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Advocacy Update - June 2014
06.23.14
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Ohio's Cancer Treatment Modernization Act Signed Into Law

It was good news for Ohio residents this week as Governor John Kasich signed SB 99, the Cancer Treatment Modernization Act, into law. The law requires that state-regulated health plans that provide coverage for intravenous (IV) and oral anticancer treatments not exceed $100 copayment or coinsurance for a 30-day supply of orally administered anticancer treatment. Ohio joins 33 other states and the District of Columbia in passing similar legislation. Read More

Check Out the 7 Different Laws That Were Passed This Year on Oral Parity

Maine, Missouri, Kentucky, Wisconsin, Georgia, Arizona, Ohio

Help HR 1801 Reach 100 Cosponsors

Last year, Rep. Brian Higgins introduced HR 1801, the Cancer Drug Coverage Parity Act of 2013 with 15 co-sponsors. Today we have 86 co-sponsors from 32 different states thanks to the outreach you have done to your US Representatives. Help us reach 100 co-sponsors! Ask your Representative to sign on to this critical piece of legislation. Take a moment today and ask for their support! Click here to Take Action

Take Action on Federal Legislation

The Cancer Drug Coverage Parity Act: HR 1801

The Cancer Treatment Parity Act: S 1879

Update on the Affordable Care Act - What Does it Mean for Myeloma Patients? 

We are now nearly halfway into 2014, the first year of new coverage through the health insurance marketplaces. 8 million people selected new private health insurance plans during the marketplaces’ first open enrollment period. A late surge of enrollees in March overcame the initial lagging numbers resulting from the technical problems with www.healthcare.gov and state marketplace websites last fall, resulting in a final number of enrollees that exceeded projections. Read More  

Educational Resources

SPEAC

PEAC

Multiple Myeloma Insurance Checklist  

Part D Beneficiery Appeals Fairness Act

IMF recently endorsed The Part D Beneficiary Appeals Fairness Act, HR 2827/S.1365. This bill would create an appeals process in Medicare Part D for people to access drugs that are placed on specialty tiers. Currently, Medicare beneficiaries can appeal to their Part D plan for a “tiering exception” to access a drug with lower cost-sharing if their physician determines that no drug offered in a lower tier can be used to effectively treat the patient’s illness or condition. But, this appeals process is not allowed for any drugs placed on a specialty tier, which is where most cancer drugs are placed. This poses a barrier to accessing treatment since specialty tiers require patients to pay a percentage of the cost of the drug (frequently as high as 25% or 33%). The bill would allow this “exception” process to apply to drugs on the specialty tier as well, which will improve patient access to these lifesaving drugs. Click to Take Action

Become an Advocacy Partner

Donate $34 for the states with oral parity laws

Advocacy Tip of the Month
 
*** Do you know if you are registered to vote in November’s election? Have you moved and need to register at your new home? Do you know where your polling location is? Visit CanIVote.org to find the answers to these questions.  Fall is right around the corner and your vote counts!***
 

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Advocacy Update - June 2014
Advocacy Update - May 2014
Advocacy Update - April 2014
Advocacy Update - March 2014
Advocacy Update - February 2014
Advocacy Update - January 2014
Advocacy Update - December 2013
Advocacy Update - November 2013
Advocacy Update - October 2013
Advocacy Update - August 2013
Advocacy Update - July 2013
Advocacy Update - June 2013
Advocacy Update - May 2013
Advocacy Update - April 2013
Advocacy Update - March 2013
Advocacy Update - February 2013
Advocacy Update - January 2013
Advocacy Update - December 2012
Advocacy Update: Advocacy Training in Atlanta Inspires Patients to Take Action!
Advocacy Update - November 2012
Advocacy Update - October 2012
Advocacy Update - September 2012
Advocacy Update - July 2012
Advocacy Update - June 12, 2012
Advocacy Update - April 15, 2012
Advocacy Update - March 21, 2012
Advocacy Update - February 15, 2012
Advocacy Update - January 16, 2012
Advocacy Update - December 19, 2011
Advocacy Update - November 15, 2011
Advocacy Update - October 15, 2011
Advocacy Update - September 16, 2011
Advocacy Update - August 15, 2011
Advocacy Update - July 15, 2011
Advocacy Update - June 15, 2011
Advocacy Update - June 2011
Advocacy Update - June 2011
Advocacy Update - May 15, 2011
Advocacy Update - April 30, 2011
Advocacy Update - April 15, 2011
Advocacy Update - March 31, 2011
Advocacy Update - March 15, 2011
Advocacy Update - February 28, 2011
Advocacy Update - February 15, 2011
Advocacy Update - January 31, 2011
Advocacy Update - January 20, 2011
The IMF Invites advocates in Wisconsin to Attend the 2011 Wisconsin ‘Day at the Capitol’
Advocacy Update - December 15, 2010
Advocacy Update - November 30, 2010
Advocacy Update - November 15, 2010
The Importance of Voting on November 2nd
Advocacy Update - October 15, 2010
Advocacy Update - September 30, 2010
Advocacy Update - September 15, 2010
Advocacy Update - August 31, 2010
Advocacy Update - August 17, 2010
Advocacy Update - August 5, 2010
Letter from House to NCI - Improve Outcomes for the Deadliest Cancers
Advocacy Update - July 15, 2010
Advocacy Update - June 30, 2010
Advocacy Update - June 21, 2010
Advocacy Update - May 31, 2010
Myeloma Advocacy Update - May 3, 2010
Myeloma Advocacy Update - March 30, 2010
Advocacy Update - March 2, 2010
Advocacy Update - February 15, 2010
Myeloma Advocacy Update - January 31, 2010
Advocacy Update - January 15, 2010
Advocacy Update - December 17, 2009
Advocacy Update: November 5, 2009
Advocacy Update - September 15, 2009
Advocacy Update - September 1, 2009
Advocacy Update - August 3, 2009


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Advocacy Update - June 2014

Advocacy Update - May 2014

Advocacy Update - April 2014

Advocacy Update - March 2014

Advocacy Update - February 2014

Advocacy Update - January 2014

Advocacy Update - December 2013

Advocacy Update - November 2013

Advocacy Update - October 2013

Advocacy Update - August 2013

Advocacy Update - July 2013

Advocacy Update - June 2013

Advocacy Update - May 2013

Advocacy Update - April 2013

Advocacy Update - March 2013

Advocacy Update - February 2013

Advocacy Update - January 2013

Advocacy Update - December 2012

Advocacy Update: Advocacy Training in Atlanta Inspires Patients to Take Action!

Advocacy Update - November 2012

Advocacy Update - October 2012

Advocacy Update - September 2012

Advocacy Update - July 2012

Advocacy Update - June 12, 2012

Advocacy Update - April 15, 2012

Advocacy Update - March 21, 2012

Advocacy Update - February 15, 2012

Advocacy Update - January 16, 2012

Advocacy Update - December 19, 2011

Advocacy Update - November 15, 2011

Advocacy Update - October 15, 2011

Advocacy Update - September 16, 2011

Advocacy Update - August 15, 2011

Advocacy Update - July 15, 2011

Advocacy Update - June 15, 2011

Advocacy Update - June 2011
Bart Barlogie, MD
Myeloma Institute for Research and Therapy
University of Arkansas for Medical Sciences
Little Rock, Arkanas, USA

Advocacy Update - June 2011
Bart Barlogie, MD
Myeloma Institute for Research and Therapy
University of Arkansas for Medical Sciences
Little Rock, Arkanas, USA

Advocacy Update - May 15, 2011

Advocacy Update - April 30, 2011

Advocacy Update - April 15, 2011

Advocacy Update - March 31, 2011

Advocacy Update - March 15, 2011

Advocacy Update - February 28, 2011
As you know, the Federal government is operating under a Continuing Resolution (CR), as Congress has not passed any of the appropriations bills for Fiscal Year (FY) 2011. The current CR expires on March 4. If Congress does not reach an agreement prior to that time, many functions of the Federal government would be curtailed.

Advocacy Update - February 15, 2011
The text of the House fiscal year 2011 Continuing Resolution was released last week and it provides cuts to the cancer research and control programs at the National Institutes of Health, Centers for Disease Control and Prevention, and the Food and Drug Administration.

Advocacy Update - January 31, 2011
President Obama outlined his priorities in his recent State of the Union address including a medical malpractice overhaul and eliminating new IRS tax reporting requirements. He also pledged his support of action to improve the health care overhaul law. However, he does not support full scale repeal of the Patient Protection and Affordable Care Act (PPACA).

Advocacy Update - January 20, 2011
The House voted to repeal 245-189 the Patient Protection and Affordable Care Act (ACA) on January 19. The symbolic vote was along party lines with only 3 Democrats [Representatives Dan Boren (D-OK), Mike Ross (D-AR), and Mike McIntyre (D-NC)] voting with the Republicans.

The IMF Invites advocates in Wisconsin to Attend the 2011 Wisconsin ‘Day at the Capitol’
Wednesday, March 2, 2011
10:00 a.m. – 4:30 p.m.

For more information and to sign up, please visit: ‘A Day at the Capitol’ Information and Registration Website

Voice your support for legislation that will help increase patient access to all chemotherapy treatments!

The IMF has joined the Wisconsin Coalition for Cancer Treatment Access (WCCTA) and is working with them to ensure equal access to chemotherapy treatments for patients in Wisconsin. Please visit www.thewccta.org for more information.

Advocacy Update - December 15, 2010
Below is a summary of some of the legislative issues that IMF has followed in the second session of the 111th Congress. As you can see, we were successful on many important issues such as ensuring access to clinical trials and declaring September Blood Cancer Awareness Month.

Advocacy Update - November 30, 2010
Issues Congress must finish before adjourning the 111th Congress include finalizing funding for the federal government and the expiring tax cuts.

Advocacy Update - November 15, 2010
The mid-term elections will create change in the Nation's capital in the 112th Congress. What do the election results mean for the myeloma community?

The Importance of Voting on November 2nd
Voting is important because our elected officials (at all levels) are supposed to work for us. Our legislators make the laws that we have to follow every day and that impact our lives from the moment we get up in the morning until we go to sleep at night.

Advocacy Update - October 15, 2010

On October 5th, the President signed the Improving Access to Clinical Trials Act into law.


Advocacy Update - September 30, 2010
The U.S. House of Representatives passed the Improving Access to Clinical Trials Act (HR 2866) on September 23rd. The legislation, which passed the Senate on August 5th, now goes to the White House where President Obama is expected to sign it.

Advocacy Update - September 15, 2010
One hundred cosponsors of H Res 1433 cleared the way for The House Energy and Commerce Committee to hold a hearing on this resolution, which encourages greater support for blood cancer research and education.

Advocacy Update - August 31, 2010
Representative Reichert Circulates "Dear Colleague" Letter to New NCI Director asking him to consider increasing the Institute's commitment to organ-specific research at the NCI through a targeted research program for the deadliest cancers.

Advocacy Update - August 17, 2010
Can You Spare 5 Minutes for Blood Cancer Awareness Month?

Advocacy Update - August 5, 2010
Cancer Research Receives Boost in House and Senate LHHS Appropriations Bills

Letter from House to NCI - Improve Outcomes for the Deadliest Cancers
Letter from Representative Dave Reichart to new NCI Director Varmus.

Advocacy Update - July 15, 2010
Increase of $214 million for FDA in House Appropriations Subcommittee Mark Up

Advocacy Update - June 30, 2010
Does Your Representative Support Blood Cancer Awareness Month? Resolution 1433 recognizes September 2010 as Blood Cancer Awareness Month. We need your help to secure 90 cosponsors before this bill will be considered by the House Energy and Commerce Committee.

Advocacy Update - June 21, 2010
Representatives Walther Jones (R-NC) and Betsy Markey (D-CO) recently introduced a resolution (H. Res.1433) designating September 2010 as Blood Cancer Awareness Month.

Advocacy Update - May 31, 2010
Have Questions About the Temporary High Risk Health Insurance Pool? The health reform law creates a temporary national high-risk pool that will be created to provide health coverage to people with pre-existing medical conditions who have been uninsured for six months.

Myeloma Advocacy Update - May 3, 2010
NIH Testifies About FY 2011 Research Budget and the ever-present scramble for money was a continuing theme.

Myeloma Advocacy Update - March 30, 2010
On Tuesday, March 23rd, the President signed into law the Patient Protection and Affordable Care Act which transforms significant portions of the health care environment and contains a number of reforms that will be extremely beneficial for myeloma patients.

Advocacy Update - March 2, 2010
President Unveils Health Reform Proposal and White House Hosts Health Reform Summit

Advocacy Update - February 15, 2010
President’s Budget Includes Funding Increases and Cuts to Blood Cancer Programs

Myeloma Advocacy Update - January 31, 2010
Progress in passing health care reform legislation has significantly slowed. Congressional leaders are currently determining how to pass this important legislation as well as what a final package might look like and what the timing might be.

Advocacy Update - January 15, 2010
Since the Senate passed the Patient Protection and Affordable Care Act (H.R. 3590), on December 24th, the House and Senate have been trying to work out the differences between the two bills. On January 13th, President Obama and top Congressional Democrats held a marathon negotiating session in an effort to thrash out agreements on health care reform.

Advocacy Update - December 17, 2009
A summary of some of the legislative issues that IMF has followed in the first session of the 111th Congress. As you can see, we were successful on many important issues such as increasing funding for cancer research in both the economic stimulus package as well as in fiscal year (FY) 2010 at the National Institutes of Health (NIH) and the National Cancer Institute (NCI). However, Congress still has unfinished business on health care reform legislation.

Advocacy Update: November 5, 2009
The House of Representatives released its updated version of the health care reform bill. H.R. 3962, the Affordable Health Care for America Act, is the merged versions of the health care bills passed out of the House Energy & Commerce, Ways & Means, and the Education & Labor Committees. HR 3962 would cover 96 percent of Americans, reduces the deficit and provides coverage for an additional 37 million Americans. It closes the drug benefit doughnut hole for seniors and sets a floor for Medicaid at 150 percent of federal poverty - about $33,075 for a family of four.

Advocacy Update - September 15, 2009
President Barack Obama’s address to Congress last week helped to move the Congress closer to passing comprehensive health insurance reform. In his speech, the President stated his case to Congress: health insurance reform must pass this year. He stressed that repeating history by doing nothing is not an option and laid out specific benchmarks for reform. He reminded Congress that effective health reform is essential to restoring the country’s long-term fiscal health and securing a stronger future for our children.

Advocacy Update - September 1, 2009
Congress returns to work on September 8th and the top priority will be passing heath care reform. Without Senator Ted Kennedy (D-MA), Congressional Democrats will need to figure out how to keep the debate on health care reform bipartisan which they view as key to passing reform. Over the August Congressional Recess period, many Congressional members hosted contentious town hall meetings with constituents on this very issue.

Advocacy Update - August 3, 2009
Both the House of Representatives and the Senate forged ahead on health care reform; however, neither the House nor the Senate were able to pass their respective versions of health care reform before adjourning for the August Congressional recess period which begins on August 3rd. Unfortunately, this delay means that Congress will miss the deadline set by the President earlier this year to enact health care reform.