We are international

October 22, 2002 IMF Myeloma Minute

What's News:

  • Specialized Scan Could Nix Chemo
    From "Wired" Magazine—Doctors running souped-up MRI machines may now be able to predict outcomes for chemo—before they prescribe it.
  • End of Session Wrap Up (Sort of)
    Just as IMF Advocate Greg Brozeit has been reporting, Congress is packing up to leave town with many healthcare issues unresolved. Here is a wrap up from LegisLink.

What's New in Myeloma Research:

  • Multiple myeloma: role of allogeneic transplantation.
    In an attempt to decrease the high transplant-related mortality of conventional allogeneic transplants and to employ the proven efficacy of immunoreactive donor T lymphocytes, the use of nonmyeloablative transplants or "mini-transplants" is increasing.

Advocacy Update:

Quality of Life Update:

  • Can long-term tea drinking strengthen bones?
    The results of Taiwan study published in May suggests that it may be so, but some researchers warn that there are too many confounding variables to recommend changing your tea drinking habits.
  • Duke University was the site of the IMF's third annual Support Group Leaders' Retreat, the weekend of October 12th. Leaders from Alaska, Arizona, Delaware, Florida, Massachusetts, North Carolina, Pennsylvania, Wisconsin, Nova Scotia, and Japan attended, proving that the reach of the IMF is truly international.

    The hours were long, but the rewards were great for all who participated. Among the topics: practical survivorship tips, the art of managing group dynamics, how to find and evaluate information, de-mystifying the clinical trials process. One facilitator explored anxiety and grief through song, discussion and action plans. It was both emotional and healing for the participants.

    Read the full report and see the pictures in the next Myeloma Today coming soon.

If you have a topic of particular interest that you would like us to feature, if you are starting a support group, or if you are in a support group that is doing something to make a real difference in the lives of mutiple myeloma patients and their families and friends, let us know.

Items of Interest:
  • Expert Opinions on Multiple Myeloma
    A multimedia, CME-accredited program for physicians with the chance to see world-renowned myeloma specialists sharing their knowledge, discussing treatment choices, and comparing their perspectives on controversial issues in multiple myeloma and related diseases.
  • Announcing the IMF's new MM Interactive
    An exciting new way for myeloma patients to get involved at patient seminars.
  • Bank On A Cure™
    The IMF is pleased to announce the launch of Bank On A Cure™, a groundbreaking international collaborative effort to establish a method to find new treatments while customizing care for current patients.
  • Myeloma At The Movies
    It has been our goal to bring our Patient & Family Seminars to people around the country who might not be able to attend an actual meeting, so we have set up a video lending library....
  • The OMNI Network matches oncology nurses chosen from the local community with cancer support groups. They present a 45-minute interactive educational session to the group that includes discussion, patient materials, and resources. Take advantage of this collaborative effort between the IMF and Oncology Nurses and schedule a session for your support group.
  • Myeloma Matrix
    The IMF is committed to providing a total overview of the "future" as well as the current state of myeloma treatments. The Myeloma Matrix provides updated information about drugs beginning with pre-clinical developments and tracks drugs as they proceed through Phases I – III of clinical trials, drugs that have been FDA approved, and information on trials that are being conducted by NCI- sponsored cooperative groups as well as other myeloma study groups. Call the toll-free hotline (800) 452-2873 for your copy.

Important Dates to Remember:
  • From Mozart to Musicals...and More
    Baritone Dominic Guastaferro, who lost his wife to MM, will give a vocal recital in New York City for the benefit of the IMF on Sunday, November 10.

Clinical Trials:

To help you find trials currently open for enrollment, the IMF has entered into partnerships with HopeLink and EmergingMed. Through these services, you can match a trial to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing material from the National Cancer Institute.

Exciting Opportunities:

  • Shop for the Cure
    Many of the finest e-tailers on the internet will make a donation to the IMF if you enter their websites via our "Shop for the Cure" page and then make a purchase. If you shop on the internet, it's a great way to help the IMF. Just visit our "Shop for the Cure" page at http://shop.myeloma.org
  • Multiple Myeloma Quilt of Courage
    The first quilt is currently being pieced together and we are anticipating that it will be available on the web site for viewing in mid-November. The second quilt will be pieced together in mid-November as well. And we are now accepting orders for squares for our third quilt!

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

View Back Issues Online...
New to the IMF Myeloma Minute? See what you've been missing by viewing previous issues online!

Tell A Friend...
The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.

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