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Winter 2003/2004 Volume 5, Issue 9:
News and Notes

Patient & Family Meetings

If you missed out on the Fort Lauderdale Patient & Family Retreat, January 23-25, be sure to sign-up for our next seminar in Minneapolis, MN. Scheduled for March 12 and 13, the retreat will provide the latest news, updates and individual consultation from the world’s experts in multiple myeloma. Dr. Brian Van Ness (Professor in the Department of Genetics, Cell Biology, and Development at the University of Minnesota), one of the foremost myeloma authorities and a lead investigator for Bank On A Cure™, is scheduled to speak. This is an excellent opportunity to meet Dr. Van Ness and gain the latest insights into current myeloma research. For complete details on this event and upcoming seminars in San Jose (CA), Teaneck (NJ), Vienna (Austria), and Ankara (Turkey), please visit www.myeloma.org and click on “Meetings and Events”.


To see and hear the latest news from leading authorities in the field of myeloma, visit our online web-cast section to access information about treatment and therapies. Topics include:

  • Relapsing and Refractory Multiple Myeloma: What's New in Research?
    In this informative program, top multiple myeloma experts discuss new clinical trials for relapsing/refractory multiple myeloma, and one women shares her experience participating in a clinical trial.

  • Clinical Trial Update for Multiple Myeloma
    Promising clinical trials are proving very beneficial in the treatment and possible remission of multiple myeloma. In this program, top experts discuss ongoing clinical trials and how they could affect treatment options.

To review all available web-casts, go to: www.myeloma.org/myeloma/webcasts.jsp

Around the World

With 101 myeloma support groups worldwide, the IMF makes available many of our publications in multiple languages. Currently we publish online or in hardcopy various materials in 13 languages. With the generous support of our Corporate Sponsors, the IMF has plans to expand the number of languages and publications we make available to the patient and family, medical and research communities. For more information about publications, please call us at 800-452-CURE (2873), or visit our website: www.myeloma.org.

In news from Europe, the International Myeloma Foundation (IMF) UK, held its first fundraising dinner on Monday, November 17, 2003. Over 300 guests attended the dinner at the Langham Hilton London where Alastair Campbell was the guest of honor and after-dinner speaker. The £156,500 ($ 270,000) raised at this event will go specifically toward Bank On A Cure™ (BOAC), the first comprehensive DNA bank for myeloma patients. The goals of BOAC are to allow doctors to target treatment for individual patients based on their genetic make up, to avoid side effects for those patients considered to be at high risk, and finally to understand the causes of myeloma. For more information about our U.K. offices and upcoming events, visit www.myeloma.org.uk.

Thank You!

During the Fall of 2003, many of you received our update letter and responded with generous donations to ensure we continue meeting the needs of patients and families dealing with myeloma. The IMF is very grateful for your ongoing support and we are honored to have this opportunity to publicly thank you. Be sure to keep an eye out for new information and updates in our Spring update letter.

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