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Raise Your Voice Web Series

Every voice makes a difference. Many voices make change!

At the IMF, we know that to make a difference we must all come together and do what we can.  With enough voices, we can improve the quality of life for myeloma patients by advocating for more research funding, insisting on quality health care, and educating the communities around us on this deadly disease. Whether you are a patient, caregiver, doctor, nurse, or friend, your voice and your story make a difference!

The IMF Visits Jordan’s Renowned Cancer Center
On May 6th, the IMF's Director of Europe and the Middle East, Nadia Elkebir, visited the King Hussein Cancer Center (KHCC) in Amman, Jordan. This renowned stand-alone comprehensive cancer center attracts patients from all over the Middle East, the Gulf region, and North Africa. The IMF will work in partnership with KHCC to reach myeloma patients throughout the region.

New Studies Shed Light on Diet, Obesity in Myeloma and the Anti-Aging Power of Young Blood
Research studies published in medical journals this week could have important implications for myeloma patients down the road. A study published in the journal Leukemia looks at cell pathways that could help explain the link between obesity and myeloma. Two other studies identify molecules in the blood of young animals that have a beneficial effect on several health issues in older animals. In this week's blog, Dr. Brian Durie, IMF Chairman and Co-Founder, discusses the findings and what they could mean for myeloma patients.

Support the IMF as You Shop for Mom
If you're still looking for the perfect gift for Mother's Day, you still have a few days to shop online through the IMF Mall. The IMF Mall includes a number of stores, from Amazon and Avon to 1-800-Flowers and iTunes, that allow you to contribute to the IMF while shopping. By visiting these shops through the links on the IMF Mall page, a percentage of your purchase is donated to the IMF—all at no extra cost to you.

Living Well with Myeloma: Stopping to Breathe While Moving Forward
The IMF's popular "Living Well with Myeloma" teleconference series returns on May 8th, with "Stopping to Breathe While Moving Forward." IMF Nurse Leadership Board Member Beth Faiman, PhDc, MSN, APRN-BC, AOCN, Certified Nurse Practitioner at the Cleveland Clinic, will lead the discussion and Q&A. The discussion will focus on the benefits of rest, relaxation, exercise, and nutrition for long-term management of multiple myeloma. Click HERE to register for the free teleconference, which will be held on Thursday, May 8th at 7 pm ET/ 4 pm PT.

Take Action to Aid Navy Vets Exposed to Agent Orange
The IMF strongly supports and has officially endorsed H.R. 543, the Blue Water Navy Vietnam Veterans Act of 2013, and H.R. 1494, the Blue Water Navy Ship Accountability Act. These important bills would ensure that Navy veterans who served during the Vietnam War and were exposed to Agent Orange, a carcinogen that can lead to higher incidence of myeloma, receive healthcare coverage.

Food for Thought, But Few Conclusions
In the article "An Apple a Day, and Other Myths," the New York Times looks at the latest research on diet and cancer. Many studies over the years have suggested certain foods have cancer-fighting or cancer-causing properties, only to be disproved by the next study. Dr. Walter C. Willett, a Harvard epidemiologist who has spent many years studying cancer and nutrition, told the New York Times, "Diet and cancer has turned out to be more complex and challenging than any of us expected." While scientific evidence linking particular foods to cancer may be scarce, researchers agree that controlling obesity is important when it comes to cancer and overall health

The International Myeloma Foundation (IMF) Applauds Gov. Beshear for Signing HB 126(The Cancer Treatment Modernization Act)Into Law

The International Myeloma Foundation (IMF) applauds Kentucky Gov. Steve Beshear for signing HB 126 (The Cancer Treatment Modernization Act) into law. The bill requires health plans regulated by the state that provide coverage for IV and oral anticancer treatments- to not exceed $100 copayment or coinsurance for a 30-day supply of orally administered anticancer treatment. 

IMF at Chinese Myeloma Working Group Annual Meeting
The IMF's Chinese Myeloma Working Group (CMWG) held its annual meeting from April 9-13th in Hangzhou, China. The IMF's Asia Pacific team members, President Susie Novis, and Chairman Dr. Brian Durie traveled to China to participate in the meetings and activities. A highlight was a patient seminar held at Zhejiang University 1st Affiliated Hospital in Hangzhou, which was attended by approximately 200 patients and family members. During the seminar, Dr. Durie answered patient questions (with the help of a translator) for over an hour. Click HERE to read more about the meetings and patient seminar, which Dr. Durie calls "an amazing, heartwarming, and heart-wrenching program" in his blog post.

IMF's Nurse Leadership Board to Host Satellite Symposium at International Nursing Meeting
The IMF's Nurse Leadership Board (NLB) will host a satellite symposium during the Oncology Nursing Society's (ONS) 39th Annual Congress in Anaheim, California on May 1st. Leading myeloma nurses will discuss the best practices, cutting-edge research, and their own personal experiences with myeloma patients in an exciting and informative presentation. Presenters will discuss therapy combinations, newly approved myeloma drugs, specific cases (such as smoldering versus relapsed/refractory myeloma), and nursing management of patients. This event is one example of the NLB's exceptional work to bring expert myeloma advice to nurses in all communities. Click HERE for the event's agenda and/or to register.

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