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June2003 Volume 5, Issue 6:
News & Notes

This issue of Myeloma Today is sponsored in part by an unrestricted educational grant from Novartis Pharmaceuticals.

IMF Honors Dr. Robert A. Kyle

Dr. Robert A. Kyle

The IMF is proud to present its first Robert A. Kyle Lifetime Achievement Award to Robert A. Kyle, M.D., Professor of Medicine and Laboratory Medicine, Mayo Clinic, in recognition for his outstanding life work, clinically and in research, in the field of myeloma. The award dinner will take place on August 2, 2003, in Rochester, MN.

If you would like to attend the dinner and/or participate in the evening by placing an ad in the Tribute Book being assembled in Dr. Kyle's honor, please contact Suzanne Battaglia of the IMF at (800) 452-2873 or SBattaglia@myeloma.org.

In subsequent years, the award will honor other professionals for their work in the field of multiple myeloma.

IMF congratulates Dr. Brian Durie

The IMF congratulates Brian G.M. Durie, M.D., on his appointment as Co-Chair of the Southwest Oncology Group (SWOG) Myeloma Committee. Dr. Durie is pleased to join IMF Scientific Advisor Dr. Bart Barlogie as his fellow Co-Chair. SWOG is one of the largest of the National Cancer Institute-supported cancer clinical trials cooperative groups in the United States. Their primary mission is clinical research in the prevention and cure of cancer in adults. For more information about SWOG, please visit their website at www.swog.org.

Locks of Love

Gabby Seidler and Rebecca Soffer

For the past year, Rebecca Soffer and Gabriela Seidler have been willing their hair to grow longer faster. They've been pulling it straight and measuring it, waiting for it to grow long enough to be able to cut off 10+ inches to donate to Locks of Love. They've been thinking of the children who have lost their hair because of cancer and other medical conditions who will soon wear a wig made from the donated locks. In celebration of change and hope, they hosted a party to debut their new looks. Over 100 friends and family joined them and helped raise over $2,000 to donate to cancer-focused non-profits. It was important for Gabby and Rebecca to donate to two organizations close to their hearts: the International Myeloma Foundation was a source of information when Gabby's mom was diagnosed with multiple myeloma, and Rebecca has been working with The Wellness Community for several years. At the party, Rebecca and Gabby were able to educate the guests about the work of the two non-profits and the need for funding to benefit the research and support services they currently provide.

Music For All Ages

Baritone Domenic Guastaferro, who lost his wife to multiple myeloma in 2001, will give a vocal recital to benefit efforts to find a cure. The program, entitled “From Handel to Hawkins” will take place at 1:00pm on June 8, 2003, at St. Philip & James Church in Bronx, NY. Dr. Guastaferro is a student of Jerome Hines, the former Metropolitan Opera bass soloist. Suggested donation is $10 or more. All proceeds benefit the IMF. There are no reserved seats. Limited seating will be on a first come basis. For more information, please contact Domenic Guastaferro at (914) 576-4570.

Join the IMF Long Distance Plan

GTC Telecom is reaching out on behalf of the IMF with a wonderful new way for you to help fight myeloma while saving yourself money at the same time! By signing up for the new IMF Long Distance Plan, 10% of what you spend on your long distance calls every month will be directly donated to the IMF. This fantastic long distance plan offers you savings of up to 40% or more. Please visit www.gtctelecom.com/imf/ or call the GTC Telecom Support Center at (800) 486-4030 for more information. Each time you make a long distance call, you'll be supporting important and innovative programs like Bank On A Cure , the International Prognostic Index, and outreach programs like the IMF toll-free hotline. Sign up today and bring us one call closer to a cure! 

FUNdraising Made Easy

The IMF's new FUNdraising program is designed to assist our members with their fundraising activities. Deciding on a specific activity to help the myeloma community can be confusing. The IMF can help you by providing the tools, assistance, and expertise you need to make your FUNdraiser a success. We have 12 years of experience helping members around the world raise money for myeloma research and education. FUNdraising is fun (get it?) and easy to do, and you'll have the satisfaction of knowing that you made a difference. No idea is too large or too small. For more information, please contact Suzanne Battaglia of the IMF at (800) 452-2873 or SBattaglia@myeloma.org. She will answer your questions and offer suggestions about what you can do to participate.

Considering a Stem Cell Transplant?

Mapping the Maze - A Personal Financial Guide to Blood Stem Cell Transplants is a new publication of the National Marrow Donor Program. The booklet is designed to help transplant patients understand insurance issues, assess their financial needs for transplant, and develop a financial plan. If you would like to receive a copy of this free publication, please call (888) 999-6743.

Group Leaders Need Support, too!

The IMF understands that myeloma support group leaders need support, too! That's why we're pleased to announce the 4th annual IMF Support Group Leader Retreat. This exciting program is designed to bring together support group leaders from across the country and around the world. Exchanging ideas and information, sharing success stories, learning new skills, and making new friends benefits not only the participants of the retreat but also the myeloma communities they serve. The retreat will take place June 27th-29th at Duke University in Raleigh, NC. Sample topics and presentations include:

  • Financial Health Matters
  • Mind, Body & Complementary Approaches to Treatment
  • Stress Reduction
  • Caregivers Support
  • Communicating with Group Members

Whether your group is large or small, well-established or just starting out, meets formally or informally, the IMF Support Group Leader Retreat is sure to provide valuable information and is a great networking opportunity. The Support Group Leader Retreat is open to group leaders and co-leaders. Hotel accommodations (on-site at Duke University) for Friday and Saturday will be provided by the IMF. Attendees are responsible for transportation to and from Raleigh, NC. For more information, please call the IMF at (800) 452-2873.

Oral Health, Cancer Care, and You

Oral complications occur in almost all patients receiving radiation for head and neck malignancies, in up to 75% of blood and marrow transplant recipients, and in nearly 40% of patients receiving chemotherapy. The National Institute of Dental and Craniofacial Research (NIDCR), one of the National Institutes of Health, directs the health awareness campaign, Oral Health, Cancer Care, and You: Fitting the Pieces Together. The campaign addresses the fact that preventing and managing oral complications helps support optimal cancer therapy, enhancing both patient survival and quality of life. To order educational publications for patients, email nohic@nidcr.nih.gov, visit www.nohic.nidcr.nih.gov/campaign/index.html, or call (310) 402-7364.

National Cancer Survivors Day

The 16th annual celebration of National Cancer Survivors Day® will take place on Sunday, June 1, 2003. Plan now to celebrate in your community and show your support for cancer survivors and their families. America currently has 8.9 million people who are surviving a cancer diagnosis. NCSD is the world’s largest cancer survivor event. You will be part of a nationwide celebration of life involving over 700 communities and thousands of people all across North America. NCSD is also a time to acknowledge those professionals dedicated to cancer treatment, research, and support services. For the location of specific events, email ncsd@aol.com or call (615) 794-3006.

Non-Prescription Therapies

Much is still unknown about many over-the-counter (OTC) preparations people use to self-medicate. Such non-prescription therapies should only be utilized with professional guidance and ongoing monitoring. Please check the IMF website at www.myeloma.org for useful links to websites offering additional information.

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