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Myeloma Minute
December 13, 2012
12.13.12
December 13, 2012
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In Case You Missed Them... IMF Webcasts from ASH 2012




'Making Sense of Treatment'
Latest in the IMWG Conference Series
December 10, 2012

IMF International Journalists' Workshop
Myeloma Experts, Patients, Advocates
December 9, 2012




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ASH 2012: The Busiest Ever — and the IMF Was All Over It!

The Annual Meeting of the American Society of Hematology (ASH) is always a venue for myeloma researchers to network with each other and the many pharma partners now invested in myeloma new drug development. However, this year—with the recent FDA approval of Carfilzomib (Kyprolis®) and pending approval of pomalidomide—the diverse options and changing paradigm for novel therapy strategics led to a multitude of meetings occurring at a frantic pace.

The IMF has captured the activities of the 54th Annual Meeting, held December 8th through December 11th in Atlanta, Georgia, in a variety of forms—including webcasts, blogs, on Twitter and Facebook, and in interviews conducted by Mike Katz and Debbie Birns with key investigators (available on Monday, December 17 on the IMF website). A post-ASH teleconference to provide a summary will be held on January 17, 2013. We invite you to experience ASH 2012 through our eyes:

...IMF Video Blogs: 'The More We Learn, the More We Can Share'
In her video blog from ASH 2012, Robin Tuohy, Director of Support Groups for the IMF, sums up the idea behind equipping an IMF team with social media tools and letting them loose at the important medical conference: "The more we learn, the more we can share," says Robin. Watch all of our 2012 ASH video blogs!

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...IMF Blogs: 'Why Should Treatment Stop at Borders When Myeloma Doesn't?'
In his blog, Texas Support Group Leader Yelak Biru quotes Susie Novis, IMF President and Co-founder and President, who told journalists from around the world attending the IMF International Journalists' Workshop that over a million patients are living with myeloma worldwide. "Why should treatment stop at borders when myeloma doesn't?" she asks. Read all of our 2012 ASH blogs!

...IMF Twitter: Our Team In the Top 10 Tweeters at ASH 2012!

New Jersey patient advocate Cynthia Chmielewski churned out succinct and educational tweets throughout ASH—hence her twitter handle, @MyelomaTeacher! But she wasn't alone sharing frequent updates about myeloma research sessions that began at the crack of dawn and ran till evening. Scroll through all of our 2012 ASH Tweets!

Advocacy Training in Atlanta Inspires Patients to Take Action!

"Anytime myeloma patients and caregivers get together for an event, I feel a sense of peace from the experience of connecting with others and knowing that I am not alone," writes Jim Mahoney in a blog post about participating in his first IMF Advocacy training session. "Everyone I met was on a mission of sorts and yet we all shared the same journey." READ MORE

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