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Call the IMF Hotline. We are here for you. The IMF Office is open from 8:00AM - 5:00PM PST, Monday-Friday.

If you have a question, call the IMF InfoLine at (800) 452-CURE (800-452-2873) in the US and Canada. The InfoLine is open from 9:00 - 4:00 PT Monday - Friday. Elsewhere call (818) 487-7455. You can also contact us via the web.
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ACA Open Enrollment 2014 Informational Webinar
Please join the IMF on November 18th at 7:00 PM EST for our next webinar, Health Reform and You: Navigating the Next Open Enrollment Period for Private Health Insurance. A panel of experts from advocacy organizations and policy groups will be present to discuss what cancer patients need to know now about the health insurance world in 2015. Our speakers will provide a broad overview of national policies and provide resources to connect you with what’s going on in your state. We will also discuss how to evaluate plans to support your family’s needs. We encourage all patients and family members with an interest in health care reform to attend, particularly those who are uninsured or under-insured or have an interest in purchasing individual or small group health plans through the marketplaces

Living Well with Myeloma Teleconference: Management of Bone Disease
The IMF’s popular Living Well with Myeloma Teleconference series returns on Thursday, November 13th with “Management of Bone Disease.” The discussion and Q&A will be led by IMWG member Matthew Drake, MD, PhD, of the Mayo Clinic in Rochester, Minnesota. CLICK HERE to register for the free teleconference, which will be held on Thursday, November 13th at 7 pm ET/ 4 pm PT.

Patient Blog: Serving on an Institutional Review Board
Patient blogger Cindy Chmielewski shares a blog post detailing her involvement as a patient representative on an institutional review board (IRB). In this role, Cindy is responsible for reviewing clinical research proposals and, with the rest of the board, making sure the rights of the people participating in the clinical research are protected. Although Cindy was nervous before her first IRB meeting, she writes, “Sitting at the table I felt prepared. I knew the language they were speaking thanks to all the education the IMF has given me.”

Report: IMF Patient & Family Seminar in Slovakia
The IMF’s Director of Europe and the Middle East, Nadia Elkebir, reports on a successful Patient & Family Seminar held this month in Slovakia in conjunction with Slovak Myeloma Society (SMS) & Patient Club. The seminar welcomed 130 patients and family members, and featured presentations from physicians and representatives of myeloma associations throughout Central Europe. In her blog post, Nadia thanks SMS representative Mr. Hrianka Miroslav (at right with his wife, Milada) for his key role in organizing the meeting

Are We Starting to Cure Myeloma?
A paper recently published in the medical journal Blood claims its authors are “Curing myeloma at last: defining criteria and providing the evidence,” as the paper’s title states. In his blog this week, IMF Chairman Dr. Brian Durie cautions that this is a bold statement. The paper provides a statistical model to predict myeloma patients’ outcomes. Dr. Durie writes, “Achieving and documenting true cure still demands follow-up of individual patients and cannot be predicted by a computer model.”

New IMF Videos: The Role of Freelite and Hevylite Assays
In two new videos, International Myeloma Working Group (IMWG) member Saad Z. Usmani, MD, of Levine Cancer Institute/Carolinas Healthcare System, describes the role of Freelite and Hevylite assays in monitoring multiple myeloma. These tests that quantify free light chains and heavy chain and light chain pairs provide important measurements that track myeloma response and progression.

Cancer Drug Costs: Is the System Broken?
A segment last Sunday on the CBS program “60 Minutes” focused on the high cost of cancer drugs. It drew wide attention to an issue that has been the subject of conversation among patients, doctors, and policymakers over the last year. In his blog this week, IMF Chairman Dr. Brian Durie calls for an open dialogue among all parties concerned about high costs, and stresses that we need everyone at the table. The ongoing collaboration within the IMWG is a template for success.

Should Myeloma Patients Get a Flu Shot?
The beginning of fall also signals the beginning of flu season, so now is the time to get your flu vaccine. The IMF recommends annual flu shots for all myeloma patients. CLICK HERE for specific recommendations for patients who have undergone a stem cell transplant and those who may benefit from a high-dose flu vaccine. As always, we recommend you discuss your individual situation with your doctor.

2nd Annual Miracles for Myeloma 5K Raises More Than $110,000 for the IMF
The 2nd Annual Miracles for Myeloma 5K Run/Walk held last weekend in Clark, New Jersey drew over 700 participants and raised more than $110,000 for the IMF! While the race clocked times and named winners, the real goals were to raise awareness of myeloma and raise money for research leading to a cure. The IMF extends a big THANK YOU to event founders and organizers Ron Pask, Sheree Pask, and Gina Klemm, and to all of the participants from New Jersey and beyond!

Medicare 101 Webinar - Replay
Did you miss the Medicare 101 webinar? You can watch, listen and learn right from your computer today! Dr. Gretchen Jacobson, Associate Director, Program on Medicare Policy with the Kaiser Family Foundation, covered a range of topics that includes enrollment, the different parts of Medicare, and coverage options.

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