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November 5, 2002 IMF Myeloma Minute

What's News:

  • With the holidays coming, make sure you Shop for the Cure and help the IMF
    Whether you need flowers, sweaters, books, CDs, gadgets, or even the trip back home to deliver them in person, many of the finest e-tailers on the internet will make a donation to the IMF if you enter their websites via our "Shop for the Cure" page and then make a purchase. If you shop on the internet, it's a great way to help the IMF. Just visit our "Shop for the Cure" page at http://shop.myeloma.org.
  • IMF (UK) recently received a grant of nearly £136,000 ($212,184) from the British Department of Health to launch its innovative outreach program, MAGIC (Myeloma Advocacy, Guidelines and Information Community).
    The money will be used over a three-year period to fund a project coordinator to set up information, education and advocacy programs for oncology and hematology nurses working in the field of myeloma and its related disorders. There are currently 275 nurses throughout the UK participating in the MAGIC programme.

    In addition to disseminating information to patients and carers via 'MAGIC' nurses, other key aims are
    • To assist nurses working with myeloma patients to act as specialised resources to provide information and support to patients and their families whilst improving standards of care and support
    • To improve and maintain nurse education regarding all aspects of myeloma
    • To aim towards the establishment of minimum nursing standards and guidelines
    • To allow nurses to work as advocates for myeloma and IMF (UK)

What's New in Myeloma Research:

  • Myeloma aetiology and epidemiology.
    Substantial improvements in our understanding of the biology of myeloma have important implications for aetiological studies aimed at defining the causative factors for myeloma.

Advocacy Update:

Quality of Life Update:

  • NCCS Announces New Cancer Survival Toolbox Website
    Developed by survivors, nurses and social workers representing a unique collaboration of NCCS, the Oncology Nursing Society and the Association of Oncology Social Work, the Cancer Survival Toolbox is a set of self-learning audio programs. Special topics include Caring for the Caregiver, Finding Ways to Pay for Care and the needs of Older Persons with cancer.

If you have a topic of particular interest that you would like us to feature, if you are starting a support group, or if you are in a support group that is doing something to make a real difference in the lives of mutiple myeloma patients and their families and friends, let us know.

Items of Interest:
  • Expert Opinions on Multiple Myeloma
    A multimedia, CME-accredited program for physicians with the chance to see world-renowned myeloma specialists sharing their knowledge, discussing treatment choices, and comparing their perspectives on controversial issues in multiple myeloma and related diseases.
  • Announcing the IMF's new MM Interactive
    An exciting new way for myeloma patients to get involved at patient seminars.
  • Bank On A Cure™
    The IMF is pleased to announce the launch of Bank On A Cure™, a groundbreaking international collaborative effort to establish a method to find new treatments while customizing care for current patients.
  • Myeloma At The Movies
    It has been our goal to bring our Patient & Family Seminars to people around the country who might not be able to attend an actual meeting, so we have set up a video lending library....
  • The OMNI Network matches oncology nurses chosen from the local community with cancer support groups. They present a 45-minute interactive educational session to the group that includes discussion, patient materials, and resources. Take advantage of this collaborative effort between the IMF and Oncology Nurses and schedule a session for your support group.
  • Myeloma Matrix
    The IMF is committed to providing a total overview of the "future" as well as the current state of myeloma treatments. The Myeloma Matrix provides updated information about drugs beginning with pre-clinical developments and tracks drugs as they proceed through Phases I – III of clinical trials, drugs that have been FDA approved, and information on trials that are being conducted by NCI- sponsored cooperative groups as well as other myeloma study groups. Call the toll-free hotline (800) 452-2873 for your copy.

Important Dates to Remember:
  • From Mozart to Musicals...and More
    Baritone Domenic Guastaferro, who lost his wife to MM, will give a a third vocal recital in New Rochelle, NY for the benefit of the IMF on Saturday, November 30.

Clinical Trials:

To help you find trials currently open for enrollment, the IMF has entered into partnerships with HopeLink and EmergingMed. Through these services, you can match a trial to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing material from the National Cancer Institute.

Exciting Opportunities:

  • Multiple Myeloma Quilt of Courage
    Squares are being collected for the third Myeloma Quilt of Courage. The first quilt is currently being pieced together and we are anticipating that it will be available on the web site for viewing in mid-November. The second quilt will be pieced together in mid-November as well. The deadline for returning squares for the 3rd quilt is December 15th.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

View Back Issues Online...
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Tell A Friend...
The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.

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