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If you have a question, call the IMF InfoLine at (800) 452-CURE (800-452-2873) in the US and Canada. The InfoLine is open from 9:00 - 4:00 PT Monday - Friday. Elsewhere call (818) 487-7455. You can also contact us via the web.
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Becoming a Patient Advocate
A special blog post from myeloma patient Cynthia Chmielewski details her involvement in various aspects of patient advocacy, including her work as a support advocate, political advocate, and research advocate. Cynthia shares how her thirst for knowledge about myeloma following her diagnosis led her to advocacy. She writes, “I have evolved as a patient and an advocate over the last six years and I have to credit the IMF with being instrumental in my metamorphosis.”

Should Myeloma Treatment Be Fully Personalized?
Personalized treatment may be a hot topic, but in his blog this week, IMF Chairman Dr. Brian Durie explains why a broader approach to myeloma treatment should lead to the best outcomes for myeloma patients and ultimately a cure for myeloma. This concept is an important aspect of the IMF’s Black Swan Research Initiative®. Dr. Durie explains, “the goal is to have broadly applicable therapy and learn more from treating larger numbers of patients together, not separately.”

Myeloma Support Group in India Wins UNESCO Award
Yoddhas, the first Yoddhas, the first myeloma support group in India, founded by 29-year-old myeloma patient Rahul Yadav, won the People’s Choice Award for best project in the global Youth Citizenship Entrepreneurship Competition. The competition was sponsored by UNESCO, the United Nations Organization for Education, Science and Culture. Congratulations Rahul and Yoddhas! CLICK HERE to learn more about Yoddhas, which means “warrior” in Hindi, and CLICK HERE to learn more about the award.myeloma support group in India, founded by 29-year-old myeloma patient Rahul Yadav, won the People’s Choice Award for best project in the global Youth Citizenship Entrepreneurship Competition. The competition was sponsored by UNESCO, the United Nations Organization for Education, Science and Culture. Congratulations Rahul and Yoddhas! CLICK HERE to learn more about Yoddhas, which means “warrior” in Hindi, and CLICK HERE to learn more about the award.

International Myeloma Foundation Hosts Congressional Briefing on Environmental Exposures
The International Myeloma Foundation is hosting a briefing to discuss research on links between exposure to environmental factors and multiple myeloma. Speakers at the briefing will discuss the latest research findings and share their personal stories about their experience with multiple myeloma. The audience will learn about multiple myeloma, opportunities to further research, potential environmental risk factors for multiple myeloma, and efforts among patient advocates, industry, researchers and policy makers to reduce the exposure to environmental toxins associated with myeloma.

Study Results Published Showing Advantages with Revlimid in Newly Diagnosed Myeloma
The New England Journal of Medicine published a study this week showing that Revlimid (lenalidomide) plus low-dose dexamethasone improves survival and other measures of efficacy compared to MPT (melphalan, prednisone, and thalidomide) in newly diagnosed multiple myeloma patients who are not eligible for a stem cell transplant. The study also showed that continuing use of Revlimid-dexamethasone instead of stopping after a fixed number of treatments provided further advantages in multiple measures

Living Well with Myeloma: Understanding the Immune System and Lab Values in Myeloma teleconference
The IMF's popular Living Well with Myeloma teleconference series returns on August 28th, with "Understanding the Immune System and Lab Values in Myeloma." The discussion and Q&A will be led by IMF Nurse Leadership Board member Ann McNeill, RN, MSN, APRN-C, Multiple Myeloma Division, Hackensack University Medical Center. The free teleconference will be held on Thursday, August 28th at 7 pm ET/ 4 pm PT.

ASCO Post Features Profile of Myeloma Patient Advocate Mike Katz
IMF board member Mike Katz is profiled in the latest issue of the ASCO Post, a publication of the American Society of Clinical Oncology. Writer Jo Cavallo talked with Katz about his advocacy for myeloma patients and how he has helped to alter the standard of care. “I’ve always chosen to live my life as if I didn’t have cancer,” Katz said. “I just face forward and try to do everything I want to do, working around symptoms and treatment side effects.”

More on Measles Virotherapy for Myeloma
Last week, the popular radio show Science Friday broadcast on National Public Radio explored the exciting science around cancer virotherapy. Guest Dr. Stephen Russell of the Mayo Clinic shared his experience treating myeloma patients with massive doses of the measles virus, which Dr. Durie has blogged about in the past. eek, the popular radio show Science Friday broadcast on National Public Radio explored the exciting science around cancer virotherapy. Guest Dr. Stephen Russell of the Mayo Clinic shared his experience treating myeloma patients with massive doses of the measles virus, which Dr. Durie has blogged about in the past.

MRD Testing: Have We Found the Method We Need?
Two types of tests are currently in development to measure minimal residual disease (MRD) in myeloma patients: a sophisticated new flow cytometry test and a molecular test. In his blog this week, IMF Chairman Dr. Brian Durie examines the differences between the two and explains why, in his opinion, the flow cytometry test is superior.

FDA Approves Use of Velcade for Retreatment of Myeloma
The US FDA has approved the use of Velcade for retreatment of myeloma patients who have previously responded to Velcade and have relapsed at least six months after their prior treatment. The expanded approval was granted based on data from a phase II clinical trial. This approval includes IV and subcutaneous forms of Velcade.

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