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What Happens When You "Tell One Person" About Myeloma? Early Detection, Treatment
By Susie Novis
Educating patients and doctors about multiple myeloma (MM) has been the mission of the International Myeloma Foundations (IMF) for 21 years. Today myeloma awareness is not just a nicety, it's a crucial necessity.


I found ignorance a major problem even among the medical fraternity when my husband was diagnosed with MM. We had never heard of it ourselves and people frequently confused it with Melanoma. Because we live in a small rural community some of our doctors and nurses were unaware of the condition and we found ourselves explaining it to them. This even happened when we went in an emergency situation to a much larger hospital. Also, my husband was treated with Thalidomide, which threw them into a panic because they couldn't understand why he was on this drug. My husband died six years ago but I still remember the strain we felt of constantly having to explain the disease. It is much more prevalent than people think. In our small town there were five people diagnosed within a relatively short space of time. All have now died.

Yes, it would have been nice if multiple MDs had been able to diagnosis my disease 12-18 months earlier. I might have avoided multiple spine surgeries. But six years later, I'm still here.

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