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International Myeloma Foundation (IMF) Funds First Large-Scale Screening to Identify and Treat Precursor of Blood Cancer Before Disease Develops

 Prospective Data on How to Monitor MGUS Could Alter Myeloma Treatment Management

NIH Funding: How It Benefits You as a Patient webinar
Watch the replay of the webinar titled, NIH Funding: How it Benefits You as Patient. The webinar focuses on the importance of advocating for research funding at the National Institutes of Health (NIH), specifically how certain programs, such as grants for young, emerging researchers and funding for clinical trials, impact myeloma patients. Also discussed will be how you can get involved in advocacy activities to help increase funding and spur new advances in scientific research that will benefit you as a patient.

The IMF Helped Mike Katz...Then He Grew Addicted to Helping Others
When IMF Board member Jason Katz’s father, Mike Katz, was diagnosed with myeloma, there was a scarcity of information about the disease. But with the help of the International Myeloma Foundation, Jason recalls, his father became more informed about his illness. The IMF introduced Mike to patient care, explained treatment options, and allayed his deepest fears. In an interview with Cure magazine, Jason recalls how his father conquered his fears and survived with myeloma for 25 years. “Once he started helping people, he just got addicted,” said Jason. To watch the video, click HERE.

City of Los Angeles Proclaims "International Myeloma Foundation Day" in Honor of IMF President Susie Novis Durie
The City of Los Angeles marked Myeloma ACTION Month this week by honoring the International Myeloma Foundation and IMF President and Co-Founder Susie Novis Durie in a ceremony at City Hall. Susie was presented with official City of Los Angeles Resolution designating Wednesday, March 30, 2016 as “International Myeloma Foundation Day in the City of Los Angeles.” Susie thanked the City Council and said: “The one thing I want to stress if you have an idea, don't be afraid to move that idea forward. Don't be afraid to let it grow. The IMF started with three people, and today, we have over 400,000 members in 140 countries around the world. The most exciting news is, thanks to our Black Swan Research Initiative, we're on the brink of finding a cure for myeloma.”

Darzalex recommended for conditional approval by the European Medicines Agency (EMA)
The European Medicines Agency (EMA) has recommended granting a conditional marketing authorisation for Darzalex (daratumumab) for the treatment of adults with relapsed and refractory multiple myeloma. Darzalex is to be used in patients whose previous treatment included a proteasome inhibitor and an immunomodulatory agent (other types of cancer medicines) and whose disease worsened after treatment.

From Cuba to Seattle to Parrots: A Busy Week in Science News!
In his blog this week, IMF Chairman Dr. Brian Durie takes readers on a fast tour of the latest cancer research news: Might a lung cancer vaccine from Cuba help treat myeloma? Is CART-cell therapy a “cancer moonshot”? And can parrots—who are apparently Einsteins at sorting out combinations and sequences—shed light on questions beyond which fat seed is most delicious? Plus, a round-up of the week’s top research papers. To read Dr. Durie’s blog, click HERE.

CLICK here to watch the replay of the "Living Well with Myeloma: IMF's Expert Panel Answers Your Top Concerns" Teleconference
As part of Myeloma ACTION Month, the International Myeloma Foundation presents “Living Well with Myeloma” teleconference series. On Thursday, March 24, 2016, at 4 PM PT / 7 PM ET, an IMF expert panel will answer your top concerns. The panelists include Drs. Brian Durie, Rafat Abonour, and S. Vincent Rajkumar. Once registered, participants will receive an email with dial-in instructions, conference ID#, and a link to slides. To register for free, click HERE.

Amidst Today's Healthcare Reality, a Shiny Vision of Medicine's Future
Famed theoretical physicist and futurist Prof. Michio Kaku portrayed a rosy healthcare future--filled with super computers and robots--at a recent talk attended by IMF Chairman Dr. Brian Durie. All well and good, Dr. Durie writes in his blog this week. But as a science-fiction fan, he was really hoping to hear an explanation of how the wormholes in the film “Interstellar” really might work. To read the blog, click HERE.

IMWG Recommendations for Diagnosis & Management of Myeloma-Related Renal Impairment
Recommendations developed by the International Myeloma Working Group (IMWG), the research arm of the IMF, were published online in the Journal of Clinical Oncology on March 14, 2016. The recommendations are based on data gathered through December 2015 and analyzed by Meletios A. Dimopoulos, MD, from the University of Athens in Greece, and colleagues. Patient-access available.

Crowdfunding: Not Always in the Public's Best Interest
When teachers have to resort to crowdfunding to pay for basic school supplies, something’s gone terribly wrong. In his blog this week, IMF Chairman Dr. Brian Durie looks at the downside of this popular fundraising technique—which is “awesome” for certain projects, but can be “awful” for the public good, especially to fund research. To read the blog, please click HERE.

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