Advocacy Update - March 2013
|
|
|
03.19.13 |
 |
|
|
|
Cities in 20 states declare March as Myeloma Awareness Month: Thank you Advocates! Three states, fifty cities and seven counties have declared March as Myeloma Awareness Month! From Anchorage, AK to Hoover, AL, and from Prospect, CT to Virginia Beach, VA, myeloma patients and caregivers have reached out to their elected officials to raise myeloma awareness. Many people found officials whose family members have myeloma; others found they were the first people to utter the words "multiple myeloma" to their local lawmakers. Proclamations, pictures and press releases continue to roll in, but we want to share the success to date with you. Click here to view our Facebook or Click here to view the full list
|
Here are a few more places:
Atlanta, GA
Charlotte, NC
Kansas City, MO
Madison, WI
San Jose, CA Troy, MO
West Palm Beach, FL
|
|
Advocate of the Month: Cindy Ralston Thanks to our Advocate of the Month many people across the country are officially celebrating March as Myeloma Awareness Month! Cindy Ralston, Myeloma Action Team member and Kansas City Support Group Leader, successfully encouraged her town to proclaim March Myeloma Awareness Month. "Throughout the years, our members have inspired me with their courage and determination to fight the disease," says Cindy. "Once you are aware of myeloma and how it touches the lives of the patients, how could I not get involved?" Read More
|
Myeloma ACTION Team
|
|
As the Bill Turns Spring is in full swing and so are the state legislatures. There are now 13 oral anticancer treatment access bills under consideration across the country. In Florida, Maine, Oklahoma and Utah, bills have had committee hearings this year; while in states with year-round legislatures, the process is still at the starting block. Read More
|
Take Action Today
|
Rally for Medical Research The International Myeloma Foundation has partnered with approximately 100 organizations to hold a Rally for Medical Research on April 8th in Washington, DC. Organized by the American Association for Cancer Research (AACR), it is anticipated that 15,000 people will be in attendance to raise awareness about the need to fund the National Institutes of Health and other government agencies that support research, spur innovation, and improve health for all patients. IMF will join thousands of advocates, survivors, researchers, clinicians, business leaders, and members of the public in support of funding for medical research. If you live in the DC Metro Area email Meghan Buzby to sign up to join the IMF Rally crew! |
|
|
Advocacy Tip of the Month
** Have you registered for our Medicare and You: Navigating the Changing Health Insurance System Webinar on Thursday at 4pm PDT/7pm EDT? Ben Belton and Gina Rodriguez from the US Department of Health and Human Services will discuss the provisions of health care reform that impact Medicare patients and answer your questions.** Register Today
|
|
 related videos
 related articles
|
ASCO 2012: Dr. Pashos - Race- and health-related quality of life among patients newly diagnosed with multiple myeloma
10 PASSI PER CURA MIGLIORE®
10 Steps to Better Care® 10 Steps to Stress Control – From Fear to Hope
10 Steps to Happy Holidays
2011 IMF Holiday Gift Boutique
New Study: The Search for Criteria to Diagnose Active Myeloma at an Early Stage
Comprender El Tratamiento con Dosis Altas con Rescate de Células Madre
Advocacy Update - April 2013
Advocacy Update - September 2012
Advocacy Update: The Healthcare Landscape in the Aftermath of the 2012 Elections
ASCO 2012: Dr. Pashos - Race- and health-related quality of life among patients newly diagnosed with multiple myeloma
Audio Recording of Consensus on Care: Management of Side Effects of Novel Therapies Teleconference
Breaking News: Pomalyst® (pomalidomide) Approved by the FDA for Relapsed Myeloma
FDA Recognition of Extended Survival with VELCADE® Indicates Important New Progress in Treating the Disease
IMF 6th Annual Comedy Celebration benefiting the Peter Boyle Research Fund October 27, 2012
IMF Board Member Edith Mitchell, M.D., FACP, Named 2012 Recipient Of ASCO Humanitarian Award
IMF Nurse Leadership Board (NLB) White Paper on Subcutaneous Velcade® (bortezomib)
IMF Responds to Proposed Changes in CMS PET Scan Policy
It is Officially Myeloma Awareness Month Across the Country!
Live from ASH 2012: Journalists’ Workshop with Leading Myeloma Experts
Live! The Boca Raton Patient & Family Seminar
Living Well with Myeloma Teleconference Series:
How to Prevent Infection in Myeloma Patients
Myelom Merkur - Frühjahr 2012 - #901
MYELOMA AWARENESS MONTH 2012 FACT-A-DAY
Myeloma Canada Announces Recipient of this Year’s Research Grant
Myeloma Minute
April 11, 2013
Myeloma Minute
April 18, 2013
Myeloma Minute
April 26, 2012
Myeloma Minute
February 7, 2013
Myeloma Minute
January 31, 2013
Myeloma Minute
July 26, 2012
Myeloma Minute
June 28, 2012
Myeloma Minute
March 7, 2013
Myeloma Minute
May 17, 2012
Myeloma Minute
November 8, 2012
Myeloma Minute
October 25, 2012
Myeloma Minute May 24, 2012
Myeloma Today Spring 2013
New! Free Teleconference: Myeloma Updates 2012
Post ASCO/EHA/IMWG Summit
Pomalidomide + carfilzomib trial recruiting patients.
Should Myeloma Patients Get a Flu Shot? If So, Which One?
Special Myeloma Minute on FDA Approved Data for VELCADE®, including long-term survival data
STEP 7: CONSOLIDATION AND MAINTENANCE - ARE THEY NEEDED? REFERENCES
STEP 8: KEEPING TRACK OF THE MYELOMA - MONITORING WITHOUT MYSTERY
Stillwater, Minn., Myeloma Support Group Marks "Centennial" Anniversary
Teleconference: Myeloma Updates 2012
Post ASCO/EHA/IMWG Summit
The Emerging Role of Kyprolis in the Treatment Paradigm
The IMF Spearheads New Coalition’s First Meeting on State Health Exchanges
The Importance of Clinical Trial Participation - A teleconference with Dr. Brian G. M. Durie September 8,2011
UPCOMING WEBCAST OF THE IMWG CONFERENCE SERIES "MAKING SENSE OF TREATMENT"
Wednesday, June 12, 2013 in Stockhom, Sweden
Клиническое значение электрофореза белковых фракций
|