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INDEPENDENT SURVEY RATES THE INTERNATIONAL MYELOMA FOUNDATION THE #1 RESOURCE FOR PATIENTS
The survey also found that the IMF excels in areas that matter most to patients: being extremely knowledgeable about issues related to myeloma, having up-to-date information, and putting the needs of patients and caregivers as the first priority.
02.06.07

--All Survey Participants Would Recommend the IMF First to a Loved One with Myeloma--

North Hollywood, CA, February 06, 2007 -- The International Myeloma Foundation (IMF) - conducting research and providing education, advocacy, and support for myeloma patients, families, researchers, and physicians - is "the number one resource" for individual patients as well as leaders of regional support groups according to an independent survey commissioned by the IMF. The survey was conducted by Target Research Group, a market research company with headquarters in Nanuet, New York.

The survey also found that the IMF excels in areas that matter most to patients: being extremely knowledgeable about issues related to myeloma, having up-to-date information, and putting the needs of patients and caregivers as the first priority. As a result significantly more survey participants indicated they would recommend the IMF first if a loved one were diagnosed with myeloma.

Steve Cook, president and CEO of Target Research noted, "During my 35-plus years in the industry, I don't ever recall seeing positive scores that were so much higher than the other organizations surveyed on virtually all dimensions."

The International Myeloma Foundation is the oldest and largest organization serving myeloma patients and families, reaching more than 125,000 members in 113 countries worldwide. The survey rated four advocacy groups that serve the myeloma community*, and included more than 600 individuals and 59 people who lead independent local support groups for patients around the country. The survey found that the IMF outscored the other organizations on the key attributes important to their constituents. In addition to being their number one resource and the first organization they would recommend to family members, support group leaders indicated:

  • 95% regularly visit the IMF Website compared to between 20% and 68% for the other organizations

  • 90% find the IMF extremely knowledgeable on myeloma-related issues compared to 7% - 63% for the other organizations

  • 88% say the IMF has up-to-date information and news compared to 5% - 57% for the other organizations

  • 83% find the IMF a helpful organization compared to between 9% - 37% for the other organizations. 83% also said the IMF is easy to approach.

The IMF also ranked number one in providing a wide range of publications, in-depth educational seminars, information on clinical trials and helpful resources, and that it has a user friendly Website and a dedicated staff. As expected for a foundation dedicated to patient support, the IMF ranked second as a research-oriented organization.

"The survey reflects the hard work and dedication of our staff, but most important, it represents our firm commitment to putting patients and their families first," said Susie Novis co-founder and president of the IMF. "It also represents our innovative programs -- traveling around the world to bring experts to meet with patients and families in regional seminars, bringing support group leaders to major medical conferences, and establishing a nurse leadership board so the full range of patient medical care is covered. We are gratified to see that in turn, patients and their families acknowledge and appreciate our efforts."

Myeloma, also called multiple myeloma, is a cancer of the bone marrow that affects production of red cells, white cells and stem cells. Myeloma affects an estimated 750,000 people worldwide and it is being diagnosed in growing numbers that include increasingly younger people. This makes myeloma one of the most prevalent of the blood cancers, which are the third largest group of cancers.

*the other advocacy groups in the survey are the Multiple Myeloma Research Foundation, the Leukemia and Lymphoma Society and the American Cancer Society.

ABOUT The International Myeloma Foundation

The International Myeloma Foundation is the oldest and largest myeloma organization, reaching more than 135,000 members in 113 countries worldwide. A 501 (c) 3 non-profit organization dedicated to improving the quality of life of myeloma patients and their families, the IMF focuses in four key areas: research, education, support and advocacy. To date, the IMF has conducted more than 100 educational seminars worldwide, maintains a world-renowned hotline, and operates Bank on a Cure®, a unique gene bank to advance myeloma research. The IMF can be reached at (800) 452-CURE or www.myeloma.org.


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