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In amyloidosis, amyloid—a protein-like substance—builds up in the organs and tissues. Amyloid deposits can gradually build up and disrupt the structure and function of the affected tissues and organs. AL amyloidosis is one form of amyloidosis arising from abnormal plasma cells.

Use the links below to learn more about amyloidosis or find support.

Amyloidosis

Clinical Trials
Amyloidosis Clinical Trials from ClinicalTrials.gov
ClinicalTrials.gov is a service of the National Institutes of Health that provides regularly updated information about federally and privately supported clinical research, including a trial's purpose, who may participate, locations, and phone numbers for more details.

Links
Amyloidosis Australia
This website is run by the Reid family, who have been affected by Amyloidosis. They hope to provide information, support and advice for anyone in Australia or New Zealand also affected by Amyloidosis.

National Organization for Rare Disorders (NORD)
Nord is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them.

Amyloidosis Foundation (AF)
The Amyloidosis Support Network (ASN) and the Amyloidosis Research Foundation (ARF) have merged into the Amyloidosis Foundation.

Amyloidosis Information from the Mayo Clinic

Sydney 2005: Amyloidosis
Dr. Philip Hawkins presented on AL amyloidosis, a disorder of protein folding, that is challenging to diagnose and treat.

Support
Amyloidosis Support Groups
In 2004 they started over a dozen support groups around the U.S. and helped in Israel and Australia. Their goal is to continue starting new groups, while maintaining the established groups and helping them to be self supporting and self sustaining.

Online Amyloidosis Support Group
The IMF, with the help of the Association of Cancer Online Resources, has created an amyloid mailing list to help facilitate information exchange and support in an open forum.