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October 2, 2002 IMF Myeloma Minute

What's News:

  • Just a few more days until the Ribbon of Hope: Making A World of Difference Gala!
    For those of you who cannot attend but would like to support the IMF, it is not too late to buy a $300 ticket to enable a patient—who might otherwise be unable to attend—to join us for what we know will be a truly uplifting evening. The person attending will be there as your ambassador; you will be acknowledged at the event.
  • The IMF is pleased to announce that Dr. Bhawna Sirohi and Dr. Hartmut Goldschmidt have joined the IMF Scientific Advisory Board. Dr. Sirohi works with IMF Scientific Advisor, Professor Ray Powles at the Royal Marsden Hospital in Sutton, Surrey, UK. Dr. Sirohi recently attended the IMF Scientific Advisor's Retreat on behalf of Professor Powles where she was an integral part of the team involved in developing the treatment guidelines for multiple myeloma. Dr. Goldschmidt is at the University of Heidleberg, Germany. Dr. Goldschmidt chaired a Clinical Conference as well as an IMF Patient & Family Seminar in Heidelberg, in September 2001.
  • The IMF is pleased to announce that Benson Klein was recently elected to the IMF Board of Directors. Mr. Klein is an attorney with extensive professional business experience who brings to the IMF over 30 years experience serving on Boards of both for-profit and non-profit organizations. Mr. Klein and his wife Carol are co-dinner chairs for the IMF's Ribbon of Hope Gala that was held in New York, October, 2000 and once again this year are co-dinner chairs for our Ribbon of Hope Gala taking place this weekend in Washington, DC. Benson and Carol live in Bethesda, Maryland.

What's New in Myeloma Research:

Advocacy Update:

Elections, Lame Ducks, and Unfinished Business

Inactivity is the theme for congressional action as the 107th Congress draws to a close. Cancer research funding will likely be a big loser in the short term if nothing changes. Please continue to contact your members of Congress to insist on action on this year's appropriations bills.

Quality of Life Update:

  • IMF Support Group Leaders Retreat
    October 10, 2002 in Durham, North Carolina
    If you are a support group leader, this is your chance not only to gather tips and information from some real pros, but most importantly learn from and share experiences with fellow group leaders, some from as far away as Japan!

    Facilitators include
    • Carol Svec, speaking on the art of gathering information after a diagnosis
    • Greg Pacini, who will help you help others manage anxieties and grief
    • Rachel Schannberg, who will speak on understanding the dynamics of your group
    • Our own Dr. Brian Durie, who will address options and access in the world of clinical trials.

If you have a topic of particular interest that you would like us to feature, if you are starting a support group, or if you are in a support group that is doing something to make a real difference in the lives of mutiple myeloma patients and their families and friends, let us know.

Items of Interest:
  • Expert Opinions on Multiple Myeloma
    A multimedia, CME-accredited program for physicians with the chance to see world-renowned myeloma specialists sharing their knowledge, discussing treatment choices, and comparing their perspectives on controversial issues in multiple myeloma and related diseases.
  • Announcing the IMF's new MM Interactive
    An exciting new way for myeloma patients to get involved at patient seminars.
  • Bank On A Cure
    The IMF is pleased to announce the launch of Bank On A Cure™, a groundbreaking international collaborative effort to establish a method to find new treatments while customizing care for current patients.
  • Myeloma At The Movies.
    It has been our goal to bring our Patient & Family Seminars to people around the country who might not be able to attend an actual meeting, so we have set up a video lending library....
  • The OMNI Network matches oncology nurses chosen from the local community with cancer support groups. They present a 45-minute interactive educational session to the group that includes discussion, patient materials, and resources. Take advantage of this collaborative effort between the IMF and Oncology Nurses and schedule a session for your support group.
  • Myeloma Matrix
    The IMF is committed to providing a total overview of the "future" as well as the current state of myeloma treatments. The Myeloma Matrix provides updated information about drugs beginning with pre-clinical developments and tracks drugs as they proceed through Phases I – III of clinical trials, drugs that have been FDA approved, and information on trials that are being conducted by NCI- sponsored cooperative groups as well as other myeloma study groups. Call the toll-free hotline (800) 452-2873 for your copy.

Important Dates to Remember:
Clinical Trials:

Exciting Opportunities:

  • Shop for the Cure:
    Many of the finest e-tailers on the internet will make a donation to the IMF if you enter their websites via our "Shop for the Cure" page and then make a purchase. If you shop on the internet, it's a great way to help the IMF. Just visit our "Shop for the Cure" page at http://shop.myeloma.org
  • Multiple Myeloma Quilt of Courage
    All the squares for the first quilt have been sold! We are now taking orders for the second quilt. The deadline has been extended to be October 15th.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

View Back Issues Online...
New to the IMF Myeloma Minute? See what you've been missing by viewing previous issues online!

Tell A Friend...
The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.

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