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Public Policy Web Resources

Below are some great on-line resources for health policy and advocacy.

Federal Government Sites
Sites Specializing in Health Policy Issues and Funding
Media, Journals and Related Sites
Additional State and Local Resources
Health Insurance Information
Health Care Reform
Learn more about the Affordable Care Act and the options available to you in your state. Find insurance options, learn about prevention, compare quality of care, and learn how the law specifically applies to you.
U.S. House of Representatives
Information on members of the House of Representatives, their committees and legislation.

U.S. Senate
Information on members of the Senate, their committees, and legislation.
THOMAS
Legislation summaries, status, and text of congressional bills and public laws from the Library of Congress, developed in the spirit of Thomas Jefferson who wanted the citizenry informed.

The White House
Information on Executive Branch initiatives and policies.
Centers for Medicare and Medicaid Services (CMS)
This agency administers Medicare (available to Americans over 65 years of age) and Medicaid (available to economically challenged individuals and administered in conjunction with states).

Food and Drug Administration (FDA)
The FDA is responsible for regulating the safety of food, drugs, medical devices, vaccines, cosmetics, radiation-emitting products, and tobacco products.
National Institutes of Health (NIH)
Information on grants available, links to various NIH institutions, and the latest health information, with portions devoted to cancer and related health issues.

National Cancer Institute
The government’s most accurate, up-to-date, comprehensive cancer information from the U.S.'s principal agency for cancer research.
Center for Medicare Advocacy, Inc.
The Center for Medicare Advocacy, Inc., established in 1986, is a national nonprofit, nonpartisan organization that provides education, advocacy and legal assistance to help older people and people with disabilities obtain fair access to Medicare and necessary health care.

Department of Veterans Affairs
Veterans who develop multiple myeloma and were exposed to Agent Orange or other herbicides during military service do not have to prove a connection between their disease and service to be eligible to receive VA health care and disability compensation.
Federal Disability Benefits
The site connects people with disabilities, their families and caregivers to helpful resources on topics such as how to apply for disability benefits, find a job, get health care or pay for accessible housing. You can also find organizations in your community to help you get the support you need.

Low Income Home Energy Assistance Program
The Low Income Home Energy Assistance Program (LIHEAP) helps keep families safe and healthy through initiatives that assist families with energy costs.
Medicare.gov
Medicare is a government health insurance program administered by the Centers for Medicare & Medicaid Services (CMS). Medicare is the largest health insurance service in the country, with around 49 million Americans participating.

Social Security Disability Application
Site to apply online for disability benefits.
State Health Insurance Program for Seniors
SHIP is a free health benefits counseling service for Medicare beneficiaries and their families or caregivers. SHIPs mission is to educate, advocate, counsel and empower people to make informed healthcare benefit decisions. SHIP is an independent program funded by Federal agencies and is not affiliated with the insurance industry.

State Insurance Information
The National Organization for Rare Disorders’ State-by-State Insurance Information webpage. Here you will find resources to answer your questions about your health insurance plan.
Veterans Against Myeloma
The IMF has been a resource for veterans seeking information about myeloma. Talking with vets has made us aware that many are in need of resources that can guide them through the process of applying for Veterans Administration (VA) benefits, including disability.