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Myeloma Minute
April 14, 2010
04.14.10
Welcome to the IMF's Myeloma Minute
News about myeloma treatment, research, support and the myeloma community
from the International Myeloma Foundation.

WHAT'S NEWS

Aptium Oncology Launches Multi-Institutional Myeloma Consortium for Early Phase Myeloma Cancer Trials
Aptium Oncology, Inc. today announced the launch of Aptium Oncology Myeloma Consortium (AMyC), a broad-based collaboration that brings together renowned investigators to work with pharmaceutical sponsors to advance clinical and translational research in myeloma and related cancers. Dr. Brian G.M. Durie, co-founder and chair of the International Myeloma Foundation (IMF), heads the consortium of investigators across the U.S.



IMF Welcomes Daniel Navid as Senior Global Analyst
The IMF is pleased to welcome Daniel Navid as Senior Global Analyst. Mr. Navid will assist in the strategic planning, implementation, and annual evaluation of an international program for the IMF that aims to enhance myeloma awareness and patient education, and improve diagnosis and access to effective therapies.

New Guidelines on Kyphoplasty and on Management of Myeloma Patients Ineligible for Standard High-Dose Chemotherapy with Autologous Stem Cell Transplantation Available Based on International Myeloma Working Group Consensus Statements
Simple capsule summaries, they capture the main points of—but are not intended to replace—the publications from which they came.

Myeloma Awareness Month Teleconferences on the Web
For Myeloma Awareness Month 2010, the IMF offered a series of teleconferences covering the pillars of the IMF's activities: Support, Education, Research, and Advocacy. Recordings of the teleconferences are now on the IMF website.

First Los Angeles Multiple Myeloma Support Group to be Held in Spanish
Interested patients, family members, and friends are encourage to join us at our meeting Saturday May 1, 2010.

Changing Patient Care in Multiple Myeloma: The IMF Nurse Leadership Board's Long-Term Survivorship Care Plan
At its May 13th symposium for nurses during the Oncology Nursing Society's (ONS) 35th Annual Congress, the IMF Nurse Leadership Board will present its Survivorship Care Plan. The plan is in response to therapies that allow the disease to be controlled for longer periods of time, necessitating a new paradigm in long-term patient management.

Live in the New York/New Jersey/Philadelphia area? Have we got an event for you!

  • Cabaret for a Cure in Hamilton, New Jersey on Sun, Apr 18, 2010
    Courtney Charatsaris, the reigning Miss Mercer County for the Miss American Organization, has teamed up with the IMF for Cabaret for a Cure to support myeloma research.

  • 5th Annual Music Against Myeloma in New York, New York on Thu, Apr 22, 2010
    Enjoy musical performances, drink specials, the best cupcakes in NYC, gift bags and the official "Cancer Sucks" socks.

  • 2010 MILES FOR MYELOMA 5K Walk/Run in Philadelphia, Pennsylvania on Sat, Apr 24, 2010
    Join the Phillie Phanatic, NBC 10's Terry Ruggles and over 500 participants in what is sure to be a fun-filled day honoring MM patients, caregivers and family members.

New issue of Myeloma Today for Spring 2010 now on web
Articles include a conversation with Dr. Shaji Kumar about " Novel Agents for Initial Therapy of Multiple Myeloma: Comparable results with continued initial therapy and delayed transplantation at relapse versus early transplantation."

VA decides in Hanover man's favor
After years of denial, the Veteran's Administration has acknowledged that former Marine Paul Buckley's myeloma was caused by chemical contamination at a Marine Corps base where Buckley had served during the 1980s. (from the Hanover Mariner)

WHAT'S NEW IN RESEARCH

CLINICAL TRIALS

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute (NCI). To see the summaries of newsworthy clinical trial results, visit the National Cancer Institute Multiple Myeloma Trial Results.


UPCOMING SEMINARS AND CLINICAL CONFERENCES
Note: Some of the international seminar cities have been set, but the venues and agendas are still in the works. Check back often if you are interested in attending, as we post the sites and speakers as they are confirmed.


UPCOMING MEMBER EVENTS

ONGOING MEMBER EVENTS
  • Veterans Against Myeloma
    IMFer Jerry Walton encourages all vets to join Veterans Against Myeloma. "Many MM patients are veterans. Our combined efforts to continue our service through the Veterans Against Myeloma cause can help research and help us win the battle by finding a cure. Hopefully one day together we can say 'Mission Accomplished!'"
  • VISIONS Notecards by Jeff; A Cure for Karl
    Jeff Hanson is a 15 year-old, visually impaired artist from Overland Park, Kansas. IMFer Karl Vollstedt and Jeff are great friends who use their time and talents to benefit others. Jeff created these note cards as a gift to Karl and to myeloma research.
HELP THE IMF
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE.

How to Host an Afternoon Tea
An elegant and easy way to build awareness about myeloma and raise money in your community, and the IMF will help.

Kids Fight Back!
Kids, need to earn a Citizenship merit badge or fulfill community service requirements? Here's a great idea about how to do both while you fight back against myeloma. We'll help you put on the best fundraiser ever!
Shop for the IMF
Shop with the leading merchants on the Internet, receive the same price as anyone else visiting their sites, and support the IMF at the same time!
See more exciting ways to help the IMF continue its important work in education, support and research.
ITEMS OF INTEREST


Have you downloaded your Myeloma Manager Personal Care Assistant

Another exciting first from the IMF!
Free software to help manage and understand your lab results, and more!


The Eighth Annual Cancer Survivorship Series: Living With, Through & Beyond Cancer
This spring, CancerCare, in collaboration with the National Cancer Institute, LIVESTRONG, Intercultural Cancer Council, Living Beyond Breast Cancer and National Coalition for Cancer Survivorship,presents a four-part telephone workshop series. This free series offers cancer survivors, their families, friends and health care professionals practical information to help them cope with concerns and issues that arise after treatment ends.

  • Part II, Communicating with Your Health Care Team After Treatment: Making the Most of Your Visit, will take place on May 18th.
  • Part III, Survivorship and Workplace Transitions, will take place on June 22nd.
  • Part IV, Survivors Too: Communicating With and Among Family, Friends and Loved Ones, will take place on July 13th.

All of the workshops take place from 1:30 to 2:30 pm Eastern Time. These workshops are free – no phone charges apply.  However, pre-registration is required.  To register simply go to the CancerCare website,  www.cancercare.org/connect.


Help for Underinsured Myeloma Patients
Thanks to the advocacy of the IMF, the Chronic Disease Fund has received an infusion of money to help them meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.

NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.
Tell A Friend...
The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.
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Official Newsletter of the IMF!
Many thanks to the supporters of The Myeloma Minute:
Celgene Corporation, Millennium: The Takeda Oncology Company, and The Binding Site
Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2010. International Myeloma Foundation. All Rights Reserved.

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