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November 13, 2002 IMF Myeloma Minute

What's News:

The IMF held the first MM Interactive™ Patient/Family Seminar this past weekend at the Fred Hutchinson Cancer Research Center in Seattle. Read all about it!

  • With the holidays coming, make sure you Shop for the Cure and help the IMF
    Whether you need flowers, sweaters, books, CDs, gadgets, or even the trip back home to deliver them in person, many of the finest e-tailers on the internet will make a donation to the IMF if you enter their websites via our "Shop for the Cure" page and then make a purchase. If you shop on the internet, it's a great way to help the IMF. Just visit our "Shop for the Cure" page at http://shop.myeloma.org.

What's New in Myeloma Research:

There has been so much coverage in the press this last week about several of these studies that we decided to include them again in our list.

Advocacy Update:
  • The IMF attends Ortho Biotec's patient advocacy event in La Jolla
    The IMF was represented at Ortho Biotec's informative and exciting patient advocacy event in La Jolla on November 6th and 7th. Ortho Biotec Products, L.P. President Gary Reedy, Patient Advocacy Director Arisa Cunningham, and an impressive staff of scientists conducted the conference both to inform advocates about research that is being done at the Johnson & Johnson Pharmaceutical Research and Development labs, and to enable advocates to network with each other to coordinate efforts on behalf of cancer patients nationwide. We were most encouraged to learn that not only are clinical studies continuing for such potential myeloma treatments as Doxil and Zarnestra (R115777), but that continuing research on Procrit (epoeietin alpha) suggests that it may have beneficial effects beyond the treatment of anemia. Most exciting of all in was the overview of the research in genomics and diagnostic assays that will surely change the nature of cancer diagnosis and treatment.

Quality of Life Update:

If you have a topic of particular interest that you would like us to feature, if you are starting a support group, or if you are in a support group that is doing something to make a real difference in the lives of mutiple myeloma patients and their families and friends, let us know.

Items of Interest:
  • The Art of Healing: Expressions of Cancer Survivors
    On November 13, cancer survivors and patients will take paintbrush in hand to transform a blank canvas into a life-affirming mural. The final mural will be included in a collection of online greeting cards designed especially for people living with cancer. The collection of free cards will be available exclusively at http://greetings.yahoo.com/cards/art-of-healing starting November 13 and will be available throughout 2003.
  • Expert Opinions on Multiple Myeloma
    A multimedia, CME-accredited program for physicians with the chance to see world-renowned myeloma specialists sharing their knowledge, discussing treatment choices, and comparing their perspectives on controversial issues in multiple myeloma and related diseases.
  • Announcing the IMF's new MM Interactive
    An exciting new way for myeloma patients to get involved at patient seminars.
  • Bank On A Cure™
    The IMF is pleased to announce the launch of Bank On A Cure™, a groundbreaking international collaborative effort to establish a method to find new treatments while customizing care for current patients.
  • Myeloma At The Movies
    It has been our goal to bring our Patient & Family Seminars to people around the country who might not be able to attend an actual meeting, so we have set up a video lending library....
  • The OMNI Network matches oncology nurses chosen from the local community with cancer support groups. They present a 45-minute interactive educational session to the group that includes discussion, patient materials, and resources. Take advantage of this collaborative effort between the IMF and Oncology Nurses and schedule a session for your support group.
  • Myeloma Matrix
    The IMF is committed to providing a total overview of the "future" as well as the current state of myeloma treatments. The Myeloma Matrix provides updated information about drugs beginning with pre-clinical developments and tracks drugs as they proceed through Phases I – III of clinical trials, drugs that have been FDA approved, and information on trials that are being conducted by NCI- sponsored cooperative groups as well as other myeloma study groups. Call the toll-free hotline (800) 452-2873 for your copy.

Important Dates to Remember:
  • From Mozart to Musicals...and More
    Baritone Domenic Guastaferro, who lost his wife to MM, will give a a third vocal recital in New Rochelle, NY for the benefit of the IMF on Saturday, November 30.

Clinical Trials:

To help you find trials currently open for enrollment, the IMF has entered into partnerships with HopeLink and EmergingMed. Through these services, you can match a trial to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing material from the National Cancer Institute.

Exciting Opportunities:

  • Multiple Myeloma Quilt of Courage
    Squares are being collected for the third Myeloma Quilt of Courage. The first quilt is currently being pieced together and we are anticipating that it will be available on the web site for viewing in mid-November. We are still awaiting submissions for the second quilt from 7 members, and if they are not received, we will substitute submissions from the third quilt as they are received. The deadline for returning squares for the 3rd quilt is December 15th.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

View Back Issues Online...
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