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February 27, 2003 Myeloma Minute
02.27.03
What's News
  • OVAC Registration Opens
    The OVAC Lobby Day registration web site is up and running. The IMF supports the OVAC funding agenda because it is the best hope for increased federal funding to benefit all cancer patients, especially those with an interest in myeloma and other under-funded orphan cancers. See related article by Greg Brozeit "Congress Supports OVAC Agenda."
  • Help Us Help You By Completing The IMF Thalidomide Insurance Survey
    The IMF has been discussing thalidomide insurance reimbursement issues and potential solutions with the FDA and Celgene. To take the next step, we need to gather data from patients who have taken thalidomide and/or who were recommended thalidomide but subsequently did not take the drug. Help us help you by completing this short web-based survey at survey.myeloma.org. All individual responses will be kept strictly confidential.
  • Soccer star's plea to help doctor with myeloma
    Sun Ji-hai, who is famous in his home country of China for his skill on the soccer fields of England, is appealing to Chinese around the world in a search for bone marrow donors. (from the Liverpool Echo, UK)

What's New in Myeloma Research:
Advocacy Update:
  • Congress Supports OVAC Agenda
    President Bush signed the Omnibus Appropriations bill into law last week, and the end results demonstrate the effectiveness of the One Voice Against Cancer (OVAC) coalition.
  • OVAC Registration Opens
    The OVAC Lobby Day registration web site is up and running. The registration fee will be $30. However, for those registering after March 15, registration will be increased to $100.

What's New in Clinical Trials:

We have changed the format of this section to better reflect the mission of the Myeloma Minute, namely to bring you the latest information on pertinent topics. So look to What's New in Clinical Trials in the Minute to bring you news about the opening and closing of trials.

If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find CenterWatch and EmergingMed. The IMF has entered into partnerships with them to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing material from the National Cancer Institute.


Quality of Life Update:
  • ASCO Call for Patient Artwork
    The theme of ASCO's meeting this year is Commitment Care Compassion: Honoring People with Cancer. They are enlisting the help of patients, their families, and friends to contribute original artwork that visually conveys this theme.

If you are interested in joining a support group, use the IMF's worldwide support group directory to find one that meets near you. You can also join our online support group.

If you have a topic of particular interest that you would like us to feature, if you are starting a support group, or if you are in a support group that is doing something to make a real difference in the lives of mutiple myeloma patients and their families and friends, let us know.


Upcoming Seminars and Conferences:
  • IXth Annual International Workshop On Multiple Myeloma
    May 23-27, 2003
    Salamanca, Spain
    Every two years, the myeloma scientific community gathers from around the world to discuss the state of the art in myeloma treatment and research. This year they are meeting in the ancient and beautiful city of Salamanca.

Upcoming Fundraisers:

FUNdraising Made Easy
You know you want to do something, but deciding on what to do can be confusing. The IMF can help.


  • Valued at $1,200.00, this cabochon sapphire and diamond ring, donated by Adler Jewelry, will be raffled off at Fashions 4 a Cure
    Fashions 4 a Cure
    April 6, 2003
    Fox Valley Country Club, Lancaster, NY
  • "Hair Cares"
    June 22, 2003
    Curries Hair, Skin & Nail Salon, Glen Mills, PA

Exciting Opportunities:
  • Make it Valentine's Day every day courtesy of IMFers Esther and Herman Adler, of Adler & Company Jewelers in Los Angeles. Buy beautiful jewelry at wholesale prices and—if you tell them you are an IMFer—a portion of the proceeds will be donated to the IMF. They make it so easy, too. They can work from digital pictures if you cannot meet with them, and they have a return policy if you are not completely satisfied. Call them at 213-624-1945 for more information.

Items of Interest:
  • Myeloma Matrix
    The Myeloma Matrix provides updated information about drugs beginning with pre-clinical developments and tracks drugs as they proceed through Phases I – III of clinical trials, drugs that have been FDA approved, and information on trials that are being conducted by NCI- sponsored cooperative groups as well as other myeloma study groups. The online version is updated regularly. If you would like to have a printed copy, call the toll-free hotline (800) 452-2873.
  • NexCura Cancer Profiler
    The Cancer Profiler is a free service (no hidden fees or charges). Its tools provide you with information specific to your cancer diagnosis to help you make more informed treatment decisions along with your physician.
  • Expert Opinions on Multiple Myeloma
    A multimedia, CME-accredited program for physicians with the chance to see world-renowned myeloma specialists sharing their knowledge, discussing treatment choices, and comparing their perspectives on controversial issues in multiple myeloma and related diseases.
  • MMInteractive
    An exciting new way for myeloma patients to get involved at patient seminars.
  • Bank On A Cure
    The IMF is pleased to announce the launch of Bank On A Cure™, a groundbreaking international collaborative effort to establish a method to find new treatments while customizing care for current patients.
  • Myeloma At The Movies
    It has been our goal to bring our Patient & Family Seminars to people around the country who might not be able to attend an actual meeting, so we have set up a video lending library....

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.


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