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The International Myeloma Foundation Salutes All Veterans
On Veterans Day, the International Myeloma Foundation salutes our military veterans and the generations before them who have fought to protect and uphold our nation’s freedom and democracy. You're always here for us, and we're here for you.

To all of the fine men and women who have dedicated their lives to serving our country we offer our heartfelt thanks and best wishes for a Happy Veterans Day!

Surprise ODAC vote against recommendation for approval of Panobinostat, 5-2.
On November 6, 2014 an FDA advisory panel, the Oncologic Drugs Advisory Committee (ODAC), held a hearing on panobinostat, a drug in development to treat relapsed myeloma. The committee voted not to recommend panobinostat for FDA approval. IMF staff members and myeloma patients testified on behalf of panobinostat, sharing the critical need for an array of treatment options for myeloma patients.

Online Auction Now Open for 8th Annual Comedy Celebration
The online auction accompanying the IMF’s 8th Annual Comedy Celebration benefiting the Peter Boyle Research Fund and supporting the Black Swan Research Initiative® is now live! The auction features exciting items that include: several rare guitars, including one signed by all members of the Rolling Stones and another signed by an array of guitar greats such as BB King; a selection of fine jewelry, including his and her Movado watches; and a Vienna, Austria vacation package.

International Myeloma Foundation’s Research Division Issues New Guidelines for Early Diagnosis of Multiple Myeloma
The International Myeloma Foundation (IMF) – improving the quality of life of myeloma patients while working toward prevention and a cure – today announced that the organization’s research division, the International Myeloma Working Group (IMWG), has issued new criteria for diagnosing multiple myeloma. Myeloma is a cancer of cells in the bone marrow that affects the immune system and can damage bone.

Dr. Brian Durie, Chairman of the International Myeloma Foundation, Honored by Mayo Clinic With Distinguished Alumni Award
The International Myeloma Foundation (IMF) – improving the quality of life of myeloma patients while working toward prevention and a cure – congratulates its Chairman and Co-Founder Brian G.M. Durie, MD, on being honored with the Distinguished Alumni Award from Mayo Clinic. Dr. Durie, who completed residencies and fellowships at Mayo Clinic, was honored at a ceremony in Rochester, MN on October 20, 2014 for his “exceptional contributions” to the field of myeloma.

Patient Blog: Serving on an Institutional Review Board
Patient blogger Cindy Chmielewski shares a blog post detailing her involvement as a patient representative on an institutional review board (IRB). In this role, Cindy is responsible for reviewing clinical research proposals and, with the rest of the board, making sure the rights of the people participating in the clinical research are protected. Although Cindy was nervous before her first IRB meeting, she writes, “Sitting at the table I felt prepared. I knew the language they were speaking thanks to all the education the IMF has given me.”

Report: IMF Patient & Family Seminar in Slovakia
The IMF’s Director of Europe and the Middle East, Nadia Elkebir, reports on a successful Patient & Family Seminar held this month in Slovakia in conjunction with Slovak Myeloma Society (SMS) & Patient Club. The seminar welcomed 130 patients and family members, and featured presentations from physicians and representatives of myeloma associations throughout Central Europe. In her blog post, Nadia thanks SMS representative Mr. Hrianka Miroslav (at right with his wife, Milada) for his key role in organizing the meeting

Are We Starting to Cure Myeloma?
A paper recently published in the medical journal Blood claims its authors are “Curing myeloma at last: defining criteria and providing the evidence,” as the paper’s title states. In his blog this week, IMF Chairman Dr. Brian Durie cautions that this is a bold statement. The paper provides a statistical model to predict myeloma patients’ outcomes. Dr. Durie writes, “Achieving and documenting true cure still demands follow-up of individual patients and cannot be predicted by a computer model.”

New IMF Videos: The Role of Freelite and Hevylite Assays
In two new videos, International Myeloma Working Group (IMWG) member Saad Z. Usmani, MD, of Levine Cancer Institute/Carolinas Healthcare System, describes the role of Freelite and Hevylite assays in monitoring multiple myeloma. These tests that quantify free light chains and heavy chain and light chain pairs provide important measurements that track myeloma response and progression.

Cancer Drug Costs: Is the System Broken?
A segment last Sunday on the CBS program “60 Minutes” focused on the high cost of cancer drugs. It drew wide attention to an issue that has been the subject of conversation among patients, doctors, and policymakers over the last year. In his blog this week, IMF Chairman Dr. Brian Durie calls for an open dialogue among all parties concerned about high costs, and stresses that we need everyone at the table. The ongoing collaboration within the IMWG is a template for success.

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