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Challenging Cases in Multiple Myeloma

The IMF has partnered with Network for Oncology Communication & Research (NOCR) to host the first ever "Challenging Cases in Multiple Myeloma and Other Plasma Cell Disorders" forum. The forum is designed to update oncologists on how to optimally treat their most challenging myeloma patients. This forum offers physicians a unique opportunity to participate in an interactive meeting and discuss the latest in the treatment and management of myeloma with a panel of world-renowned myeloma experts. "Challenging Cases in Multiple Myeloma and Other Plasma Cell Disorders" will be held in New York City on August 10, 2002. For more information, please contact NOCR at (404) 845-3800.

NCCAM Clearinghouse

The National Institutes of Health (NIH) is dedicated to exploring complementary and alternative medicine (CAM) in the context of rigorous science; training CAM researchers; and disseminating authoritative information. The NIH-sponsored National Center for Complementary and Alternative Medicine (NCCAM) facilitates and conducts biomedical research but does not serve as a referral agency for treatments or practitioners. However, NCCAM does offer a wealth of information to consumers and practitioners, including a number of fact sheets, consensus reports, access to CAM databases, and information about research and clinical trials. Further information is available through the NCCAM Clearinghouse online at www.ncaam.nih.gov or by calling (888) 644-6226.

SU5416 Trials Discontinued

Trials with SU5416 have demonstrated that the drug provided no greater benefit to myeloma patients than current control therapies. There were a total of 34 patients in two trials. In the NCI trial, 7 patients were treated with no responses of any kind. In protocol 5016-210, 27 patients were treated with some showing stable disease, but no responses. As of this printing, all trials have been discontinued.

We Salute You!

The IMF applauds the efforts of the following members who have recently started a multiple myeloma support group in their area:

  • Cherry Hill, NJ
    Helen Rose (856) 414-9149

  • Denver, CO
    Diane Seccombe (303) 722-2289

  • Portland, OR*
    Kathy Shaw (503) 245-9866
    *This is a myeloma-specific support group started by the Oregon and SW Washington Chapter of the LLS.

  • Panama City Beach, FL
    Sheila Hall (850) 236-5957

For a complete list of multiple myeloma support groups across the U.S. and abroad, please visit the ?People Helping People" section of this website.

If you would like help with setting up a new multiple myeloma support group in your area, please contact the IMF at (800) 452-CURE.

Honor Roll Update

The International Myeloma Foundation would like to acknowledge the following contributors to the Foundation?s programs and projects for monetary gifts made between November 1, 2000 and October 31, 2001:

  • Over $9,999
    • Estate of Marjorie Rutherford
    • Estate of Harry C. Turner
  • $500-999
    • Bob & Benetta Tindall
  • $100-249
    • Donald & Patricia Yost

The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. The support of our members makes possible the IMF?s research, education, and advocacy activities. Thank you.

IMFer Feedback

Dear IMF,

As a new subscriber and myeloma patient in Norway, please allow me to express my acknowledgement and joy of receiving the IMF ?Myeloma Minute? direct to my computer ? a lot of interesting information coming even more than once a week.

Thank you, thank you ? it's a fantastic way of getting information and following what's up as a patient.

Best regards and thanks,

Kurt Løvschal

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