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April 16, 2002: IMF Myeloma Minute
04.17.02

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the official newsletter of the IMF!


Make Plans to Attend an Upcoming IMF Patient & Family Seminar:

The next IMF Patient & Family Seminar will take place in Washington D.C. on June 7th and 8th. We are pleased to announce that Dr. Andrew von Eschenbach, newly-appointed director of the National Cancer Institute, will provide the keynote address. For more information, or to register, please click here.

The IMF will also host Patient & Family Seminars in Chicago, IL in August and Seattle, WA in November. Stay tuned for details about these upcoming, empowering meetings.


Advocacy Update:

Join the IMF's Army of Advocates!
The myeloma community needs your help! Join us in Washington D.C. on June 3rd and 4th as we lobby Congress to increase funding for diversified research and prevention programs at the National Institutes of Health (NIH), the National Cancer Institute (NCI) and cancer programs at Centers for Disease Control and Prevention (CDC). OVAC has been credited with maintaining recent funding increases for federal cancer research funding. Click here to learn more about what this event means to members of the myeloma community.

The following article appeared in the Waterbury Republican-American (a Connecticut newspaper) on Monday, April 15, 2002, and further highlights the importance of supporting the upcoming OVAC Advocacy day. We congratulate Michael & Robin Tuohy, leaders of the Prospect Area MM Networking Group for taking such an active role in supporting this important advocacy event. Click here to read the article.


Clinical Trials:

The following clinical trial was added to the NCI's clinical trials database for the month of April:

Phase III Randomized Study of Dexamethasone With or Without Thalidomide in Patients With Newly Diagnosed Multiple Myeloma

For more information about clinical trials, or to search for open trials in your area, please visit our clinical trials page.

Coming Soon:
The International Myeloma Foundation is proud to introduce the
Myeloma Matrix, a handy, clinical trials reference tool for patients and physicians. The Myeloma Matrix will track drugs of interest to the myeloma community from Phase I clinical trials through FDA approval. This easy-to-read chart will help you make sense and keep track of the many new drugs currently in development for treating myeloma and related complications. The Myeloma Matrix is currently undergoing its finishing touches, and will be available online at myeloma.org in the coming weeks.


Recommended Reading:

Coping with Prednisone: It May Work Miracles, But How Do You Handle the Side Effects?
By Eugenia Zuckerman and Julie R. Ingelfinger, M.D.
Approximately 1 million Americans each year take high doses of prednisone and related drugs. Many of them are myeloma patients. While the drug is often effective in treating myeloma, patients frequently battle with side-effects such as bloating, mood swings, gastrointestinal problems and increased susceptibility to infection. Author Eugenia Zuckerman, taking prednisone because of a rare lung disease, along with her sister, Dr. Julie Ingelfinger, have written this detailed, practical guide to making treatment with prednisone and other related drugs as effective and trouble-free as possible.

Numb Toes and Other Woes: More on Peripheral Neuropathy (The Sequel to Numb Toes and Aching Soles)
By John A. Senneff
Here's the sequel to the much-acclaimed Numb Toes and Aching Soles: Coping with Peripheral Neuropathy. That indispensable resource has made a big difference in the lives of thousands suffering from this nerve disorder. Now this important treatment update, written by the same author, promises even more useful ideas.

To purchase one or all of these books online, please utilize the IMF's Shop for a Cure program. When you make a purchase via Shop for a Cure, a portion of your purchase amount is donated back to the IMF!


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