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Winter 2005/2006 Volume 6, Issue 7:
Dear Reader
By Susie Novis
2006! Another new year, one filled with new opportunities, new partnerships, and renewed hope. As is customary it's also a time to look back on what we've achieved and this year I'm especially proud of what the IMF has accomplished.
04.20.06

Dear Reader,

2006! Another new year, one filled with new opportunities, new partnerships, and renewed hope. As is customary it's also a time to look back on what we've achieved and this year I'm especially proud of what the IMF has accomplished.

Revenue:

  • Raised $5.6 million dollars – a 30% increase over 2004

Education & Support:

  • Held 12 Patient & Family Seminars – 5 U.S., 7 international
  • Increased our publications from 36 to 42 and updated 19 existing publications.
  • Myeloma Today was mailed to 7,500 subscribers with 60,000 web viewers
  • Complimentary information packs were sent to 12,000 people
  • Produced a DVD – I have Myeloma...What's Next?
  • IMF Hotline answered 3,900 phone calls and responded to 1,300 emails
  • Personal visits to 35 Support Groups
  • Held the 6th Annual Support Group Leader Retreat
  • Helped start 10 new groups – 9 in underserved areas
  • Web site received 35 million hits, reached 25,000 unique visitors, 261,000 were new visitors and increased return rate by 118%

Research:

  • Total Research commitment for 2005 was $1.1 million
  • Awarded 5 Junior Grants and 2 Senior Grants

The IMF's research goal is to support research that will have the most immediate benefit for patients while working toward prevention and a cure. Toward that end Bank On A Cure® was identified as being the most relevant project to meet that goal.

Bank On A Cure's accomplishments:

Over the past year Bank On A Cure worked with the National Cancer Institute and CRAB (Cancer Research and Biostatistics) to finalize patient/control questionnaires and plan epidemiological studies and formed partnerships with independent investigators including:

  • French Group
  • Dutch Group
  • German Group
  • Spanish Group
  • Austrian Group
  • Czech Group
  • Designed first-ever, custom SNP chip for Myeloma with 3,500 SNPs

  • Completed the initial studies – current inventory 4,489 samples

  • 5 ASH abstracts were accepted – 2 oral presentations

  • Bank On A Cure uses healthy tissue samples, which we get from large phase III clinical trials as well as from patient “Swish & Rinse” kits. Laboratory studies are genetic profiling using SNPs. The correlative data will look for clinical outcomes, as well as demographic and environmental data. The hypotheses tested are:
    • SNPs can predict:
      • Myeloma risk
      • Response to treatment
      • Toxicities
    • SNPs can identify therapeutic targets

This year Bank On A Cure will expand our partnerships to maximize our ability to rapidly obtain correlations that will show the importance of the DNA information. Vital information that can tailor treatment to avoid toxicities such as deep vein thrombosis (DVT) and improve outcomes increasing the likelihood of long-term survival.

I would like to extend a heartfelt thank you to the thousands of people who helped make 2005 a landmark year for the IMF – we couldn't have done it without you!

Warm regards.


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