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Call the IMF Hotline. We are here for you. The IMF Office is open from 8:00AM - 5:00PM PST, Monday-Friday.

If you have a question, call the IMF InfoLine at (800) 452-CURE (800-452-2873) in the US and Canada. The InfoLine is open from 9:00 - 4:00 PT Monday - Friday. Elsewhere call (818) 487-7455. You can also contact us via the web.
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New IMF Videos: The Role of Freelite and Hevylite Assays
In two new videos, International Myeloma Working Group (IMWG) member Saad Z. Usmani, MD, of Levine Cancer Institute/Carolinas Healthcare System, describes the role of Freelite and Hevylite assays in monitoring multiple myeloma. These tests that quantify free light chains and heavy chain and light chain pairs provide important measurements that track myeloma response and progression.

Cancer Drug Costs: Is the System Broken?
A segment last Sunday on the CBS program “60 Minutes” focused on the high cost of cancer drugs. It drew wide attention to an issue that has been the subject of conversation among patients, doctors, and policymakers over the last year. In his blog this week, IMF Chairman Dr. Brian Durie calls for an open dialogue among all parties concerned about high costs, and stresses that we need everyone at the table. The ongoing collaboration within the IMWG is a template for success.

Should Myeloma Patients Get a Flu Shot?
The beginning of fall also signals the beginning of flu season, so now is the time to get your flu vaccine. The IMF recommends annual flu shots for all myeloma patients. CLICK HERE for specific recommendations for patients who have undergone a stem cell transplant and those who may benefit from a high-dose flu vaccine. As always, we recommend you discuss your individual situation with your doctor.

2nd Annual Miracles for Myeloma 5K Raises More Than $110,000 for the IMF
The 2nd Annual Miracles for Myeloma 5K Run/Walk held last weekend in Clark, New Jersey drew over 700 participants and raised more than $110,000 for the IMF! While the race clocked times and named winners, the real goals were to raise awareness of myeloma and raise money for research leading to a cure. The IMF extends a big THANK YOU to event founders and organizers Ron Pask, Sheree Pask, and Gina Klemm, and to all of the participants from New Jersey and beyond!

Medicare 101 Webinar - Replay
Did you miss the Medicare 101 webinar? You can watch, listen and learn right from your computer today! Dr. Gretchen Jacobson, Associate Director, Program on Medicare Policy with the Kaiser Family Foundation, covered a range of topics that includes enrollment, the different parts of Medicare, and coverage options.

Dr. Robert A. Kyle: Myeloma Pioneer
Last week, medical publication OncLive profiled Dr. Robert A. Kyle, a myeloma pioneer who has improved outcomes for countless myeloma patients and inspired and trained many myeloma researchers and physicians. Since 2003, the IMF has honored an outstanding physician each year with the Robert A. Kyle Lifetime Achievement Award. Dr. Kyle is a founding member of the IMF’s Board of Directors and Chairman of the IMF’s Scientific Advisory Board.

Saving the Planet - and Preventing Myeloma
Research has indicated a clear link between toxic chemical exposure and myeloma, and the number of new myeloma cases is on the rise. Some chemicals have been tested, but others that may have links to cancer have not been thoroughly investigated. In his blog this week, IMF Chairman Dr. Brian Durie questions why there is not a greater focus on chemical exposure, and calls on the myeloma community to rally in an effort to decontaminate our planet and the people on it.

Measles Virotherapy for Myeloma: New Clinical Trial
Earlier this year, the Mayo Clinic shared exciting results from a clinical trial conducted by Dr. Stephen Russell and his team to test engineered measles virus in myeloma patients. Dr. Russell discussed the approach during the International Myeloma Working Group Conference Series Debate in June. The Mayo Clinic is now enrolling patients in a second clinical trial.

Missed our Sept. 10 briefing on Capitol Hill? Watch the replay here.
The IMF hosted a successful briefing in Washington, DC called Understanding Environmental Exposures and Cancer: The Case of Multiple Myeloma. The briefing was attended by congressional staff, patient advocacy partners, and myeloma patients. Speakers including Dr. Ola Landgren, Dr. Laura Crowley, and myeloma patient and 9/11 volunteer Patricia Workman highlighted the ongoing health concerns facing first responders and volunteers who risked their lives in the aftermath of the attacks on 9/11, as well as other environmental factors that show a marked increase in myeloma rates over time.

9/11 Health Program Guides
On September 10, 2014 the IMF hosted a successful briefing in Washington, DC called Understanding Environmental Exposures and Cancer: The Case of Multiple Myeloma. The briefing was attended by congressional staff, patient advocacy partners, and myeloma patients. Speakers including Dr. Ola Landgren, Dr. Laura Crowley, and myeloma patient and 9/11 volunteer Patricia Workman highlighted the ongoing health concerns facing first responders and volunteers who risked their lives in the aftermath of the attacks on 9/11, as well as other environmental factors that show a marked increase in myeloma rates over time.

The briefing, along with the messages of support we received from the larger patient community, exposed the need for further assistance to those who might have health concerns in the wake of this national tragedy. Because of those concerns and obvious need, we have created two guides to assist those who were exposed to the hazards at Ground Zero. The guides pertain to the two programs; the World Trade Center Health Program and the September 11th Victim Compensation Fund.


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