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Fall 2005 Volume 6, Issue 6

Dear Reader

The IMF, along with researchers, physicians, patients, and industry leaders, is extremely excited as we prepare for the annual American Society of Hematology (ASH) meeting, this year being held in Atlanta, Georgia on December 10th through 13th. The I

Patient Perspectives: NUMBERS DON'T LIE, or do they?

In the business world we're often told that Figures Don't Lie, but that Liars Can Figure. While that may be true in some scandalous incidents of corporate wrongdoing, we who are cancer advocates also know that while medical statistics don't lie, that

IMF Around the Globe: Israeli Association of Myeloma Patients

The Israeli Association of Myeloma Patients, also known as AMEN, was founded to benefit the welfare of myeloma patients in Israel.

Sixth Annual Support Group Leader Retreat

The word "Retreat" is defined in various ways: (1) an act or process of withdrawing especially from what is difficult or dangerous, and also (2) a period of group withdrawal for meditation, study, and instruction under a director. Well, I would have

Making Clinical Trials More Patient-Friendly

All new cancer drugs must be proven safe and effective in clinical trials before they can be made available to patients. At the 2005 IMF Support Group Leader Retreat, IMFer and leader of the Manhattan and White Plains (New York) myeloma support group

Pathogenesis and Maintenance of Multiple Myeloma

Recent studies in my laboratory have identified a novel pathway promoting enhanced survival of chronic B cell malignancies. We demonstrated that B lymphocyte stimulator (BLyS), a member of the tumor necrosis factor family, was expressed in an autocri

MOZOBIL™, a potential new agent for Stem Cell Harvesting

Colony-stimulating factors such as G-CSF (filgrastim) induce the marrow to grow, while MOZOBIL is a new agent that aids in releasing stem cells into circulating blood where they can be collected by a process called apheresis.

Patient Experience: One Day at a Time...for 18 Years

The most powerful tool in a cancer patient's arsenal is the mind—when your body is beaten down physically, you can push your mind to keep you strong mentally while you face the challenges life has given you.

Education, Advocacy, and Awareness: Profile of Robin Tuohy

My family's journey through cancer began in September of 2000. My husband, Michael, and I were enjoying a family vacation with our children, Allison and Mikey, then ages 7 and 2. On one of the "kiddie" rides at Santa's Village, Michael experienced ex

IMF Hotline Coordinators Answer Your Questions

I have been diagnosed with a solitary plasmacytoma of the bone. What is it? And what is the likelihood that I will develop multiple myeloma?

The Multiple Myeloma ListServe

The Multiple Myeloma ListServ—affectionately called "The List" by its 1500 members—was founded by Michael Katz, an IMF Director, and June Brazil, a myeloma patient. At a time when the number of in-person myeloma support groups was nowhere

IMF Around the Globe: The Greater Montreal Multiple Myeloma Support Group

As The Greater Montreal Multiple Myeloma Support Group approaches its first anniversary, it is encouraging to review the progress that the group has made since our first meeting in November 2004.

Member Events: Gary C. Heuer, Jr. Memorial Golf Tournament

140 golfers started out the day’s activities with breakfast at Craigie Brae Golf Course in N. Chili, NY. Following the exciting 18-hole tournament, the event’s participants gathered for a chicken barbecue at Freeman Park in Mumford, NY.

Fundraising: Rocking in Rhode Island

Our mother, Carol Murray-Rossi, was diagnosed with multiple myeloma in 2003. But her personal struggle with this disease did not stop her from looking for ways to reach out and help others fighting myeloma.

Fundraising: Katie's Birthday Charity Bash

As Katie's birthday approached, she came to me with an idea of how she wanted to celebrate. In lieu of birthday gifts, Katie asked her friends to honor her grandmother by donating money to help cancer patients.

South Florida's Dynamic Duo: Cindy Feltzin and Vicki Anderson Ferraro

Every support group has a personality. Our group is a family. We want everyone who joins us to feel welcome, to feel safe, and to feel very hopeful.

Scientific & Clinical: VELCADE® phase III trials

VELCADE® (bortezomib) for Injection is currently approved in the United States and more than 50 countries worldwide for the treatment of patients with relapsed and refractory multiple myeloma. The timetable for clinical development and approval o

IMF Board Member Interview with Benson and Carol Klein

Since being diagnosed, I have a different outlook. I used to worry about the little things. Now, I only think about the big picture.

Insights into New Myeloma Tx: Revlimid Study Tops List of Investigations that may Benefit Patients

Recently, the Myeloma Program at New York-Presbyterian Hospital/Weill Cornell Medical Center has generated a considerable amount of excitement by launching a study evaluating a combination regimen, known as BiRD, that includes the antibiotic Biaxin&r

Member Events: 4th Annual MMAMM Benefit Keeps Lee Grayson's Memory Alive

Lee, who never had children, or a hit song, or huge record deal, worried that his life would leave no mark on the planet. But those who knew him, and even those who never had the blessing of knowing him, feel his presence each year at MMAMM. "Ask any