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IMF President's Year in Review

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This October, the IMF will be celebrating our 22nd "birthday," and I am so proud of all that we have accomplished for myeloma patients, caregivers, and healthcare professionals. This past year alone has been one of incredible achievement for us, for which we are truly grateful. 

The IMF's fiscal year runs between October 1st and September 30th, which means that we are coming up on the end of the 2011/2012 fiscal year in a matter of days. As I look back over the past 12 months, it is amazing to see how many lives we touched through our programs in Research, Education, Support, and Advocacy. 

I've put together some interesting facts about the last 12 months at the IMF that I would like to share with you now. 

This past year, the IMF held: 
  • 4 Patient & Family Seminars and 10 Myeloma Center Workshops and Regional Community Workshops reaching more than 2200 patients and caregivers nationwide
  • 5 Teleconferences on topics ranging from emerging therapies to chronic and acute pain for more than 1800 patients
  • 2 Clinical Symposia, reaching nearly 1300 physicians and nurses
  • 2 Major Research Meetings, during which the future of myeloma research was discussed by the top myeloma investigators in the world

We also:
  • Added more than 30 titles to the growing library of informative publications we offer in multiple languages
  • Updated the content of our publications, and began a major redesign project to improve the overall readability of our booklets
  • Mailed 20,000 info packs to newly diagnosed patients, caregivers, and healthcare centers around the world
  • Answered more than 4,000 calls and emails to our toll-free Hotline (800-452-CURE)
  • Visited 95% of the 115 US myeloma Support Groups and held our 13th Annual Support Group Leader Summit
  • Restructured the IMF's weekly e-newsletter, "Myeloma Minute" to better serve the myeloma community with up-to-the-minute news on multiple myeloma
  • Successfully advocated for the FDA approval of new drugs for use in myeloma patients, and the passage of oral chemotherapy parity bills in 6 states!

In addition to our core programs and services, the International Myeloma Foundation introduced a number of new programs this year, including: 
  • The International Myeloma Working Group Conference Series - Held in conjunction with the 3rd Annual International Myeloma Working Group Summit in Amsterdam, the debate between two American doctors vs. two European doctors was live webcast and open to the public for the very first time.
  • The Myeloma Post - the very first myeloma app for the iPad 
  • IMWG Myeloma Master Class - An intensive educational course designed for clinicians who are specializing in myeloma

And that's only a snapshot of what the IMF accomplished this past year! We have big plans for 2013, and we could not have done it without the support of our donors. From the $25 tribute to the $50,000 sponsorship - the IMF relies on the generosity of others to make these things happen. 


5 Comments

We are traveling to Fort Meyers Florida to our part time home in November and will need to find a doctor in Cape Coral or Fort Meyers Florida. My husband had a stem cell transplant and is on Revlimid maintenance. Any suggestions? It would be very much appreciated.

Hi Karen! Call the Hotline at 800-452-CURE when you have a chance. The Hotline coordinators can help you find a doctor near your new home, as well as a support group in the area if you need one.

I would just like to thank you for all that you have done for the people with Multiple-Myeloma. My husband has been fighting this cancer for 10.5 years now. He is trying the new drug Carphizomed. Thanks again.
Diana

thank you!!!!!!

Hi Susie,

I sure enjoyed the Famiily/Patient seminar that was held in Boston at the Copley Hotel this past September. This is the second that I have attended since I was diagnosed in 2010. I so appreciate the great effort that you, your staff and the doctors put forth to enlighten and comfort us patients. So, perhaps I'll see you again soon in Boca Raton!

I am thinking of hiking the Appalachian Trail next year and would like to help earn funds for the IMF while doing so. Have you any suggestions for how I might go about raising money for the IMF in this endeavor? Thanks, Tom

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