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Advocacy Resources

Advocacy - Resources

07.27.16   SOS: Save Our SHIPs
How the the State Health Insurance Assistance Programs helps seniors and what you can do to help save this valuable resource.

04.21.14   The International Myeloma Foundation (IMF) Applauds Gov. Beshear for Signing HB 126(The Cancer Treatment Modernization Act)Into Law

The International Myeloma Foundation (IMF) applauds Kentucky Gov. Steve Beshear for signing HB 126 (The Cancer Treatment Modernization Act) into law. The bill requires health plans regulated by the state that provide coverage for IV and oral anticancer treatments- to not exceed $100 copayment or coinsurance for a 30-day supply of orally administered anticancer treatment. 

04.09.14   Coalition Applauds Governor O’Malley for Signing Kathleen A Mathias Chemotherapy Parity Improvement Act of 2014
A coalition of physician and patient advocacy groups today joined Delegate Shirley Nathan-Pulliam (D-Baltimore County) and Senator James Mathias (D-Ocean City) in praising Governor Martin O’Malley for signing legislation that increases access to life-saving anti-cancer medications for thousands of Marylanders. The Kathleen A Mathias Chemotherapy Parity Improvement Act of 2014 (HB 625 and SB 641) will expand Maryland’s oral chemotherapy parity law, previously passed in 2012, to apply to all state regulated health plans.

01.06.14   Senators Introduce Bipartisan Bill to Prevent Insurance Companies from Charging More for Certain Drugs

U.S. Sen. Al Franken (D-Minn.) and Mark Kirk (R-Ill.) took a key step toward ensuring access to the best cancer treatments for patients across the country by unveiling a bipartisan bill to end the unfair practice of allowing insurance companies to charge more for certain chemotherapy drugs.  READ MORE ...


11.19.13   Affordable Care Act FAQ
Still mystified by the Affordable Care Act? Check out our new FAQ document for answers to some commonly asked questions!

10.10.13   IMF Pushes Wisconsin Lawmakers to Pass the Cancer Treatment Fairness Act

IMF advocate Tom Chellius and National State Affairs Consultant Zina Cary testified this week at a hearing held by the Wisconsin State Senate Insurance & Housing Committee in support of Senate Bill 300 (Cancer Treatment Fairness Act). The bill would require insurers in Wisconsin to cover oral anticancer therapies at rate equal to intravenous, or IV, treatments. Joining the IMF in the packed hearing room were members of the Wisconsin Coalition for Cancer Treatment Access (WCCTA) and the bill's legislative champions, State Senator Alberta Darling and State Representative Pat Strachota. 

09.25.13   IMF Engages in Congressional Briefing on Collaborative Research
The IMF participated in a congressional briefing, “Multiple Myeloma & Rare Blood Cancers: Living With Multiple Myeloma, Innovations in Treatment and Patient Access to Care,” organized by the California Healthcare Institute and Onyx Pharmaceuticals.

09.23.13   As the Bill Turns…Episode 5
As the summer ends, year round legislatures are returning from recess and taking action on some of our key legislation. Here are their stories:

09.18.13   IMF Protests Amendments to California Oral Anticancer Treatments Bill
IMF's Advocacy team this week registered its disappointment with amendments recently added to the original bill (AB 219) to increase the cap for out-of-pocket expenses—from $100 to $200—for patients taking oral anticancer treatments. The original intent of this bill was to eliminate the cost disparity between oral and intravenous anticancer medications, ensuring access to all anticancer medications for cancer patients. Additional proposed changes allow insurers to increase the cap over time, delay the implementation date until 2015, and sets the law to expire in 2019. California voters can contact their state senators to oppose the amendments.

08.21.13   Multiple Myeloma Insurance Questionnaire
Multiple Myeloma Insurance Questionnaire Ask before you buy—Get the best coverage for you

08.14.13   Advocating for Access to Oral Myeloma Treatments

Meghan Buzby, Director of US Advocacy for the International Myeloma Foundation, discusses the obstacles to accessing myeloma treatment and explain what patients can do to make a difference. 

06.11.13   Health Reform and You: The ABC’s of the ACA for Private Health Insurance
Next up in our Patient Education Series on the Affordable Care Act: Learn the alphabet soup of private health insurance changes coming in 2014 – QHPs, EHBs, OOPs, marketplaces and more! Join us to hear from a panel of experts from think tanks and policy groups who will discuss what cancer patients and their families need to know nowabout the health insurance world in 2014.

05.22.13   Health Reform and You: Navigating the Changing Health Insurance System in California

05.02.13   The Patients Equal Access Coalition Applauds a New Bill to Improve Access to Oral Cancer Drugs
The federal Cancer Drug Coverage Parity Act will dramatically improve the lives of cancer patients. Patients who previously could not afford these treatments will be able to access their life‐saving effects. It will also make cancer treatments more practical for patients living in rural and underserved areas by reducing the need to drive long distances for a nurse or doctor to administer treatment.

04.16.13   "Understanding Health Disparities in Cancer: The Case of Multiple Myeloma"

04.12.13   Medicare and Myeloma Patients

04.12.13   Medicare and You

03.19.13   As the Bill Turns

01.14.13   Calling all Advocates!

01.14.13   Myeloma Awareness Month Proclamation - a Piece of Cake!

11.29.12   The IMF Spearheads New Coalition’s First Meeting on State Health Exchanges
SPEAC held first meeting with cancer advocates in Springfield, Illinois to discuss how to work together to ensure Illinois' state health exchange offers affordable access to comprehensive cancer care.

10.12.12   IMF Forms New Coalition
This summer the IMF formed the State Patients Equal Access Coalition (SPEAC), which is a patient-focused coalition working collaboratively to ensure that cancer patients have appropriate access to a broad range of approved and medically-accepted anticancer regimens.

08.21.12   We're Growing!
The IMF Advocacy Team has seen major growth this year with two new additions. We are proud to announce that because of our team growth we have been able to expand our reach to help myeloma patients around the world get access to the treatments they need.

01.29.11   IMF forms the Patients Equal Access Coalition (PEAC) with other patient advocacy organizations to ensure that cancer patients have equal access to all approved anticancer regimens.

03.25.10   The International Myeloma Foundation Supports Legislation to Require Equal Insurance Reimbursement for Oral Cancer Drugs

12.07.09   Ochsner Supports Cancer Patient Statement of Principles at National Hematology Cancer Conference (ASH) in New Orleans
"My role as a myeloma specialist is to treat patients with the newest, most-effective treatments," said Dr Arthur Molina, Ochsner’s Director of Bone Marrow Transplantation and Hematological Malignancies. "I am concerned when patients tell me they would rather have an older, less tolerable drug because their insurance plan will reimburse them at a higher rate."

12.03.09   A Patient Advocacy Coalition Led by the International Myeloma Foundation and the MDS Foundation Says Its Cancer Patient Statement of Principles Gains Momentum Going into the ASH Cancer Conference

05.29.09   The International Myeloma Foundation, the MDS Foundation and a Coalition of Patient Advocacy Organizations Call for Updated Rules for Reimbursement, Access and Approvals for New and Existing Cancer Treatments.

04.20.09   Statement from the IMF on Insurance Inequities