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December 3, 2002 Myeloma Minute

What's News:

  • ATTENTION Philadelphia Support Group Members
    The special meeting with guest speaker Dr. Brian Durie, COB of the IMF, and Susie Novis, IMF President, will be held on Thursday, December 5 NOT Friday, December 6 as previously announced. The meeting will be held from 7-9 PM at Ralston House, 3615 Chestnut Street, Philadelphia. For directions, go to the Philadelphia MM Networking Group web site.
  • "Cancer-fighting" beer developed in Germany
    Using a method they are keeping secret, scientists brewed beer with 10 times the normal content of xanthohumol, but a calorie and alcohol content similar to that of standard beer.
  • LegisLink - End of Session Wrap-up
    Closing the book on one of the most politically tumultuous years in memory, the Senate and the House finished work and adjourned. Neither chamber is expected to return until early January. As a result, the 107th Session of Congress is essentially concluded.
  • Myeloma Matrix
    The Myeloma Matrix provides updated information about drugs beginning with pre-clinical developments and tracks drugs as they proceed through Phases I – III of clinical trials, drugs that have been FDA approved, and information on trials that are being conducted by NCI- sponsored cooperative groups as well as other myeloma study groups. The online version is updated regularly. If you would like to have a printed copy, call the toll-free hotline (800) 452-2873.
  • With the holidays coming, make sure you Shop for the Cure and help the IMF
    Whether you need flowers, sweaters, books, CDs, gadgets, or even the trip back home to deliver them in person, many of the finest e-tailers on the internet will make a donation to the IMF if you enter their websites via our "Shop for the Cure" page and then make a purchase. If you shop on the internet, it's a great way to help the IMF. Just visit our "Shop for the Cure" page at http://shop.myeloma.org.
  • Stay tuned to the Myeloma Minute for the latest updates from ASH!

What's New in Myeloma Research:

  • COX-2 Inhibitors Interfere With Bone Growth, Healing
    Researchers at Stanford University Medical Center have found that selective COX-2 inhibitors -- medications widely prescribed for painful inflammatory conditions such as osteoarthritis and rheumatoid arthritis --interfere with the healing process after a bone fracture or cementless joint implant surgery.

Advocacy Update:
Quality of Life Update:
  • CancerSource offers current information on complementary therapies with a non-biased, evidence-based approach. They provide evidence regarding the effectiveness and safety of many therapies that may be integrated with traditional cancer treatments and is a resource for those wishing to explore their use.

If you have a topic of particular interest that you would like us to feature, if you are starting a support group, or if you are in a support group that is doing something to make a real difference in the lives of mutiple myeloma patients and their families and friends, let us know.

Items of Interest:
  • Expert Opinions on Multiple Myeloma
    A multimedia, CME-accredited program for physicians with the chance to see world-renowned myeloma specialists sharing their knowledge, discussing treatment choices, and comparing their perspectives on controversial issues in multiple myeloma and related diseases.
  • Announcing the IMF's new MM Interactive
    An exciting new way for myeloma patients to get involved at patient seminars.
  • Bank On A Cure™
    The IMF is pleased to announce the launch of Bank On A Cure™, a groundbreaking international collaborative effort to establish a method to find new treatments while customizing care for current patients.
  • Myeloma At The Movies
    It has been our goal to bring our Patient & Family Seminars to people around the country who might not be able to attend an actual meeting, so we have set up a video lending library....
  • The OMNI Network matches oncology nurses chosen from the local community with cancer support groups. Their 45-minute interactive educational session presents the basics of myeloma and includes discussion, patient materials, and resources. Take advantage of this collaborative effort between the IMF and Oncology Nurses and schedule a session for your support group.

Important Dates to Remember:
  • Little Rock Community Workshop
    Saturday, March 22, 2003
    University of Arkansas, Medical Sciences
    Education III Bldg., - Pauly Auditorium
    4301 W. Markham Street
    Little Rock, AR 72205
  • Dallas Community Workshop
    Saturday, November 8, 2003
    Baylor University Medical Center
    Davis Auditorium - 17 Roberts Hospital
    3500 Gaston Avenue
    Dallas, Tx

Clinical Trials:

To help you find trials currently open for enrollment, the IMF has entered into partnerships with HopeLink and EmergingMed. Through these services, you can match a trial to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing material from the National Cancer Institute.

Exciting Opportunities:

  • Multiple Myeloma Quilt of Courage
    The first quilt is finished (!) and can be seen by clicking on the quilt above. Next week we will have detailed photos of each square with attributions. We are still awaiting submissions for the second quilt from 7 members, and if they are not received, we will substitute submissions from the third quilt as they are received. The deadline for returning squares for the 3rd quilt is December 15th.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

View Back Issues Online...
New to the IMF Myeloma Minute? See what you've been missing by viewing previous issues online!

Tell A Friend...
The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.

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