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Myeloma Minute
March 14, 2013
March 14, 2013
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In case you missed it...

Living Well with Myeloma Teleconference Series:
How to Prevent Infection in Myeloma Patients

Senu Kobla Apewokin, MD

Upcoming Events

Thursday, March 21, 2013
4 pm PDT / 7 pm EDT
Webinar: Medicare and You:
Navigating the Changing
Health Insurance System
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Saturday, April 13, 2013
Nashville Myeloma Center Workshop
Nashville, Tennessee

Saturday, April 20, 2013

Milwaukee Regional Community Workshop
Milwaukee, Wisconsin 
IMF Launches the BLACK SWAN RESEARCH INITIATIVE™ to Develop 1st Definitive Myeloma Cure
On Tuesday, March 12, the IMF proudly announced the launch of the BLACK SWAN RESEARCH INITIATIVE™ (BSRI™), a unique project to develop the first definitive cure for myeloma. "We're ready to bridge the gap from long-term remission to cure, by identifying the best treatments at the best time to achieve the best objective," said Brian G.M. Durie, MD, Chairman and Co-Founder of the IMF. IMF President and Co-Founder Susie Novis spoke with excitement and emotion of the launch: "We may actually see the first myeloma patients restored to a normal, healthy life, free of their cancer for the first time ever." FIND OUT MORE ABOUT BSRI HERE

Patient Advocacy Message Hits Airwaves in Istanbul
During the IMF's recent visit to Istanbul, Arin Assero, Vice President, Global Advocacy, was interviewed on Turkish television together with Dr. Mustafa Centiner, of the American Hospital in Istanbul. The topic was myeloma patient advocacy, which, in Turkey, centers around patient education, access to physicians and treatment, and encouraging patients to be a more proactive part of treatment decisions. Arin explained the IMF's role in patient support in English, which was then translated into Turkish by Dr. Centiner. WATCH THE VIDEO

Proclamations of March as Myeloma Awareness
Month Go Viral!
Two states, fifty cities and seven counties have declared March as Myeloma Awareness Month! From Laguna Beach, CA to Hoover, AL, and from Prospect, CT to Virginia Beach, VA, myeloma patients and caregivers have reached out to their elected officials to raise myeloma awareness. Many people found officials whose family members have myeloma; others found they were the first people to utter the words "multiple myeloma" to their local lawmakers. Proclamations, pictures and press releases continue to roll in, but we want to share the success to date with you.

MYELOMA TODAY: the IMF's Wide-Ranging Report on the World of Myeloma
From summaries of the latest myeloma research to physician profiles, the photo-filled pages of MYELOMA TODAY's Spring 2013 edition bring you up to date on meaningful news from around the world. Hear the strong voices of patients like Jameca Barrett, who says, "I choose to take on the challenge of finding a reason to be thankful for each day, no matter how difficult the day. Every day of living is a win against cancer." MYELOMA TODAY PDF

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