How does the IMF pursue its mission of improving the quality of life of myeloma patients while working toward prevention and a cure? We do it by focusing on three main areas: research, support and education. We’ve talked a lot about research and support in past issues of Myeloma Today, but not enough about education.
Education is very near and dear to me. It was the lack of available information about myeloma that led Brian Novis to found the IMF. Yes, there is an urgent need for research, but there is also an urgent need for solid up-to-date information. That is why the IMF Hotline rings over 1,200 times each month. That is why we send out approximately 1,500 informational packages monthly.
The IMF Patient & Family Seminars are packed with people hungry for – and often in desperate need of – information. These seminars provide a wonderful educational forum and a chance to meet others, share experiences, build relationships. Here’s what some had to say about our most recent seminar in Los Angeles:
- "It was truly one of the most informative and well organized events I have ever attended. You gave people the truth, you gave people hope and you gave people perspectives."
- "The LA Seminar was great. You ladies just keep getting better!"
- "Wow! What an incredible event your myeloma seminar was. We found the whole experience to be first-rate. Saturday was superb. We met nice people, learned so much from every doctor. We should give them a standing ovation."
Education empowers you. It puts you back in the driver’s seat. It gives you control. It will enable you to be around to take advantage of the new therapies and treatments that research brings. It will help you be here for the cure.
People fund our research program and we appreciate it. But we also need funding for education. What if there were no one on the other end of the Hotline for a patient in need? What if that package of information you so desperately await never arrives?
So please help the IMF not only by supporting research, but also by supporting education. It’s that important!