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Myeloma Minute
May 15, 2014
05.15.14

May 15, 2014

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This week's question: Is better early myeloma screening required?





IMF 2013 Annual Report now available


UPCOMING EVENTS


Wednesday, May 21, 2014
7 pm ET/ 4 pm PT
Raise Your Voice: Advocacy 101 Webinar


Saturday, June 7, 2014
7th Annual Carolyn Czerkies
Memorial Golf Outing

Joliet, Illinois



Saturday, June 14, 2014
Myeloma Center Workshop
Minneapolis, Minnesota

 

The IMF Visits Jordan's Renowned Cancer Center

Last week, the IMF continued expanding its outreach to myeloma patients and healthcare professionals around the world. On May 6th, the IMF's Director of Europe and the Middle East, Nadia Elkebir, visited the King Hussein Cancer Center (KHCC) in Amman, Jordan. This renowned stand-alone comprehensive cancer center attracts patients from all over the Middle East, the Gulf region, and North Africa. The IMF will work in partnership with KHCC to reach myeloma patients throughout the region. READ MORE about the visit and collaboration.

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IMF's Robin Tuohy Receives the Brian Durie Humanitarian Award

Congratulations to IMF Senior Director of Support Groups Robin Tuohy, who recently won the Philadelphia Multiple Myeloma Networking Group's (PMMNG) Brian Durie Humanitarian Award. The award honors Robin for her support, service, and dedication, and recognizes her as a "beacon of strength" in the myeloma community. "Receiving this award is a humbling experience. As a 14-year myeloma caregiver and support group leader, I strive to share my experiences so that others may benefit and have key conversations with their healthcare team. I truly admire the leadership and strength of the Philadelphia Multiple Myeloma Networking Group and thank them for this honor that they have bestowed upon me. The inscription on the award touches my heart beyond measure and I hope to live up to it each day," Robin said.

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"Living Well with Myeloma: Stopping to Breathe While Moving Forward!" Teleconference Replay Available x

The IMF's Living Well with Myeloma teleconference series returned last week with "Stopping to Breathe While Moving Forward," hosted by Beth Faiman, MSN, APRN-BC, AOCN, Certified Nurse Practitioner at the Cleveland Clinic, and member of the IMF's Nurse Leadership Board. A replay is now available. On the teleconference, listeners will learn about the benefits of good nutrition, positive thinking, and movement therapies such as yoga and Pilates, and get tips on managing stress. CLICK HERE to listen.

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Ohio, Take Action for Equal Coverage of All Anticancer Treatments

We need your help to make Ohio the 33rd state plus the District of Columbia to pass an anticancer treatment equal access law. After many years of hard work, SB 99, the Ohio Cancer Treatment Modernization Act, is just a few steps away from becoming law. The bill is expected to be voted on in the House Health and Aging Committee on Wednesday, May 21st. Once it is reported out of committee, the full House will take it up for a vote. If you live in Ohio, please take this final opportunity to ask your Ohio state representative to help Ohio patients get affordable access to all forms of cancer treatment. CLICK HERE TO TAKE ACTION

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