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Myeloma Minute
April 3, 2014
04.03.14

April 3, 2014

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UPCOMING EVENTS




Saturday, April 12, 2014
Wine Tasting to Benefit the Black Swan Research Initiative®
Chandler, Arizona




Wednesday, April 23, 2014
The IMF's Action Center Training
Web Conference




Saturday, April 26, 2014
Regional Community Workshop
Virginia Beach, Virginia


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Friday, May 16, 2014
Patient & Family Seminar
Atlanta, Georgia

 

Black Swan Research Initiative® in the News – Again

The IMF's signature Black Swan Research Initiative® and IMF Chairman Dr. Brian Durie were featured this week in TargetedOnc.com, an online publication aimed at oncologists that focuses on the next stage of cancer development and cutting-edge therapies. "Minimal Residual Disease (MRD) Marches to Front Line of Myeloma Research" takes a comprehensive look at the increasingly important role MRD testing will play in future myeloma treatment and forging the pathway to a cure. Click here to read the full article.

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Wisconsin Makes the Cancer Treatment Fairness Act a Law

Today in Milwaukee cancer patient advocates, including myeloma Support Group members Linda Chowa and Mary Sandberg, at right, looked on as Wisconsin Governor Scott Walker signed the Cancer Treatment Fairness Act (SB 300) into law, making Wisconsin the 30th state to enact anticancer drug parity legislation. "This bill shows that our voices do indeed make a difference, because SB 300 was on its deathbed just three weeks ago, and today it is law," said Sue Enright, Midwest Director of Support Groups for the International Myeloma Foundation. "Thank you to every patient, family member, friend, healthcare professional and advocate who relentlessly stood with us throughout this long journey, and to our Wisconsin legislators who voted in favor of the bill." READ MORE

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BioTech Now Shares the IMF's Myeloma Awareness Month Efforts

March 2014 was Myeloma Awareness Month, and BioTech Now spread news of the IMF's successful program in an article written by IMF Senior Director of Support Groups, Robin Tuohy. Robin described the kickoff event held at the Patient & Family Seminar in Boca Raton, FL, the IMF's free teleconference on "Living Well with Myeloma," the Black Swan Research Initiative, and the organization's numerous resources for myeloma patients, including the Hotline, workshops and support groups. Click here to read BioTech Now's article.

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Myeloma Patient Andy Sninsky Rides 1,000 Miles through California

Inspired by the idea that travel is more about discovery than distance, multiple myeloma patient Andy Sninsky decided to set out on a 1,000-mile bike ride through California, stopping at several myeloma support groups along the way. Andy was an avid cycler before his diagnosis, and he enjoys getting out on the road and giving back in what he considers his "second life," living with myeloma. Andy's recent stops included the IMF's headquarters in North Hollywood, CA, and then on to the Inland Empire Multiple Myeloma Support Group in Riverside – a mere 68 mile spin! Read more of Andy's story HERE.

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State of Connecticut Declares Myeloma Awareness Month


 
Connecticut Lt. Gov. Nancy Wyman presented members of the Connecticut Multiple Myeloma Fighters Information Group a proclamation declaring March as Myeloma Awareness Month. From left to right in photo: Amy Garafolo, Lauren & Steve Levine, Lt. Gov. Wyman, Michael & Robin Tuohy (who started the Connecticut support group in 2001) and Tim Gavalas. "By unleashing the IMF's powerful network of patients, caregivers, healthcare professionals, we experienced the most dynamic and far-reaching MAM since creating the campaign in 2009!" said Robin Tuohy.
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