Last week in Washington, DC, the IMF participated in a congressional briefing, “Multiple Myeloma & Rare Blood Cancers: Living With Multiple Myeloma, Innovations in Treatment and Patient Access to Care,” organized by the California Healthcare Institute and Onyx Pharmaceuticals. In a packed room on the Hill, Meghan Buzby, Director of US Advocacy joined legislators and representatives from other cancer patient advocacy organizations to raise awareness for funding the impressive collaborative research that is lengthening the lives of myeloma patients each day.
Representative Spencer Bachus from Alabama’s sixth district started the event off speaking about his Communications Director who is currently living with myeloma and his support for the National Institutes of Health.
Next, South Carolina Representative Jim Clyburn shared with the room full of legislators and hill staffers about his mother who passed away from myeloma years ago. He has seen how valuable research is for myeloma patients and shared about his work advocating for increased funding from Congress in the wake of sequestration.
Meghan described the IMF’s exciting Black Swan Research Initiative™, which was met with enthusiasm. “It was great to share with them the exciting new way the IMF is looking at treatment for the disease through our Black Swan Research Initiative. The audience seemed thrilled by the possibilities and hope it brings to all patients."