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Spring 2008 Volume 7, Issue 6
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Winter 2008 Volume 7, Issue 5
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Fall 2007 Volume 7, Issue 4
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Summer 2007 Volume 7, Issue 3
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Spring 2007 Volume 7, Issue 2
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Winter 2006 Volume 7, Issue 1
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Fall 2006 Volume 6, Issue 10
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Summer 2006 Volume 6, Issue 9
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Spring 2006 Volume 6, Issue 8
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Winter 2005/2006 Volume 6, Issue 7
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Fall 2005 Volume 6, Issue 6
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Summer 2005 Volume 6, Issue 5
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Spring 2005 Volume 6, Issue 4
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Winter 2004/2005 Volume 6, Issue 3
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Spring 2004 Volume 5, Issue 10
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Winter 2003/2004 Volume 5, Issue 9
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October 2003 Volume 5, Issue 8
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August 2003 Volume 5, Issue 7
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June 2003 Volume 5, Issue 6
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February 2003 Volume 5, Issue 5
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Winter 2002/2003 Volume 5, Issue 4
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October 2002 Volume 5, Issue 3
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August 2002 Volume 5, Issue 2
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Special Edition - June 2002 Volume 4, Issue 11
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Winter 2001/2002 Volume 4, Issue 8
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Spring 2008 Volume 7, Issue 6
PDF AVAILABLE
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Myeloma Today Spring 2008 in PDF |
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Articles include:
* A Conversation with IMF Scientific Advisory Board Member Dr. Alan Solomon
* Europe Update: Frontline Myeloma Therapy with Dr. Jesus San Miguel
* Curcumin in Multiple Myeloma with Dr. Bharat Aggarwal
* Clinical Trials Update with Dr. Keith Stewart
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Winter 2008 Volume 7, Issue 5
PDF AVAILABLE
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Myeloma Today Winter 2007 in PDF |
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Articles include:
* New Findings Reported at ASH
* Serum Free Light Chain Testing for Diagnosis and Monitoring; MT in Conversation with Dr. Sundar Jagannath
* Myelosuppression; MT in conversation with Kathy Lilleby, RN
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Fall 2007 Volume 7, Issue 4
PDF AVAILABLE
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Myeloma Today Fall 2007 in PDF |
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Articles include: - Patient & Caregiver Experience: Smoldering Battles: My Diagnosis with Smoldering Myeloma
- Recommendations from the International Myeloma Working Group (IMWG): Prevention of blood clots associated with the use of thalidomide or lenalidomide
- Peripheral Neuropathy; In Conversation with Ginger Love, RN
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Summer 2007 Volume 7, Issue 3
PDF AVAILABLE
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Myeloma Today Summer 2007 in PDF format |
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Articles include:
- Mapatumumab: A New Cancer Therapy in Development, with Dr. Asher A. Chanan-Khan
- US Myeloma Forum, with Michael S. Katz
- Thromboembolic Events, with Deborah Doss, RN, OCN
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Spring 2007 Volume 7, Issue 2
PDF AVAILABLE
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Myeloma Today Spring 2007 in PDF format |
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Articles include: - The Role of VELCADE® plus DOXIL® in Multiple Myeloma; A Conversation with Dr. Robert Orlowski
- Update on Revlimid® for the Treatment of Myeloma; A Conversation with Dr. S. Vincent Rajkumar
- Health Care Becomes Key Issue in 110th Congress
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Winter 2006 Volume 7, Issue 1
PDF AVAILABLE
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Winter 2006 Myeloma Today in PDF |
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Articles include: - Report from ASH 2006
- Updates from around the globe
- Patient profile: African Explorer and Seeker, Dr. William Wheeler Jr.
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Fall 2006 Volume 6, Issue 10
PDF AVAILABLE
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Fall 2006 Myeloma Today in PDF |
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Articles include: - REVLIMID® Approved for Myeloma
- Update from the Israeli Association of Myeloma Patients (AMEN)
- Shifting Focus: My "New" Life with Multiple Myeloma
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Summer 2006 Volume 6, Issue 9
PDF AVAILABLE
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Summer 2006 Myeloma Today in PDF |
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Articles include: - The 2006 IMF Scientific Board Retreat
- The 2006 Annual Meeting of the American Society of Clinical Oncology
- The IMF Symposium at the ONS Annual Congress: Advancing Access to Multiple Myeloma Treatmen
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Spring 2006 Volume 6, Issue 8
PDF AVAILABLE
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Spring 2006 Myeloma Today in PDF |
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Articles include: - Focus on Myeloma and Plasma Cell Disorders; Conference Overview with Morton Coleman, MD
- Update on the Role of Lenalidomide (Revlimid) in Myeloma
- The Role of Bortezomib in Previously Untreated Myelo
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Winter 2005/2006 Volume 6, Issue 7
PDF AVAILABLE
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IMF's Centers for Disease Control and Prevention (CDC) grant renewed for second year |
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With our CDC grant renewal for 2006, the IMF will reach out to additional communities, as well as strengthen the community relationships we formed in 2005. |
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Advocacy Update: Support for Cancer Priorities Short-Changed in Presidents Budget |
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President Bushs recent state-of-the-union speech set the stage for an annual federal spending proposal that threatens to further erode our nations long-standing commitment to advance the pace of medical research and drug access. |
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The Yin and Yang of Long-Term Survivorship |
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Philosophers in the Han dynasty (207 BCE to 9 AD) developed the concept of Yin and Yang, the idea that everything in the universe has its opposite. If this is so, where does cancer fit into this ancient method of understanding life? |
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American Society of Hematology - 47th Annual Meeting |
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Recap from the American Society of Hematology's 47th annual meeting held in Atlanta, Georgia on December 1014, 2005. We have selected the major myeloma presentations for you to keep informed on the latest myeloma research that was presented. |
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Dear Reader |
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2006! Another new year, one filled with new opportunities, new partnerships, and renewed hope. As is customary it's also a time to look back on what we've achieved and this year I'm especially proud of what the IMF has accomplished. |
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The Stafford Family Funds Myeloma Research Grant |
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To date, the four WAMP swim-a-thon events have raised more than $40,000—enough to fund a grant in my dad's honor through the IMF research program. Our family plans to continue our efforts to help fund myeloma research in hopes for a cure for my |
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Flavia Hiatt Shares Her Story |
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On August 13, 2005, Flavia and her friends transformed the boardroom and mezzanine of Luxe Hotel Rodeo Drive in Beverly Hills into a fabulous fashion trunk show to benefit the IMF's myeloma research program. Shop For A Cure featured Flavia's own clot |
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2006 IMF Brian D. Novis Research Grant Awards |
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Grant Recipients Honored at IMF Scientific Advisors Meeting. |
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Combination Therapy with VELCADE plus Melphalan & Prednisone |
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At the 2005 annual meeting of the American Society of Hematology, Dr. Jesús F. San Miguel presented interim data on the ongoing GEM/PETHEMA study of VELCADE® (bortezomib) plus melphalan and prednisone (V-MP) in elderly, previous |
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Pain Management in Multiple Myeloma |
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Myeloma Today speaks with Daniel R. Kloster, MD |
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Transplant Nutrition |
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Myeloma Today speaks with Heather-Ann Younker, RD, CNSD |
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My Life With Myeloma |
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It's important to know that you can lead a good life—and a long one—even with myeloma. |
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Challenging Cancer with the Power of Painting |
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Board of Directors Profile: Matthew Robinson |
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This is a very exciting growth period for the Foundation. And it's enormously rewarding for me to apply my business experience of the last 20 years to helping the IMF accomplish its goals and objectives. |
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IMFers MAKE A DIFFERENCE!
2005 Member Fundraisers in Review |
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When the IMF started its member fundraising program several years ago, we had no idea how our members would respond. Would they be intimidated? After all, "fundraising" is a daunting word to some of us. Or would the opportunity of being pro |
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2005 Support Group Recap |
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As the IMF embarks on a new year, it serves well to look back at the accomplishments of 2005. It was an exciting year. Robin Tuohy, Kelly Cox, and I made visits to about a third of the myeloma support groups around the country. This was a very reward |
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Central Nebraska Myeloma Support Group |
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The IMF Returns to St. Petersburg, Russia |
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International Clinical Conference Promotes Myeloma Education |
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IMF Hotline Coordinators Answer Your Questions |
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My brother was just told he has a very rare form of myeloma called IgM. I cant find anything on it and keep coming across discussions of something called Waldenströms macroglobulinemia. Can you help? |
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Fall 2005 Volume 6, Issue 6
PDF AVAILABLE
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Dear Reader |
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The IMF, along with researchers, physicians, patients, and industry leaders, is extremely excited as we prepare for the annual American Society of Hematology (ASH) meeting, this year being held in Atlanta, Georgia on December 10th through 13th. The I |
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Patient Perspectives: NUMBERS DON'T LIE, or do they? |
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In the business world we're often told that Figures Don't Lie, but that Liars Can Figure. While that may be true in some scandalous incidents of corporate wrongdoing, we who are cancer advocates also know that while medical statistics don't lie, that |
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IMF Around the Globe: Israeli Association of Myeloma Patients |
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The Israeli Association of Myeloma Patients, also known as AMEN, was founded to benefit the welfare of myeloma patients in Israel. |
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Sixth Annual Support Group Leader Retreat |
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The word "Retreat" is defined in various ways: (1) an act or process of withdrawing especially from what is difficult or dangerous, and also (2) a period of group withdrawal for meditation, study, and instruction under a director. Well, I would have |
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Making Clinical Trials More Patient-Friendly |
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All new cancer drugs must be proven safe and effective in clinical trials before they can be made available to patients. At the 2005 IMF Support Group Leader Retreat, IMFer and leader of the Manhattan and White Plains (New York) myeloma support group |
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Pathogenesis and Maintenance of Multiple Myeloma |
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Recent studies in my laboratory have identified a novel pathway promoting enhanced survival of chronic B cell malignancies. We demonstrated that B lymphocyte stimulator (BLyS), a member of the tumor necrosis factor family, was expressed in an autocri |
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MOZOBIL, a potential new agent for Stem Cell Harvesting |
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Colony-stimulating factors such as G-CSF (filgrastim) induce the marrow to grow, while MOZOBIL is a new agent that aids in releasing stem cells into circulating blood where they can be collected by a process called apheresis. |
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Patient Experience: One Day at a Time...for 18 Years |
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The most powerful tool in a cancer patient's arsenal is the mind—when your body is beaten down physically, you can push your mind to keep you strong mentally while you face the challenges life has given you. |
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Education, Advocacy, and Awareness: Profile of Robin Tuohy |
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My family's journey through cancer began in September of 2000. My husband, Michael, and I were enjoying a family vacation with our children, Allison and Mikey, then ages 7 and 2. On one of the "kiddie" rides at Santa's Village, Michael experienced ex |
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IMF Hotline Coordinators Answer Your Questions |
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I have been diagnosed with a solitary plasmacytoma of the bone. What is it? And what is the likelihood that I will develop multiple myeloma? |
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The Multiple Myeloma ListServe |
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The Multiple Myeloma ListServ—affectionately called "The List" by its 1500 members—was founded by Michael Katz, an IMF Director, and June Brazil, a myeloma patient. At a time when the number of in-person myeloma support groups was nowhere |
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IMF Around the Globe: The Greater Montreal Multiple Myeloma Support Group |
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As The Greater Montreal Multiple Myeloma Support Group approaches its first anniversary, it is encouraging to review the progress that the group has made since our first meeting in November 2004. |
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Member Events: Gary C. Heuer, Jr. Memorial Golf Tournament |
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140 golfers started out the days activities with breakfast at Craigie Brae Golf Course in N. Chili, NY. Following the exciting 18-hole tournament, the events participants gathered for a chicken barbecue at Freeman Park in Mumford, NY. |
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Fundraising: Rocking in Rhode Island |
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Our mother, Carol Murray-Rossi, was diagnosed with multiple myeloma in 2003. But her personal struggle with this disease did not stop her from looking for ways to reach out and help others fighting myeloma. |
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Fundraising: Katie's Birthday Charity Bash |
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As Katie's birthday approached, she came to me with an idea of how she wanted to celebrate. In lieu of birthday gifts, Katie asked her friends to honor her grandmother by donating money to help cancer patients. |
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South Florida's Dynamic Duo: Cindy Feltzin and Vicki Anderson Ferraro |
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Every support group has a personality. Our group is a family. We want everyone who joins us to feel welcome, to feel safe, and to feel very hopeful. |
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Scientific & Clinical: VELCADE® phase III trials |
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VELCADE® (bortezomib) for Injection is currently approved in the United States and more than 50 countries worldwide for the treatment of patients with relapsed and refractory multiple myeloma. The timetable for clinical development and approval o |
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IMF Board Member Interview with Benson and Carol Klein |
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Since being diagnosed, I have a different outlook. I used to worry about the little things. Now, I only think about the big picture. |
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Insights into New Myeloma Tx: Revlimid Study Tops List of Investigations that may Benefit Patients |
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Recently, the Myeloma Program at New York-Presbyterian Hospital/Weill Cornell Medical Center has generated a considerable amount of excitement by launching a study evaluating a combination regimen, known as BiRD, that includes the antibiotic Biaxin&r |
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Member Events: 4th Annual MMAMM Benefit Keeps Lee Grayson's Memory Alive |
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Lee, who never had children, or a hit song, or huge record deal, worried that his life would leave no mark on the planet. But those who knew him, and even those who never had the blessing of knowing him, feel his presence each year at MMAMM. "Ask any |
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Summer 2005 Volume 6, Issue 5
PDF AVAILABLE
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Education, Advocacy, and Awareness:
Chicago IMF Patient & Family Seminar |
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The seminar inspired me so much that starting a myeloma support group in my area is now one of my top priorities. With newly found hope, education, and knowledge of the IMF's passion for finding a cure, we feel more in control of our situation. |
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Education, Advocacy, and Awareness:
Cancer, Civil Rights, and Political Placebos |
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When truth meets politics to collaborate for change, great things can happen for future generations. |
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Meet the IMF: Allan Weinstein Joins the IMF Board of Directors |
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I was diagnosed around September of 2002. I had a symptom but it wasnt a typical myeloma symptom. I was treated for an infection, but the infection recurred, and my internist didnt like that. |
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The IMF Welcomes David Siegel, MD, PhD |
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The IMF is pleased to announce that Dr. David Siegel has joined its Scientific Advisory Board. |
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IMF Hotline Coordinators Answer Your Questions |
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My father-in-law has myeloma and may be a candidate for a stem cell transplant. I am pregnant. Can my babys umbilical cord blood be used for his transplant? |
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The International Myeloma Foundations CDC Initiative |
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The IMF is thrilled to have received a grant from the CDC to help in their efforts to increase awareness among African Americans regarding hematologic malignancies. |
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Revlimid (Lenalinomide): Where Do We Stand? |
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One way or another, it seems that the long wait for Revlimid may be nearing an end. |
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IMF Honors Kenneth C. Anderson, MD with 2005 Robert A. Kyle Lifetime Achievement Award |
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Dr. Anderson has done more for the field of multiple myeloma and related disorders than anyone else. He is most deserving of this Lifetime Achievement Award. |
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IMF Around the Globe |
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The IMF in Japan and Latin America |
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Myeloma stem Cells: Attacking the Disease at its Source |
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Our research focuses on studying the originating cell in myeloma (the myeloma stem cell) and developing treatments that target this cell and inhibit the production of new tumor cells. |
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Dear Reader |
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I have just returned from a very successful meeting in Stockholm, Sweden, where exciting updates on myeloma research and treatments were presented. |
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Patient Perspective: A Conversation with Tim and Donna Egan |
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Patient Perspective: Cancer Etiquette |
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The question most commonly asked of a patient is, How are you? There is inherently nothing wrong with such a question. But is it the standard How are you? we routinely ask when we arent really interested in the answer? Is it the mundane How are |
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Spring 2005 Volume 6, Issue 4
PDF AVAILABLE
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Program Highlights from the 10th International Workshop in Myeloma |
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IMFers Share Their Thoughts |
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Patient Perspective: Tracking My Numbers |
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My MGUS was found as a fluke during an annual physical in May, 1993. My total serum protein was slightly above the top of the normal range for that test and soon went back to normal. Otherwise, I still would not know that I have MGUS since I am still |
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Patient Perspective: My New First Birthday |
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Update on Lenalidomide (CC-5013; Revlimid) |
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There has been intense research to develop a safer and more effective version of thalidomide. Lenalidomide (CC-5013; Revlimid®) is the first analog (close cousin) of thalidomide to enter clinical trials. It may prove to be more effective and safe |
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Meet New Members of the IMF Scientific Advisory Board |
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Supportive Care: Erectile Dysfunction - Current Treatment Options |
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Erectile dysfunction (ED) is a very common disorder that affects up to half the male population over the age of 40.
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IMF Hotline Coordinators Answer Your Questions |
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What is the difference between the terms "myeloma" and "multiple myeloma?" "My grandmother died of multiple myeloma and now my dad has been diagnosed with this disease. Is myeloma hereditary?" |
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Supportive Care: Blood Tests |
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There are a number of factors that are likely to increase your comfort with a medical test. Susan J. Leclair, PhD, CLS (NCA)helps you understand why a test has been ordered for you, how it will be conducted, and what the reference ranges are.
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Dallas Patient & Family Seminar |
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Community Goals Lead to Results |
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Are you more interested in myeloma research or cancer research? Is there a difference? What about other issues, like drug coverage and payments for PET scans? Can myeloma issues be separated from cancer issues in general? |
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IMF Receives Highest Four-Star Rating |
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Sorority Raises Funds for a Cure |
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During the summer of 2004, my father was diagnosed with multiple myeloma. Myeloma? I had never heard of this disease. And I was not alone. |
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Myeloma Foundation of Australia Inc. |
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2005 Brian D. Novis Research Grants |
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Did You Know: What Causes Hyperviscosity in Multiple Myeloma? |
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Viscosity is the property of fluid to resist flow. In myeloma patients, hyperviscosity (increased serum viscosity) results from increased levels of circulating serum immunoglobulins. |
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Winter 2004/2005 Volume 6, Issue 3
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Advocacy Update: Federal Support for Cancer Issues in Decline |
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The science of cancer research holds unprecedented promise. Unfortunately, the issues of federal funding dominating the political agendafor cancer research and drugs and treatments through Medicareare not addressing this opportunity. |
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Message from the IMF President |
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2004 saw the realization of many of the IMFs dreams. |
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ASH 2004: The Avalanche of Information Continues |
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The recent ASH meeting in San Diego included a huge amount of information relevant to myeloma. |
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New Developments in Multiple Myeloma |
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Dr. Morie Gertz of the Mayo Clinic brings up to date on new developments in treatment and supportive care. |
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The Expanding Role of Proteasome Inhibition in Multiple Myeloma |
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At the 2004 ASH meeting, data from a variety of proteasome inhibitor studies was discussed. Based on these, it seems safe to conclude that more patients with relapsed or refractory disease will benefit from such therapy than previously thought. |
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IMFer Profile: Andy Lebkuecher
Meet the New IMF Director of Support Groups |
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Like most people who find out one day that they or a loved one has myeloma, wed never heard of it before. I said, OK, I guess we need to learn about this....We attended an IMF Patient & Family Seminar and became very involved with the Foundation. |
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News & Notes |
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North Texas MM Support Group |
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Spring 2004 Volume 5, Issue 10
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Los Angeles Area Support Group Salutes Leader
IMFers Pay Tribute To Janet Johnson |
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Message from IMF President |
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On behalf of the International Myeloma Foundation, I would like to thank you for your support and update you on our progress with the IMF’s research project, Bank On A Cure®.
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Why Bank On A Cure? |
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Every myeloma patient is unique. Treatment should be too. |
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Treating Multiple Myeloma: The Little Rock Approach |
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Peripheral blood stem cell (PBSC)-supported high-dose melphalan 200 mg/m2 is now considered standard therapy for patients with symptomatic or progressive myeloma. During the last five years, additional new agents effecting salvage rates of 30% - 50% |
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The Genetics of Multiple Myeloma |
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Extensive genetic lesions, both at the chromosome and gene levels, characterize malignant plasma cells. Although most patients present with a large number of malignant plasma cells at diagnosis (up to 1,000 billion malignant cells), chromosomal analy |
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Drug Resistance: Overcoming Multiple Myeloma Drug Resistance by Inhibiting the Proteasome |
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There are many difficult hurdles to overcome in the treatment of multiple myeloma, but one of the most important is a phenomenon called drug resistance. |
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Education Initiative |
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The International Myeloma Foundation (IMF) and Millennium Pharmaceuticals, Inc., of Cambridge, MA, the developer of VELCADE (bortezomib) for Injection, are collaborating on a national medical education program designed for oncology nurses. |
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Atiprimod: A New Drug Candidate in Early-Stage Development for Myeloma |
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Atiprimod has a very interesting history, providing yet another example of a drug candidate that begins its story as a potential treatment for a wholly different disease indication. |
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Cancer Research and Medicare: Political Pork? |
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IMF Kicks Off 2004 Seminars with Florida Retreat |
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In talking with first-time participants as well as those who had attended IMF seminars previously, it is very evident that no matter how many of these wonderful weekends one has been to, there is always new, pertinent information available. |
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Winter 2003/2004 Volume 5, Issue 9
PDF AVAILABLE
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2004 Research Grants Awarded to the Best
IMF Announces Key Worldwide Funding |
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Six of the world's most promising clinical investigators have been chosen to receive prestigious 2004 Brian D. Novis Research Grants from the International Myeloma Foundation (IMF) in order to further their research. |
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ASH 2003: An Avalanche of New Information
What does it all mean, and where do we go from here? |
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The huge number of presentations at the American Society of Hematology Meetings (ASH), December 4th 9th 2003 in San Diego capped a truly momentous year for myeloma research and new drug development. |
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Message from IMF President |
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Its that emotional time of year again, when we reflect back on the past year, sometimes with tears for what weve lost, sometimes with smiles for what weve achieved and for the sweet memories of people who have touched our lives. |
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Advocacy Update: Congress Adjourns |
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Thanks to the persistent work of Sen. Kay Bailey Hutchison (R-TX), the conferees to the Labor, Health and Human Services, and Education appropriations bill approved $500,000 to help support the IMFs Bank On A Cure program. |
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News and Notes |
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Ask the Expert: What's New with the Use of VELCADETM in MM? |
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Who is the Unknown Patient? |
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Did You Know? |
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The Gift of Giving |
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October 2003 Volume 5, Issue 8
PDF AVAILABLE
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Ask the Expert: The use of DOXIL in multiple myeloma |
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An interview with Mohamad Hussein, M.D., Director of the Myeloma Research Program at the Cleveland Clinic Taussig Cancer Center in Cleveland, Ohio. |
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Myeloma at the Movies Lending Library |
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