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December 11, 2002 Myeloma Minute

What's News:

  • Shop for the Cure and help the IMF.
    Looking for that special something for your special someone? Your gift can give twice when you shop using the IMF Shop for the Cure page. Just click on the links you find there for e-tailers such as Amazon, Brooks Brothers, Disney, Sharper Image, Land's End, Staples, Barnes & Noble, Travelocity and many others. Make a purchase, and they will make a donation to the IMF. You pay exactly the same prices as everyone else. And you help the IMF. It's a win-win shopping situation.

What's New in Myeloma Research:

Latest Updates from the American Society of Hematologists (ASH) Annual Meeting

Advocacy Update:
Quality of Life Update:
  • "Humor and Healing" is the topic for this week.
    • The Cancer Club
      Offers hope and support to cancer patients, their families and friends through the healing power of humor
    • The Laughing Cure
      For years doctors have wondered about the benefits of a good laugh. Now researchers are suggesting that a hearty guffaw may well be the best medicine. From WebMD
    • Why Not Laugh?
      Scott Burton, A cancer survivor and expert on humor, urges those battling cancer to allow for laughter in their lives.
    • No joke — laughter is good for you
      Research cites social and genetic links to the ‘giggles’ from MSNBC
  • CancerSource offers current information on complementary therapies with a non-biased, evidence-based approach. They provide evidence regarding the effectiveness and safety of many therapies that may be integrated with traditional cancer treatments and is a resource for those wishing to explore their use.

If you have a topic of particular interest that you would like us to feature, if you are starting a support group, or if you are in a support group that is doing something to make a real difference in the lives of mutiple myeloma patients and their families and friends, let us know.

Items of Interest:
  • Expert Opinions on Multiple Myeloma
    A multimedia, CME-accredited program for physicians with the chance to see world-renowned myeloma specialists sharing their knowledge, discussing treatment choices, and comparing their perspectives on controversial issues in multiple myeloma and related diseases.
  • Myeloma Matrix
    The Myeloma Matrix provides updated information about drugs beginning with pre-clinical developments and tracks drugs as they proceed through Phases I – III of clinical trials, drugs that have been FDA approved, and information on trials that are being conducted by NCI- sponsored cooperative groups as well as other myeloma study groups. The online version is updated regularly. If you would like to have a printed copy, call the toll-free hotline (800) 452-2873.
  • MM Interactive
    An exciting new way for myeloma patients to get involved at patient seminars.
  • Bank On A Cure™
    The IMF is pleased to announce the launch of Bank On A Cure™, a groundbreaking international collaborative effort to establish a method to find new treatments while customizing care for current patients.
  • Myeloma At The Movies
    It has been our goal to bring our Patient & Family Seminars to people around the country who might not be able to attend an actual meeting, so we have set up a video lending library....
  • The OMNI Network matches oncology nurses chosen from the local community with cancer support groups. Their 45-minute interactive educational session presents the basics of myeloma and includes discussion, patient materials, and resources. Take advantage of this collaborative effort between the IMF and Oncology Nurses and schedule a session for your support group.

Important Dates to Remember:
  • Little Rock Community Workshop
    Saturday, March 22, 2003
    University of Arkansas, Medical Sciences
    Education III Bldg., - Pauly Auditorium
    4301 W. Markham Street
    Little Rock, AR 72205
  • Dallas Community Workshop
    Saturday, November 8, 2003
    Baylor University Medical Center
    Davis Auditorium - 17 Roberts Hospital
    3500 Gaston Avenue
    Dallas, Tx

Clinical Trials:

To help you find trials currently open for enrollment, the IMF has entered into partnerships with HopeLink and EmergingMed. Through these services, you can match a trial to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing material from the National Cancer Institute.

Exciting Opportunities:

  • Multiple Myeloma Quilt of Courage
    Although we promised you closeups of the first quilt this week, we were so proud of the work you did that we took the quilt to ASH to be shown there. So, we will have the closeups next week. In the meantime, clicking on the quilt above will give you a closer view.

    We are still awaiting submissions for the second quilt from 7 members, and if they are not received, we will substitute submissions from the third quilt as they are received. The deadline for returning squares for the 3rd quilt is December 15th.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

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