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Myeloma Minute
September 6, 2012
09.06.12

September 6, 2012
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The IMF’s new “Understanding Kyprolis™ (carfilzomib) for Injection” booklet is now available on the Kyprolis resource page, along with our Kyprolis Tip Card





Upcoming Events

Jewelry & Refreshments: ‘Making Money for Myeloma’
Washington D.C.
Saturday, September 8, 2012

Myeloma Center Workshop at Emory University
Atlanta, Georgia
Saturday, September 15, 2012

Myeloma Center Workshop at UNC/Duke
Chapel Hill, North Carolina
Friday, October 5, 2012



6th Annual Comedy Celebration Tickets on sale now
Saturday, October 27, 2012

Coach Rob's 7th Annual Benefit Bash & Golf Tournament
Orlando, Florida
October 28-29, 2012




Scottsdale Myeloma Center Workshop at the Mayo Clinic
Saturday, November 17, 2012
The IMF Earns 4-Star Rating from Charity Navigator
Once again we are thrilled to announce that the IMF has earned a 4-star rating, the highest rating, from Charity Navigator! Only 9% of all charities have received consecutive 4-star ratings for three or more years. Charity Navigator is an independent organization with a team of analysts that rate non-profits based on how efficiently they use donor support, how well they sustain programs and services over time and their level of commitment to good governance, best practices and openness with information. The IMF is proud to receive the top rating again. READ MORE

Part II: IMF’s New “Master Class” Brings Myeloma Doctors Together to Share Expertise
The IMF’s groundbreaking new Myeloma Training Course was created to introduce physicians around the globe to the latest thinking in myeloma diagnosis and treatment. In the first IMF “Master Class,” held last month, seven young physicians from China spent two weeks in Los Angeles, studying under the tutelage of American myeloma specialists led by Brian G.M. Durie, MD, Chairman and Co-founder of the IMF. In Part II of his report, Dr. Durie outlines the key points covered on Days 3 and 4 of this pioneering program. READ MORE

Living Well with Multiple Myeloma Teleconference: Acute and Chronic Pain
On Thursday, September 27, at 4 pm PDT/ 7 pm EDT, Arizona Cancer Center nurse practitioner Sandra Kurtin will discuss managing acute and chronic pain in myeloma patients during the IMF’s “Living Well with Multiple Myeloma” teleconference series. Kurtin, who has been a nurse for 27 years, is known for her motto, “knowledge is only powerful if shared.” Register for the teleconference, “Getting to the Source: Acute and Chronic Pain,"HERE

September Advocates of the Month: The Postcard Rockettes
This month we honor Sue Bouzounis, Kim Marrelli, Teresa O'Connor, Karen Vorhies, and Shirley Belknap who all have done an amazing job collecting signed postcards for our Postcards for Parity Program. When advocates return their signed postcards, the IMF sends them in bulk to federal legislators in support of a bill (HR 2746) that would help patients by requiring private health insurance plans to cover oral chemotherapy no less favorably than IV or injected chemotherapy. According to Kim, "Helping out with the Postcards for Parity Program was a no brainer. This issue has the potential to affect all MM patients. To me, treating all cancer treatments equally is just plain common sense. When I explain the issue in these terms, people just naturally want to help.” READ MORE

 
Think Like a CEO to Build a Winning Health Care Team
Myeloma patients often face overwhelming treatment options. By assembling a comprehensive health care team, you can surround yourself with experienced, qualified health care professionals to help you make the treatment choices which are best for you. Think of yourself as the CEO of a major company, writes blogger Pat Killingsworth. “Powerful leaders in important positions surround themselves with experienced support staff. You should do the same.” READ MORE

 
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