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IMF Multiple Myeloma Patient Handbook 2016

One of the most daunting aspects of being diagnosed with myeloma is learning about – and understanding – an unfamiliar disease that is quite complicated. This booklet provides an excellent overview of myeloma. Prepared by Dr. Brian G.M. Durie, it focuses on what to do when myeloma is first discovered, the tests you really need, initial treatment options, and supportive care and how to get it. 


You can view the entire document as a PDF or request a free hard copy from the Foundation.

For a video explanation of multiple myeloma, watch What is Multiple Myeloma? with Dr. Morrie Gertz of the Mayo Clinic in Rochester, MN.

Multiple myeloma is an unusual and complex disease. However, with appropriate testing and review:

  • A clear diagnosis can be established.
  • Patients without symptoms can be monitored without aggressive intervention.
  • Patients with active or symptomatic myeloma can proceed with therapy, which has a high likelihood of controlling the disease for several years.
  • New therapies can be considered, which may offer the opportunity for longer disease control or even a cure.
  • Procedures to closely monitor the disease can be put in place. They reduce the chances of unexpected problems.
  • Supportive care measures can substantially alleviate the physical and emotional impact of the disease and needed treatment.

The International Myeloma Foundation (IMF) is committed to helping with each of these steps. The IMF’s Patient Handbook is meant to furnish you with the tools to understand and better manage your myeloma. It is vital to learn as much as possible in order to be empowered to make informed decisions about your care with your doctor. This booklet is supplemental to the information given by your doctor. Your caregivers, family, and friends may also find the information useful.

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