Congratulations to our September Advocates of the Month! This month we honor Sue Bouzounis, Kim Marrelli, Teresa O'Connor, Karen Vorhies and Shirley Belknap who all have done an amazing job collecting signed postcards for our Postcards for Parity Program. According to Kim,
"Helping out with the Postcards for Parity Program was a no-brainer. This issue has the potential to affect all MM patients. To me, treating all cancer treatments equally is just common sense. When I explain the issue in these terms, people just naturally want to help." Read these Rockstars' tips for collecting postcards here.
ONLINE RESOURCES
Missed the Advocacy Webinar? Have no Fear; we've got it here. A lot of fun was had as we walked through the 10 Steps to Building a Relationship with your Legislator this Election Season. Watch it today!
Your Stories Make Legislation Happen Over the years we have shared stories with legislators across the country of patients who have had trouble accessing their oral anticancer medication because of high out of pocket costs; like Kelly, Caethe and Robert. We have learned that nothing makes a bigger impact than putting a face on the situation that is placing a huge financial strain on many Americans. Now we want to hear YOUR story. In the upcoming year we will again be focused on passing legislation that encourages insurance companies to keep up with innovation. If you are a patient with private, commercial insurance and have high out-of-pocket expenses for your oral therapies, that may prevent you from filling your prescription, please contact us to share your stories. While we need folks from every state, Wisconsin and Tennessee are currently high priorities based on the legislative landscapes in those states. Please email your story to Aimee with your name, address and phone number.
Do you live in Atlanta or the surrounding areas?
This December we will be hosting our 3rd Annual Advocacy Training at ASH. We are excited to be on the ground with advocates from Georgia to build the base for a strong Georgian Action team. This year we will go over the basics of advocacy and discuss the current political landscape for cancer patients post the 2012 elections.
First Oral Drug for Prostate Cancer has IMF making sure EVERY patient knows the Law in their home state. Director of US Advocacy, Meghan Buzby, presented to 250 advocates from Zero-The Project to End Prostate Cancer on the work we are doing around the country on oral chemotherapy access legislation. We made sure the patients and caregivers who attended their DC summit were educated about the laws that have been passed in each state to enable them to get the new treatment without suffering unnecessary cost disparity. These advocates are now armed with our Oral Parity Legislation Fact Sheets to make sure their doctors are informed of the laws in their states. Have you brought your doctors and nurses a Fact Sheet yet? Click Here
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Advocacy Tip of the Month
** We know sometimes you just can't collect the postcard right after someone signs it. In these cases, before you give it to someone, put a stamp on the card to make it easy for people to just drop it in the mailbox.**
ASCO 2012: Dr. Pashos - Race- and health-related quality of life among patients newly diagnosed with multiple myeloma
ASCO 2013: Dr. Jakubowiak - Treatment outcome with the combination of carfilzomib, lenalidomide, and low-dose dexamethasone (CRd) for newly diagnosed multiple myeloma (NDMM) after extended follow-up.
ASCO 2013: Dr. Lonial - Phase (Ph) I/II study of elotuzumab (Elo) plus lenalidomide/dexamethasone (Len/dex) in relapsed/refractory multiple myeloma (RR MM): Updated Ph II results and Ph I/II long-term safety.
ASCO 2013: Dr. Pandey - Beneficial effect of complete response and type of therapy in multiple myeloma.
ASCO 2013: Dr. Usmani - Retrospective analysis of cardiovascular (CV) events following compassionate use of carfilzomib (CFZ) in patients (Pts) with relapsed and refractory multiple myeloma (RRMM).
ASCO 2013: Dr. Weisel - MM-003: A phase III, multicenter, randomized, open-label study of pomalidomide (POM) plus low-dose dexamethasone (LoDEX) versus high-dose dexamethasone (HiDEX) in relapsed/refractory multiple myeloma (RRMM).
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10 PASSI PER CURA MIGLIORE®
10 Steps to Better Care® 10 Steps to Stress Control – From Fear to Hope
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New Study: The Search for Criteria to Diagnose Active Myeloma at an Early Stage
Comprender El Tratamiento con Dosis Altas con Rescate de Células Madre
Conference aired at 1:00 pm CEST/7:00 am Eastern/4:00 am Pacific
ABOUT BSRI™
ABOUT BSRI™
Advocacy Update - April 2013
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As the Bill Turns...Episode 3
ASCO 2012: Dr. Pashos - Race- and health-related quality of life among patients newly diagnosed with multiple myeloma
ASCO 2013: Dr. Jakubowiak - Treatment outcome with the combination of carfilzomib, lenalidomide, and low-dose dexamethasone (CRd) for newly diagnosed multiple myeloma (NDMM) after extended follow-up.
ASCO 2013: Dr. Lonial - Phase (Ph) I/II study of elotuzumab (Elo) plus lenalidomide/dexamethasone (Len/dex) in relapsed/refractory multiple myeloma (RR MM): Updated Ph II results and Ph I/II long-term safety.
ASCO 2013: Dr. Pandey - Beneficial effect of complete response and type of therapy in multiple myeloma.
ASCO 2013: Dr. Usmani - Retrospective analysis of cardiovascular (CV) events following compassionate use of carfilzomib (CFZ) in patients (Pts) with relapsed and refractory multiple myeloma (RRMM).
ASCO 2013: Dr. Weisel - MM-003: A phase III, multicenter, randomized, open-label study of pomalidomide (POM) plus low-dose dexamethasone (LoDEX) versus high-dose dexamethasone (HiDEX) in relapsed/refractory multiple myeloma (RRMM).
ASH 2012: A PREVIEW
Audio Recording of Consensus on Care: Management of Side Effects of Novel Therapies Teleconference
Breaking News: Pomalyst® (pomalidomide) Approved by the FDA for Relapsed Myeloma
FDA Recognition of Extended Survival with VELCADE® Indicates Important New Progress in Treating the Disease
Health Reform and You: The ABC’s of the ACA for Private Health Insurance
IMF 6th Annual Comedy Celebration benefiting the Peter Boyle Research Fund October 27, 2012
IMF Board Member Edith Mitchell, M.D., FACP, Named 2012 Recipient Of ASCO Humanitarian Award
IMF Nurse Leadership Board (NLB) White Paper on Subcutaneous Velcade® (bortezomib)
IMF Responds to Proposed Changes in CMS PET Scan Policy
It is Officially Myeloma Awareness Month Across the Country!
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Live from ASH 2012: Journalists’ Workshop with Leading Myeloma Experts
Live! The Boca Raton Patient & Family Seminar
Living Well with Myeloma Teleconference Series:
How to Prevent Infection in Myeloma Patients
Myelom Merkur - Frühjahr 2012 - #901
MYELOMA AWARENESS MONTH 2012 FACT-A-DAY
Myeloma Canada Announces Recipient of this Year’s Research Grant
Myeloma Minute
April 11, 2013
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April 18, 2013
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April 26, 2012
Myeloma Minute
February 7, 2013
Myeloma Minute
January 31, 2013
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July 26, 2012
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June 28, 2012
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March 7, 2013
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May 17, 2012
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November 8, 2012
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October 25, 2012
Myeloma Minute June 13, 2013
Myeloma Minute May 24, 2012
Myeloma Today Spring 2013
New! Free Teleconference: Myeloma Updates 2012
Post ASCO/EHA/IMWG Summit
Should Myeloma Patients Get a Flu Shot? If So, Which One?
Special Myeloma Minute on FDA Approved Data for VELCADE®, including long-term survival data
STEP 7: CONSOLIDATION AND MAINTENANCE - ARE THEY NEEDED? REFERENCES
STEP 8: KEEPING TRACK OF THE MYELOMA - MONITORING WITHOUT MYSTERY
Stillwater, Minn., Myeloma Support Group Marks "Centennial" Anniversary
Teleconference: Myeloma Updates 2012
Post ASCO/EHA/IMWG Summit
The Emerging Role of Kyprolis in the Treatment Paradigm
The Hope Society
THE IMF AT ASH 2012
The IMF Spearheads New Coalition’s First Meeting on State Health Exchanges
The Importance of Clinical Trial Participation - A teleconference with Dr. Brian G. M. Durie September 8,2011
The International Myeloma Foundation to Convene First Global Leaders Summit in Stockholm to Raise Disease Awareness and Increase Access to Life-Saving Treatments
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