Virginia Support Group Leader Takes on Capitol Hill
By Arin Assero, Director of Advocacy
Jerry Walton, Support Group Leader, Southeastern Virginia, accompanied by the IMF advocacy team, visited Washington to talk to his legislators about the issues facing members of his support group and the myeloma community.
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May 2013 Advocate of the Month: The Joyce Family
April 2013 Advocate of the Month
Cindy Ralston, March Advocate of the Month
Lyle Drier, Advocate of the Month for February 2013
January Advocate of the Month Jameca Barrett
December Advocate of the Month Kathy Cartwright
The Atlanta Area Myeloma Support Groups Step Up to the Plate
October 2012 Advocate of the Month: Tom Glass
September Advocates of the Month: The Postcard Rockettes
Advocate of the Month August 2012
One-on-One Interview with July’s Advocate of the Month
Advocacy Update - June 12, 2012
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Advocacy Update - February 15, 2012
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Nurse Leadership Board Member Makes a Difference in New Jersey
Advocacy Update - December 19, 2011
Advocacy Update - November 15, 2011
New Jersey Advocate Persuades Representative to Co-Sponsor HR 2746
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Tennessee Support Group Leader Has Chance Meeting with Representative
Advocacy Update - September 16, 2011
Florida Advocate Seeks Support of HR 2746
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Difference Made in New York by Nurse Leadership Board Member
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Central New Jersey Support Group Leader’s Testimony Makes a Difference
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One Voice Against Cancer (OVAC) Annual Lobby Day 2011
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“A Day at the Capitol” – Wisconsin Lobby Day
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Advocate’s Testimony in New Mexico Helps Pass Important Legislation
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The Behind-the-Scenes Advocate
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Advocacy Update - February 15, 2011
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Advocate Writes to Make a Difference
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Everyone Makes a Difference!
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California Support Group Leader’s Testimony Makes Huge Difference
Advocacy Update - September 30, 2010
Advocacy Update - September 15, 2010
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Advocacy Update - July 15, 2010
Virginia Support Group Leader Takes on Capitol Hill
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Michael and Robin Tuohy of Connecticut Help to Pass State Oral Parity Bill
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Myeloma Advocacy Update - May 3, 2010
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Myeloma Advocacy Update - January 31, 2010
Advocacy Update - January 15, 2010
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A Patient Advocacy Coalition Led by the International Myeloma Foundation and the MDS Foundation Says Its Cancer Patient Statement of Principles Gains Momentum Going into the ASH Cancer Conference
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Advocacy Update - September 1, 2009
Advocacy Update - September 15, 2009
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August 5, 2010
IMF supports legislation to require equitable insurance reimbursement for oral cancer drugs
Issues of importance to patients are getting lost in partisan battles in Congress. Get involved!
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New! Survey of your experience in obtaining access to the cancer medications recommended by your physician.
President Unveils Health Reform Proposal
Statement on the passing of Senator Kennedy
The Importance of Voting on November 2nd
The International Myeloma Foundation, Marking 20 Years of Serving the Myeloma Community, Applauds, Members of the International Myeloma Working Group for Their Body of Work Being Presented at the ASH Hematology Conference
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Congratulations and THANK YOU to our May Advocates of the Month: Tom Chelius, Sue Enright (West Bend Area Myeloma Support Group Leader), Dick Skalitzky and his daughter Shauna Skalitzky. |
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A Letter to the IMF from Advocate David Cowan |
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With a call to action and a little encouragement, IMF Advocacy team member, Meghan Buzby, gives patient David Cowan a new lease on life |
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We would like to congratulate and THANK E. Michael D. (“Mike”) Scott, an IMF board member, for being March’s Advocate of the Month and a driving force in building a strong advocacy presence for the IMF. |
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The text of the House fiscal year 2011 Continuing Resolution was released last week and it provides cuts to the cancer research and control programs at the National Institutes of Health, Centers for Disease Control and Prevention, and the Food and Drug Administration. |
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Rob and I became charter members of the WCCTA (WI Coalition for Cancer Treatment Access) because we believe it is important for the patient population to be represented in Wisconsin, and that patients and caregivers really CAN make a difference if we let our voices be heard. |
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The House voted to repeal 245-189 the Patient Protection and Affordable Care Act (ACA) on January 19. The symbolic vote was along party lines with only 3 Democrats [Representatives Dan Boren (D-OK), Mike Ross (D-AR), and Mike McIntyre (D-NC)] voting with the Republicans. |
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Marguerite McCausland has been a multiple myeloma patient since 2005 and joined our Action Network in February of 2010. Since that time she has sent a total of 27 messages to her legislators making her the most active advocate in our network! |
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Below is a summary of some of the legislative issues that IMF has followed in the second session of the 111th Congress. As you can see, we were successful on many important issues such as ensuring access to clinical trials and declaring September Blood Cancer Awareness Month. |
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As the IMF Advocacy team rounds out a very empowering and successful year, we would like to take this opportunity to congratulate and thank ALL of YOU! |
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Issues Congress must finish before adjourning the 111th Congress include finalizing funding for the federal government and the expiring tax cuts. |
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The mid-term elections will create change in the Nation's capital in the 112th Congress. What do the election results mean for the myeloma community? |
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Earlier this year, JoAnne and Billy Gunther, wife and grandson of William Gunther, Jr., who passed away from multiple myeloma, participated in OVAC’s (One Voice Against Cancer) lobby day on behalf of the IMF.
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On October 5th, the President signed the Improving Access to Clinical Trials Act into law. |
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Congratulations and THANK YOU to Caethe Goetz, patient and founder/leader of the northern California Myeloma Stompers-Redwood Wine Country Multiple Myeloma Support Group, for being this month's Advocate of the Month! |
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The U.S. House of Representatives passed the Improving Access to Clinical Trials Act (HR 2866) on September 23rd. The legislation, which passed the Senate on August 5th, now goes to the White House where President Obama is expected to sign it. |
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One hundred cosponsors of H Res 1433 cleared the way for The House Energy and Commerce Committee to hold a hearing on this resolution, which encourages greater support for blood cancer research and education. |
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Congratulations and THANK YOU to Jack Aiello, support group leader and patient from the Bay area for being this month's Advocate of the Month! |
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Representative Reichert Circulates "Dear Colleague" Letter to New NCI Director asking him to consider increasing the Institute's commitment to organ-specific research at the NCI through a targeted research program for the deadliest cancers. |
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Can You Spare 5 Minutes for Blood Cancer Awareness Month? |
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Cancer Research Receives Boost in House and Senate LHHS Appropriations Bills |
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Earlier this year, Marti Hill, patient and support group leader from the Tampa/St. Petersburg area, visited her congressmen in Washington to discuss issues that are important to her as a patient and to make some very specific requests that would benefit the myeloma community. |
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Increase of $214 million for FDA in House Appropriations Subcommittee Mark Up |
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Jerry Walton, Support Group Leader, Southeastern Virginia, accompanied by the IMF advocacy team, visited Washington to talk to his legislators about the issues facing members of his support group and the myeloma community. |
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Does Your Representative Support Blood Cancer Awareness Month?
Resolution 1433 recognizes September 2010 as Blood Cancer Awareness Month. We need your help to secure 90 cosponsors before this bill will be considered by the House Energy and Commerce Committee. |
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Representatives Walther Jones (R-NC) and Betsy Markey (D-CO) recently introduced a resolution (H. Res.1433) designating September 2010 as Blood Cancer Awareness Month. |
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IMF Advocates Make a Difference in Connecticut |
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Have Questions About the Temporary High Risk Health Insurance Pool?
The health reform law creates a temporary national high-risk pool that will be created to provide health coverage to people with pre-existing medical conditions who have been uninsured for six months. |
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NIH Testifies About FY 2011 Research Budget and the ever-present scramble for money was a continuing theme. |
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On Tuesday, March 23rd, the President signed into law the Patient Protection and Affordable Care Act which transforms significant portions of the health care environment and contains a number of reforms that will be extremely beneficial for myeloma patients. |
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President’s Budget Includes Funding Increases and Cuts to Blood Cancer Programs |
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Progress in passing health care reform legislation has significantly slowed. Congressional leaders are currently determining how to pass this important legislation as well as what a final package might look like and what the timing might be. |
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Both the House of Representatives and the Senate forged ahead on health care reform; however, neither the House nor the Senate were able to pass their respective versions of health care reform before adjourning for the August Congressional recess period which begins on August 3rd. Unfortunately, this delay means that Congress will miss the deadline set by the President earlier this year to enact health care reform. |
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President Bush’s recent state-of-the-union speech set the stage for an annual federal spending proposal that threatens to further erode our nation’s long-standing commitment to advance the pace of medical research and drug access. |
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The science of cancer research holds unprecedented promise. Unfortunately, the issues of federal funding dominating the political agenda—for cancer research and drugs and treatments through Medicare—are not addressing this opportunity. |
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Thanks to the persistent work of Sen. Kay Bailey Hutchison (R-TX), the conferees to the Labor, Health and Human Services, and Education appropriations bill approved $500,000 to help support the IMF’s Bank On A Cure program. |
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Congress Puts Research Pressure on Agencies to Raise Myeloma Awareness |
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