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Bank On A Cure Launch: About the International Myeloma Foundation
Established in 1990 by Brian and Susie Novis and Dr. Brian G.M. Durie, the IMF is the world’s first non-profit organization dedicated to multiple myeloma research, patient support, education, and advocacy.
05.05.05

Mission
The International Myeloma Foundation (IMF) is dedicated to improving the quality of life for multiple myeloma patients while working toward prevention and a cure. The IMF provides a variety of services for patients and physicians to aid in the research, diagnosis, and treatment of multiple myeloma as well as patient support groups, medical education programs, and seminars.

Founders
Established in 1990 by Brian and Susie Novis and Dr. Brian G.M. Durie, the IMF is the world’s first non-profit organization dedicated to multiple myeloma research, patient support, education, and advocacy. "When Brian was first diagnosed with multiple myeloma, there was no place to turn for detailed information. Education can be a very powerful tool in coming to terms with a diagnosis of cancer," said Susie Novis, IMF president. "In establishing the IMF, we wanted to help prevent future multiple myeloma patients and their families from experiencing the same sense of isolation we had to struggle with, while paving the road for extensive research aimed at discovering a cure."

Governance and Operations
The IMF is a 501(c)(3) non-profit foundation and receives funding from corporate, individual, and foundation supporters. Headquartered in Los Angeles , the IMF is governed by a board of directors and guided by a distinguished board of scientific advisors comprised of 64 medical experts internationally recognized as leaders in the field of multiple myeloma. "We are extremely fortunate to have such a wealth of worldwide medical expertise available in our fight against multiple myeloma. The board members provide invaluable information and counsel in their continuous support of the IMF’s goals of education, treatment and research," said Brian Durie, M.D., chairman of the board of the IMF and scientific advisor to the IMF.

To implement its comprehensive array of Patient Programs and Services and Services for Medical, Research, and Healthcare Professionals, the IMF has a dedicated and diverse staff that provides urgently needed medical information to more than 125,000 members in 113 countries. With educational materials translated into 16 languages and patient and family retreats hosted worldwide, the IMF is a truly global organization.

The Future
In 1992, Brian Novis died, but his dream did not. With a focus to fund research, provide education, lend support, and promote advocacy initiatives, the IMF has developed a myriad of programs and services that are models for other organizations, including their signature research initiative, Bank On A Cure®, the world’s first myeloma-specific DNA databank. Today, the IMF fosters new research, diagnosis and patient support initiatives. It leads the world in collaborative research and is achieving extraordinary results – in research laboratories, in doctors’ offices, in clinics, and in the homes of its members.
More than a decade after his death, Brian’s vision continues to guide the IMF as it reaches out to patients and family, research, government, and medical communities. "As with so many things in life, knowledge is power. All of us at the IMF are confident that the combined efforts of our supporting partners will one day lead to the development of a cure for this devastating disease. Until that time, the IMF will remain dedicated to its mission of improving the quality of life for multiple myeloma patients. Together, we can make a difference in the lives of multiple myeloma patients, their families, and friends," said Dr. Durie.


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