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April 30, 2002: IMF Myeloma Minute
05.07.02

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the official newsletter of the IMF!


What's New at the IMF:

One Voice Against Cancer Advocacy Days, June 3rd & 4th, 2002
Join forces with fellow myeloma patients, their families, friends and the IMF as we come together to lobby for an increased research budget for the National Cancer Institute. Become an advocate for the myeloma community! Every voice counts - make sure your voice is heard.

A Word About Advocacy Day from IMF President, Susie Novis:

"The International Myeloma Foundation is working feverishly this spring to bring the strongest message of its patient and family community to Washington D.C. As we engage in what is expected to be a tight budget battle for myeloma research and treatment dollars, the IMF has mapped out a strategy we believe will give the issue the highest exposure on Capitol Hill.

With the blood cancer community convening advocacy meetings in DC at the end of this month, we felt that it was important to plan a second series of advocacy events for the summer. We want to maximize the amount of time we are in front of lawmakers and their staff. In this difficult budget climate, one visit will simply not be enough.

Our focus for the June events remains clear... lobbying, media outreach and constituency building. We believe that the budget calendar being what it is, our resources will be best spent in D.C. in this time period. We strongly encourage our members to become involved. Working together, we WILL make a difference."

Make it a Week in Washington -- Extend Your Advocacy Trip to Include the IMF's D.C. Area Patient & Family Seminar!
The International Myeloma Foundation will host a Patient & Family Seminar in the
Washington DC area at the Ritz-Carlton in Tyson's Corners, VA on June 7th and 8th, 2002. IMF Seminars are the best way to stay abreast of the latest developments in the treatment and management of multiple myeloma. They are excellent for both newly-diagnosed patients as well as "myeloma veterans." Our distinguished panel of myeloma specialists include:

  • Dr. Brian G.M. Durie - Novel therapies, including new technologies for myeloma.
  • Dr. Philip Greipp - Supportive care and complications of myeloma bone disease.
  • Dr. Robert Kyle - Myeloma 101 / MGUS
  • Dr. Sundar Jagannath - High dose therapy and transplant.
  • Dr. Vincent Rajkumar - Approaches to newly diagnosed myeloma and conventional therapies.

We are also pleased to announce that Dr. Andrew von Eschenbach, the newly-appointed director of the National Cancer Institute, will be the keynote speaker at the Seminar Welcome Dinner on Friday, June 7th! The registration fee is $95 per person for the Saturday seminar or $145 for both the Saturday seminar and a Friday evening welcome reception and dinner. For more information, or to register, please call Suzanne Battaglia at (800) 452-CURE x. 227. You may also register online. We look forward to seeing you at the Seminar!

Please Note:
The deadline to receive the IMF's pre-negotiated discounted room rate
at the Ritz-Carlton is Wednesday, May 1st.

Ribbon of Hope - Making a World of Difference 12th Anniversary Gala
Saturday, October 5, 2002 will be an evening of hope and celebration as the International Myeloma Foundation commemorates its 12th Anniversary Ribbon of Hope Gala in Washington, D.C. This will be a symbolic evening to honor the thousands of patients who are battling multiple myeloma and the people who are making a difference in the world of cancer. This year, we are honoring Daniel E. Smith, National Vice President for Federal and State Government Relations for the American Cancer Society. Dan is also the founder of One Voice Against Cancer (OVAC), a Washington, D.C.-based advocacy group dedicated to bringing cancer coalitions together to enhance policymakers' awareness of the need for substantial increases in essential cancer programs. We look forward to seeing you at this special event. In addition to attending, you can help make the party a tremendous success by becoming an event sponsor, donating an auction item, or placing an ad in the Tribute Journal. For more information, please contact Suzanne Battaglia at (800) 452-CURE x. 227.


Research Abstracts:

Global gene expression profiling of multiple myeloma, monoclonal gammopathy of undetermined significance, and normal bone marrow plasma cells.

Immunophenotypic evaluation of the plasma cell compartment in multiple myeloma: a tool for comparing the efficacy of different treatment strategies and predicting outcome.

Enhancement of the antitumor properties of interleukin-2 by its targeted delivery to the tumor blood vessel extracellular matrix.


Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.


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