in June 2009. Members of
the science."
the Founders' Circle, who contribute a minimum of $10,000 annually to the IMF,
In addition to his significant financial
were treated to a in-depth briefings from IMF Chairman Dr. Brian Durie, International
contributions, John has begun advocating on
Myeloma Working Group Co-Leader Dr. S. Vincent Rajkumar, and Lead Principal
behalf of the IMF and the myeloma community.
Investigator, IMF Historical Controls Project Dr. Shaji Kumar.
"I'm contacting legislators and senators, and
getting friends and relatives to do the same.
This year, the Founders' Circle Summit was
"I know I might never directly benefit from this
conducted virtually, with presentations
work ­ although no complaints if I do!" John
streamed live over the internet and an
says. "Regardless, I look forward to a day when
interactive question-and-answer sessions
myeloma is simply an illness that can be easily
with all of the experts.
treated ­ or even prevented ­ because of work
being done today to find a cure."
(continues on page 22)
20
DEVELOPMENT

---

2nd Annual Comedy Celebration
On Saturday, November 15, 2008, more than 1,200 people joined
the IMF for its IMF's 2nd Annual Comedy Celebration benefiting the
Peter Boyle Memorial Fund. The event raised over $600,000 in
support of the IMF's cutting-edge research programs.
Inside Los Angeles' historic
and elegant Wilshire Ebell Theatre & Club, guests
ate, drank, and bid vigorously on the 109 items up
for silent auction. A red carpet, with cameras and
reporters from Entertainment Tonight and Extra, led
into the main event, a comedy show hosted by
Reporters at the ready as celebrities
Ray Romano
Ray Romano, Peter Boyle's co-star from Everybody
arrived for the event
Loves Raymond. Speakers included Leslie
I knew Peter for 38 years.
Moonves, President & CEO of the CBS Corporation,
He was a joyful guy.
and Ted Danson, noted actor and conservationist,
It would be nice to know
and featured
what the hell got him
appearances
so it doesn't get others.
by Jeff Garlin,
Patricia Heaton,
­ ROBERT KLEIN, New York, NY
Filling the seats before the show
Kevin James,
Robert Klein, and Doris Roberts, with a special musical
performance by Dan Aykroyd and Jim Belushi as The
Blues Brothers with The Sacred Hearts. Loraine Alterman Boyle, Peter's wife, closed the
performances with her daughters Lucy and Amy by graciously thanking the audience
for joining them in celebrating Peter by
supporting the IMF research.
A VIP champagne and dessert reception
served as the perfect coda for an evening
Robert Klein finishing off his
that once again proved: Sometimes laughter
entertaining routine
is the best medicine.
Kevin James imitating Ray Romano
Jeff Garlin was hilarious
The guests enjoyed
a delicious end
to a thoroughly
delightful evening.
The Blues Brothers (left), Dan Aykroyd
and Jim Belushi, rocked the house
while The Sacred Hearts cooked!
21
DEVELOPMENT

---

(continued from page 20)
By eliminating the need to travel and allowing participants to take part in this
exclusive meeting via the internet from the comfort of their own homes, the event
became accessible to more of the dedicated donors of the Founders' Circle.
This 2nd Annual Founders' Circle Summit raised over $103,000 in support of the IMF
research programs, including Bank On A Cure.
The Hope Society
In August 2009, the IMF launched The Hope Society, a new sustained giving
program. Members of The Hope Society make simple, secure, recurring
Ron Fischer
contributions to help maintain the exceptionally high caliber of the IMF's programs
Oak Park, MI
and services. With dozens of members
When Ron Fischer was diagnosed in January
committing monthly, quarterly, or even
2009, he had never heard of myeloma. "When
the doctor and nurses told me, I smiled at them
annual automatic gifts, this program is
and asked, `What's that?'" he recalls.
already a successful component of the IMF's
development strategy.
It was a fast learning curve. Ron's fiancée found
the IMF's website (www.myeloma.org) the very
With small, easy steps, The Hope Society
day of his diagnosis and requested the IMF's
participants make a large impact on the
InfoPack. "It arrived in the mail very quickly!"
Ron says. They also promptly subscribed to
IMF's mission. This simplifies the process for donors, while also allowing them to feel
Myeloma Today. Through the IMF's website, Ron
better able to absorb smaller gifts throughout the year. Ultimately, most members
also found his local myeloma support group,
of The Hope Society donate more in their year's total than they would in a single
the single largest cancer support group in his
lump-sum donation, for which the IMF is truly grateful.
area ­ a mixed blessing, he realizes.
To join The Hope Society, please visit the IMF's website, www.myeloma.org, or call
Ron underwent four months of induction
(800) 452-CURE.
chemotherapy, fol owed by an autologous
stem cell transplant in June 2009. "I popped a
couple of ribs along the way and have some
Brian D. Novis Legacy Society
bone lesions here and there, but I am currently
Now in its second year, the Brian D. Novis
in remission and doing well," he reports.
Legacy Society recognizes individuals
He is currently busy making up
who inform the IMF that they have made
for lost time ­ which includes
plans to include the organization in their
riding his bicycle, returning to
long-term state plans. Members of this
work, and donating to the IMF.
When he read about The Hope
society make bequest provisions in their
Society, the IMF's sustained
will or revocable trust, or name the IMF as a
giving program, he knew he had
beneficiary of qualified retirement plan assets
found the perfect plan.
(IRA or 401(K)) or life insurance policy.
"I had wanted to make a larger
The IMF sincerely wishes long, happy, and healthy lives for all of our members, but
donation but was not able to,
having lost quite a bit of work," he explains.
also recognizes that this development strategy will yield long-term results to help
"The Hope Society allows me to make regular
to ensure the future of the IMF's life-saving programs and services. To become a
monthly contributions that are within my
member of the Brian D. Novis Legacy Society, the IMF requests that individuals
budget, and which can add up over ­ a
simply confirm their planned gift in writing. No minimum commitment is necessary.
hopefully long ­ time."
Ron's life experience has taught him to live
every day to its fullest, but he also sees great
value in investing in the future. "Donating to
the IMF is a way to give back for what they've
given me," Ron says. "But it's also in my own
self-interest!"
22
DEVELOPMENT

---

Member Fundraisers
Fundraising means knowing that we are contributing
to the expansion of thinking about myeloma.
It makes us feel as if we are helping to care for ourselves.
­ MADDIE HUNTER, Metuchen, NJ
Alexandra Zousmer & Joanna Share
Chicago, IL
The IMF's Member Fundraiser program is one of the most empowering and
Arnold Zousmer ­ Alexandra's father and
Joanna's uncle ­ was diagnosed with myeloma
gratifying ways for members to get involved and participate in supporting the
in 1999. But Alex and Joanna, very young at the
mission of the IMF. The program evolved organically from
time, weren't told until two years ago.
the desire of members to do something and is now one
of the most popular development programs. Events are
"Part of me was shocked that it had been so
conceived, organized and held by members in their own
many years and I had never noticed," Alex says.
"It was just reassurance that myeloma was not
communities all over the country (and the world). These
going to take over his life."
member fundraisers generate critical funds for the fight
against myeloma, increase awareness of the disease,
Adults now, the younger generation of Arnold's
and inspire patients, their families and their friends to
family is proving they are a force to be reckoned
keep fighting.
with. The two women decided they would raise
money to combat myeloma ­ and also show
From October 2008 through September 2009,
their peers that fundraising can be fun.
IMF members held 60 events and raised over $375,000.
The name of Alex and Joanna's event says
The IMF is tremendously grateful to this passionate and dedicated group
it al : Misbehave for Multiple Myeloma. On
of members. Together, they make a profound impact on our programs, services,
September 25, 2009, 160 guests joined them at
and research initiatives.
Captain Morgan's Club in Chicago. In addition to
their many friends in the city, family and friends
Miles for Myeloma 5K
flew in from both coasts to join the misbehavior,
On April 25, 2009, the Philadelphia Myeloma Networking Group, the Hacksensack
including Arnold. "Everyone had the best time,
especially my dad, who was chatting it up non-
(NJ) University Medical Center Multiple Myeloma Support Group, and the Central
stop!" Alex recalls.
New Jersey Myeloma Support Group banded together as one powerful fundraising
entity, creating the Miles for Myeloma 5K. In Philadelphia on a sunny, 80° day, the
"I cannot even tel
groups raised over $92,000 ­ with more than $67,000 of those proceeds going to
you
how
many
the IMF, much of which was specifically earmarked to
phone cal s, emails,
and
Facebook
fund an IMF Brian D. Novis Research Grant.
posts I got the days
The event kicked off with rousing welcome speeches
fol owing the event
to say how much fun
from local NBC News anchor Terry Ruggles and
people had," Joanna
Philadelphia Mayor Michael Nutter, inspiring the crowd,
adds.
the 50 event volunteers, and the 500 runners/walkers
who took to the USA Track and Field/RRTC Certified
Misbehave for Multiple Myeloma was a
course. After the race, runners and spectators alike
smashing success ­ raising almost twice as
celebrated. A family-friendly festival included a DJ,
much as the women's initial goal. Just as
importantly, the event was a statement of hope
a clown, and an opportunity drawing.
and empowerment. Alex and Joanna are already
hard at work planning a repeat for November
6, 2010. "This event changed my family forever,"
Alex says.
23
DEVELOPMENT

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Member Fundraisers held between October 1, 2008 ­September 30, 2009
Benefactors' Circle
Heuer Memorial
Dutton Family Fundraiser
Under $500
$25,000 and up
Golf Tournament
Annette Dutton
Nancy Heuer
Allison Park, PA
Bob Brunner's
Miles For Myeloma 5K
Caledonia, NY
Veterans Against Myeloma
Philadelphia Multiple Myeloma Networking Group,
Lewis Fundraiser
Campaign
Central New Jersey Support Group, Northern New
Evening 4 A Cure
Roderick Lewis
Bob Brunner
Jersey Support Group
Barit Family
Marioni Salon Fundraiser
Virginia Beach, VA
Philadelphia, PA
East Amherst, NY
Kerri Marioni
Multiple Musicians
Afternoon Tea
A Song For Ireland
Newark, DE
Against Multiple Myeloma
Carol Klein & Nancy Moses
Kate & Doug Farrell
Jack's 6th Annual
Naomi Margolin
Washington, DC
Philadelphia, PA
Texas Hold `em Benefit Bash
Great Neck, NY
Julie Smudz 5K
Jack Aiello
Founders' Circle
F.O.R. Benefit
Mike Smudz
San Jose, CA
Michelle Klein-Haas
$10,000 - $24,000
Delaware, OH
RHS Open Fundraiser
Los Angeles, CA
Carolyn Czerkies
Ride-A-Thon
Steven Saletan
Gerry's Journey
Charity Golf Outing
for Myeloma
Mt. Pleasant, SC
Kristi Difford
Czerkies Family
Jim Barth
Miles for Myeloma
Golden, CO
Naperville, IL
Clearwater, FL
Larry Bartolin
Help From Heaven
Coach Rob's Benefit Bash
Associates' Circle
Fowler, OH
Erin Smith
Rob Bradford
Tennessee Support Group
Winona, MN
Apopka, FL
$1,000 - $4,999
Fundraiser
Craft Fair Fundraiser
WAMP Swim-A-Thon
Marathon for Mom
Northeast Tennessee
Stacy & Carmen Scibetta
Stafford Family
Steve Hoppe
Multiple Myeloma Support Group
Brooklyn, NY
West Hartford, T
New York, NY
TN
Mike Johnson
J.C. Golf Tournament
Dennis Werra Fundraiser
Friends' Circle
Arizona Myeloma Fundraiser
David Johnson
Jayson Werra
Mike Johnson
St. Cloud, MN
New Berlin, WI
$500 - $999
Tucson, AZ
Jeans & Jewels Gala
Concert for a Cause
Fiacco/Nichols Bon Ton Fundraiser
Riggs, Abney Charity Walk
Lisa Mehalick
Richard Weiner
Melanie Nichols & Suzanne Fiacco
Riggs, Abney, Neal, Turpin,
Gibsonia, PA
Los Angeles, CA
Potsdam, NY
Orbison & Lewis
Denver, CO
Pytlik Memorial Walk of Hope
Paparella Family Fundraiser
Young Yard Sale
Barb Pytlik
Carl Paparella
in honor of Doug Farrell
Bianchi Garage Sale
Tonawanda, NY
St. James, NY
Susan Young
Jodi Bianchi
Ridge, NY
Carlsbad, CA
Spring Forward Benefit
Matthew Jacobs Fundraiser
Joseph Bellomo
Matthew Jacobs
Matassa 50th Wedding
Mehalick Fundraiser
Palo Alto, CA
Frisco, TX
Anniversary
Lisa Mehalick
Juana Matassa
Gibsonia, PA
Misbehave
Meredith Fiacco
Irving, TX
for Multiple Myeloma
Memorial Golf Tournament
The Cosmopolitans
Alexandra Zousmer & Joanna Share
Melanie Nichols & Suzanne Fiacco
Klein Jewelry
The Cosmopolitans
Chicago, IL
Potsdam, NY
Sarah Klein
Arlington, VA
Los Angeles, CA
Margaret R. Cole
Partners' Circle
Fabian Birthday Fundraiser
Memorial Fund
Walk for Myeloma
Ken Fabien
$5,000 - $9,999
Roger Cole
Denise Vidot
Apopka, FL
Miami, FL
Music Against Myeloma
Trooper Benson Klein
Spirit of `76
Slava Rubin
Research Fund
Multiple Colors
Jim Conrad
New York, NY
Benson Klein
for Multiple Myeloma
Lewisville, TX
Bethesda, MD
Pam Larsen
Bertino Wine Fundraiser
Honolulu, HI
Pastis' Mistletoe
Kathy Bertino
Jerry Walton's
for Myeloma
Huntingdon Valley, PA
Veterans Against Myeloma
Mustache-a-thon for TJ
Staci Pastis
Campaign
Peter Marietta
Santa Rosa, CA
Elijah Alexander
Jerry Walton
Oakland, CA
Research Fund
Virginia Beach, VA
Gems For A Cure
Elijah Alexander
Gang Campaign
Marya Kazakova
Frisco, TX
Who's Your Daddy Rally
Judith & Martin Gang
Los Angeles, CA
Lisa Cash
Surprise, AZ
Paducah, KY
Mildred's Walk
Sandra Mendelson-Brown
Los Angeles, CA
DEVELOPMENT
24

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FINANCIAL
STATEMENT
INTERNATIONAL MYELOMA FOUNDATION
Statement of Financial Position
September 30, 2009
Assets
CURRENT ASSETS
Cash and cash equivalents
$1,677,014
Contributions and other receivables
558,188
Prepaid expenses
358,113
TotalCurrentAssets
$2,593,315
PROPERTY AND EQUIPMENT, at cost
Furniture, fixtures and equipment
48,101
Computer equipment
144,254
Computer software
494,427
Laboratory research equipment
449,200
1,135,982
Less accumulated appreciation
(685,763)
NetPropertyAndEquipment
$450,219
TOTAL ASSETS
$3,043,534
Liabilities & Net Assets
CURRENT LIABILITIES
Accounts payable and accrued expenses
$790,431
Deferred and unrestricted educational grants
1,870,816
Line of credit
400,000
TotalCurrentLiabilities
$3,061,247
NET ASSETS (DEFICIT)
Unrestricted
(17,713)
Temporarily restricted
-
TotalNetAssets
$(17,713)
TOTAL LIABILITIES AND NET ASSETS
$3,043,534
For a copy of our complete audited financial statements, please contact the IMF office
25
FINANCIAL STATEMENT

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INTERNATIONAL MYELOMA FOUNDATION
Statement of Activities
For the Year Ended
September 30, 2009
Change in Unrestricted Net Assets
REVENUES
Educational grants
$5,220,711
General contributions
527,249
Fundraising programs
567,082
Fundraising event income
86,509
Seminar fees and support group income
69,929
Donated services
56,500
Interest income
12,298
Total Revenues
$6,540,278
Net Assets Released From Restrictions
Satisfaction of program restrictions
$496,909
TotalUnrestrictedRevenueAndOtherSupport
$7,037,187
Expenses
Program expenses
5,987,472
General supporting expenses
483,544
Fundraising expenses
572,939
TotalExpenses
$7,043,955
DECREASE IN UNRESTRICTED NET ASSETS
(6,768)
Changes in Temporarily Restricted Net Assets
Contributions, net of direct benefit to donors of $369,962
496,909
Net assets released from restrictions
(496,909)
Change in Temporarily Restricted Net Assets
0
Decrease in Net Assets
(6,768)
NET ASSETS (DEFICIT), September 30, 2008
(10,945)
NET ASSETS (DEFICIT), September 30,2009
$(17,713)
For a copy of our complete audited financial statement, please contact the IMF office
FINANCIAL STATEMENT
26

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INTERNATIONAL MYELOMA FOUNDATION
Statement of Activities
For the Year Ended
September 30, 2009
Total Program Expenses
5,987,472
General Supporting Expenses
483,544
Fundraising Expenses
572,939
TotalExpenses
$7,043,955
Breakdown of Expenses by Program
PROGRAM
TOTAL EXPENSES
Advocacy
188,218
Bank On A Cure®
234,110
Clinical Meetings
578,016
Education & Awareness
1,102,794
Hotline
352,784
Information Mailings
160,210
International
199,355
Myeloma Manager
7,027
Myeloma Today
233,797
Nurse
473,347
Patient & Family Seminars
704,389
Public Relations
71,023
Research
929,268
Support Groups
635,201
Website
117,933
TotalProgramExpenses
$5,987,472
For a copy of our complete audited financial statement, please contact the IMF office
27
FINANCIAL STATEMENT

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HONOR ROLL
Chairman's Circle
Virginia Gloor
Janice Corwin
The International Myeloma Foundation
$100,000 and up
Sheryl Goldberg
Barbara and James Coy
The Binding Site, Ltd.
Gursey | Schneider LLP
Ken Cruickshank
gratefully acknowledges the many people
Celgene Corporation
Diane and William Hein
Kim Cutler
and organizations which have made
Medtronic, Inc.
Helene S. Whitman Memorial Cancer Fund /
Blythe Danner Paltrow
contributions to its various programs and
Merck & Co.
Joel Whitman
Dr. Verna B. Dauterive
Millennium: The Takeda Oncology Company
Diana and George Holway
Sigmund Davidson
projects during the past year. Without them,
Proteolix, Inc.
Indianapolis Colts, Inc.
Betsy and Paul Dawes
the IMF would not be able to continue
The V & L Marx Foundation /
Susan and Michael Katz
Gordon Doble
Jennifer and Bud Gruenberg
Kenwood Vineyards
Jane Drexler
providing the excel ent, high-quality
Carol and Benson Klein
John Dunn
programs and services upon which its
President's Circle
Joele Frank and Laurence Klurfeld
Annette and Joseph Dutton
members have come to rely. Their generosity
$50,000­$99,999
C. S. Ledley
Debbie and John Dyer
Genzyme Corporation
Joann K. Malta
Clarice L. Eder
allows the IMF to:
Dorothy and John O'Dwyer
Doris Meyer
Laurie K. Robinson
Maintain the Hotline and ensure that
Philadelphia Multiple Myeloma
Sharon and Chuck Newman
Barbara Ellis
Networking Group
Susie Novis and Dr. Brian Durie
Barbara and David Elson
staffers are up-to-date on the latest
Payden & Rygel
Susan Elzemeyer
research and treatment options so that
Benefactors' Circle
Linda and Jeff Peotter
Emanuel P. Silverman Trust
patients, family, and friends always have
$25,000­$49,999
Pincus Family Foundation / Leslie Pincus
Frances Fahsel
AMGEN Oncology
Pytlik Walk of Hope / Barb Pytlik
Charlotte and Harold Feder
a place to turn;
Robert C. Ebersole
Robert Rice and Spencer Howard
Stephanie Fiacco
Hold Patient & Family Seminars
Eli Lilly and Company
Rose and Sherle Wagner Foundation / Amy
George Speen
Genentech, Inc.
Wagner
Mark Filip
in the US and internationally;
Kyphon, Inc.
Carol Ann and Paul Rothman
Susan and David Fink
Ensure that the highly-acclaimed website
Sally and Ted Lange
Ilona and E. Michael Scott
Philip O. Foard
Novartis Pharmaceuticals
Tackle Myeloma Foundation / Elijah Alexander*
Barbara and Buddy Freitag
is updated daily with the most relevant
Ortho-McNeil Pharmaceutical/
Judy and Gerald Webb
Sid Fry
information and made available 24 hours
Johnson & Johnson
Alice and Louis Weiss
Gregory Geissman
Leonard N. Stern
a day to all those interested in myeloma;
Associates' Circle
David Girard
Goldman, Sachs & Co. Matching Gift Program
Expand successful programs such as the
Founders' Circle
$1,000­$4,999
Ronda Gomez-Quinones
Regional Community Workshops to reach
$10,000­$24,999
12650 Riverside Drive Office Building
Linda H. Gordon
Anonymous
Kevin and James Abernathy
Susan and Richard Grausman
even more patients and families, while
Cephalon, Inc.
Peggy Aiello
Greater New York Sign Contractors
maintaining unwavering support
Coach Rob's Benefit Bash, Inc. /
Amazon.com, Inc.
Association, Inc.
Kimberly and Robert Bradford
Annette and Joseph* Anderson
Greif, Inc.
of established and relied upon programs
HBO Inc.
Stacey Annen
Erwin Gudelsky
like the Patient & Family Seminars;
Dr. Robert Hugin
Anonymous
Sue and Alan Haber
J.C. Invitational Golf Tournament /
Carolyn Armington
M. Halpern
Invest wisely in research programs like the
Beverly Lundorff
Jennet Walker and John Auerbacher
Charlotte and Dale Herbrandson
International Myeloma Working Group
Janssen-Cilag
Ann Bamesberger
Lois and Howard Honigfeld
and Bank On A Cure® that lead to better
Dorthy and Alejandro C. Martinez
Band from TV, LLC
Spencer Howard and Robert Rice
Alex Meneses and John Simpson
Estate of Peter J. Moonan
Frederick Joseph
treatments for patients today while also
Dorothy M. Ormond
Joan and Larry Bartolin
David Hubier
funding research grants that lead to
Anne Peck
Bea Bass
Judith and Mr. Herbert Hyman
Louise Takata
Joseph Bellomo
Infinity Pharmaceuticals, Inc.
critical breakthroughs for tomorrow;
Capital Group Charitable Foundation /
Gary Benanav
Mike Jackson
Continue to produce and regularly
Leigh A. Morris
Catherine Blaney
Manjula and Dr. Sundar Jagannath
Twin Cities Myeloma Foundation
Jessica Blinkoff
Rose and Robert Jernigan
update the more than 100 publications
Walsh Street Foundation / Henry Belber
Alisha K. Bobo
Virginia Johnston
that support patients, doctors and nurses
Phyllis and Allan Weinstein
Loraine Boyle
Dr. Michael Katz / Karmanos Cancer Institute
in making informed treatment choices;
Worldwide Pants, Inc.
Wendy Breslow
Arnold Kas
Briscoe Family Foundation
Nancy Kelsey
Advocate on behalf of the entire
Partners' Circle
Prudy and David Brown
Lee Kernis
myeloma community to ensure that
$5,000­$9,999
Mari and Ward Bukofsky
Esther and Bernard Klein
Ronnie and Richard Abrams
Robin Green and Mitchell Burgess
Esther Klein
myeloma research and patient care
Anheuser-Busch, Inc.
Robert D. Byrd
Roberta and Raymond Klein
issues are ever-present in our lawmakers'
Aptium Oncology, Inc.
Corinne and James Cammarata
Richard Knowlton
thoughts.
Susan and Frank Armo
Marquis and Rob Cantrell
Ronnie and Alvin Konner
Joshua D. Bauer
Denise Carmody
John Krehbiel
The IMF is dedicated to improving the quality
Kathleen and Ronald Bertino
Lorrie Carr
Debbie and Calvin Krosch
of life of myeloma patients while working
Cancer Cure of America
Jack Carter
Liz Kurantowicz
Celgene International
Charlotte and William Hinson
Charlene and Dr. Robert Kyle
toward prevention and a cure.
Clifford and LaVonne Graese Foundation
Charitable Foundation
Elaine and Dale LaLonde
Craig Czerkies
Nilene and Arnold Chase
Kay and Ernest Lambert
The IMF is here for you.
David Geffen Foundation
Citibank North America
Barbara and Jon Landau
Evening 4 a Cure / Ashley Barit
Hyla and Richard Cohn
Law Offices of Friedman and Friedman
Richard and Eileen Fisler
Judith and Neil Collier
Andy Lebkuecher
28
2
HONOR ROLL

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Linda S. Leffler
Raymond Uzanas
Kathryn A. Divine
Keith B. Leffler
Christine M. Simpson
Barbara and Robert Liberman
Dr. David H. Vesole
DJ Electric
Stuart Lerner
Damir S. Skerl
Christopher A. Lisy
Lindsay and Jerry Walton
Carol Douglas
Adrienne and Martin Levine
Smart Wire LLC
Lewis C. Livermore
Patricia and Clark Ward
Alice Duffy
John Lively
Maryanne and Charles Smith
Kathy Locher
Sharon and David Wax
East Bay Community Foundation
Construction General Laborers
Stephen Smith
Louis Borick Foundation
Holly and Jayson Werra
June Farabelli
& Material Handlers Local 1058
Elizabeth Sondak
Mary and Ken Makowka
Kristi and Chick Willette
Robert S Fenton
David P. Lorz
Babette and Allan Spatz
Michael Marks
Melissa Williams
Catherine Finan
Lindsay Luke
Virginia Stahlsmith
Linna Martz
Marcia and Allen Wizelman
First Care Health Services
M L Swartz, LLC
Lori and Adam Stefanowicz
Maurice and Carol Feinberg Family
Sharyne and Mitchel Wolfe
Melissa L. Fisher
Reid V. MacDonald
Riza Stillwell
Foundation, Inc.
Dedra Woods
Joe Foley
John Machado
Sarah B. Stockwell
Patty and Fred McClintock
Howard Zenner
Tom Fontana
Madia Photography
Strauss Family Foundation
Michael McLemore
Judy-Ann Zoghby
Carolyn and Joel Fromer
Lodi Main
Studebaker Drivers Club­
Merck Partnership For Giving
Alexandra Zousmer
Charlotte and John Fryling
Rema Manousakis
Beach Cities Chapter
Meriwest Credit Union
Michele and Arnold Zousmer
Donna and James Galligan
Julie Ann Marshall
Dawn and Steven Switzer
Joseph D. Merlin
Violet and Robert Gallo
Anne-Marie Martinolich
Mindy and Randy Tammara
Merrill Lynch
Friends' Circle
Judith and Martin Gang
Barbara Marx
Jan Tanner
Deborah and Charles Metzger
$500­$999
Susan and Daniel Gannon
Carol and Robert McCoy
Karyn E. Taylor
Microsoft Giving Campaign
Abbott Laboratories Employee
Gail L. McNabb and E. H. Gardner
Lea McGee
Fern and Leonard Tessler
Jean and Richard Molot
Giving Campaign / Sparna T. Mehta,
Francoise Gerard and Andree Couteele
McGraw-Hill Companies Employee
The Greater Kansas City
Montclair Beach Club, Inc.
Dustin E. Starkey & Donna Wilkinson
Christine A. Giardini
Giving Campaign
Community Foundation
Ellen Moore
Mona Abrams
Michele and Michael Ginsburg
Medco Employee Giving Campaign
Tamara Thornsley
Kathleen Moore
Aeromech, Inc.
Anne and Albert Girod
Cheryl A. Mercier
Albert Tone
Lizza Morales
Pamela Ahlen
GivingExpress Program
Lorraine and Joseph Merluzzi
Suzanne and Joseph Torres
Morgan Keegan & Company
Nelleke and Jack Aiello
Leanne and Bradley Glassman
Midwest EDM Specialties, Inc.
Sandra and Terry* Townsend
Leigh Morris
Lois F. Alperstein
Jane Godin
Eileen Susan Miller
Travel International
Jerome F. Mytych
Apex Industrial Automation LLC
Shawn Gormish
Nancy Kuhn and Fred Mills, Jr.
Rita Ullman
Joy and Ronald Paul
Rosemarie Aramanda
Wendy Barish and Michael Greenstein
Luvisminda N. Milo
Benita and Ronald Unger
PeggyAnn P. Hospice Walk
AT&T Employee Giving Campaign
Margaret and Patrick Grippe
Lorraine and Donald Mong
United Way of Central and
Mark Peltz
Avalere Health LLC
Janet S. Grisemer
Karen and Tom Morton
Northeastern Connecticut
Sandy and Steve Perlbinder
Franklin B.K. Axel
Deborah and Allen Grubman
Joyce and James Mountain
Jennifer Gonsky and Jon Urdan
Pfizer Foundation Matching Gifts Program
Lauren and George Baker
Marc Gurvitz
Margaret A. Nencka
Lisa Valle
Sandra and Bradford Porter
Madelyn and Kamel Baladi
Erica Hanson and Joshua Elbaum
Eden and Paul Nesse
Judy and Brian Van Ness
Carrie and David Powers
Pauline and Kenneth Barclay
Jeffrey Owen Hanson
Network for Good
Albert Veldhuizen
Professional Closing Network
Ralph Barnett
Kenneth Harris
NorthEast Promotions Corp.
Virginia Imports, Ltd
Recellular, Inc.
Jacqueline Bass
Judith Hartig-Osanka
Barbara and John* O'Brien
Robert Vogelsang
Refreshing Ideas, LLC
Susan and David Beck
Phyllis and Murph Hayutin
Joan O'Callaghan
Karen and Kent Vorhies
Judith and Milton Riseman
Jean Beckman
Gary C. Heuer
Laura Anne O'Donnell
Tim Walsh
Cindy and Leon Rittenberg, Jr.
Angele Benard
Donna J. Heusdens
Margaret and Russell Okasako
Terri Warren
Sylvana and Matthew Robinson
Alexis Benbassat
Susan and Charles Hogan
Olivet Fellowship Baptist Church
Amy and Steven Weiss
Linda and Arthur Rodbell
Jerome Bess
Christine Holland
C.J. Olson
Wellpoint Associate Giving Campaign
Therese and Michael Rooney
Joan Biddison
Stan Holuba
OSI Pharmaceuticals, INC
Daphne H. Wetmore
Eleanor Rubin
Bill Brown Construction Co.
Home Depot Political Action Committee
Parkview Plumbing and Heating, Inc.
Sharon and James* Whisnant
Geoconda Ruiz-Hoffman
Tim R. Bisson
Matching Program
Toni and Ronald Paul
Dale White
SakeOne
Barbara and Dr. Thomas Blackburn
Karen and George Hopkins
Christine Phillips
Stephanie and Samuel White
Salon 926 LLC
Connie Blake
Craig Howard
Pillar Technology Group, LLC
Robin and Charles Wilkins
Schwab Fund for Charitable Giving
Mary and Dr. Thomas Blakney
Grace and Dr. Dominick Huster
Progressive Insurance Foundation
Elois G. Williams
Joseph Schwarz
William Blum
HWOA
Gail Quartner
Jan Williams
Kay M. Seamans
Richard Boisture
I Do Foundation
Barbara and Mark Rabin
Lynn* and Bob Winneberger
Cynthia and Igor Sill
Gina M. Bolger
IBM Corporation
Laura Ratner
Kimber Wraalstad
Lucy and David Simon
Mitzi and Gerald Bozarth
Introbotics Corporation
RBS Enterprises
Beth and Woodring Wright
Mary Anne Siska
BP Matching Funds Program
Phyllis and Matthew Jacobs
Cynthia Reich
David L. York
Carolyn Sissom
BPO Elks 22
William F. Jenkins
Anne Reuther
Regina and Gregory York
Keith Small
Lydia Brennan
Sarah Jessup
Lawrence Reynolds
Tricia Zubke
Judy and Pat Smith
Leslie Byrnes
JML Stables, Inc.
Anne and Jeffrey Rienks
Michael G. Smudz
Kelly Cameron
John R. Jakobson Foundation, Inc. /
Elizabeth and Robert Rinker
Martha and Olvis Spencer
Janice and John Cartwright
Joan and John Jakobson
Bill Rollnick
RuthAnn and Charles Spirakis
Jack Cassari
Gay and Robert Johnson
Robert Rome
The IMF's 2009 fiscal year ran
Lee Stafford
Karen and Alexander Castaldi
Judith Johnson
Robert Rosenthal
October 1, 2008 ­ September 30,
Valerie and Mike Stevenson
Beatrice Chaney
Lloyd E Kessler
Mildred W. Rowan
2009.Thislistincludesgiftsreceived
Michael Stone
Ronald J. Chappelone
Rebecca Kilzer
Marilyn Roye
between those dates. We apologize
Joyce and William Posladek
Ron Charlton
Linda and Barry Kimmel
Jane and Charles Rubey
for any omissions or errors. Please
Sunnyvale Service & Athletic Club
M. Thomas Collins
Carol and Benson Klein
Robert Ruff
call our office to inform us of any
Dory and Alex Szeles
Ronald G. Collman
Roberta and Raymond Klein
Saint Francis Hospital and
corrections needed.
T. Rowe Price
Community Foundation for Greater Atlanta
Lawrence Koplin
Medical Center
The Bank of Castile
Joanne and James Conrad
Kathleen and Dr. Edgar Koschmann
Stacy Samet
Every gift is appreciated by the IMF.
The Chicago Community Foundation
Abby Coutant
Charles Kraft
Gwen Sprehn and Andrew Saykin
Every dol ar counts. Over 5,000
The Durie Group
Stephen S. Cox
Nita and Andrew Kramer
Jennifer and Tim Scarne
people contributed gifts between
The Five G's Family Foundation
Tracy Crane
Spencer Krane
Eric Velde Schneider
$1 and $499, totaling $534,969 in
The Lillian Butler Davey Foundation
Athena and George Curley
Amber Kripotos
Judy and Dean Schneider
support of programs, services and
The Mabel B. Fischer Grant Foundation
Davis Wright Tremaine LLP
Amy Bard and Stuart Kuritsky
Bridget and Barry Schnepel
research. We wish we had space to
The San Francisco Foundation
Aldo Del Col
Tina Kuus-Reichel
Jane and Michael Schueppert
list everyone's name. We want you
Thrift Mart of Irving
Brigitte Demes
Lambda Theta Alpha Latin Sorority, Inc.
Sandra and Richard Schutt
to know that you are all important
Dorothy and Hollis* Tinsler
Dennis A. Quinn & Associates
Lang Family Charitable Foundation
Rochelle Share
to us.
Mary and Terrance Tomann
Beth DeWoody
Jamie Larsen
Rosemary and David* Shea
UMC Inc.
Yvelisse Dinte
Janet and Arthur Laxer
Fran and Jack Shutack
* deceased
29
2
HONOR ROLL

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...There is the IMF
2009
INTERNATIONAL MYELOMA FOUNDATION
12650 Riverside Drive, Suite 206
North Hol ywood, CA 91607 USA
800-452-CURE
www.myeloma.org
TheIMF@myeloma.org

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