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Myeloma Minute
August 9, 2012
August 9, 2012
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New Kyprolis Resource Page,
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Upcoming Events

San Antonio Regional Community Workshop
Sat, Aug 18, 2012

Boston Patient & Family Seminar
August 24-25, 2012

A Weekend to End Myeloma
September 7-10, 2012

Orlando, Florida
October 28-29, 2012

Scottsdale Myeloma Center Workshop at the Mayo Clinic
Saturday, November 17, 2012

Celebrity Line-Up Announced for IMF’s 6th Annual Comedy Celebration!
When actor Peter Boyle lost his fight against myeloma, his wife Loraine joined with the IMF to continue the battle against the disease. “In life, we have a choice to deal with what is given to us in a positive way, thereby paying tribute to those whom we love, or else let it undermine the rest of our lives,” she said. One of the ways Loraine and the IMF pay tribute to the late Peter Boyle is by producing the successful Annual Comedy Celebration benefiting the Peter Boyle Research Fund. In five years the event has raised $3 million for myeloma research. Please join us at this amazing event on October 27th, hosted by Ray Romano and featuring Jeff Garlin, Judy Gold, Gilbert Gottfried, Dom Irrera, Doris Roberts, Fred Willard and a special musical performance by Joe Walsh. Tickets on sale now at comedy.myeloma.org.

Congratulations to August’s Advocate of the Month, Sue Van Duyn!
Awareness is the first step to motivating people to take action on a cause, says Sue Van Duyn, the IMF Advocate of the Month. A support group leader in Grand Rapids, Michigan, Van Duyn is helping raise awareness about oral drug parity. “This legislation affects all cancer patients, not just myeloma patients. Almost everyone's life has been touched in some way by cancer, so people are more than willing to help out.” READ MORE

Myeloma Post App Puts Medical Research, Physician Videos, Clinical Trials at Users’ Fingertips
Have you downloaded the IMF’s new free iPad application, the Myeloma Post? It’s a digital gateway to the educational, research, support and advocacy programs and information found on the IMF’s website. Regular, often daily, updates provide access to medical news, educational programs, quality-of-life support resources, and advocacy activities, in addition to patient, caregiver and medical blogs and communities. DOWNLOAD MYELOMA POST

IMF Webinar Teaches How to Get Up Close and Personal With Your Legislators
You have sent emails to your legislators, maybe you’ve called them, but have you met them? Join the IMF Advocacy Team for a webinar Thursday, Aug. 23 to learn how important your voice is during this election season. Our federal legislation HR2746, the Cancer Drug Coverage Parity Act, is well on its way to having over 50 co-sponsors this session, but we are on the hunt for 25 more. In this training you will learn the background of the legislation, how to schedule a meeting, and how to support your legislators during re-election time. Sign Up Today!

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