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Welcome to the International Myeloma Foundation's Blogs
We have expanded our website to include blogs by patients, caregivers, nurses,doctors, and others to provide a forum for discussion with the community on matters of importance to everyone battling myeloma.
04.22.11

5 Comments

Hello. My name is char scharf. My husband bob is on day 16 after a stem cell transplant at MD Anderson in Houston. Our home is at 4000' remotely located in the Great Smokey Mountains of North Carolina about 45 minutes from asheville, NC. We will stay in houston until jan 23 and then decided to rent a house in key west for feb and march...we would like to make a connection with an oncologist in key west, if there is one..and maybe an alternative in marathon...Also would like the name of a stem cell transplant practice in south Florida...We will connect with them before we arrive in key west and make the connection in case we should need some assistance.

If you know of a support group that meets in the keys, that would be helpful as well.

many thanks for your help on this journey.

Char Scharf

Hello Char,
I am a returned home transplant MM patient and I would recommend that you change your destination in Florida from the Keys to Tampa Bay, because The Moffitt Cancer Center is located there and it ranks as one of the best in the country and I agree.
I hope all goes well with your husbands transplant. God Bless,
George Jurak

Hello Char,

Thank you for your inquiry. We would be happy to help you try and find a treatment center and hematologist oncologist; please call the Hotline at 800/452-2873.

The nearest myeloma support group to Key West is in Miami. They meet the fourth Wednesday of each month at The Wellness Community. For more information, please contact Peggy Rios at 305/668-5900 or Mae S. Greenberg at 305/252-0940. There is a full list of myeloma support groups located in florida at http://myeloma.org/SupportGroupRegion.action?tabId=6&queryPageId=7&countryId=1®ionId=26

We hope this is helpful information and wish Bob well with his transplant. If you have any further questions, please feel free to call our hotline at 800/452-2873.

Best,
The Hotline

My husband Henry was diagnosed with Multiple Myeloma November 2007. He has been on 3 drugs prior to entering a Clinical Trial at MOFFIT CANDER CENTER, TAMPA FL. He has been on Pomalidomide since April 2010.
He is doing well on the trial. HIS PROBLEM IS THAT HE HAS SERIOUS PROBLEMS WITH DIZZINESS, NAUSEAU AND SWEATING. THIS WAS ONLY HAPPENING THE 7 DAYS HE WAS OFF THE DRUG. BUT, NOW IT IS A DAILY SERIOUS PROBLEM. iS IT TIME TO GO OFF THE CLINICAL TRIAL. ONCE A MONTH AT THE END OF HIS CYCLE HE HAS TO GET NUPROGEN INJECTIONS.
DOES ANYONE ELSE HAVE SIMILAR SYMPTOMS? HIS DOC. DOES NOT SEEM TO BE WORRIED ABOUT THIS.

I am a MM patient and have commented frequently on this site. My program is Revlimid, Dex, and monthly Zometa injections. 3 months ago I could not stand or walk without a walker.6 months ago my family MD completed his annual physical. His comment was, "for a man 78 years old you are a specimen of good health". I was not surprised since I lived a healthy life style and good diet. My father died at 97 mother at 86. I ran every day, then bicycled every day, then walked 5 miles every day. Suddenly I had back pain, shortly after that I could not stand. a MRI showed 4 fractured vertebra. My pain was so bad I was planning to visit Oregon and get the RX for suicide. After 9 body scans, 5 MDs, gallons of blood, I was treated for osteoporosis. They prescribed pain meds but the pain was still barely tolerable. Finally, an oncologist and a bone marrow biopsy uncovered the MM. I can now walk! and love the IMF site.

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