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If you have a question, call the IMF InfoLine at (800) 452-CURE (800-452-2873) in the US and Canada. The InfoLine is open from 9:00 - 4:00 PT Monday - Friday. Elsewhere call (818) 487-7455. You can also contact us via the web.
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IMF's Nurse Leadership Board Issues White Paper on Continuous Treatment with Velcade
The IMF’s Nurse Leadership Board (NLB) has authored a white paper on the use of Velcade (bortezomib) in continuous treatment regimens for myeloma. The report was developed at the 2014 Nurse Leadership Board Roundtable Meeting, held in Anaheim, California in April 2014. The white paper reviews the latest clinical data on continuous treatment with Velcade, discusses continuous treatment and management of treatment fatigue, and defines responsibilities of nurses during continuous treatment.

Read the full article published in The Lancet Oncology: “International Myeloma Working Group updated criteria for the diagnosis of multiple myeloma”

“International Myeloma Working Group updated criteria for the diagnosis of multiple myeloma,” published in The Lancet Oncology, November 2014. 


Mambo for Myeloma

After the success of the ALS Ice Bucket Challenge, some very special myeloma patients and supporters got together to create a fun campaign designed around myeloma awareness. The goal was to make myeloma more well known around the globe, bringing communities together to fight for a cure. The #MamboforMyeloma initiative asks patients, caregivers, doctors, friends, family members, and groups to film themselves dancing and share a donation link for the cause. You don’t have to be an amazing dancer; the spirit is what is important. With #MamboforMyeloma, myeloma patients have the power to be seen and heard, initiating change and sharing their stories. The IMF supports #MamboforMyeloma and encourages you to share your photos and videos, as well as to donate here: https://online.myeloma.org/netcommunity/MamboforMyeloma 


ACA Open Enrollment 2014 Informational Webinar
Please join the IMF on November 18th at 7:00 PM EST for our next webinar, Health Reform and You: Navigating the Next Open Enrollment Period for Private Health Insurance. A panel of experts from advocacy organizations and policy groups will be present to discuss what cancer patients need to know now about the health insurance world in 2015. Our speakers will provide a broad overview of national policies and provide resources to connect you with what’s going on in your state. We will also discuss how to evaluate plans to support your family’s needs. We encourage all patients and family members with an interest in health care reform to attend, particularly those who are uninsured or under-insured or have an interest in purchasing individual or small group health plans through the marketplaces

Living Well with Myeloma Teleconference: Management of Bone Disease
The IMF’s popular Living Well with Myeloma Teleconference series returns on Thursday, November 13th with “Management of Bone Disease.” The discussion and Q&A will be led by IMWG member Matthew Drake, MD, PhD, of the Mayo Clinic in Rochester, Minnesota. CLICK HERE to register for the free teleconference, which will be held on Thursday, November 13th at 7 pm ET/ 4 pm PT.

IMF's 8th Annual Comedy Celebration: Big Laughs, Big Success

Laughter rocked the Wilshire Ebell Theatre in Los Angeles on Saturday, November 8th, when guests and stars gathered in support of the IMF’s 8th Annual Comedy Celebration benefiting the Peter Boyle Research Fund and supporting the Black Swan Research Initiative®. Comedians and actors including host Ray Romano, Patricia Heaton, Doris Roberts, Danny DeVito, and Lesley Nicol, among many others, presented a special version of “Celebrity Autobiography,” performing hilarious readings of segments of stars’ autobiographies. The night also brought excitement for auction winners who left with items including luxury vacations, signed sports memorabilia, and even a teddy bear handcrafted and donated by a myeloma patient. The performers had the audience in stitches and the event raised funds for critical myeloma research – we’d call that a big success! 


The International Myeloma Foundation Salutes All Veterans
On Veterans Day, the International Myeloma Foundation salutes our military veterans and the generations before them who have fought to protect and uphold our nation’s freedom and democracy. You're always here for us, and we're here for you.

To all of the fine men and women who have dedicated their lives to serving our country we offer our heartfelt thanks and best wishes for a Happy Veterans Day!


Surprise ODAC vote against recommendation for approval of Panobinostat, 5-2.
On November 6, 2014 an FDA advisory panel, the Oncologic Drugs Advisory Committee (ODAC), held a hearing on panobinostat, a drug in development to treat relapsed myeloma. The committee voted not to recommend panobinostat for FDA approval. IMF staff members and myeloma patients testified on behalf of panobinostat, sharing the critical need for an array of treatment options for myeloma patients.

Online Auction Now Open for 8th Annual Comedy Celebration
The online auction accompanying the IMF’s 8th Annual Comedy Celebration benefiting the Peter Boyle Research Fund and supporting the Black Swan Research Initiative® is now live! The auction features exciting items that include: several rare guitars, including one signed by all members of the Rolling Stones and another signed by an array of guitar greats such as BB King; a selection of fine jewelry, including his and her Movado watches; and a Vienna, Austria vacation package.

International Myeloma Foundation’s Research Division Issues New Guidelines for Early Diagnosis of Multiple Myeloma
The International Myeloma Foundation (IMF) – improving the quality of life of myeloma patients while working toward prevention and a cure – today announced that the organization’s research division, the International Myeloma Working Group (IMWG), has issued new criteria for diagnosing multiple myeloma. Myeloma is a cancer of cells in the bone marrow that affects the immune system and can damage bone.

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