Myeloma Minute
February 7, 2013
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02.07.13 |
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Feb 7, 2013
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New! Celgene Announces Change to the Celgene Commercial Co-pay Program
Saturday, February 16, 2013
East Texas Regional Community Workshop
Longview, Texas
March 1-2, 2013
Boca Raton Patient and Family Seminar
Boca Raton, Florida
Saturday, April 20, 2013
Milwaukee Regional Community Workshop
Milwaukee, Wisconsin
May 10-11, 2013
SF/Bay Area Patient & Family Seminar
Redwood City, California
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| Paperwork Hurdle Stalls 9-11 Myeloma Coverage |
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| The 9/11 compensation fund was in the news again, notes Dr. Brian G.M. Durie, IMF Chairman and Co-founder, in this week's blog. The first 15 compensation awards were given out—but none to cancer patients, according to the New York Times. The stumbling block to those who might qualify for compensation under the $2.8-billion fund? Paperwork. READ MORE |
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| IMF President and Co-Founder Susie Novis Tells PatientPower We Are 'Turning a Corner' in Myeloma |
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Susie Novis was interviewed by cancer survivor and former journalist Andrew Schorr for his health website PatientPower at the 2012 American Society of Hematology (ASH) meeting in Atlanta. In the interview, she says that we are "turning a corner"
in myeloma with more good things to come. WATCH VIDEO |
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| Nurse Leadership Board, Brian D. Novis Senior Grant Winner Included in 14th International Myeloma Workshop |
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| The IMF's Nurse Leadership Board will have a poster at the International Myeloma Workshop (IMW), a biennial event held this year in Kyoto, Japan, April 3-7. The Nurse Leadership Board (NLB) is made up of nurses from the leading centers treating myeloma patients in the U.S. This is the third consecutive IMW Workshop at which the NLB will have a poster. Also recently announced was the IMW's acceptance of a poster presentation by 2012 Brian D. Novis Senior Grant winner Dr. Nancy Krett. Congratulations to all! |
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| February Advocate of the Month is a Fighter and a (Postcard) Writer |
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| Proof that an individual can make a big difference comes from February Advocate of the Month Lyle Drier. In her home state of Wisconsin Drier pushed lawmakers to pass a bill that makes co-pays for oral chemotherapy more affordable. More recently, she joined the IMF's Postcards for Parity program, collecting on her own and with friends 230 Wisconsin cards in two months! She got involved with myeloma advocacy for two main reasons: first, as a six-year myeloma survivor herself she has suffered the inequity of treatment coverage; and second, "It is nice to be able to help people who need it." READ MORE |
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